Re: gastroscopy/colonoscopy

[Guest guest]

Do they film the inside the intestines during the procedure? If so ask for a

copy. What may seam " normal " to some doctors, isn't normal to other

specialists. My friend's dd had 2 EEG's and for the NHS consultant they were

normal- specialists she saw in Italy told her that her dd has a seizure disorder

not Autism!

I have Gilbert's syndrome which means that I can not process paracetamol and was

told in Poland that I should not ever take it, NHS sees this syndrome as

harmless and paracetamol is fine in normal doses! I would write a complaint. I

hope your son is better soon.

Kasia

>

> eddie had this procedure yesterday.. after 2 days of bowel prep - diet and

drugs - it seems his bowel was still full! i had no idea this has been going on

as he has massive poos everyday at least twice.

>

>

> nothing obvious showed up according to the consultant paed gastro, which

doesn't suggest why he has long, thin poos somedays and regular posturing and

stomach upset. i'm pretty disappointed. although he has taken numerous

biopsies for further testing.

>

> anyone else had experience with this?

>

> they also gave him paracetemol in theatre despite it being written everywhere

that he wasn't to have it. it was written on his checklist, nursing admission,

drug chart, anaesthetic chart and the literature i gave them in big bold

letters. i'm gobsmacked at such a basic error. i'm not sure if it was related,

but he was up all night, totally hyper. i'm going to write in, so please feel

free to let me know if you have any info on this.

>

> karenza

>

[Guest guest]

it happened to me, exactly the same! It was written in BIG RED CAPS all

across his papers adn I only found out he had IV paracetomol cos I

accidentally overheard someone discussing the op.

I never complained.

The poo thing is familiar too though isn't it? I have heard that so many

times. Yes, very disappointing and worrying as how are you supposed to

know when he's constipated?

Sorry, just sympathising, nothing useful to say :-(

[Guest guest]

Would you be able to scan this article for me Alison?

Kasia

> > >

> > > eddie had this procedure yesterday.. after 2 days of bowel prep - diet

> > and drugs - it seems his bowel was still full! i had no idea this has been

> > going on as he has massive poos everyday at least twice.

> > >

> > >

> > > nothing obvious showed up according to the consultant paed gastro, which

> > doesn't suggest why he has long, thin poos somedays and regular posturing

> > and stomach upset. i'm pretty disappointed. although he has taken numerous

> > biopsies for further testing.

> > >

> > > anyone else had experience with this?

> > >

> > > they also gave him paracetemol in theatre despite it being written

> > everywhere that he wasn't to have it. it was written on his checklist,

> > nursing admission, drug chart, anaesthetic chart and the literature i gave

> > them in big bold letters. i'm gobsmacked at such a basic error. i'm not

> > sure if it was related, but he was up all night, totally hyper. i'm going

> > to write in, so please feel free to let me know if you have any info on

> > this.

> > >

> > > karenza

> > >

> >

> >

> >

>

[Guest guest]

How was the syndrom diagnosed please?

Margaret

> > > >

> > > > eddie had this procedure yesterday.. after 2 days of bowel prep - diet

> > > and drugs - it seems his bowel was still full! i had no idea this has been

> > > going on as he has massive poos everyday at least twice.

> > > >

> > > >

> > > > nothing obvious showed up according to the consultant paed gastro, which

> > > doesn't suggest why he has long, thin poos somedays and regular posturing

> > > and stomach upset. i'm pretty disappointed. although he has taken numerous

> > > biopsies for further testing.

> > > >

> > > > anyone else had experience with this?

> > > >

> > > > they also gave him paracetemol in theatre despite it being written

> > > everywhere that he wasn't to have it. it was written on his checklist,

> > > nursing admission, drug chart, anaesthetic chart and the literature i gave

> > > them in big bold letters. i'm gobsmacked at such a basic error. i'm not

> > > sure if it was related, but he was up all night, totally hyper. i'm going

> > > to write in, so please feel free to let me know if you have any info on

> > > this.

> > > >

> > > > karenza

> > > >

> > >

> > >

> > >

> >

>

[Guest guest]

It was diagnosed by chance really. I have no symptoms, my billirubin levels were

very high a few times during routine blood checks, other liver parameters were

fine. I used to check my blood once a year/2 years in Poland. It comes and goes,

billirubin levels in my case are related to stress and welbeing.

Kasia

> > > > >

> > > > > eddie had this procedure yesterday.. after 2 days of bowel prep - diet

> > > > and drugs - it seems his bowel was still full! i had no idea this has

been

> > > > going on as he has massive poos everyday at least twice.

> > > > >

> > > > >

> > > > > nothing obvious showed up according to the consultant paed gastro,

which

> > > > doesn't suggest why he has long, thin poos somedays and regular

posturing

> > > > and stomach upset. i'm pretty disappointed. although he has taken

numerous

> > > > biopsies for further testing.

> > > > >

> > > > > anyone else had experience with this?

> > > > >

> > > > > they also gave him paracetemol in theatre despite it being written

> > > > everywhere that he wasn't to have it. it was written on his checklist,

> > > > nursing admission, drug chart, anaesthetic chart and the literature i

gave

> > > > them in big bold letters. i'm gobsmacked at such a basic error. i'm not

> > > > sure if it was related, but he was up all night, totally hyper. i'm

going

> > > > to write in, so please feel free to let me know if you have any info on

> > > > this.

> > > > >

> > > > > karenza

> > > > >

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

I don't know if this is normal for Gilbert's syndrome but my billirubin levels

were 3 times higher than norm.

Kasia

> >

> > How was the syndrom diagnosed please?

> > Margaret

> >

[Guest guest]

Thank you both for the replies - must look out my old blood tests (and Henry's)

and see if they show anything.

Margaret

> > >

> > > How was the syndrom diagnosed please?

> > > Margaret

> > >

>

[Guest guest]

This is interesting, my daughter has gilberts syndrome (her only symptom is the

whites of her eyes are a bit yellow. I had obstetric cholestasis when expecting

my ASD son, which is diagnosed by very high bilirubin levels. Not sure what this

all means but feels like another piece in the puzzle

x

> > > > > >

> > > > > > eddie had this procedure yesterday.. after 2 days of bowel prep -

diet

> > > > > and drugs - it seems his bowel was still full! i had no idea this has

been

> > > > > going on as he has massive poos everyday at least twice.

> > > > > >

> > > > > >

> > > > > > nothing obvious showed up according to the consultant paed gastro,

which

> > > > > doesn't suggest why he has long, thin poos somedays and regular

posturing

> > > > > and stomach upset. i'm pretty disappointed. although he has taken

numerous

> > > > > biopsies for further testing.

> > > > > >

> > > > > > anyone else had experience with this?

> > > > > >

> > > > > > they also gave him paracetemol in theatre despite it being written

> > > > > everywhere that he wasn't to have it. it was written on his checklist,

> > > > > nursing admission, drug chart, anaesthetic chart and the literature i

gave

> > > > > them in big bold letters. i'm gobsmacked at such a basic error. i'm

not

> > > > > sure if it was related, but he was up all night, totally hyper. i'm

going

> > > > > to write in, so please feel free to let me know if you have any info

on

> > > > > this.

> > > > > >

> > > > > > karenza

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>