immunisations/nhs/social services/ideas for Alison R

[Guest guest]

I know you all say no question is a silly question but this one does feel silly:-For those who are doing CEASE therapy to remove immunisations, what is the purpose?ALISON ARE YOU DOING CEASE THERAPY? IF SO, YOU NEED TO BE ABSOLUTELY CLEAR ON ITS PURPOSE, RESEARCH BACKING ITS EFFICACY AND PROBABLY NEED THE BACKING OF YOUR GP OR AT LEAST A QUALIFIED DOCTOR, AND ONE THAT WILL BE RECOGNISED HERE IN THE UK. NOT A US DOCTOR. We are being put under pressure to give DS extra immunisations because some of her antibody levels are low. She is really pushing for the tetanus. I have told her that our choice is not to give any immunisations at the moment.I UNDERSTAND THAT LEGALLY IN THIS COUNTRY YOU DO NOT HAVE TO IMMUNISE YOUR CHILD, HOWEVER YOU MUST CHECK THIS POINT IN RELATION TO THE SITUATION YOU FIND YOURSELF IN WITH SOCIAL SERVICES AND CHILD PROTECTION. IT MAY BE POSSIBLE THAT THEY HAVE THE POWER TO INSIST YOU IMMUNISE. PLEASE CHECK THIS. DOES ANYONE HAVE ANY IDEAS?Today I got a phone call from the GP practice nurse saying they had received letter from the consultant asking them to give various jabs. I politely explained no thanks - the Dr is aware of our decision on this and the nurse said BUT THE HAS ASKED US TO DO IT. I replied and we - her parents have made the decision of no thank you./WHICH DR IS AWARE OF YOUR DECISION? IS IT YOUR GP? YOUR CHILD'S NORMAL GP? WILL THEY BACK YOU AGAINST SOCIAL SERVICES AND NHS CONSULTANT? IF YOUR GP IS SUPPORTIVE, YOU MAY WANT TO SEE HOW FAR THEY ARE PREPARED TO GO TO SUPPORT YOU. WITHOUT THEIR SUPPORT YOU ARE ON THIN ICE VS THE AUTHORITIES. I feel like I'm treading on egg shells as we have just been subject to child protection investigation initiated by hospital on grounds of possible induced and fabricated illness. The outcome after core assessment is that despite been asked no evidence at all has been provided to back up allegations and safe guarding manager would not accept this referral for case conference as did not feel it met child protection criteria. We have been monitored for last few months at child in need level.YOU DON'T NEED ME TO TELL YOU HOW SERIOUS A CHILD PROTECTION INVESTIGATION IS. MY HEART GOES OUT TO YOU. HOW UTTERLY TERRIFYING. BUT THEY HOLD ALL THE CARDS - AND IT SOUNDS AS THOUGH THE IMPLICATION HERE IS SOMETHING LIKE MUNCHAUSENS SYNDROME BY PROXY . BE VERY CAREFUL HOW YOU DEAL WITH SOCIAL SERVICES THEY ARE V POWERFUL.I SPEAK FROM PERSONAL EXPERIENCE WHEN WE WERE TOLD THAT WE WERE EXAGERATING OUR SON'S AUTISM AND MAKING THINGS UP. LOOK INTO THE CHILD IN NEED ISSUE - MY EXPERIENCE IS THAT ALL CHILDREN "KNOWN TO SOCIAL SERVICES" AND OUR SON WAS "KNOWN" BECAUSE WE WERE RECEIVING DIRECT PAYMENTS, ARE CLASSED AS BEING A CHILD IN NEED. INTERESTINGLY SO WERE OUR TWO YOUNGER NT SONS, BECAUSE THEIR BROTHER IS SO SEVERELY AUTISTIC. TRY AND TAKE A DEEP BREATH, AND REALISE THAT THIS IS PROBABLY JUST STANDARD PROCEDURE. IF AT ALL POSSIBLE, TRY AND MAKE FRIENDS WITH YOUR SOCIAL WORKER. I KNOW THIS IS EASIER SAID THAN DONE, WE ENDED UP IN THE HIGH COURT AND COURT OF APPEAL AGAINST OURS. I now feel that this consultant is using a bullying approach thinking we might be scared. There is no way we are giving any immunisations. We are doing Yasko and metals are pouring out of both kids.YOU ARE PROBABLY NOT IMAGINING THE BULLYING APPROACH. YOU MUST BE FEELING VERY VULNERABLE AND SCARED. IF YOU ARE ABSOLUTELY CLEAR THAT YOU ARE NOT GIVING ANY IMMUNISATIONS, YOU MUST 100% CLEAR ABOUT1.WHY2.WHAT YOUR DECISION IS BASED ON3.WHAT RESEARCH BACKS THIS UP ETCTHE SAD THING IS, THAT IF HEALTH AND SOCIAL SERVICES ARE INVOLVED ALREADY - EVEN FOR THE WRONG REASON, YOU ARE FIRMLY ON THEIR RADAR - AND YOU NEED TO BE VERY CLEAR AND FIRM WITH THEM - WHILE BEING REASONABLE AND CONCILIATORY IF YOU POSSIBLY CAN. I don't actually think DS will be any different to other kids her age. She had all her original immunisations. Other kids at 10 are not checked and I suspect lots of their levels will be waining.Just though I should understand insight of what many are doing with CEASE and why.YOU NEED TO BE TOTALLY CLEAR ABOUT THIS - We have our ist child in need meeting on Friday - not looking forward to it. is under a number of hospital consultants and feel theres a conspiracy going on. Just trying to get prepared in my head - not that I'm going to share any non mainstream stuff with them ever again.CHILD IN NEED MEETING IS USUALLY A SOCIAL WORKER, AND PARENTS. THAT'S ALL. FIND OUT WHO WILL ATTEND THE MEETING FROM THEIR SIDE.MAKE SURE YOU GO WITH SOMEONE WHO CAN TAKE NOTES, AND SPEAK FOR YOU IF NECESSARY. THESE MEETINGS CAN BE V EMOTIONAL BECAUSE YOU ARE BEING ASKED TO TALK ABOUT YOUR CHILD'S DIFFICULTIES THROUGHOUT AND TO STARE THEM IN THE FACE, AND TALK ABOUT THE EFFECT ON YOUR FAMILY. DRAINING STUFF. BUT TRY TO KEEP YOUR HEAD IF YOU POSSIBLY CAN.OTHER IDEAS1.Approach your Local Councillor asap and ask for their help - a good one will get involved and come to your meeting with you. it is good for social services and nhs to see an elected representative getting involved. 2.do you have support at your child's school? if so, can they help you?3.Find a local advocate to come and support you - I would suggest postponing the meeting until you are able to find someone to come. 4.Assess the stage at which you might need to have legal advice - although this is hideously expensive and can make relationships with nhs and social services worse 5.where do you live?is there anyone else on the list who can come and help you? or who knows anyone locally.BEST OF LUCK FOR A HORRIBLE, HORRIBLE SITUATION AND REMEMBER TO LOOK AFTER YOURSELF. Alison PopeAlison R

