Re: Interpreting significance of IgG antibody levels of varicella zoster

[Guest guest]

Did you see my post about aciclovir/valtrex having an effect on serotonin pathways in the brain? Have you tried melatonin and/or 5htp in the past – is she tolerates them maybe worth trying now?Esp melatonin as also has antiviral actions….http://www.ncbi.nlm.nih.gov/pubmed/18410585 (no idea what sb-73 is!)http://www.ncbi.nlm.nih.gov/pubmed/21768800Natasa From: KATHRYN Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Tue, 12 Jun 2012 22:57:38 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Interpreting significance of IgG antibody levels of varicella zoster

Hi everyone

Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

Any thoughts anyone?

Be

Kath

[Guest guest]

I think there was a press report recently about low levels of vitamin D found in chicken pox. To: Autism-Biomedical-Europe Sent: Tuesday, 12 June 2012, 23:57 Subject: Interpreting significance of IgG antibody levels of

varicella zoster

Hi everyone

Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

Any thoughts anyone?

Be

Kath

[Guest guest]

Thanks Natasha this def fits as she has low serotoninin on organic acid testing and low vit D despite supplementation.She takes both melatonin and 5 HTP without any obvious benefit.She has complete sleeplessness currently ,since we started antivirals!KathSent from my iPad

Did you see my post about aciclovir/valtrex having an effect on serotonin pathways in the brain? Have you tried melatonin and/or 5htp in the past – is she tolerates them maybe worth trying now?Esp melatonin as also has antiviral actions….http://www.ncbi.nlm.nih.gov/pubmed/18410585 (no idea what sb-73 is!)http://www.ncbi.nlm.nih.gov/pubmed/21768800Natasa From: KATHRYN Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Tue, 12 Jun 2012 22:57:38 -0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Interpreting significance of IgG antibody levels of varicella zoster

Hi everyone

Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

Any thoughts anyone?

Be

Kath

[Guest guest]

Ours was 692.4 mIU/ml

It says positive means above 150, and there is some link with chickenpox

It bothers me that clinics make you pay for these tests and then have no idea what the results mean...

> To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Cheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?KathSent from my iPad

Ours was 692.4 mIU/ml

It says positive means above 150, and there is some link with chickenpox

It bothers me that clinics make you pay for these tests and then have no idea what the results mean...

> To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Yes it all fits.Have tried to get on this vitamin D council autism research but dd is too old!KathSent from my iPad

I think there was a press report recently about low levels of vitamin D found in chicken pox. To: Autism-Biomedical-Europe Sent: Tuesday, 12 June 2012, 23:57 Subject: Interpreting significance of IgG antibody levels of

varicella zoster

Hi everyone

Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

Any thoughts anyone?

Be

Kath

[Guest guest]

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine.

I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Cheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?

KathSent from my iPad

Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean...

> To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Hi that's interesting about your daughter having had chicken pox at 6 months. Apparently that is a vulnerable age to get chicken pox as the immune system isn't fully developed.From what I have read it doesn't start making IgG antibodies of it's own till about 6 months of age.When did she develop autism? Yes your daughters results show past exposure to chicken pox. I am just trying to work out how high an IgG level is too high, and can a very high level be interpreted as evidence of re activation of infection.We need a sympathetic immunologist.KathSent from my iPad

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine.

I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Cheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?

KathSent from my iPad

Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean...

> To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

she developed autism symptoms aged 15 months after MMR and intravenous antibiotics for cellulitis on face caused by a v small bruise when she banged a toy on her head...

How did yours develop autism symptoms

Im sorry Im in the dark regarding what the levels mean.

Do you think IgG levels of varicella zoster remain high 7 years after the chicken pox infection, or does it mean the chicken pox infection is still there. I mean I thought most vaccines would require re-doing eveyr 10 years - would this one?

Do you understand the point Im trying to make - its hard to explain!

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 09:23:11 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Hi that's interesting about your daughter having had chicken pox at 6 months. Apparently that is a vulnerable age to get chicken pox as the immune system isn't fully developed.From what I have read it doesn't start making IgG antibodies of it's own till about 6 months of age.

