Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Sorry to hear you are going through this . Mild or not, it's scary when things hit your family. You are a strong woman and I know that you can get through this, even if you have a breakdown (I have several every now and then too!). After all this testing, I hope you find every avenue of support that you and your family deserve. *hugs* KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Thank you so much Kassia. Sorry to hear you are going through this . Mild or not, it's scary when things hit your family. You are a strong woman and I know that you can get through this, even if you have a breakdown (I have several every now and then too!). After all this testing, I hope you find every avenue of support that you and your family deserve. *hugs* KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Oh ! I'm so sorry to hear you're all having to go through this. I'm glad to hear it is considered mild, but I know mild or not, it is still incredibly unnerving and upsetting to hear something is wrong with your child (and hearing the word "tumor' in relation to your child, I'm sure, can only be terrifying, no matter how benign they might be). Please know , and you are certainly in our prayers. Please let us know how things go and what you find out. We're all here to support you. Many hugs and prayers, Send prayers to us Hi everyone! I usually like to keep things that are really OT off all my email lists, but today I have to make an exception. I'm sending this to most of my lists of friends and I'm asking for all of you to keep as well as and I in your prayers tomorrow. is going for an MRI test. It will be a long drive and once we get there she will be put to sleep for this. They will be doing images of her brain as she has been diagnosed with Neurofibromatosis. If you care to read further this is what it is..... Neurofibromatosis is genetic disorder that cause tumors to grow in the nervous system. There are three types of this disease. has been diagnosed with NF1 (the most mild). A symptom of NF1, include light brown spots on the skin ("cafe-au-lait" spots) which was the first sign of how we found out. has 7 to 8 large spots and the neurologist found one in her eye. There are many other symptoms which has a lot of them. One being a slight curvature of the spine which is going to have to be closely watched. The neurologist wants to check for tumors behind her eye (since she has the cafe spots on her eye) along with any other tumor in the brain. She has seen an eye doctor and they are going to be doing further tests in February to check to see if she has any optic nerve damage. She's has chronic headaches, most times migraines, which is a symptom of the disease. We recently learned that this disease causes learning disabilities in 50% of people and many have ADD. We haven't found out if has any learning disabilities yet, but she has been diagnosed with ADD. We are working with the school right now about all of it and they are being very understanding. has had a lot of mental issues since she was born and as she gets older it seems to be more difficult to deal with. We are hoping to get some answers to that with the MRI as well. So this is a lot, and I'm beyond stressed. We need all the support and prayers we can get. Thanks for listening and please keep us in your hearts tomorrow. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 ((HUGS!)) So scary, especially when it's your child! Warm prayers are coming from the cold Midwest! Indyrose > > Hi everyone! > > I usually like to keep things that are really OT off all my email > lists, but today I have to make an exception. I'm sending this to most of my > lists of friends and I'm asking for all of you to keep as well as > and I in your prayers tomorrow. > > is going for an MRI test. It will be a long drive and once we > get there she will be put to sleep for this. They will be doing images of > her brain as she has been diagnosed with Neurofibromatosis. > > If you care to read further this is what it is..... > > Neurofibromatosis is genetic disorder that cause tumors to grow in the > nervous system. There are three types of this disease. has been > diagnosed with NF1 (the most mild). A symptom of NF1, include light brown > spots on the skin ( " cafe-au-lait " spots) which was the first sign of how we > found out. has 7 to 8 large spots and the neurologist found one in > her eye. There are many other symptoms which has a lot of them. > One being a slight curvature of the spine which is going to have to be > closely watched. > > The neurologist wants to check for tumors behind her eye (since she has > the cafe spots on her eye) along with any other tumor in the brain. She has > seen an eye doctor and they are going to be doing further tests in > February to check to see if she has any optic nerve damage. She's has chronic > headaches, most times migraines, which is a symptom of the disease. > > We recently learned that this disease causes learning disabilities in 50% > of people and many have ADD. We haven't found out if has any > learning disabilities yet, but she has been diagnosed with ADD. We are working > with the school right now about all of it and they are being very > understanding. > > has had a lot of mental issues since she was born and as she gets > older it seems to be more difficult to deal with. We are hoping to get > some answers to that with the MRI as well. > > So this is a lot, and I'm beyond stressed. We need all the support and > prayers we can get. > > Thanks for listening and please keep us in your hearts tomorrow. > > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 no matter how benign they might be). Please know , and you are certainly in our prayers. Please let us know