[Guest guest]

I doubt Munchausen Syndrome by Proxy really exists - it was probably invented by the mainstream medical profession to keep a lid on unruly parents or anyone else who questioned their judgement. In which case, ironically, these health and social services autocrats are the only ones who actually have the syndrome, as they are diagnosing parents with a non-existent, imaginary condition . . . . . . Joanne>> I know you all say no question is a silly question but this one does > feel silly:-> > For those who are doing CEASE therapy to remove immunisations, what is > the purpose?> > ALISON ARE YOU DOING CEASE THERAPY? IF SO, YOU NEED TO BE ABSOLUTELY > CLEAR ON ITS PURPOSE, RESEARCH BACKING ITS EFFICACY AND PROBABLY NEED > THE BACKING OF YOUR GP OR AT LEAST A QUALIFIED DOCTOR, AND ONE THAT > WILL BE RECOGNISED HERE IN THE UK. NOT A US DOCTOR.> > We are being put under pressure to give DS extra immunisations because > some of her antibody levels are low. She is really pushing for the > tetanus. I have told her that our choice is not to give any > immunisations at the moment.> > I UNDERSTAND THAT LEGALLY IN THIS COUNTRY YOU DO NOT HAVE TO IMMUNISE > YOUR CHILD, HOWEVER YOU MUST CHECK THIS POINT IN RELATION TO THE > SITUATION YOU FIND YOURSELF IN WITH SOCIAL SERVICES AND CHILD > PROTECTION. IT MAY BE POSSIBLE THAT THEY HAVE THE POWER TO INSIST YOU > IMMUNISE. PLEASE CHECK THIS. DOES ANYONE HAVE ANY IDEAS?> > Today I got a phone call from the GP practice nurse saying they had > received letter from the consultant asking them to give various jabs. > I politely explained no thanks - the Dr is aware of our decision on > this and the nurse said BUT THE HAS ASKED US TO DO IT. I replied and > we - her parents have made the decision of no thank you./> > WHICH DR IS AWARE OF YOUR DECISION? IS IT YOUR GP? YOUR CHILD'S NORMAL > GP? WILL THEY BACK YOU AGAINST SOCIAL SERVICES AND NHS CONSULTANT?> IF YOUR GP IS SUPPORTIVE, YOU MAY WANT TO SEE HOW FAR THEY ARE > PREPARED TO GO TO SUPPORT YOU. WITHOUT THEIR SUPPORT YOU ARE ON THIN > ICE VS THE AUTHORITIES.> > I feel like I'm treading on egg shells as we have just been subject to > child protection investigation initiated by hospital on grounds of > possible induced and fabricated illness. The outcome after core > assessment is that despite been asked no evidence at all has been > provided to back up allegations and safe guarding manager would not > accept this referral for case conference as did not feel it met child > protection criteria. We have been monitored for last few months at > child in need level.> > YOU DON'T NEED ME TO TELL YOU HOW SERIOUS A CHILD PROTECTION > INVESTIGATION IS. MY HEART GOES OUT TO YOU. HOW UTTERLY TERRIFYING. > BUT THEY HOLD ALL THE CARDS - AND IT SOUNDS AS THOUGH THE IMPLICATION > HERE IS SOMETHING LIKE MUNCHAUSENS SYNDROME BY PROXY . BE VERY > CAREFUL HOW YOU DEAL WITH SOCIAL SERVICES THEY ARE V POWERFUL.> I SPEAK FROM PERSONAL EXPERIENCE WHEN WE WERE TOLD THAT WE WERE > EXAGERATING OUR SON'S AUTISM AND MAKING THINGS UP.> > LOOK INTO THE CHILD IN NEED ISSUE - MY EXPERIENCE IS THAT ALL CHILDREN > "KNOWN TO SOCIAL SERVICES" AND OUR SON WAS "KNOWN" BECAUSE WE WERE > RECEIVING DIRECT PAYMENTS, ARE CLASSED AS BEING A CHILD IN NEED. > INTERESTINGLY SO WERE OUR TWO YOUNGER NT SONS, BECAUSE THEIR BROTHER > IS SO SEVERELY AUTISTIC.