When did she develop autism? Yes your daughters results show past exposure to chicken pox. I am just trying to work out how high an IgG level is too high, and can a very high level be interpreted as evidence of re activation of infection.We need a sympathetic immunologist.

Kath

Sent from my iPad

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine. I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Cheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?

KathSent from my iPad

Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean...

> To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Yes I understand, that is what I am trying to work out how long IgG level remain high, from what I have read IgG levels do remain high after illness but not necessarily after vaccination.IgM levels decline after illness or exposure however quite quickly that is why it isnt always possible to pick up recent exposure or reactivation from IgM levels.Mainstream medicine interprets high levels of IgG after several years purely as evidence of past infection nothing more.Dr G interprets it as possible evidence of re activation of infection.My daughter started to decline after chicken pox at 12 months but deteriorated markedly after the MMR at 14 months.She also had antibiotics for repeated ear infections.She also had cellulitis after an allergic reaction. All evidence of a poorly functioning immune system I thinkKathSent from my iPad

she developed autism symptoms aged 15 months after MMR and intravenous antibiotics for cellulitis on face caused by a v small bruise when she banged a toy on her head...

How did yours develop autism symptoms

Im sorry Im in the dark regarding what the levels mean.

Do you think IgG levels of varicella zoster remain high 7 years after the chicken pox infection, or does it mean the chicken pox infection is still there. I mean I thought most vaccines would require re-doing eveyr 10 years - would this one?

Do you understand the point Im trying to make - its hard to explain!

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 09:23:11 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Hi that's interesting about your daughter having had chicken pox at 6 months. Apparently that is a vulnerable age to get chicken pox as the immune system isn't fully developed.From what I have read it doesn't start making IgG antibodies of it's own till about 6 months of age.

When did she develop autism? Yes your daughters results show past exposure to chicken pox. I am just trying to work out how high an IgG level is too high, and can a very high level be interpreted as evidence of re activation of infection.We need a sympathetic immunologist.

Kath

Sent from my iPad

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine. I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Cheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?

KathSent from my iPad

Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean...

> To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

This book discusses what those tests mean. http://www.amazon.com/The-Myth-Autism-Misunderstood-Destroying/dp/1616081716/ref=cm_cr_pr_product_topAlso seehttp://www.youtube.com/watch?v=qAkj2hBx9tgGP and most of NHS won't have a clue of course …Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 13 Jun 2012 08:12:06 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Interpreting significance of IgG antibody levels of varicella zoster

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine.

I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zosterCheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?KathSent from my iPad Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean... > To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Hi Kath

My son IGG has always been around 2200 in England, we have been treating at Breakspear for years. He has bowel problems (soft stools several times a day).

Last year we went to Brazil and, surprisingly, as soon we got there his bowel were functioning better (no soft stools). In Brazil he was able to eat fruits that here triggers very soft stools (mango, apple, broccoli and even yogurt ice cream and other foods). So, while over there, someone recommended me to see a top allergist. Amazingly in Brazil his IgG had gone down to 600. He tested positive for environmental allergies (dust, mould, hay fever, dog fur). So, the doctor told me about cross allergies that is when your environmental allergies affect food and reccomended desensitisation drops, he said EPD injections are not effective. Since we came back from Brazil with new evidence I manage to get my son started in drops desensitisation for dust (we are doing one at a time) through the NHS. Early days still.. When we did a blood test back in England recently the IGG is high again at 1600 (after I removed all the house carpet, curtains, changed the mattress). His bowels have deteriorated again and are as bad as they used to be. Just telling you that because maybe your child could have unknown allergies. Maybe it is a good idea to see a good allegist.

Best regards

Vilma

Interpreting significance of IgG antibody levels of varicella zoster

>

> Hi everyone

>

> Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

>

> My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

>

> Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

>

> The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

>

> I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

>

> I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

>

> Any thoughts anyone?

