New Member

[Guest guest]

Debi,

I just read your post about your FIL's comments. My father used to tell me to

stop looking for trouble. My husband would tell me if I looked hard enough i

was going to find something, but If I left her alone we would all be happier.

Does that one even make sense. Everyone in my family was weird about it, they

would say foolish things like, Oh we love her any way she is. (well duh, no

kidding) I think on some sub human level they mean well.

Terri

Re: new member

Kim, many of us here struggle with our family not accepting our

children. My family thought I was nuts when I finally said I thought

she has autism. I began noticing a change at 9 mos, she got a hep B

shot while scabbed over with chicken pox. She stopped eating, stopped

babbling, stopped pulling up, etc. They would say things like, " Let

her be a kid, you can tell she's smart. " My reply was always, " I

didn't say she was stupid, I said I think she has autism. " My FIL had

the nerve to tell me one day I was gonna make her have autism because

I would make satan attack her. What ever.

What many of us have had to realize is that our child's treatment

needs have to come before adults with their own emotional

dysfunctions. Grandparents hurt when their grandkids get a dianosis.

They grew up in a time that autism or other disabilities were shunned

and seen as meaning you somehow failed your family. That's a bunch of

nonsense. People are what they are. If they don't have the emotional

ability to support you.

At any rate, it took six months of testing from the moment I made my

first phone call for an appointment. If you wait until March, which is

totally your right, you might be looking at several months before you

get any treatment established, in which case you will have then lost a

year of treatment time. There are some studies that show therapy

beginning under 2 can make substantial gains. If you called tomorrow

to start, you might not get any treatment established until at least

March.

One other thing to consider, if it does take around 6 mos to get early

intervention treatment, which again, is completely free, then you'll

only have that set of therapists for a few months before transitioning

to your school system. The longer you can have therapists, the better

it is for the child.

HTH,

Debi

[Guest guest]

Debi,

I just read your post about your FIL's comments. My father used to tell me to

stop looking for trouble. My husband would tell me if I looked hard enough i

was going to find something, but If I left her alone we would all be happier.

Does that one even make sense. Everyone in my family was weird about it, they

would say foolish things like, Oh we love her any way she is. (well duh, no

kidding) I think on some sub human level they mean well.

Terri

Re: new member

Kim, many of us here struggle with our family not accepting our

children. My family thought I was nuts when I finally said I thought

she has autism. I began noticing a change at 9 mos, she got a hep B

shot while scabbed over with chicken pox. She stopped eating, stopped

babbling, stopped pulling up, etc. They would say things like, " Let

her be a kid, you can tell she's smart. " My reply was always, " I

didn't say she was stupid, I said I think she has autism. " My FIL had

the nerve to tell me one day I was gonna make her have autism because

I would make satan attack her. What ever.

What many of us have had to realize is that our child's treatment

needs have to come before adults with their own emotional

dysfunctions. Grandparents hurt when their grandkids get a dianosis.

They grew up in a time that autism or other disabilities were shunned

and seen as meaning you somehow failed your family. That's a bunch of

nonsense. People are what they are. If they don't have the emotional

ability to support you.

At any rate, it took six months of testing from the moment I made my

first phone call for an appointment. If you wait until March, which is

totally your right, you might be looking at several months before you

get any treatment established, in which case you will have then lost a

year of treatment time. There are some studies that show therapy

beginning under 2 can make substantial gains. If you called tomorrow

to start, you might not get any treatment established until at least

March.

One other thing to consider, if it does take around 6 mos to get early

intervention treatment, which again, is completely free, then you'll

only have that set of therapists for a few months before transitioning

to your school system. The longer you can have therapists, the better

it is for the child.

HTH,

Debi

[Guest guest]

I have not posted here in a while but I read this and just had to

give my 2 cents. I have a 7 year old with autism and she is the

light of my life. I would tell you that early intervention is key.

And if it turns out not to be anything but a phase well then she got

a jump start on all the other kids. Speech therapy, if done well, is

very fun for the kids. We used to have a speech therapist come to

our home and my girl always seemed to enjoy it. Your daughter does

seem to have some questionable behavior and I would take her to a

neurologist or developmental pediatrician. Where do you live? Here

in NY under age 3 early intervention is covered 100% by the state--

we never had to pay for any service. You could also have your

daughter evaluated by the local early intervention department in

your county. I would not wait because 6 months is a long time that

would be wasted. I would rather do overkill then sit and wait then

say " I should have done it sooner " .

Good luck to you and please keep us posted,

Tina, mom to beautiful Dana age 7

>

> Hi, I'm new here. I'm here because I am concerned about my 19

month

> old daughter n. At her 18 month old check-up, the doctor

asked me

> if I would consider a speech therapist because she makes sounds and

> gestures, but no intelligible words. I chose to wait until she

turns 2

> in March, as I know some kids are " late bloomers " . She's already

milk

> allergic and I have not ruled out a wheat connection either. She's

> very sensitive to things. She started exhibiting diaper problems in

> August while my husband was at a work convention across the

country,

> but now it's more frequent (taking off her Pull-Up, she's pooped

and

> peed on the floor, she tries tasting her own urine and feces) ....

she

> points at what she likes but does not speak. Sometimes seems not to

> hear us but other times shows recognition. Back or tummy rubbing,

> brushing hair, or foot and leg rubbing calm her down. She imitates

> sirens and sounds, loves lights and motion, loves to dance, loves

> remotes and electronic/digital things, shrieks/ " barks " a lot,

laughs

> for " no reason " , cries and screams for " no reason " ..... other

times

> seems completely normal. Night time has gotten difficult (from

> afternoon to night) as she gets rammy and seems to " flip out " ...

hard

> to explain that behavior. When we're out in public, she rarely

> exhibits that behavior, but sometimes she does .... and then people

> just stare at her and me, wondering " what is her problem? " ... how

do

> I explain, I don't know.

>

> I am hesitant to call in specialists because it could just " be a

> phase " ..... I know what the medical go-round is like (because of

her

> food sensitivities) and I don't want to put her through that again

> .... and I'm hoping she'll grow out of all of it and do things when

> she is ready to, like she did with walking (on Father's Day). (I

know

> two other autistic children, one is PDD-NOS, and she's exhibiting

> similar behaviors to him.)

>

> My older child will be 8 on Thanksgiving and there was some

> question with her on SID or possibly Asperger's, but no pressure so

> far to have her evaluated. She excels in school, but has emotional

and

> mental problems that I'm trying to help her with. With her, also,

I'm

> hoping she'll " grow out of it " and that things will even out.

>

> I'm here hoping to read other posts and see if I recognize my

children

> in other parents' concerns .... I've had a sick feeling in my gut

but

> I'm hoping time will smooth things out.