> TRY AND TAKE A DEEP BREATH, AND REALISE THAT THIS IS PROBABLY JUST > STANDARD PROCEDURE.> IF AT ALL POSSIBLE, TRY AND MAKE FRIENDS WITH YOUR SOCIAL WORKER. I > KNOW THIS IS EASIER SAID THAN DONE, WE ENDED UP IN THE HIGH COURT AND > COURT OF APPEAL AGAINST OURS.> > I now feel that this consultant is using a bullying approach thinking > we might be scared. There is no way we are giving any immunisations. > We are doing Yasko and metals are pouring out of both kids.> > YOU ARE PROBABLY NOT IMAGINING THE BULLYING APPROACH. YOU MUST BE > FEELING VERY VULNERABLE AND SCARED.> IF YOU ARE ABSOLUTELY CLEAR THAT YOU ARE NOT GIVING ANY IMMUNISATIONS, > YOU MUST 100% CLEAR ABOUT> > 1.WHY> 2.WHAT YOUR DECISION IS BASED ON> 3.WHAT RESEARCH BACKS THIS UP ETC> > THE SAD THING IS, THAT IF HEALTH AND SOCIAL SERVICES ARE INVOLVED > ALREADY - EVEN FOR THE WRONG REASON, YOU ARE FIRMLY ON THEIR RADAR - > AND YOU NEED TO BE VERY CLEAR AND FIRM WITH THEM - WHILE BEING > REASONABLE AND CONCILIATORY IF YOU POSSIBLY CAN.> I don't actually think DS will be any different to other kids her age. > She had all her original immunisations. Other kids at 10 are not > checked and I suspect lots of their levels will be waining.> > Just though I should understand insight of what many are doing with > CEASE and why.> > YOU NEED TO BE TOTALLY CLEAR ABOUT THIS -> > We have our ist child in need meeting on Friday - not looking forward > to it. is under a number of hospital consultants and feel theres > a conspiracy going on. Just trying to get prepared in my head - not > that I'm going to share any non mainstream stuff with them ever again.> > CHILD IN NEED MEETING IS USUALLY A SOCIAL WORKER, AND PARENTS. THAT'S > ALL.> FIND OUT WHO WILL ATTEND THE MEETING FROM THEIR SIDE.> MAKE SURE YOU GO WITH SOMEONE WHO CAN TAKE NOTES, AND SPEAK FOR YOU IF > NECESSARY. THESE MEETINGS CAN BE V EMOTIONAL BECAUSE YOU ARE BEING > ASKED TO TALK ABOUT YOUR CHILD'S DIFFICULTIES THROUGHOUT AND TO STARE > THEM IN THE FACE, AND TALK ABOUT THE EFFECT ON YOUR FAMILY. DRAINING > STUFF. BUT TRY TO KEEP YOUR HEAD IF YOU POSSIBLY CAN.> > OTHER IDEAS> > 1.Approach your Local Councillor asap and ask for their help - a good > one will get involved and come to your meeting with you. it is good > for social services and nhs to see an elected representative getting > involved.> 2.do you have support at your child's school? if so, can they help you?> 3.Find a local advocate to come and support you - I would suggest > postponing the meeting until you are able to find someone to come.> 4.Assess the stage at which you might need to have legal advice - > although this is hideously expensive and can make relationships with > nhs and social services worse> 5.where do you live?> is there anyone else on the list who can come and help you? or who > knows anyone locally.> > BEST OF LUCK FOR A HORRIBLE, HORRIBLE SITUATION AND REMEMBER TO LOOK > AFTER YOURSELF.> > > Alison Pope> > > Alison R>

[Guest guest]

I'd be thinking about contacting Shirley in parliament. This is very unfair. If parents have the right to choice regarding immunizations, why the pressure. Especially if there is a history of reactions. To: Autism-Biomedical-Europe Sent: Wednesday, 13 June 2012, 16:38 Subject: Re: immunisations/nhs/social services/ideas for Alison R