>

> Be

>

> Kath

>

>

>

> ------------------------------------

>

> DISCLAIMER

> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.<

br>>

[Guest guest]

Thanks Vilma that's interesting, it sounds as if the Uk is toxic for your son!Yes my daughter has lots of allergies that we know of. And goodness how many we don't know about.she also has a problem with soft stool constipation.Which allergist are you seeing? I am trying to weigh up whether to try desensitisation to antiviral drugs.KathSent from my iPad

Hi Kath

My son IGG has always been around 2200 in England, we have been treating at Breakspear for years. He has bowel problems (soft stools several times a day).

Last year we went to Brazil and, surprisingly, as soon we got there his bowel were functioning better (no soft stools). In Brazil he was able to eat fruits that here triggers very soft stools (mango, apple, broccoli and even yogurt ice cream and other foods). So, while over there, someone recommended me to see a top allergist. Amazingly in Brazil his IgG had gone down to 600. He tested positive for environmental allergies (dust, mould, hay fever, dog fur). So, the doctor told me about cross allergies that is when your environmental allergies affect food and reccomended desensitisation drops, he said EPD injections are not effective. Since we came back from Brazil with new evidence I manage to get my son started in drops desensitisation for dust (we are doing one at a time) through the NHS. Early days still.. When we did a blood test back in England recently the IGG is high again at 1600 (after I removed all the house carpet, curtains, changed the mattress). His bowels have deteriorated again and are as bad as they used to be. Just telling you that because maybe your child could have unknown allergies. Maybe it is a good idea to see a good allegist.

Best regards

Vilma

Interpreting significance of IgG antibody levels of varicella zoster

>

> Hi everyone

>

> Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

>

> My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

>

> Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

>

> The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

>

> I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

>

> I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

>

> Any thoughts anyone?

>

> Be

>

> Kath

>

>

>

> ------------------------------------

>

> DISCLAIMER

> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.<

br>>

[Guest guest]

Hi Kath

I asked my GP to go to ST Hospital in London that is the top allergist hospital (I was trying not to get to pay anymore for treatment, after been with Breakspear for a long time). In there I first saw a general allergist who deceided I had to see the top consultant allergist (Dr Adam Fox). As we were in the waiting list to see Dr Fox and the waiting list was very long, I deceided to go to see him privately. It was worth it, he was lovely and we are back in the NHS now, I just had to pay for one appt with him to speed things up. He seems to be one of the top in Britain, he agreed with everything the other Brazilian allergist said . We had already done lots of blood tests and I had all the results with me in my first appt..

Good luck in your decision.

Vilma

(

Interpreting significance of IgG antibody levels of varicella zoster

>

> Hi everyone

>

> Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.

>

> My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.

>

> Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.

>

> The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.

>

> I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.

>

> I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.

>

> Any thoughts anyone?

>

> Be

>

> Kath

>

>

>

> ------------------------------------

>

> DISCLAIMER

> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.<

br>>

[Guest guest]

Thanks Natasha you have re motivated me to think again about antiviralsSent from my iPad

This book discusses what those tests mean. http://www.amazon.com/The-Myth-Autism-Misunderstood-Destroying/dp/1616081716/ref=cm_cr_pr_product_topAlso seehttp://www.youtube.com/watch?v=qAkj2hBx9tgGP and most of NHS won't have a clue of course …Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 13 Jun 2012 08:12:06 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Interpreting significance of IgG antibody levels of varicella zoster

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine.

I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zosterCheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?KathSent from my iPad Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean... > To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Is this an option? http://en.wikipedia.org/wiki/FamciclovirFrom: Kath Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 13 Jun 2012 12:04:40 +0100To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Cc: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Thanks Natasha you have re motivated me to think again about antiviralsSent from my iPad

This book discusses what those tests mean. http://www.amazon.com/The-Myth-Autism-Misunderstood-Destroying/dp/1616081716/ref=cm_cr_pr_product_topAlso seehttp://www.youtube.com/watch?v=qAkj2hBx9tgGP and most of NHS won't have a clue of course …Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 13 Jun 2012 08:12:06 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Interpreting significance of IgG antibody levels of varicella zoster

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine.