how things go and what you find out. We're all here to support you. Thanks ! I appreciate it so much. Now it seems that we have 3-5 inches of snow and ice coming today. (((((((( ~~ ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 ((HUGS)) and prayers to you and your family, . Please know we are here for you!! Let us know how everything goes today. Donna Subject: Send prayers to usTo: Cathe_Friedrich_Fans , exercisevideos , fitandthatsit Date: Thursday, January 19, 2012, 7:03 PM Hi everyone! I usually like to keep things that are really OT off all my email lists, but today I have to make an exception. I'm sending this to most of my lists of friends and I'm asking for all of you to keep as well as and I in your prayers tomorrow. is going for an MRI test. It will be a long drive and once we get there she will be put to sleep for this. They will be doing images of her brain as she has been diagnosed with Neurofibromatosis. If you care to read further this is what it is..... Neurofibromatosis is genetic disorder that cause tumors to grow in the nervous system. There are three types of this disease. has been diagnosed with NF1 (the most mild). A symptom of NF1, include light brown spots on the skin ("cafe-au-lait" spots) which was the first sign of how we found out. has 7 to 8 large spots and the neurologist found one in her eye. There are many other symptoms which has a lot of them. One being a slight curvature of the spine which is going to have to be closely watched. The neurologist wants to check for tumors behind her eye (since she has the cafe spots on her eye) along with any other tumor in the brain. She has seen an eye doctor and they are going to be doing further tests in February to check to see if she has any optic nerve damage. She's has chronic headaches, most times migraines, which is a symptom of the disease. We recently learned that this disease causes learning disabilities in 50% of people and many have ADD. We haven't found out if has any learning disabilities yet, but she has been diagnosed with ADD. We are working with the school right now about all of it and they are being very understanding. has had a lot of mental issues since she was born and as she gets older it seems to be more difficult to deal with. We are hoping to get some answers to that with the MRI as well. So this is a lot, and I'm beyond stressed. We need all the support and prayers we can get. Thanks for listening and please keep us in your hearts tomorrow. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 dear michelle, we are always here for you and we are praying for you. i understand how very difficult this must be and my heart goes out to you and your family, sending hugs, as always, :*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Thank you Carolyn and Donna. dear michelle, we are always here for you and we are praying for you.i understand how very difficult this must be and my heart goes out to you and your family, sending hugs, as always,:*carolyn. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Oh no!! I wish you safe travels and as much peace as you can find in all this, ! Re: Send prayers to us no matter how benign they might be). Please know , and you are certainly in our prayers. Please let us know how things go and what you find out. We're all here to support you. Thanks ! I appreciate it so much. Now it seems that we have 3-5 inches of snow and ice coming today. (((((((( ~~ ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 , I'm so very, very sorry to hear your news. How is taking it? It sounds rather serious and I'm thinking good thoughts for the 3 of you. No one deserves this but it seems 100 time more unfair when it happens to children. Please keep us posted.Hugs and Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 So sorry to hear this, ! My family will pray for you and your family. I believe in power in prayer and have seen many miracles God has performed and will pray for miraculous healing! Keep us posted please!TeenaSent from my iPhone , I'm so very, very sorry to hear your news. How is taking it? It sounds rather serious and I'm thinking good thoughts for the 3 of you. No one deserves this but it seems 100 time more unfair when it happens to children. Please keep us posted.Hugs and Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 HUGS , hugs for you and your darling girl. I hope you get very good results an that she has an easy time with the test. Sending you my very best wishes! Hi everyone!      I usually like to keep things that are really OT off all my email lists, but today I have to make an exception. I'm sending this to most of my lists of friends and I'm asking for all of you to keep as well as and I in your prayers tomorrow.   is going for an MRI test. It will be a long drive and once we get there she will be put to sleep for this. They will be doing images of her brain as she has been diagnosed with Neurofibromatosis.    If you care to read further this is what it is.....  Neurofibromatosis is genetic disorder that cause tumors to grow in the nervous system. There are three types of this disease. has been diagnosed with NF1 (the most mild). A symptom of NF1, include light brown spots on the skin ( " cafe-au-lait " spots) which was the first sign of how we found out. has 7 to 8 large spots and the neurologist found one in her eye. There are many other symptoms which  has a lot of them. One being a slight curvature of the spine which is going to have to be closely watched.       The neurologist wants to check for tumors behind her eye (since she has the cafe spots on her eye) along with any other tumor in the brain. She has seen an eye doctor and they are going to be doing further tests in February to check to see if she has any optic nerve damage.  