I doubt Munchausen Syndrome by Proxy really exists - it was probably invented by the mainstream medical profession to keep a lid on unruly parents or anyone else who questioned their judgement. In which case, ironically, these health and social services autocrats are the only ones who actually have the syndrome, as they are diagnosing parents with a non-existent, imaginary condition . . . . . . Joanne>> I know you all say no question is a silly question but this one does > feel silly:-> > For those who are doing CEASE therapy to remove immunisations, what is > the purpose?> > ALISON ARE YOU DOING CEASE THERAPY? IF SO, YOU NEED TO BE ABSOLUTELY > CLEAR ON ITS PURPOSE, RESEARCH BACKING ITS EFFICACY AND PROBABLY NEED > THE BACKING OF YOUR GP

OR AT LEAST A QUALIFIED DOCTOR, AND ONE THAT > WILL BE RECOGNISED HERE IN THE UK. NOT A US DOCTOR.> > We are being put under pressure to give DS extra immunisations because > some of her antibody levels are low. She is really pushing for the > tetanus. I have told her that our choice is not to give any > immunisations at the moment.> > I UNDERSTAND THAT LEGALLY IN THIS COUNTRY YOU DO NOT HAVE TO IMMUNISE > YOUR CHILD, HOWEVER YOU MUST CHECK THIS POINT IN RELATION TO THE > SITUATION YOU FIND YOURSELF IN WITH SOCIAL SERVICES AND CHILD > PROTECTION. IT MAY BE POSSIBLE THAT THEY HAVE THE POWER TO INSIST YOU > IMMUNISE. PLEASE CHECK THIS. DOES ANYONE HAVE ANY IDEAS?> > Today I got a phone call from the GP practice nurse saying they had > received letter from the consultant asking them to give various jabs. > I politely explained no thanks

- the Dr is aware of our decision on > this and the nurse said BUT THE HAS ASKED US TO DO IT. I replied and > we - her parents have made the decision of no thank you./> > WHICH DR IS AWARE OF YOUR DECISION? IS IT YOUR GP? YOUR CHILD'S NORMAL > GP? WILL THEY BACK YOU AGAINST SOCIAL SERVICES AND NHS CONSULTANT?> IF YOUR GP IS SUPPORTIVE, YOU MAY WANT TO SEE HOW FAR THEY ARE > PREPARED TO GO TO SUPPORT YOU. WITHOUT THEIR SUPPORT YOU ARE ON THIN > ICE VS THE AUTHORITIES.> > I feel like I'm treading on egg shells as we have just been subject to > child protection investigation initiated by hospital on grounds of > possible induced and fabricated illness. The outcome after core > assessment is that despite been asked no evidence at all has been > provided to back up allegations and safe guarding manager would not > accept this referral for case

conference as did not feel it met child > protection criteria. We have been monitored for last few months at > child in need level.> > YOU DON'T NEED ME TO TELL YOU HOW SERIOUS A CHILD PROTECTION > INVESTIGATION IS. MY HEART GOES OUT TO YOU. HOW UTTERLY TERRIFYING. > BUT THEY HOLD ALL THE CARDS - AND IT SOUNDS AS THOUGH THE IMPLICATION > HERE IS SOMETHING LIKE MUNCHAUSENS SYNDROME BY PROXY . BE VERY > CAREFUL HOW YOU DEAL WITH SOCIAL SERVICES THEY ARE V POWERFUL.> I SPEAK FROM PERSONAL EXPERIENCE WHEN WE WERE TOLD THAT WE WERE > EXAGERATING OUR SON'S AUTISM AND MAKING THINGS UP.> > LOOK INTO THE CHILD IN NEED ISSUE - MY EXPERIENCE IS THAT ALL CHILDREN > "KNOWN TO SOCIAL SERVICES" AND OUR SON WAS "KNOWN" BECAUSE WE WERE > RECEIVING DIRECT PAYMENTS, ARE CLASSED AS BEING A CHILD IN NEED. > INTERESTINGLY SO WERE OUR TWO YOUNGER NT SONS,

BECAUSE THEIR BROTHER > IS SO SEVERELY AUTISTIC.> TRY AND TAKE A DEEP BREATH, AND REALISE THAT THIS IS PROBABLY JUST > STANDARD PROCEDURE.> IF AT ALL POSSIBLE, TRY AND MAKE FRIENDS WITH YOUR SOCIAL WORKER. I > KNOW THIS IS EASIER SAID THAN DONE, WE ENDED UP IN THE HIGH COURT AND > COURT OF APPEAL AGAINST OURS.> > I now feel that this consultant is using a bullying approach thinking > we might be scared. There is no way we are giving any immunisations. > We are doing Yasko and metals are pouring out of both kids.> > YOU ARE PROBABLY NOT IMAGINING THE BULLYING APPROACH. YOU MUST BE > FEELING VERY VULNERABLE AND SCARED.> IF YOU ARE ABSOLUTELY CLEAR THAT YOU ARE NOT GIVING ANY IMMUNISATIONS, > YOU MUST 100% CLEAR ABOUT> > 1.WHY> 2.WHAT YOUR DECISION IS BASED ON> 3.WHAT RESEARCH BACKS THIS UP ETC> > THE