>

> thanks,

> Kim

>

[Guest guest]

I have not posted here in a while but I read this and just had to

give my 2 cents. I have a 7 year old with autism and she is the

light of my life. I would tell you that early intervention is key.

And if it turns out not to be anything but a phase well then she got

a jump start on all the other kids. Speech therapy, if done well, is

very fun for the kids. We used to have a speech therapist come to

our home and my girl always seemed to enjoy it. Your daughter does

seem to have some questionable behavior and I would take her to a

neurologist or developmental pediatrician. Where do you live? Here

in NY under age 3 early intervention is covered 100% by the state--

we never had to pay for any service. You could also have your

daughter evaluated by the local early intervention department in

your county. I would not wait because 6 months is a long time that

would be wasted. I would rather do overkill then sit and wait then

say " I should have done it sooner " .

Good luck to you and please keep us posted,

Tina, mom to beautiful Dana age 7

>

> Hi, I'm new here. I'm here because I am concerned about my 19

month

> old daughter n. At her 18 month old check-up, the doctor

asked me

> if I would consider a speech therapist because she makes sounds and

> gestures, but no intelligible words. I chose to wait until she

turns 2

> in March, as I know some kids are " late bloomers " . She's already

milk

> allergic and I have not ruled out a wheat connection either. She's

> very sensitive to things. She started exhibiting diaper problems in

> August while my husband was at a work convention across the

country,

> but now it's more frequent (taking off her Pull-Up, she's pooped

and

> peed on the floor, she tries tasting her own urine and feces) ....

she

> points at what she likes but does not speak. Sometimes seems not to

> hear us but other times shows recognition. Back or tummy rubbing,

> brushing hair, or foot and leg rubbing calm her down. She imitates

> sirens and sounds, loves lights and motion, loves to dance, loves

> remotes and electronic/digital things, shrieks/ " barks " a lot,

laughs

> for " no reason " , cries and screams for " no reason " ..... other

times

> seems completely normal. Night time has gotten difficult (from

> afternoon to night) as she gets rammy and seems to " flip out " ...

hard

> to explain that behavior. When we're out in public, she rarely

> exhibits that behavior, but sometimes she does .... and then people

> just stare at her and me, wondering " what is her problem? " ... how

do

> I explain, I don't know.

>

> I am hesitant to call in specialists because it could just " be a

> phase " ..... I know what the medical go-round is like (because of

her

> food sensitivities) and I don't want to put her through that again

> .... and I'm hoping she'll grow out of all of it and do things when

> she is ready to, like she did with walking (on Father's Day). (I

know

> two other autistic children, one is PDD-NOS, and she's exhibiting

> similar behaviors to him.)

>

> My older child will be 8 on Thanksgiving and there was some

> question with her on SID or possibly Asperger's, but no pressure so

> far to have her evaluated. She excels in school, but has emotional

and

> mental problems that I'm trying to help her with. With her, also,

I'm

> hoping she'll " grow out of it " and that things will even out.

>

> I'm here hoping to read other posts and see if I recognize my

children

> in other parents' concerns .... I've had a sick feeling in my gut

but

> I'm hoping time will smooth things out.

>

> thanks,

> Kim

>

[Guest guest]

My FIL told me I was too easy on and just needed to " show her

who's boss " , in other words beat her senseless with a belt like he

did to my husband. THEN she'd be normal! That was the last time I

ever spoke to him.

> Debi,

> I just read your post about your FIL's comments. My father used to

> tell me to stop looking for trouble. My husband would tell me if I

> looked hard enough i was going to find something, but If I left her

> alone we would all be happier. Does that one even make sense.

> Everyone in my family was weird about it, they would say foolish

> things like, Oh we love her any way she is. (well duh, no kidding)

> I think on some sub human level they mean well.

>

> Terri

[Guest guest]

The reason why I am reluctant to consider state-sponsored Early

Intervention is because state-sponsored and city-sponsored related to

Philadelphia, is generally mis-managed and poorly run. If I have to,

then I have to, but I'd rather go through our pediatrician's office

first and see how that goes, than get the state and/or city involved.

My friend went through this with her son (PDD-NOS), and had a hell of

a time trying to get him appropriate care, a normal school setting, a

good TS, and an adequate IEP ... because of the school district and

the services (not) being provided.

So if I can avoid government intervention, I'd prefer to. Will see

what happens.

- Kim

[Guest guest]

The reason why I am reluctant to consider state-sponsored Early

Intervention is because state-sponsored and city-sponsored related to

Philadelphia, is generally mis-managed and poorly run. If I have to,

then I have to, but I'd rather go through our pediatrician's office

first and see how that goes, than get the state and/or city involved.

My friend went through this with her son (PDD-NOS), and had a hell of

a time trying to get him appropriate care, a normal school setting, a

good TS, and an adequate IEP ... because of the school district and

the services (not) being provided.

So if I can avoid government intervention, I'd prefer to. Will see

what happens.

- Kim

[Guest guest]

Kim,

I am in PA too. I am sorry to here about your friends bad luck. But, to let

you know the Birth to 3 program in our state is seperate from the 3-5 early

ntervention. The birth to 3 is much better then the preschool program based on

my experience so far.

Also if your child is indeed on the spectrum a diagnosis would get you so much

more. You would have access to wraparound services which would include a TSS, a

behavioral specialist, music therapy,etc. Also with the diagnosis your daughter

would be entiled to a medical access card through the disablility loophole and

your income would not be a factor. If you are lower income she could qualify

for SSI which you could use for her for extra therapies so going through the

government may be smarter then you think. Also its just a free evaluation, it

doesn't mean you have to take all they offer. Your daughter may be eligible for

speech, OT, PT and other therapies free of charge if she is determined to have a

delay. In my expiernce even though her speech therapist and I discussed her

being autistic they will still have a specialist diagnose her or at least they

did with us but it may be because we are in a more rural part of PA then you

are. But, I have to say even though we did not know what was wrong with dd until

after she was out of the birth-3 program I am so glad she had all the therapy.

You will meet good therapists and bad but if you have a problem with one they

will send some one else out. Sometimes its just finding the right one. Its also

so nice having them in your house instead of having to go some where.

Hope that helps

Missy ('s mom)

Re: new member

The reason why I am reluctant to consider state-sponsored Early

Intervention is because state-sponsored and city-sponsored related to

Philadelphia, is generally mis-managed and poorly run. If I have to,

then I have to, but I'd rather go through our pediatrician's office

first and see how that goes, than get the state and/or city involved.

