Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 Phew!! I'm glad it went well for you. Margaret > > Thank you for you kind words and suggestions for our meeting yesterday. It went OK. We had plenty of opportunity to vent about the allegations been made (which were purely speculation - no evidence at all) and the fact that that health should have found more out before 2 social workers came knocking on door. > > None of the Drs involved in DD's care bothered to turn up - school nurse and health visitor and both head teachers were there along with me hubby, childrens advocate, parent parntership and CAF co-ordinatior. > > The main suggestion was that ineffective communication between health and other services and lack of support to the family was responsible for the mess that we should not have been put though. Social worker was very supportive stressing the results of core assessment and that we are good, caring parents who parent well and that the fact I am articulate and not afraid to challenge may at times be seen as me been over anxious. > > The outcome is that DD will have a CAF which remains through her childhood with a lead worker for effective communication and to take the stress off the family. Not sure who this will be yet and I'm not holding my breath - we don't have a good relationship with many involved. > > Both head teachers have agreed to resume enzymes with lunch at school. > There will be another meeting in 4 weeks then social care will hopefully not be involved anymore - they will stay involved if support is not happening. Don't get me wrong, I know we could be back to square 1 in 2 minutes! > > I am just so glad we are managing our protocols with the involvement of a Dr, otherwise I think they would have wiped the floor with us. We don't have many consultations but just the fact that we consult with a Dr who is specialist in integrated medicine and understands our protocols has carried a lot of weight. To others, please consider this if you don't currently consult with a Dr. NHS and school are not too happy to accept recommendations from private sector but this seems to be consistent. As I have pointed out to school their SEN advisor is a private consultant who they employ, not mainstream. With ASD there are major gaps in services within NHS and we have a right to seek private opinion - it is in the best interest of the child. > > Once again thanks > > Alison R > Quote Link to comment Share on other sites More sharing options...
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