SAD THING IS, THAT IF HEALTH AND SOCIAL SERVICES ARE INVOLVED > ALREADY - EVEN FOR THE WRONG REASON, YOU ARE FIRMLY ON THEIR RADAR - > AND YOU NEED TO BE VERY CLEAR AND FIRM WITH THEM - WHILE BEING > REASONABLE AND CONCILIATORY IF YOU POSSIBLY CAN.> I don't actually think DS will be any different to other kids her age. > She had all her original immunisations. Other kids at 10 are not > checked and I suspect lots of their levels will be waining.> > Just though I should understand insight of what many are doing with > CEASE and why.> > YOU NEED TO BE TOTALLY CLEAR ABOUT THIS -> > We have our ist child in need meeting on Friday - not looking forward > to it. is under a number of hospital consultants and feel theres > a conspiracy going on. Just trying to get prepared in my head - not > that I'm going to share any non mainstream

stuff with them ever again.> > CHILD IN NEED MEETING IS USUALLY A SOCIAL WORKER, AND PARENTS. THAT'S > ALL.> FIND OUT WHO WILL ATTEND THE MEETING FROM THEIR SIDE.> MAKE SURE YOU GO WITH SOMEONE WHO CAN TAKE NOTES, AND SPEAK FOR YOU IF > NECESSARY. THESE MEETINGS CAN BE V EMOTIONAL BECAUSE YOU ARE BEING > ASKED TO TALK ABOUT YOUR CHILD'S DIFFICULTIES THROUGHOUT AND TO STARE > THEM IN THE FACE, AND TALK ABOUT THE EFFECT ON YOUR FAMILY. DRAINING > STUFF. BUT TRY TO KEEP YOUR HEAD IF YOU POSSIBLY CAN.> > OTHER IDEAS> > 1.Approach your Local Councillor asap and ask for their help - a good > one will get involved and come to your meeting with you. it is good > for social services and nhs to see an elected representative getting > involved.> 2.do you have support at your child's school? if so, can they help you?> 3.Find a local

advocate to come and support you - I would suggest > postponing the meeting until you are able to find someone to come.> 4.Assess the stage at which you might need to have legal advice - > although this is hideously expensive and can make relationships with > nhs and social services worse> 5.where do you live?> is there anyone else on the list who can come and help you? or who > knows anyone locally.> > BEST OF LUCK FOR A HORRIBLE, HORRIBLE SITUATION AND REMEMBER TO LOOK > AFTER YOURSELF.> > > Alison Pope> > > Alison R>

[Guest guest]

The immediate issue is to get social services off Alison's back, though. I

really suggest, as Alison P mentioned, trying to postpone the meeting until you

have set up a good supporter or two to come with you. And don't argue with them

if you can avoid it... they do so love to think that they are (always) right.

Margaret

> >

> > I know you all say no question is a silly question but this one does

> > feel silly:-

> >

> > For those who are doing CEASE therapy to remove immunisations, what is

> > the purpose?

> >

> > ALISON ARE YOU DOING CEASE THERAPY? IF SO, YOU NEED TO BE ABSOLUTELY

> > CLEAR ON ITS PURPOSE, RESEARCH BACKING ITS EFFICACY AND PROBABLY NEED

> > THE BACKING OF YOUR GP OR AT LEAST A QUALIFIED DOCTOR, AND ONE THAT

> > WILL BE RECOGNISED HERE IN THE UK. NOT A US DOCTOR.

> >

> > We are being put under pressure to give DS extra immunisations because

> > some of her antibody levels are low. She is really pushing for the

> > tetanus. I have told her that our choice is not to give any

> > immunisations at the moment.

> >

> > I UNDERSTAND THAT LEGALLY IN THIS COUNTRY YOU DO NOT HAVE TO IMMUNISE

> > YOUR CHILD, HOWEVER YOU MUST CHECK THIS POINT IN RELATION TO THE

> > SITUATION YOU FIND YOURSELF IN WITH SOCIAL SERVICES AND CHILD

> > PROTECTION. IT MAY BE POSSIBLE THAT THEY HAVE THE POWER TO INSIST YOU

> > IMMUNISE. PLEASE CHECK THIS. DOES ANYONE HAVE ANY IDEAS?

> >

> > Today I got a phone call from the GP practice nurse saying they had

> > received letter from the consultant asking them to give various jabs.

> > I politely explained no thanks - the Dr is aware of our decision on

> > this and the nurse said BUT THE HAS ASKED US TO DO IT. I replied and

> > we - her parents have made the decision of no thank you./

> >

> > WHICH DR IS AWARE OF YOUR DECISION? IS IT YOUR GP? YOUR CHILD'S NORMAL

> > GP? WILL THEY BACK YOU AGAINST SOCIAL SERVICES AND NHS CONSULTANT?