My friend went through this with her son (PDD-NOS), and had a hell of

a time trying to get him appropriate care, a normal school setting, a

good TS, and an adequate IEP ... because of the school district and

the services (not) being provided.

So if I can avoid government intervention, I'd prefer to. Will see

what happens.

- Kim

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.408 / Virus Database: 268.13.4/476 - Release Date: 10/14/2006

[Guest guest]

Kim,

I am in PA too. I am sorry to here about your friends bad luck. But, to let

you know the Birth to 3 program in our state is seperate from the 3-5 early

ntervention. The birth to 3 is much better then the preschool program based on

my experience so far.

Also if your child is indeed on the spectrum a diagnosis would get you so much

more. You would have access to wraparound services which would include a TSS, a

behavioral specialist, music therapy,etc. Also with the diagnosis your daughter

would be entiled to a medical access card through the disablility loophole and

your income would not be a factor. If you are lower income she could qualify

for SSI which you could use for her for extra therapies so going through the

government may be smarter then you think. Also its just a free evaluation, it

doesn't mean you have to take all they offer. Your daughter may be eligible for

speech, OT, PT and other therapies free of charge if she is determined to have a

delay. In my expiernce even though her speech therapist and I discussed her

being autistic they will still have a specialist diagnose her or at least they

did with us but it may be because we are in a more rural part of PA then you

are. But, I have to say even though we did not know what was wrong with dd until

after she was out of the birth-3 program I am so glad she had all the therapy.

You will meet good therapists and bad but if you have a problem with one they

will send some one else out. Sometimes its just finding the right one. Its also

so nice having them in your house instead of having to go some where.

Hope that helps

Missy ('s mom)

Re: new member

The reason why I am reluctant to consider state-sponsored Early

Intervention is because state-sponsored and city-sponsored related to

Philadelphia, is generally mis-managed and poorly run. If I have to,

then I have to, but I'd rather go through our pediatrician's office

first and see how that goes, than get the state and/or city involved.

My friend went through this with her son (PDD-NOS), and had a hell of

a time trying to get him appropriate care, a normal school setting, a

good TS, and an adequate IEP ... because of the school district and

the services (not) being provided.

So if I can avoid government intervention, I'd prefer to. Will see

what happens.

- Kim

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.1.408 / Virus Database: 268.13.4/476 - Release Date: 10/14/2006

[Guest guest]

Thank you -- yes, I am keeping all of this in mind. It's so good to

know about options. We're not considered " low-income " overall, but on

some things we are definitely 'borderline' ... one of those situations

where your income is over the cap for some things but not high enough

to actually meet expenses .... my brain is tired so I' can't think of

the term.

My husband just passed a computer exam that may let him get a better

job and leave the post office .... if this is true, we may be able to

go more rural and not be stuck in a certain area (if he requested a

transfer to another post office, he'd lose his seniority because of

their stupid rules). I think we'll have lots more options once we

leave this stinking city. Until then I do prefer to work within the

hospital system because we've had mostly good luck with them so far

...... but depending on how this goes and where we move to, we may have

more available to work with.

Last night n was doing more hand waving (one hand, mostly, kept

switching hands) and rubbing her fingers (that was a new one) ....

this so disturbs me but my husband is level-headed about it and

refuses to get upset about these things -- which is good. I'm deep in

the middle of it taking care of her every day and everything I know

now, and yet he is " removed " from it, doesn't know as much, and feels

that panicking will solve nothing -- and he's right. This is where he

balances me out.

Well, I have to get 's school things together and pack her lunch now.

- Kim

>

> Kim,

> I am in PA too. I am sorry to here about your friends bad luck.

But, to let you know the Birth to 3 program in our state is seperate

from the 3-5 early ntervention. The birth to 3 is much better then the

preschool program based on my experience so far.

> Also if your child is indeed on the spectrum a diagnosis would get

you so much more. You would have access to wraparound services which

would include a TSS, a behavioral specialist, music therapy,etc. Also

with the diagnosis your daughter would be entiled to a medical access

card through the disablility loophole and your income would not be a

factor. If you are lower income she could qualify for SSI which you

could use for her for extra therapies so going through the government

may be smarter then you think. Also its just a free evaluation, it

doesn't mean you have to take all they offer. Your daughter may be

eligible for speech, OT, PT and other therapies free of charge if she

is determined to have a delay. In my expiernce even though her speech

therapist and I discussed her being autistic they will still have a

specialist diagnose her or at least they did with us but it may be

because we are in a more rural part of PA then you are. But, I have to

say even though we did not know what was wrong with dd until after she

was out of the birth-3 program I am so glad she had all the therapy.

You will meet good therapists and bad but if you have a problem with

one they will send some one else out. Sometimes its just finding the

right one. Its also so nice having them in your house instead of

having to go some where.

>

>

> Hope that helps

> Missy ('s mom)

>

> Re: new member

>

>

> The reason why I am reluctant to consider state-sponsored Early

> Intervention is because state-sponsored and city-sponsored related to

> Philadelphia, is generally mis-managed and poorly run. If I have to,

> then I have to, but I'd rather go through our pediatrician's office

> first and see how that goes, than get the state and/or city involved.

>

> My friend went through this with her son (PDD-NOS), and had a hell of

> a time trying to get him appropriate care, a normal school setting, a

> good TS, and an adequate IEP ... because of the school district and

> the services (not) being provided.

>

> So if I can avoid government intervention, I'd prefer to. Will see

> what happens.

>

> - Kim

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.408 / Virus Database: 268.13.4/476 - Release Date:

10/14/2006

>

>

>

[Guest guest]

Thank you -- yes, I am keeping all of this in mind. It's so good to

know about options. We're not considered " low-income " overall, but on

some things we are definitely 'borderline' ... one of those situations

where your income is over the cap for some things but not high enough

to actually meet expenses .... my brain is tired so I' can't think of

the term.

My husband just passed a computer exam that may let him get a better

job and leave the post office .... if this is true, we may be able to

go more rural and not be stuck in a certain area (if he requested a

transfer to another post office, he'd lose his seniority because of

their stupid rules). I think we'll have lots more options once we

leave this stinking city. Until then I do prefer to work within the

hospital system because we've had mostly good luck with them so far

...... but depending on how this goes and where we move to, we may have

more available to work with.

Last night n was doing more hand waving (one hand, mostly, kept

switching hands) and rubbing her fingers (that was a new one) ....

this so disturbs me but my husband is level-headed about it and

refuses to get upset about these things -- which is good. I'm deep in

the middle of it taking care of her every day and everything I know

now, and yet he is " removed " from it, doesn't know as much, and feels

that panicking will solve nothing -- and he's right. This is where he

balances me out.

