Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 You are making an assumption the Immunivir did damage, I have been told my sons seizures will get worse when we start anti virals but should improve afterwards. We didn;t start the anti virals and theyhave been worse, so it could be any number of things. Are you still doing TST? Mandi hello, I wonder if anyone can help me regarding my 7yr old who has seizures which have become worse since he started immunovir. he was given this january of this yr and i kept giving increasing doses for three months . it is a shame i didnt get it that this was what was making his seizures worse but now after stopping it in march he still has a tendency to get the blue lipped seizures that are longer and scarier. he never had them lik e this before. the reason i gave it was for the very high titers in the neuroviral screen to measles and i was tols d by a breakspear dr that it was very high titers and i needed to get it out by giving immunovir. please help me if anyone is reading this. what can i do is ther any way to deal with the damage done by immnvir? thks tahira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 no not doing the tst in the way that should be done. the immunovir i assume caused the problem but then i suppose there is a chance it was something else. ok thksSubject: Re: imunovir has caused great pain and distressTo: Autism-Biomedical-Europe Date: Friday, 22 June, 2012, 17:38 You are making an assumption the Immunivir did damage, I have been told my sons seizures will get worse when we start anti virals but should improve afterwards. We didn;t start the anti virals and theyhave been worse, so it could be any number of things. Are you still doing TST? Mandi hello, I wonder if anyone can help me regarding my 7yr old who has seizures which have become worse since he started immunovir. he was given this january of this yr and i kept giving increasing doses for three months . it is a shame i didnt get it that this was what was making his seizures worse but now after stopping it in march he still has a tendency to get the blue lipped seizures that are longer and scarier. he never had them lik e this before. the reason i gave it was for the very high titers in the neuroviral screen to measles and i was tols d by a breakspear dr that it was very high titers and i needed to get it out by giving immunovir. please help me if anyone is reading this. what can i do is ther any way to deal with the damage done by immnvir? thks tahira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2012 Report Share Posted June 23, 2012 Hi Tahira, Sorry to hear the problem.We used one course of immunovir without any problem.Having said that the does was minimum,so I am not sure.If the seizure changes a pattern or differency from the previous ones must be important.AS Mandi says there are many reasons which may trigger seizures.Did you talk to your neurologist? Best wishes nevin > > > Subject: Re: imunovir has caused great pain and distress > To: Autism-Biomedical-Europe > Date: Friday, 22 June, 2012, 17:38 > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > You are making an assumption the Immunivir did damage, I have been told my > sons seizures will get worse when we start anti virals but should improve > afterwards. We didn;t start the anti virals and theyhave been worse, so it could > be any number of things. >  > Are you still doing TST? >  > Mandi >  > > In a message dated 22/06/2012 17:27:53 GMT Daylight Time, > tahirasufi@... writes: >  > > > > > > hello, >      I wonder if  anyone >  can help me  regarding my  7yr old  who has >  seizures  which have  become  worse  since >  he  started  immunovir. he  was  given this >  january of this  yr  and  i kept  giving > increasing  doses  for three months . it is a  shame >  i  didnt  get  it that this  was  what >  was  making his  seizures  worse  but now >  after  stopping  it in march he  still has  a > tendency  to  get the   blue  lipped >  seizures  that  are longer  and  scarier. he >  never  had them lik e this  before. the  reason i >  gave  it was  for the  very high  titers >  in the neuroviral  screen  to  measles  and i > was  tols d  by a  breakspear  dr  that >  it  was  very high  titers  and i needed to > get it out by  giving immunovir. > please help me  if  anyone  is  reading this. > what can i  do is  ther  any way  to  deal >  with the  damage  done  by immnvir? thks >  tahira > Quote Link to comment Share on other sites More sharing options...
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