> > IF YOUR GP IS SUPPORTIVE, YOU MAY WANT TO SEE HOW FAR THEY ARE

> > PREPARED TO GO TO SUPPORT YOU. WITHOUT THEIR SUPPORT YOU ARE ON THIN

> > ICE VS THE AUTHORITIES.

> >

> > I feel like I'm treading on egg shells as we have just been subject to

> > child protection investigation initiated by hospital on grounds of

> > possible induced and fabricated illness. The outcome after core

> > assessment is that despite been asked no evidence at all has been

> > provided to back up allegations and safe guarding manager would not

> > accept this referral for case conference as did not feel it met child

> > protection criteria. We have been monitored for last few months at

> > child in need level.

> >

> > YOU DON'T NEED ME TO TELL YOU HOW SERIOUS A CHILD PROTECTION

> > INVESTIGATION IS. MY HEART GOES OUT TO YOU. HOW UTTERLY TERRIFYING.

> > BUT THEY HOLD ALL THE CARDS - AND IT SOUNDS AS THOUGH THE IMPLICATION

> > HERE IS SOMETHING LIKE MUNCHAUSENS SYNDROME BY PROXY . BE VERY

> > CAREFUL HOW YOU DEAL WITH SOCIAL SERVICES THEY ARE V POWERFUL.

> > I SPEAK FROM PERSONAL EXPERIENCE WHEN WE WERE TOLD THAT WE WERE

> > EXAGERATING OUR SON'S AUTISM AND MAKING THINGS UP.

> >

> > LOOK INTO THE CHILD IN NEED ISSUE - MY EXPERIENCE IS THAT ALL CHILDREN

> > " KNOWN TO SOCIAL SERVICES " AND OUR SON WAS " KNOWN " BECAUSE WE WERE

> > RECEIVING DIRECT PAYMENTS, ARE CLASSED AS BEING A CHILD IN NEED.

> > INTERESTINGLY SO WERE OUR TWO YOUNGER NT SONS, BECAUSE THEIR BROTHER

> > IS SO SEVERELY AUTISTIC.

> > TRY AND TAKE A DEEP BREATH, AND REALISE THAT THIS IS PROBABLY JUST

> > STANDARD PROCEDURE.

> > IF AT ALL POSSIBLE, TRY AND MAKE FRIENDS WITH YOUR SOCIAL WORKER. I

> > KNOW THIS IS EASIER SAID THAN DONE, WE ENDED UP IN THE HIGH COURT AND

> > COURT OF APPEAL AGAINST OURS.

> >

> > I now feel that this consultant is using a bullying approach thinking

> > we might be scared. There is no way we are giving any immunisations.

> > We are doing Yasko and metals are pouring out of both kids.

> >

> > YOU ARE PROBABLY NOT IMAGINING THE BULLYING APPROACH. YOU MUST BE

> > FEELING VERY VULNERABLE AND SCARED.

> > IF YOU ARE ABSOLUTELY CLEAR THAT YOU ARE NOT GIVING ANY IMMUNISATIONS,

> > YOU MUST 100% CLEAR ABOUT

> >

> > 1.WHY

> > 2.WHAT YOUR DECISION IS BASED ON

> > 3.WHAT RESEARCH BACKS THIS UP ETC

> >

> > THE SAD THING IS, THAT IF HEALTH AND SOCIAL SERVICES ARE INVOLVED

> > ALREADY - EVEN FOR THE WRONG REASON, YOU ARE FIRMLY ON THEIR RADAR -

> > AND YOU NEED TO BE VERY CLEAR AND FIRM WITH THEM - WHILE BEING

> > REASONABLE AND CONCILIATORY IF YOU POSSIBLY CAN.

> > I don't actually think DS will be any different to other kids her age.

> > She had all her original immunisations. Other kids at 10 are not

> > checked and I suspect lots of their levels will be waining.

> >

> > Just though I should understand insight of what many are doing with

> > CEASE and why.

> >

> > YOU NEED TO BE TOTALLY CLEAR ABOUT THIS -

> >

> > We have our ist child in need meeting on Friday - not looking forward

> > to it. is under a number of hospital consultants and feel theres

> > a conspiracy going on. Just trying to get prepared in my head - not

> > that I'm going to share any non mainstream stuff with them ever again.

> >

> > CHILD IN NEED MEETING IS USUALLY A SOCIAL WORKER, AND PARENTS. THAT'S

> > ALL.

> > FIND OUT WHO WILL ATTEND THE MEETING FROM THEIR SIDE.

> > MAKE SURE YOU GO WITH SOMEONE WHO CAN TAKE NOTES, AND SPEAK FOR YOU IF

> > NECESSARY. THESE MEETINGS CAN BE V EMOTIONAL BECAUSE YOU ARE BEING

> > ASKED TO TALK ABOUT YOUR CHILD'S DIFFICULTIES THROUGHOUT AND TO STARE

> > THEM IN THE FACE, AND TALK ABOUT THE EFFECT ON YOUR FAMILY. DRAINING

> > STUFF. BUT TRY TO KEEP YOUR HEAD IF YOU POSSIBLY CAN.