Well, I have to get 's school things together and pack her lunch now.

- Kim

>

> Kim,

> I am in PA too. I am sorry to here about your friends bad luck.

But, to let you know the Birth to 3 program in our state is seperate

from the 3-5 early ntervention. The birth to 3 is much better then the

preschool program based on my experience so far.

> Also if your child is indeed on the spectrum a diagnosis would get

you so much more. You would have access to wraparound services which

would include a TSS, a behavioral specialist, music therapy,etc. Also

with the diagnosis your daughter would be entiled to a medical access

card through the disablility loophole and your income would not be a

factor. If you are lower income she could qualify for SSI which you

could use for her for extra therapies so going through the government

may be smarter then you think. Also its just a free evaluation, it

doesn't mean you have to take all they offer. Your daughter may be

eligible for speech, OT, PT and other therapies free of charge if she

is determined to have a delay. In my expiernce even though her speech

therapist and I discussed her being autistic they will still have a

specialist diagnose her or at least they did with us but it may be

because we are in a more rural part of PA then you are. But, I have to

say even though we did not know what was wrong with dd until after she

was out of the birth-3 program I am so glad she had all the therapy.

You will meet good therapists and bad but if you have a problem with

one they will send some one else out. Sometimes its just finding the

right one. Its also so nice having them in your house instead of

having to go some where.

>

>

> Hope that helps

> Missy ('s mom)

>

> Re: new member

>

>

> The reason why I am reluctant to consider state-sponsored Early

> Intervention is because state-sponsored and city-sponsored related to

> Philadelphia, is generally mis-managed and poorly run. If I have to,

> then I have to, but I'd rather go through our pediatrician's office

> first and see how that goes, than get the state and/or city involved.

>

> My friend went through this with her son (PDD-NOS), and had a hell of

> a time trying to get him appropriate care, a normal school setting, a

> good TS, and an adequate IEP ... because of the school district and

> the services (not) being provided.

>

> So if I can avoid government intervention, I'd prefer to. Will see

> what happens.

>

> - Kim

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.408 / Virus Database: 268.13.4/476 - Release Date:

10/14/2006

>

>

>

[Guest guest]

She sounds like she acts alot like my 2 year old. the sheiking and barking,

laughing, crying, calming down when stroked.

does she like to spin objects?? does she do any form of imitation play at all?

we were first tipped of our daughter was autistic when she still wasnt speaking.

we suspected somthing was up when no pretend play began to imerge and she never

plays with her tots appropriatly...instead she will spin the objects....flapping

her fingers at it.

It sounds to me that your daughter is very possibly autistic...you should see a

nurologist however to either confirm or deny that diagnosis...good luck hun.

new member

Hi, I'm new here. I'm here because I am concerned about my 19 month

old daughter n. At her 18 month old check-up, the doctor asked me

if I would consider a speech therapist because she makes sounds and

gestures, but no intelligible words. I chose to wait until she turns 2

in March, as I know some kids are " late bloomers " . She's already milk

allergic and I have not ruled out a wheat connection either. She's

very sensitive to things. She started exhibiting diaper problems in

August while my husband was at a work convention across the country,

but now it's more frequent (taking off her Pull-Up, she's pooped and

peed on the floor, she tries tasting her own urine and feces) .... she

points at what she likes but does not speak. Sometimes seems not to

hear us but other times shows recognition. Back or tummy rubbing,

brushing hair, or foot and leg rubbing calm her down. She imitates

sirens and sounds, loves lights and motion, loves to dance, loves

remotes and electronic/digital things, shrieks/ " barks " a lot, laughs

for " no reason " , cries and screams for " no reason " ..... other times

seems completely normal. Night time has gotten difficult (from

afternoon to night) as she gets rammy and seems to " flip out " ... hard

to explain that behavior. When we're out in public, she rarely

exhibits that behavior, but sometimes she does .... and then people

just stare at her and me, wondering " what is her problem? " ... how do

I explain, I don't know.

I am hesitant to call in specialists because it could just " be a

phase " ..... I know what the medical go-round is like (because of her

food sensitivities) and I don't want to put her through that again

.... and I'm hoping she'll grow out of all of it and do things when

she is ready to, like she did with walking (on Father's Day). (I know

two other autistic children, one is PDD-NOS, and she's exhibiting

similar behaviors to him.)

My older child will be 8 on Thanksgiving and there was some

question with her on SID or possibly Asperger's, but no pressure so

far to have her evaluated. She excels in school, but has emotional and

mental problems that I'm trying to help her with. With her, also, I'm

hoping she'll " grow out of it " and that things will even out.

I'm here hoping to read other posts and see if I recognize my children

in other parents' concerns .... I've had a sick feeling in my gut but

I'm hoping time will smooth things out.

thanks,

Kim

[Guest guest]

Hi and welcome,

Just wanted to start out by asking if you are aware of the online group for

people who have OCD. Just in case, here's the link -

OCD-Support .

I can't imagine having OCD yourself and then having to cope with a young one

with it too. It can be easier when they are younger, in the sense that you can

direct things with them more. Maybe you can learn together too. For most, it

is the ERP that helps best to manage the OCD. The doing of it is the challenge.

Guilt, well that kind of goes with motherhood... I don't have OCD, so no genetic

link, but still felt some guilt and wondered what if anything I could have done

differently. While it's true who we are affects our kids, and environment

influences and all that, all we can ever do is our best, and that changes given

the circumstances.

I have a teen, and don't feel I have much to offer in terms of strategies with a

little one, but there are many here who will I'm sure! If you have any specific

situations post them and someone will no doubt reply with some ideas.

I sincerely hope you are able to find a good doctor to help both you and your

son. The online self help group is great too, and you can post questions to the

doctors who are all great, so if you are not already signed up I would encourage

that.

Warmly,

Barb

>

> My name is and I am new here. I am a 26 year old mother of two little

boys, Austin who is 3 and Cameron who is 2. I have had OCD ever since I can

remember but was not diagnosed until I was 14 years old. I am on medicine and

all it really does it take the edge off, but it does make it so that I am able

to function (most days anyway) normally. My son, Austin is starting to show

signs of OCD and we have an appointment on Wednesday for him. I do NOT want him

on medication. My hope is that seeing as he is so young we can help him learn

how to cope with it better than I have. I feel very guilty that he is showing

signs of OCD. With him having the high anxiety now, it is making my anxiety go

through the roof too and we are butting heads all the time now. I get frustrated

with him for doing the behaviors and he is getting mad at me for doing mine. It

is coming full circle and is making for a mad house around here the last few

weeks. I need some advice on how to deal with this better. That is why I am

here.