I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zosterCheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?KathSent from my iPad Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean... > To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

I gather it's even more expensive than valtrex but yes def would give it a go. Has your son had a SPECT scan done? I remember posts a while back about a mobile SPECT scanner.I am just building up to making another app with Dr G. I know there's probably no point unless we are prepared to give the antivirals another go.Sent from my iPad

Is this an option? http://en.wikipedia.org/wiki/FamciclovirFrom: Kath Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 13 Jun 2012 12:04:40 +0100To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Cc: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

Thanks Natasha you have re motivated me to think again about antiviralsSent from my iPad

This book discusses what those tests mean. http://www.amazon.com/The-Myth-Autism-Misunderstood-Destroying/dp/1616081716/ref=cm_cr_pr_product_topAlso seehttp://www.youtube.com/watch?v=qAkj2hBx9tgGP and most of NHS won't have a clue of course …Natasa Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 13 Jun 2012 08:12:06 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Interpreting significance of IgG antibody levels of varicella zoster

Yes our daughter is 7 now but she had chickenpox age 6 months! Do you think that is what these levels mean? No we have not had chicken pox vaccine.

I dont know what the result means and I worry the labs do tests to make money rather than for any particular reason...

CC: autism-biomedical-europe To: Autism-Biomedical-Europe From: butler39@...Date: Wed, 13 Jun 2012 08:51:47 +0100Subject: Re: Interpreting significance of IgG antibody levels of varicella zosterCheers , has your child had chicken pox and if so at what age.Have they been vaccinated against chicken pox. Apparently IgG levels are always higher if you have had the illness rather than the vaccination.I am struggling to understand the significance of positive if positive just means past exposure. How high is too high?KathSent from my iPad Ours was 692.4 mIU/ml It says positive means above 150, and there is some link with chickenpox It bothers me that clinics make you pay for these tests and then have no idea what the results mean... > To: Autism-Biomedical-Europe > Date: Tue, 12 Jun 2012 22:57:38 +0000> Subject: Interpreting significance of IgG antibody levels of varicella zoster> > Hi everyone> > Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster.> > My daughters levels were very high at 3460. She had chicken pox at 12 months, which did mark the start of her decline into autism.she is now 18.> > Dr G thinks this is the most significant lead we have to work with and these high levels are evidence of re activation of the virus.> > The GP and other NHS Drs of course think this is just evidence of a well functioning immune system, and that there is no upper limit for IgG.They are however unable to tell me what a normal range is or how long Levels remain high after infection.> > I have spoken to the lab (Drs laboratory) and they feel these results are suspect as she was only 12 months at the time of infection.> > I ask as Dr G seems to think antivirals are the main way forward but she has developed sensitivity to valtrex and aciclovir. Her OCD behaviours seem to remain a lot worse after antivirals and I am reluctant to try them again.> > Any thoughts anyone?> > Be > > Kath> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

" Would anyone who has had their child tested be prepared to share the test

results for IgG levels of varicella zoster "

Hi,

My son, now 4, was tested a year ago and his vzv was over 2000. He also had

chicken pox at around 1 year and is regressive. Now on long term anti virals

with no negatives.

nah

[Guest guest]

hi do you mind saying how u got prescribed long term anti-virals - cos Breakspeare will only do a month at a time - then require £500 retests over 3 months before allowing another month > To: Autism-Biomedical-Europe > Date: Wed, 13 Jun 2012 18:29:52 +0000> Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster> > > > "Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster"> > Hi,> > My son, now 4, was tested a year ago and his vzv was over 2000. He also had chicken pox at around 1 year and is regressive. Now on long term anti virals with no negatives. > > nah> > > > ------------------------------------> > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.>

[Guest guest]

Hi nahWhich anti viral is he on? Are you on antibiotics , or and antifungals as well? What gains have you had from the anti vitals Sent from my iPad

"Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster"

Hi,

My son, now 4, was tested a year ago and his vzv was over 2000. He also had chicken pox at around 1 year and is regressive. Now on long term anti virals with no negatives.

nah

[Guest guest]

We retested a couple of times but not full viral panel so less costly.

We get prescription monthly.

nah

>

>

> hi do you mind saying how u got prescribed long term anti-virals - cos

Breakspeare will only do a month at a time - then require £500 retests over 3

months before allowing another month

> > To: Autism-Biomedical-Europe

> > From: susannah_miles@...