> >

> > OTHER IDEAS

> >

> > 1.Approach your Local Councillor asap and ask for their help - a good

> > one will get involved and come to your meeting with you. it is good

> > for social services and nhs to see an elected representative getting

> > involved.

> > 2.do you have support at your child's school? if so, can they help you?

> > 3.Find a local advocate to come and support you - I would suggest

> > postponing the meeting until you are able to find someone to come.

> > 4.Assess the stage at which you might need to have legal advice -

> > although this is hideously expensive and can make relationships with

> > nhs and social services worse

> > 5.where do you live?

> > is there anyone else on the list who can come and help you? or who

> > knows anyone locally.

> >

> > BEST OF LUCK FOR A HORRIBLE, HORRIBLE SITUATION AND REMEMBER TO LOOK

> > AFTER YOURSELF.

> >

> >

> > Alison Pope

> >

> >

> > Alison R

> >

>

[Guest guest]

Thank you all for your kind works and support

Alison-

No we are not doing cease therapy at the moment - I just want to educate myself

more about this.

The Dr who was aware of our decision is the NHS immunology consultant who was

recommending the extra tetanus. She never mentioned HIB and Men C but has

advised the GP to do all 3. I suspect she thinks as social care are involved we

would be scared and go ahead.

Our decisions are informed and balanced and although NHS think we are putting

our daughter at risk by not giving them we feel to give them would put her at

risk.

This is not what started the social care referral - they have just thrown

everything else in while they are at it.

To be honest the social worker has been quite supportive and never felt the

referral met child protection criteria but as the allegations were made they had

to then ask health to provide evidence - of which non has been provided. This

has been going on since March and is no longer under child protection category.

It is clear from the info I have seen that its a way of silencing me as we

challenge if we don't agree and ask lots of questions - this makes their job

harder.

has a childrens advocate who has been involved with the family for a long

time who will be attending the meeting,my husband and parent partnership will

also attend. I understand that all health and education professionals involved

have been invited - should be interesting.

The reasons I will give about not giving immunisations at the moment for

are:

She has a rare blood disorder and a recent conference the NHS consultant with a

special interest in the condition provided new information relating to her blood

disorder and affected immune system. We have an appointment with him in

September and feel we need to understand more about this so that our decisions

are fully informed.

She has had the routine immunisations and if her anti body levels are low I

would like to understand why and what the chances of additional immunisations

taking.

Once again thank you for all your suggestions.

>

> I know you all say no question is a silly question but this one does

> feel silly:-

>

> For those who are doing CEASE therapy to remove immunisations, what is

> the purpose?

>

> ALISON ARE YOU DOING CEASE THERAPY? IF SO, YOU NEED TO BE ABSOLUTELY

> CLEAR ON ITS PURPOSE, RESEARCH BACKING ITS EFFICACY AND PROBABLY NEED

> THE BACKING OF YOUR GP OR AT LEAST A QUALIFIED DOCTOR, AND ONE THAT

> WILL BE RECOGNISED HERE IN THE UK. NOT A US DOCTOR.

>

> We are being put under pressure to give DS extra immunisations because

> some of her antibody levels are low. She is really pushing for the

> tetanus. I have told her that our choice is not to give any

> immunisations at the moment.

>

> I UNDERSTAND THAT LEGALLY IN THIS COUNTRY YOU DO NOT HAVE TO IMMUNISE

> YOUR CHILD, HOWEVER YOU MUST CHECK THIS POINT IN RELATION TO THE

> SITUATION YOU FIND YOURSELF IN WITH SOCIAL SERVICES AND CHILD

> PROTECTION. IT MAY BE POSSIBLE THAT THEY HAVE THE POWER TO INSIST YOU

> IMMUNISE. PLEASE CHECK THIS. DOES ANYONE HAVE ANY IDEAS?

>

> Today I got a phone call from the GP practice nurse saying they had

> received letter from the consultant asking them to give various jabs.

> I politely explained no thanks - the Dr is aware of our decision on

> this and the nurse said BUT THE HAS ASKED US TO DO IT. I replied and

> we - her parents have made the decision of no thank you./

>

> WHICH DR IS AWARE OF YOUR DECISION? IS IT YOUR GP? YOUR CHILD'S NORMAL

> GP? WILL THEY BACK YOU AGAINST SOCIAL SERVICES AND NHS CONSULTANT?

> IF YOUR GP IS SUPPORTIVE, YOU MAY WANT TO SEE HOW FAR THEY ARE

> PREPARED TO GO TO SUPPORT YOU. WITHOUT THEIR SUPPORT YOU ARE ON THIN

> ICE VS THE AUTHORITIES.

>

> I feel like I'm treading on egg shells as we have just been subject to

> child protection investigation initiated by hospital on grounds of

> possible induced and fabricated illness. The outcome after core

> assessment is that despite been asked no evidence at all has been

> provided to back up allegations and safe guarding manager would not

> accept this referral for case conference as did not feel it met child

> protection criteria. We have been monitored for last few months at

> child in need level.