>

[Guest guest]

Hi ,

I too, have ocd ,and wasn't diagnosed until age 19.

I have three kids.Two with ocd and one without.My 13 yr old was diagnosed at age

5 and my 8 yr old was diagnosed at age 4

..

You came to the right place. We can all understand what you are going through.

I remember when my kids were first diagnosed, and the therapists did " play

therapy " with them until they were old enough for CBT.My dd only needed it for

about a month, than they went to CBT, and my son needed it for quite some time.

He was very confused and didn't understand it

Have you read any books on OCD? My favorite is by Tamar Chansky " Freeing your

child from OCD " It has alot of good tips in there as well as explanations.

There are many " natural treatments " for ocd if you are uncomfortable with

medication. Many have had success with Inositol powder.I don't know if you have

tried anything yet.

 Does your son have a hard time sleeping? I give my daughter Melatonin to

sleep( I'm trying to avoid the prescription  sleep aids) Been there and done

that.

Please do not feel guilty about your son showing signs of ocd. It is not your

fault!!!!!

I remember those days when my kids were young and raging, etc, etc

I feel for you. Just remember you are not alone!!!

I'm sure you will be getting losts of welcoming posts!!!

Just some quick ideas.I have to run!

Let us know how your appt goes

Hugs

Judy

 

________________________________

To:

Sent: Mon, February 22, 2010 1:39:36 PM

Subject: New Member

 

My name is and I am new here. I am a 26 year old mother of two little

boys, Austin who is 3 and Cameron who is 2. I have had OCD ever since I can

remember but was not diagnosed until I was 14 years old. I am on medicine and

all it really does it take the edge off, but it does make it so that I am able

to function (most days anyway) normally. My son, Austin is starting to show

signs of OCD and we have an appointment on Wednesday for him. I do NOT want him

on medication. My hope is that seeing as he is so young we can help him learn

how to cope with it better than I have. I feel very guilty that he is showing

signs of OCD. With him having the high anxiety now, it is making my anxiety go

through the roof too and we are butting heads all the time now. I get frustrated

with him for doing the behaviors and he is getting mad at me for doing mine. It

is coming full circle and is making for a mad house around here the last few

weeks. I need some advice on

how to deal with this better. That is why I am here.

[Guest guest]

,

Sorry to hear you are having a hard time. I wonder at such a young age if your

son is showing signs of OCD or imitating some of your symptoms. The reason I

ask is that I am also a mom with OCD (checker); my 9 yo daughter has OCD (she is

a washer). When one or both of my daughters were younger, they did go through

an imitative phase where they would copy something they saw me doing. It was

not anxiety related, but imitation. Once my older dd started to show signs of

OCD, the symptoms (both obsessions and compulsions) were different from mine.

You know your child best, and mine did end up having OCD, but I just wanted to

mention the other possibility.

If he does in fact need treatment, perhaps you can find someone who will work

with both of you. Don't give up on yourself. Also, if he does have OCD, you

will be in a better position to understand him and observe the signs/symptoms

than someone who has not been there herself.

Good luck to you. Having two little ones so close together is hard no matter

what else is going on.

(mom w/OCD, 9 yo daughter w/OCD)

>

> Subject: New Member

> To:

> Date: Monday, February 22, 2010, 1:39 PM

> My name is and I am new here. I

> am a 26 year old mother of two little boys, Austin who is 3

> and Cameron who is 2. I have had OCD ever since I can

> remember but was not diagnosed until I was 14 years old. I

> am on medicine and all it really does it take the edge off,

> but it does make it so that I am able to function (most days

> anyway) normally. My son, Austin is starting to show signs

> of OCD and we have an appointment on Wednesday for him. I do

> NOT want him on medication. My hope is that seeing as he is

> so young we can help him learn how to cope with it better

> than I have. I feel very guilty that he is showing signs of

> OCD. With him having the high anxiety now, it is making my

> anxiety go through the roof too and we are butting heads all

> the time now. I get frustrated with him for doing the

> behaviors and he is getting mad at me for doing mine. It is

> coming full circle and is making for a mad house around here

> the last few weeks. I need some advice on how to deal with

> this better.

> That is why I am here.

>

>

>

> ------------------------------------

>

> Our list archives feature may be accessed at: 

http://health.groups.yahoo.com/group//

> by scrolling down to the archives calendar .  Our links

> may be accessed at http://health.groups.yahoo.com/group//links

> .  Our files may be accessed at

> http://health.groups.yahoo.com/group//files

> .

> Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ),

Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. (

> http://www.massgeneral.org/doctors/doctor.aspx?ID=18068

> ). You may ask a question of any of these mental health

> professionals by inserting the words " Ask Dr.(insert name) "

> in the subject line of a post to the list.  Our list

> moderators are Castle, Judy Chabot, BJ Closner, and

> Barb Nesrallah.  You may contact the moderators at

-owner

> .  Our group and related groups are listed at

http://health.groups.yahoo.com/group/ocdsupportgroups/links

> .  IOCDF treatment providers list may be viewed at

http://www.ocfoundation.info/treatment-providers-list.php

> .

> NLM-NIH Drug Information Portal may be viewed at

>

http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\

l

> .  IOCDF recommended reading list may be accessed at

http://www.ocfoundation.org/Books.aspx .  IOCDF

> glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx

> .  IOCDF membership link may be accessed at

http://www.ocfoundation.net/membership/ . Drugs.com

> pill identification wizard may be accessed at

http://www.drugs.com/imprints.php .  Mayo Clinic

> Drug and Herb Index may be accessed at

http://www.mayoclinic.com/health/drug-information/DrugHerbIndex

> .

[Guest guest]

His obsession is different than any of mine - so he is not imitating any of my

behaviors. I did think of that though because he has been known to copy me from

time to time.

Mostly he is obsessed with hair - if there is hair on anything he freaks. An

example of this ... he was playing with Hot Wheels one day and there was a tiny

hair on the tire of the car he was playing with and he would not touch it again

to even bring it to me so I could pick it off. It has gotten to the point now

that he will not open his hands up (walks around with little fists all day)

because he doesn't want to get hair on his hands.

His sleep is being affected now too. He does not want to go to bed and often

will cry because he has to lay down. He will not talk to me about what is

bothering him about sleep. I do remember when I was very little that I could not

fall asleep before midnight because I thought nothing bad could happen after

midnight. At that time I was very afraid that someone was going to break into

our home and hurt my family. I don't know what Austin's issue is though because

he won't talk about it.

I am thankful that I found this group. It couldn't have happened at a better

time. I am at my wits end with this. Some days it is all I can do to have to

deal with my own demons but now my poor baby is struggling too. I'm bound to go

crazy before long. Yikes!