> > Date: Wed, 13 Jun 2012 18:29:52 +0000

> > Subject: Re: Interpreting significance of IgG

antibody levels of varicella zoster

> >

> >

> >

> > " Would anyone who has had their child tested be prepared to share the test

results for IgG levels of varicella zoster "

> >

> > Hi,

> >

> > My son, now 4, was tested a year ago and his vzv was over 2000. He also had

chicken pox at around 1 year and is regressive. Now on long term anti virals

with no negatives.

> >

> > nah

> >

> >

> >

> > ------------------------------------

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as medical advice.

If you need medical advice, please seek it from a suitably qualified

practitioner.

> >

[Guest guest]

Did the viral titres go down with antiviral use.?KathSent from my iPad

We retested a couple of times but not full viral panel so less costly.

We get prescription monthly.

nah

>

>

> hi do you mind saying how u got prescribed long term anti-virals - cos Breakspeare will only do a month at a time - then require £500 retests over 3 months before allowing another month

> > To: Autism-Biomedical-Europe

> > From: susannah_miles@...

> > Date: Wed, 13 Jun 2012 18:29:52 +0000

> > Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster

> >

> >

> >

> > "Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster"

> >

> > Hi,

> >

> > My son, now 4, was tested a year ago and his vzv was over 2000. He also had chicken pox at around 1 year and is regressive. Now on long term anti virals with no negatives.

> >

> > nah

> >

> >

> >

> > ------------------------------------

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

> >

[Guest guest]

Hi, he's on valtrex. We initially saw good gains then plateaued but every time

we reduce the dose he loses gains so i think it's working in background. Also on

antifungals (fluconazole) and abx (azithromycin). The abx have been really good

for hom. Previously vancomycin twice which was also good. Abx have always

brought good gains. Colds always used to bring regressions then bloods revealed

infections which abx seem to address well.

nah

>

> >

> >

> > " Would anyone who has had their child tested be prepared to share the test

results for IgG levels of varicella zoster "

> >

> > Hi,

> >

> > My son, now 4, was tested a year ago and his vzv was over 2000. He also had

chicken pox at around 1 year and is regressive. Now on long term anti virals

with no negatives.

> >

> > nah

> >

> >

>

[Guest guest]

Can i ask where from - was it breakspeare ? > To: Autism-Biomedical-Europe > Date: Wed, 13 Jun 2012 18:50:53 +0000> Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster> > We retested a couple of times but not full viral panel so less costly. > We get prescription monthly. > > nah> > >> > > > hi do you mind saying how u got prescribed long term anti-virals - cos Breakspeare will only do a month at a time - then require £500 retests over 3 months before allowing another month> > > To: Autism-Biomedical-Europe > > > > > Date: Wed, 13 Jun 2012 18:29:52 +0000> > > Subject: Re: Interpreting significance of IgG antibody levels of varicella zoster> > > > > > > > > > > > "Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster"> > > > > > Hi,> > > > > > My son, now 4, was tested a year ago and his vzv was over 2000. He also had chicken pox at around 1 year and is regressive. Now on long term anti virals with no negatives. > > > > > > nah> > > > > > > > > > > > ------------------------------------> > > > > > DISCLAIMER> > > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > >

[Guest guest]

Cheers susannahGlad things are going well for you.does Dr G expect you to have to remain on valtrex for longKathSent from my iPod

Hi, he's on valtrex. We initially saw good gains then plateaued but every time we reduce the dose he loses gains so i think it's working in background. Also on antifungals (fluconazole) and abx (azithromycin). The abx have been really good for hom. Previously vancomycin twice which was also good. Abx have always brought good gains. Colds always used to bring regressions then bloods revealed infections which abx seem to address well.

nah

>

> >

> >

> > "Would anyone who has had their child tested be prepared to share the test results for IgG levels of varicella zoster"

> >

> > Hi,

> >

> > My son, now 4, was tested a year ago and his vzv was over 2000. He also had chicken pox at around 1 year and is regressive. Now on long term anti virals with no negatives.

> >

> > nah

> >

> >

>