>

> YOU DON'T NEED ME TO TELL YOU HOW SERIOUS A CHILD PROTECTION

> INVESTIGATION IS. MY HEART GOES OUT TO YOU. HOW UTTERLY TERRIFYING.

> BUT THEY HOLD ALL THE CARDS - AND IT SOUNDS AS THOUGH THE IMPLICATION

> HERE IS SOMETHING LIKE MUNCHAUSENS SYNDROME BY PROXY . BE VERY

> CAREFUL HOW YOU DEAL WITH SOCIAL SERVICES THEY ARE V POWERFUL.

> I SPEAK FROM PERSONAL EXPERIENCE WHEN WE WERE TOLD THAT WE WERE

> EXAGERATING OUR SON'S AUTISM AND MAKING THINGS UP.

>

> LOOK INTO THE CHILD IN NEED ISSUE - MY EXPERIENCE IS THAT ALL CHILDREN

> " KNOWN TO SOCIAL SERVICES " AND OUR SON WAS " KNOWN " BECAUSE WE WERE

> RECEIVING DIRECT PAYMENTS, ARE CLASSED AS BEING A CHILD IN NEED.

> INTERESTINGLY SO WERE OUR TWO YOUNGER NT SONS, BECAUSE THEIR BROTHER

> IS SO SEVERELY AUTISTIC.

> TRY AND TAKE A DEEP BREATH, AND REALISE THAT THIS IS PROBABLY JUST

> STANDARD PROCEDURE.

> IF AT ALL POSSIBLE, TRY AND MAKE FRIENDS WITH YOUR SOCIAL WORKER. I

> KNOW THIS IS EASIER SAID THAN DONE, WE ENDED UP IN THE HIGH COURT AND

> COURT OF APPEAL AGAINST OURS.

>

> I now feel that this consultant is using a bullying approach thinking

> we might be scared. There is no way we are giving any immunisations.

> We are doing Yasko and metals are pouring out of both kids.

>

> YOU ARE PROBABLY NOT IMAGINING THE BULLYING APPROACH. YOU MUST BE

> FEELING VERY VULNERABLE AND SCARED.

> IF YOU ARE ABSOLUTELY CLEAR THAT YOU ARE NOT GIVING ANY IMMUNISATIONS,

> YOU MUST 100% CLEAR ABOUT

>

> 1.WHY

> 2.WHAT YOUR DECISION IS BASED ON

> 3.WHAT RESEARCH BACKS THIS UP ETC

>

> THE SAD THING IS, THAT IF HEALTH AND SOCIAL SERVICES ARE INVOLVED

> ALREADY - EVEN FOR THE WRONG REASON, YOU ARE FIRMLY ON THEIR RADAR -

> AND YOU NEED TO BE VERY CLEAR AND FIRM WITH THEM - WHILE BEING

> REASONABLE AND CONCILIATORY IF YOU POSSIBLY CAN.

> I don't actually think DS will be any different to other kids her age.

> She had all her original immunisations. Other kids at 10 are not

> checked and I suspect lots of their levels will be waining.

>

> Just though I should understand insight of what many are doing with

> CEASE and why.

>

> YOU NEED TO BE TOTALLY CLEAR ABOUT THIS -

>

> We have our ist child in need meeting on Friday - not looking forward

> to it. is under a number of hospital consultants and feel theres

> a conspiracy going on. Just trying to get prepared in my head - not

> that I'm going to share any non mainstream stuff with them ever again.

>

> CHILD IN NEED MEETING IS USUALLY A SOCIAL WORKER, AND PARENTS. THAT'S

> ALL.

> FIND OUT WHO WILL ATTEND THE MEETING FROM THEIR SIDE.

> MAKE SURE YOU GO WITH SOMEONE WHO CAN TAKE NOTES, AND SPEAK FOR YOU IF

> NECESSARY. THESE MEETINGS CAN BE V EMOTIONAL BECAUSE YOU ARE BEING

> ASKED TO TALK ABOUT YOUR CHILD'S DIFFICULTIES THROUGHOUT AND TO STARE

> THEM IN THE FACE, AND TALK ABOUT THE EFFECT ON YOUR FAMILY. DRAINING

> STUFF. BUT TRY TO KEEP YOUR HEAD IF YOU POSSIBLY CAN.

>

> OTHER IDEAS

>

> 1.Approach your Local Councillor asap and ask for their help - a good

> one will get involved and come to your meeting with you. it is good

> for social services and nhs to see an elected representative getting

> involved.

> 2.do you have support at your child's school? if so, can they help you?

> 3.Find a local advocate to come and support you - I would suggest

> postponing the meeting until you are able to find someone to come.

> 4.Assess the stage at which you might need to have legal advice -

> although this is hideously expensive and can make relationships with

> nhs and social services worse

> 5.where do you live?

> is there anyone else on the list who can come and help you? or who

> knows anyone locally.

>

> BEST OF LUCK FOR A HORRIBLE, HORRIBLE SITUATION AND REMEMBER TO LOOK

> AFTER YOURSELF.

>

>

> Alison Pope

>

>

> Alison R

>