>

> >

> > Subject: New Member

> > To:

> > Date: Monday, February 22, 2010, 1:39 PM

> > My name is and I am new here. I

> > am a 26 year old mother of two little boys, Austin who is 3

> > and Cameron who is 2. I have had OCD ever since I can

> > remember but was not diagnosed until I was 14 years old. I

> > am on medicine and all it really does it take the edge off,

> > but it does make it so that I am able to function (most days

> > anyway) normally. My son, Austin is starting to show signs

> > of OCD and we have an appointment on Wednesday for him. I do

> > NOT want him on medication. My hope is that seeing as he is

> > so young we can help him learn how to cope with it better

> > than I have. I feel very guilty that he is showing signs of

> > OCD. With him having the high anxiety now, it is making my

> > anxiety go through the roof too and we are butting heads all

> > the time now. I get frustrated with him for doing the

> > behaviors and he is getting mad at me for doing mine. It is

> > coming full circle and is making for a mad house around here

> > the last few weeks. I need some advice on how to deal with

> > this better.

> > That is why I am here.

> >

> >

> >

> > ------------------------------------

> >

> > Our list archives feature may be accessed at: 

http://health.groups.yahoo.com/group//

> > by scrolling down to the archives calendar .  Our links

> > may be accessed at

http://health.groups.yahoo.com/group//links

> > .  Our files may be accessed at

> > http://health.groups.yahoo.com/group//files

> > .

> > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ),

Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. (

> > http://www.massgeneral.org/doctors/doctor.aspx?ID=18068

> > ). You may ask a question of any of these mental health

> > professionals by inserting the words " Ask Dr.(insert name) "

> > in the subject line of a post to the list.  Our list

> > moderators are Castle, Judy Chabot, BJ Closner, and

> > Barb Nesrallah.  You may contact the moderators at

-owner

> > .  Our group and related groups are listed at

http://health.groups.yahoo.com/group/ocdsupportgroups/links

> > .  IOCDF treatment providers list may be viewed at

http://www.ocfoundation.info/treatment-providers-list.php

> > .

> > NLM-NIH Drug Information Portal may be viewed at

> >

http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\

l

> > .  IOCDF recommended reading list may be accessed at

http://www.ocfoundation.org/Books.aspx .  IOCDF

> > glossary of terms may be accessed at

http://www.ocfoundation.org/glossary.aspx

> > .  IOCDF membership link may be accessed at

http://www.ocfoundation.net/membership/ . Drugs.com

> > pill identification wizard may be accessed at

http://www.drugs.com/imprints.php .  Mayo Clinic

> > Drug and Herb Index may be accessed at

http://www.mayoclinic.com/health/drug-information/DrugHerbIndex

> > .

[Guest guest]

Welcome to the group, .

I just wanted to add to what others have posted, that I've read when they are

treated young, with CBT/ERP (cognitive behavioral therapy and exposure and

response prevention) that it is very effective. That is because they have not

had the rituals become as ingrained as they do if they've been doing them for

years. So, that is a promising thing.

I don't blame you for not wanting your child on medication at such a young age.

He's so young. The correct therapy is shown to be more effective than

medication though, so if you are able to get him into a good therapist, he

hopefully will never need it as they work on retraining his brain. That, in

itself, has been shown, with brain scans, to make permanent positive changes to

the brain.

Our son showed signs of OCD at a young age like that too. He is now soon to be

18 (in a couple days). He always had trouble sleeping too, when he was young.

I think with them lying there, with nothing to occupy their minds, it is harder

for them. You couple that with the typical childhood bedtime fears, and they

are dealing with more than the average child.

What worked for us, when Josh was young, was to give him Benadryl to help make

him sleepy (but would recommend checking with your doctor first). He would be

so worked up at times that his fear would override his tiredness, so the

Benadryl helped. For some people, it can ramp them up though, so it's good to

be aware of that. Years later he switched to Melatonin because the Benadryl

stopped being as effective, but it was a lifesaver for years.

I can only imagine how tough it is for you, dealing with your own OCD too. I'm

glad you found us.

BJ

>

> My name is and I am new here. I am a 26 year old mother of two little

boys, Austin who is 3 and Cameron who is 2. I have had OCD ever since I can

remember but was not diagnosed until I was 14 years old. I am on medicine and

all it really does it take the edge off, but it does make it so that I am able

to function (most days anyway) normally. My son, Austin is starting to show

signs of OCD and we have an appointment on Wednesday for him. I do NOT want him

on medication. My hope is that seeing as he is so young we can help him learn

how to cope with it better than I have. I feel very guilty that he is showing

signs of OCD. With him having the high anxiety now, it is making my anxiety go

through the roof too and we are butting heads all the time now. I get frustrated

with him for doing the behaviors and he is getting mad at me for doing mine. It

is coming full circle and is making for a mad house around here the last few

weeks. I need some advice on how to deal with this better. That is why I am

here.

>

[Guest guest]

You are right that it doesn't sound like he's imitating you. Sorry to hear that

you are going through this. This is a great place to vent, ask for advice, and

share successes when they come. Try to find some time for yourself to help

reduce your stress levels and consider whether your medication needs to be

changed or increased to help you function better. My daughter w/OCD is a stress

barometer and feeds off my anxiety and stress. I was off medication for many

years and went on Zoloft last summer for depression and OCD, although I think

the depression was the worse of the two at that point.

Best wishes,

(mom w/OCD, 9 yo daughter w/OCD)

>

> Subject: Re: New Member

> To:

> Date: Monday, February 22, 2010, 2:27 PM

> His obsession is different than any

> of mine - so he is not imitating any of my behaviors. I did

> think of that though because he has been known to copy me

> from time to time.

>

> Mostly he is obsessed with hair - if there is hair on

> anything he freaks. An example of this ... he was playing

> with Hot Wheels one day and there was a tiny hair on the

> tire of the car he was playing with and he would not touch

> it again to even bring it to me so I could pick it off. It

> has gotten to the point now that he will not open his hands

> up (walks around with little fists all day) because he

> doesn't want to get hair on his hands.

>

> His sleep is being affected now too. He does not want to go

> to bed and often will cry because he has to lay down. He

> will not talk to me about what is bothering him about sleep.

> I do remember when I was very little that I could not fall

> asleep before midnight because I thought nothing bad could

> happen after midnight. At that time I was very afraid that

> someone was going to break into our home and hurt my family.

> I don't know what Austin's issue is though because he won't

> talk about it.

>

> I am thankful that I found this group. It couldn't have

> happened at a better time. I am at my wits end with this.

> Some days it is all I can do to have to deal with my own

> demons but now my poor baby is struggling too. I'm bound to

> go crazy before long. Yikes!