She's has chronic headaches, most times migraines, which is a symptom of the disease.  We recently learned that this disease causes learning disabilities in 50% of people and many have ADD.  We haven't found out if has any learning disabilities yet, but she has been diagnosed with ADD. We are working with the school right now about all of it and they are being very understanding.  has had a lot of mental issues since she was born and as she gets older it seems to be more difficult to deal with. We are hoping to get some answers to that with the MRI as well.  So this is a lot, and I'm beyond stressed.  We need all the support and prayers we can get.  Thanks for listening and please keep us in your hearts tomorrow.  ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 My prayers are with you and your family. Wishing you the best with those test results.Di To: exercisevideos Sent: Friday, January 20, 2012 8:13 PM Subject: Re: Send prayers to us HUGS , hugs for you and your darling girl. I hope you get very good results an that she has an easy time with the test. Sending you my very best wishes! Hi everyone! I usually like to keep things that are really OT off all my email lists, but today I have to make an exception. I'm sending this to most of my lists of friends and I'm asking for all of you to keep as well as and I in your prayers tomorrow. is going for an MRI test. It will be a long drive and once we get there she will be put to sleep for this. They will be doing images of her brain as she has been diagnosed with Neurofibromatosis. If you care to read further this is what it is..... Neurofibromatosis is genetic disorder that cause tumors to grow in the nervous system. There are three types of this disease. has been diagnosed with NF1 (the most mild). A symptom of NF1, include light brown spots on the skin ("cafe-au-lait" spots) which was the first sign of how we found out. has 7 to 8 large spots and the neurologist found one in her eye. There are many other symptoms which has a lot of them. One being a slight curvature of the spine which is going to have to be closely watched. The neurologist wants to check for tumors behind her eye (since she has the cafe spots on her eye) along with any other tumor in the brain. She has seen an eye doctor and they are going to be doing further tests in February to check to see if she has any optic nerve damage. She's has chronic headaches, most times migraines, which is a symptom of the disease. We recently learned that this disease causes learning disabilities in 50% of people and many have ADD. We haven't found out if has any learning disabilities yet, but she has been diagnosed with ADD. We are working with the school right now about all of it and they are being very understanding. has had a lot of mental issues since she was born and as she gets older it seems to be more difficult to deal with. We are hoping to get some answers to that with the MRI as well. So this is a lot, and I'm beyond stressed. We need all the support and prayers we can get. Thanks for listening and please keep us in your hearts tomorrow. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2012 Report Share Posted January 21, 2012 Thank you From: dnew219@...Reply-to: exercisevideos To: exercisevideos Sent: 1/21/2012 1:05:01 P.M. Eastern Standard TimeSubj: Re: Send prayers to us My prayers are with you and your family. Wishing you the best with those test results. Di To: exercisevideos Sent: Friday, January 20, 2012 8:13 PMSubject: Re: Send prayers to us HUGS , hugs for you and your darling girl. I hope you get very good results an that she has an easy time with the test. Sending you my very best wishes! Hi everyone! I usually like to keep things that are really OT off all my email lists, but today I have to make an exception. I'm sending this to most of my lists of friends and I'm asking for all of you to keep as well as and I in your prayers tomorrow. is going for an MRI test. It will be a long drive and once we get there she will be put to sleep for this. They will be doing images of her brain as she has been diagnosed with Neurofibromatosis. If you care to read further this is what it is..... Neurofibromatosis is genetic disorder that cause tumors to grow in the nervous system. There are three types of this disease. has been diagnosed with NF1 (the most mild). A symptom of NF1, include light brown spots on the skin ("cafe-au-lait" spots) which was the first sign of how we found out. has 7 to 8 large spots and the neurologist found one in her eye. There are many other symptoms which has a lot of them. One being a slight curvature of the spine which is going to have to be closely watched. The neurologist wants to check for tumors behind her eye (since she has the cafe spots on her eye) along with any other tumor in the brain. She has seen an eye doctor and they are going to be doing further tests in February to check to see if she has any optic nerve damage. She's has chronic headaches, most times migraines, which is a symptom of the disease. We recently learned that this disease causes learning disabilities in 50% of people and many have ADD. We haven't found out if has any learning disabilities yet, but she has been diagnosed with ADD. We are working with the school right now about all of it and they are being very understanding. has had a lot of mental issues since she was born and as she gets older it seems to be more difficult to deal with. We are hoping to get some answers to that with the MRI as well. So this is a lot, and I'm beyond stressed. We need all the support and prayers we can get. Thanks for listening and please keep us in your hearts tomorrow. ~ Quote Link to comment Share on other sites More sharing options...
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