>

>

> >

> > >

> > > Subject: New Member

> > > To:

> > > Date: Monday, February 22, 2010, 1:39 PM

> > > My name is and I am new here. I

> > > am a 26 year old mother of two little boys,

> Austin who is 3

> > > and Cameron who is 2. I have had OCD ever since I

> can

> > > remember but was not diagnosed until I was 14

> years old. I

> > > am on medicine and all it really does it take the

> edge off,

> > > but it does make it so that I am able to function

> (most days

> > > anyway) normally. My son, Austin is starting to

> show signs

> > > of OCD and we have an appointment on Wednesday

> for him. I do

> > > NOT want him on medication. My hope is that

> seeing as he is

> > > so young we can help him learn how to cope with

> it better

> > > than I have. I feel very guilty that he is

> showing signs of

> > > OCD. With him having the high anxiety now, it is

> making my

> > > anxiety go through the roof too and we are

> butting heads all

> > > the time now. I get frustrated with him for doing

> the

> > > behaviors and he is getting mad at me for doing

> mine. It is

> > > coming full circle and is making for a mad house

> around here

> > > the last few weeks. I need some advice on how to

> deal with

> > > this better.

> > >  That is why I am here.

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Our list archives feature may be accessed at: 

> http://health.groups.yahoo.com/group//

> > > by scrolling down to the archives calendar . 

> Our links

> > > may be accessed at

http://health.groups.yahoo.com/group//links

> > > .  Our files may be accessed at

> > > http://health.groups.yahoo.com/group//files

> > > .

> > > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ),

Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. (

> > > http://www.massgeneral.org/doctors/doctor.aspx?ID=18068

> > > ). You may ask a question of any of these mental

> health

> > > professionals by inserting the words " Ask

> Dr.(insert name) "

> > > in the subject line of a post to the list.  Our

> list

> > > moderators are Castle, Judy Chabot, BJ

> Closner, and

> > > Barb Nesrallah.  You may contact the moderators

> at -owner

> > > .  Our group and related groups are listed at

http://health.groups.yahoo.com/group/ocdsupportgroups/links

> > > .  IOCDF treatment providers list may be viewed

> at http://www.ocfoundation.info/treatment-providers-list.php

> > > .

> > > NLM-NIH Drug Information Portal may be viewed at

> > >

http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\

l

> > > .  IOCDF recommended reading list may be

> accessed at http://www.ocfoundation.org/Books.aspx

> .  IOCDF

> > > glossary of terms may be accessed at

http://www.ocfoundation.org/glossary.aspx

> > > .  IOCDF membership link may be accessed at

http://www.ocfoundation.net/membership/ . Drugs.com

> > > pill identification wizard may be accessed at

http://www.drugs.com/imprints.php .  Mayo Clinic

> > > Drug and Herb Index may be accessed at

http://www.mayoclinic.com/health/drug-information/DrugHerbIndex

> > > .

[Guest guest]

Hi ! I raised 3 sons myself, grown now, one with OCD. Your sons' ages are

a stress and a delight at the same time, they can seem to learn that word " no! "

and start to be a little independent (or is stubborn a better word?). So throw

in a bit of OCD with it, I can imagine well!

I will say that another son of mine with through some OCD behaviors at that age,

had to have certain things " perfect " and even involved me in some things (had to

walk in a room the way he wanted, certain number of steps, turn left/right and

step...) and he could really show some tears and stamp his feet when *I* would

mess up. Whew, luckily we made it through that after a while. Then his twin

(not identical) comes up with OCD in 6th grade and his has stayed!

When 's began (in 6th grade) I sometimes wish he'd begun at a younger age

as I thought just maybe it might be easier to get him to work on things, maybe

make a game of some things or get him to earn rewards, or that maybe he'd still

just listen better to me! However, reading from some parents here who are in

the midst of OCD with their younger kids (under age 12), guess that's not always

the case!

Forget the guilt. Remember he got some good things from you too!

Maybe you both can work on a few things together, even if your behaviors are

different. You try changing a behavior and he tries too (just TRYING counts)

and you both earn a reward/treat! And just picking one thing to work on to

begin with helps, something he's less anxious about or that you feel is easiest

to try. (My son wouldn't choose anything at his age, I'd pick out a couple

things and say I think we'll work on these 2, okay? and he'd agree.) A little

success with one behavior can give them a bit of a push to work on some others

and succeed.

Here's a few books I just copied from the OCD Foundation website that are for

kids (they sell them) or you can probably find them and others at stores like

& Noble:

You Do That Too? Adolescents and OCD

by Arturo and Rena Benson

Repetitive Rhonda

by Jan , MA

Not As Crazy As I Seem

by Harrar

No One is Perfect and YOU Are a Great Kid

by Kim Hix

What to do When Your Brain Gets Stuck: A Kid's Guide to Overcoming OCD

by Dawn Huebner, Ph.D.

Blink, Blink, Clop, Clop: Why Do We Do Things We Can't Stop? An OCD Storybook

by E. Katia Moritz, Ph.D., and Jablonsky

Mr. Worry: A Story About OCD

by Holly L. Niner

A Thought is Just a Thought: A Story of Living with OCD

by Talley

Up & Down the Worry Hill: A Children's Book about Obsessive-Compulsive Disorder

and its Treatment

by Aureen P. Wagner, Ph.D.

Keep us updated and let us know how your appointment goes.

>

> My name is and I am new here. I am a 26 year old mother of two little

boys, Austin who is 3 and Cameron who is 2. I have had OCD ever since I can

remember but was not diagnosed until I was 14 years old. I am on medicine and

all it really does it take the edge off, but it does make it so that I am able

to function (most days anyway) normally. My son, Austin is starting to show

signs of OCD and we have

[Guest guest]

,

I have to chime in from time to time with a plug for classical homeopathy. We

have 12 yr old dd that has had OCD since she was 5. We did ERP/CBT through

anxiety disorder group affiliated w/ 's and did not make progress b/c of

dd's resistance to therapy and discomfort/anxiety in talking about OCD. We work

with a Naturopath out of Montana - Dr. Mark Janikula - www.vitalhomeopathic.com

and for the last 9 months have seen increasing improvement. Not sure how it

would work for your youngster at age 3, but it is based as much on our

observations about a variety of symptoms and behaviors than any input from her

that dictates his treatment, so may be worth a try. Just another option you may

want to look at if not comfortable with meds at this point. All is done via

phone consults.

>

> My name is and I am new here. I am a 26 year old mother of two little

boys, Austin who is 3 and Cameron who is 2. I have had OCD ever since I can

remember but was not diagnosed until I was 14 years old. I am on medicine and

all it really does it take the edge off, but it does make it so that I am able

to function (most days anyway) normally. My son, Austin is starting to show

signs of OCD and we have an appointment on Wednesday for him. I do NOT want him

on medication. My hope is that seeing as he is so young we can help him learn

how to cope with it better than I have. I feel very guilty that he is showing

signs of OCD. With him having the high anxiety now, it is making my anxiety go

through the roof too and we are butting heads all the time now. I get frustrated

with him for doing the behaviors and he is getting mad at me for doing mine. It

is coming full circle and is making for a mad house around here the last few

weeks. I need some advice on how to deal with this better. That is why I am

here.

>

[Guest guest]

,

You may find it helpful to look at the posts from the last two weeks about

PANDAS. 3 years old is incredibly young for a conclusive OCD diagnosis. My

husband has OCD (started at age 12) but my son has PANDAS - infection triggered

OCD that goes away when he's healthy. So just because the parent has traditional

OCD doesn't mean the child can't have PANDAS. In fact, most PANDAS kids have

some OCD relatives in the closet.

You can look into this further at

www.pandasnetwork.org

www.webpediatrics.com

or you can contact me directly if you have questions. But PANDAS is something

you should know about as you start this journey of getting you son help.

Best,

[Guest guest]

Thank you Suzie, I have read and researched some here and there. I will

definately read more.

I did forget to mention a symptom she is having, I have not found it anywhere in

the symptoms I have read. She is having sharp pains in her neck. I think it is

the left side. They last about a minute or so then go away.

She is not ready to quit drinking and her husband will not either, so it makes

it harder to do it. The last time she asked him to he laughed at her. It really

is a sad situation.

I never realized the hernia was caused from the fluid... The doctor didn't even

tell us that. I figured it was due to her surgery from uterine cancer when she

was 50. That was when the doctor found the cirrhosis. She reduced her drinking

enough for her histerectomy but would not for the hernia. There were

complications from the histerectomy, she spent 3 days in ICU because of blood

seaping out the incision and other complications that I think were probably

related to withdrawals, even though they were giving her beer to try to

stabalize it.

Thanks again,

>

> Hi Jenn,

>   I'm SuZie, one of the mods here.  I just turned 60 & I've  had HCV since

1969.  I''ve had cirrhosis since 1990 & am now in ESLD(End Stage Liver Disease)

but the doctors say I'm stable which is good enuff for me.  I quit drinking when

I was dx'd(diagnosed) with cirrhosis & I think that's one reason I've done so

well.

>   Now she is having several symptoms: fluid in her feet and legs, stomach

> is swollen (but not sure if it is fluid or hernia), confusion (getting

> lost driving, days mixed up), slurred speech, unable to control bladder

> and bowels at times (not all the time), frequent urination during the

> night (seems like every half hour), wakes up to nose bleeding. It sounds like

her cirrhosis has worsened.  I'm familiar with most of these symptoms - we call

the getting lost & losing days brain fog - & there's not much you can do at this

point, especially with someone as stubborn as your mother sounds.  The best

thing would be to quit drinking but that doesn't sound likely.

>   I'll post some info I have on cirrhosis so you know what's going on with

her.

>

> SuZie & Sir SpYke the Fuzzy a k a He Who Must Be Obeyed 

>

> Everything I know I learned from my cat:  When you're tired, nap in a

sunbeam.  When you're hungry, eat.  When you go to the vet's. pee on your owner.

> ---

>

[Guest guest]

You're welcome Jen. One thing I forgot to mention. HCV+ people are much more likely to develop Diabetes. I'd tell your mother to get herself checked - the frequent urination she has is a symptom of Diabetes not HCV or cirrhosis. I'm Diabetic & on insulin because of the condition of my liver it developed about 3 years after I was dx'd.SuZieEverything I know I learned from my cat: When you're tired, nap in a sunbeam. When you're hungry, eat. When you go to the vet's. pee on your owner.--- Subject: Re: New MemberTo: HepatitisCSupportGroupForDummies Date: Monday, August 16, 2010, 2:54 PM

Thank you Suzie, I have read and researched some here and there. I will definately read more.

I did forget to mention a symptom she is having, I have not found it anywhere in the symptoms I have read. She is having sharp pains in her neck. I think it is the left side. They last about a minute or so then go away.

She is not ready to quit drinking and her husband will not either, so it makes it harder to do it. The last time she asked him to he laughed at her. It really is a sad situation.

I never realized the hernia was caused from the fluid... The doctor didn't even tell us that. I figured it was due to her surgery from uterine cancer when she was 50. That was when the doctor found the cirrhosis. She reduced her drinking enough for her histerectomy but would not for the hernia. There were complications from the histerectomy, she spent 3 days in ICU because of blood seaping out the incision and other complications that I think were probably related to withdrawals, even though they were giving her beer to try to stabalize it.

Thanks again,

>

> Hi Jenn,

> I'm SuZie, one of the mods here. I just turned 60 & I've had HCV since 1969. I''ve had cirrhosis since 1990 & am now in ESLD(End Stage Liver Disease) but the doctors say I'm stable which is good enuff for me. I quit drinking when I was dx'd(diagnosed) with cirrhosis & I think that's one reason I've done so well.

> Now she is having several symptoms: fluid in her feet and legs, stomach

> is swollen (but not sure if it is fluid or hernia), confusion (getting

> lost driving, days mixed up), slurred speech, unable to control bladder

> and bowels at times (not all the time), frequent urination during the

> night (seems like every half hour), wakes up to nose bleeding. It sounds like her cirrhosis has worsened. I'm familiar with most of these symptoms - we call the getting lost & losing days brain fog - & there's not much you can do at this point, especially with someone as stubborn as your mother sounds. The best thing would be to quit drinking but that doesn't sound likely.

> I'll post some info I have on cirrhosis so you know what's going on with her.

>

> SuZie & Sir SpYke the Fuzzy a k a He Who Must Be Obeyed

>

> Everything I know I learned from my cat: When you're tired, nap in a sunbeam. When you're hungry, eat. When you go to the vet's. pee on your owner.

> ---

>

[Guest guest]

Hey ... welcome back, how are you doing?? Sorry you are having to do tx again.Llinda (Idaho)

[Guest guest]

Hey girl, I wrecked my back but my doc says I'm a perfect candidate for the new tx. Cross fingers and toes. How are you toots?

To: HepatitisCSupportGroupForDummies Sent: Tue, April 12, 2011 11:02:41 AMSubject: RE: New member

Hey ... welcome back, how are you doing?? Sorry you are having to do tx again.

Llinda (Idaho)