Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Thank goodness for the normal scan!! ADD can be overcome -- my son has it and he's in college now, doing well. There are many coping strategies with and without meds. -- In fact, I think the non-meds routines helped the most, with the meds kind of " filling-in-the-gaps. " Indyrose > > Hi everyone! > The doctor called this morning and said the MRI came back normal. She > talked about the fact that does have the disease > (neurofibromatosis) and will have to seen once a year. She said she could help us with the > school since this disease does have 50% rate of kids having learning > disabilities. She told me to get with 's pediatrician and see about the > meds for the ADD. > > We are very relieved. Thanks for all the support. > > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 You might have to get an IEP, which basically is a contract to ensure any help at school needs in relation to her diagnosis, she will get. It might not be AS detailed as what Viola has, but it does cover you based on the nature of diagnosis. Depending on what her strengths/weaknesses are and the district your in, is what they provide. Even if she needs say like 10 extra minutes during an exam, it is possible they will do that if it is directly caused by the disease. Not saying you HAVE to go this route, but something to discuss if she has any problems in school. It would covered on the Disabilities Act for Free Appropriate Education. I don't know much about the cause/effect problems related to this, but I know a lot of kids get help and it makes a difference. You might have to google some info, but usually the school should be pretty helpful with that in the future. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com To: Cathe_Friedrich_Fans ; exercisevideos ; fitandthatsit Sent: Tuesday, January 24, 2012 10:35 AM Subject: OT/'s Test Hi everyone! The doctor called this morning and said the MRI came back normal. She talked about the fact that does have the disease (neurofibromatosis) and will have to seen once a year. She said she could help us with the school since this disease does have 50% rate of kids having learning disabilities. She told me to get with 's pediatrician and see about the meds for the ADD. We are very relieved. Thanks for all the support. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 That is awesome news, ! I"m glad 's scan came back "normal". I don't know much about ADD, but I think there are behavioral types of therapy that can be used instead of medications. Your school should be able to help if you're interested in pursuing that. Many kids w/ ADD go on to do great in school and life!! So glad you got good news!Donna Subject: OT/'s TestTo: Cathe_Friedrich_Fans , exercisevideos , fitandthatsit Date: Tuesday, January 24, 2012, 10:35 AM Hi everyone! The doctor called this morning and said the MRI came back normal. She talked about the fact that does have the disease (neurofibromatosis) and will have to seen once a year. She said she could help us with the school since this disease does have 50% rate of kids having learning disabilities. She told me to get with 's pediatrician and see about the meds for the ADD. We are very relieved. Thanks for all the support. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Ooh - excellent point, Kassia!, I used to work for the school system in their legal office and did a bit of work w/ IDEA (Individuals w/ Disabilities Education Act) and Kassia is right about asking for an IEP (Individual Education Plan) so that the can get the accommodations she needs to succeed in school. Good luck!Donna Subject: Re: OT/'s TestTo: "exercisevideos " <exercisevideos >Date: Tuesday, January 24, 2012, 11:35 AM You might have to get an IEP, which basically is a contract to ensure any help at school needs in relation to her diagnosis, she will get. It might not be AS detailed as what Viola has, but it does cover you based on the nature of diagnosis. Depending on what her strengths/weaknesses are and the district your in, is what they provide. Even if she needs say like 10 extra minutes during an exam, it is possible they will do that if it is directly caused by the disease. Not saying you HAVE to go this route, but something to discuss if she has any problems in school. It would covered on the Disabilities Act for Free Appropriate Education. I don't know much about the cause/effect problems related to this, but I know a lot of kids get help and it makes a difference. You might have to google some info, but usually the school should be pretty helpful with that in the future. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com To: Cathe_Friedrich_Fans ; exercisevideos ; fitandthatsit Sent: Tuesday, January 24, 2012 10:35 AMSubject: OT/'s Test Hi everyone! The doctor called this morning and said the MRI came back normal. She talked about the fact that does have the disease (neurofibromatosis) and will have to seen once a year. She said she could help us with the school since this disease does have 50% rate of kids having learning disabilities. She told me to get with 's pediatrician and see about the meds for the ADD. We are very relieved. Thanks for all the support. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Your school should be able to help if you're interested in pursuing that. Many kids w/ ADD go on to do great in school and life!! Thanks! Yes I wish ADD was all we had to deal with, but has a lot of issues that's she had since birth. Its been very difficult to deal with. I was happy about the results, but disappointed that the doctor couldn't help us with other end of it. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 lle, I used to work for the school system in their legal office and did a bit of work w/ IDEA (Individuals w/ Disabilities Education Act) and Kassia is right about asking for an IEP (Individual Education Plan) so that the can get the accommodations she needs to succeed in school. Yes, that's what the school talked to us about. They have been very understanding. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 You might have to google some info, but usually the school should be pretty helpful with that in the future. Thanks for your info Kassia. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 That is wonderful ! It is so great to hear the good stories with schools stepping up. I haven't had any situations arise myself, even with the new middle school. I think many are coming around that sometimes kids need a little extra boost/support, but they can do the work. Viola was diagnosed ADHD as well, but I am sure many of the signs are more related to the Autism, this just ensures she gets all the best help possible. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com To: exercisevideos Sent: Tuesday, January 24, 2012 11:48 AM Subject: Re: OT/'s Test lle, I used to work for the school system in their legal office and did a bit of work w/ IDEA (Individuals w/ Disabilities Education Act) and Kassia is right about asking for an IEP (Individual Education Plan) so that the can get the accommodations she needs to succeed in school. Yes, that's what the school talked to us about. They have been very understanding. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 That is wonderful ! It is so great to hear the good stories with schools stepping up. I haven't had any situations arise myself, even with the new middle school. I think many are coming around that sometimes kids need a little extra boost/support, but they can do the work. Viola was diagnosed ADHD as well, but I am sure many of the signs are more related to the Autism, this just ensures she gets all the best help possible. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com To: exercisevideos Sent: Tuesday, January 24, 2012 11:48 AM Subject: Re: OT/'s Test lle, I used to work for the school system in their legal office and did a bit of work w/ IDEA (Individuals w/ Disabilities Education Act) and Kassia is right about asking for an IEP (Individual Education Plan) so that the can get the accommodations she needs to succeed in school. Yes, that's what the school talked to us about. They have been very understanding. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Woo hoo!!!!! So happy to hear all is well!!! That is so great too that the doc can help with school. Our doc was fabulous with helping get services for when he was younger (learning disabilities, sensory issues) and it is such a relief. Speaking of relief, just having to see the doc once a year is so awesome!! I'm happy dancing and relieved with you!! Hugs, OT/'s Test Hi everyone! The doctor called this morning and said the MRI came back normal. She talked about the fact that does have the disease (neurofibromatosis) and will have to seen once a year. She said she could help us with the school since this disease does have 50% rate of kids having learning disabilities. She told me to get with 's pediatrician and see about the meds for the ADD. We are very relieved. Thanks for all the support. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012  We had an IEP for from kindgergarten through 6th grade and it was very helpful in getting what he needed. We have a 504 now (similar but not as detailed of a plan) for various reasons (especially his improving so much thankfully). With an IEP in place the schools have to provide the services the child needs no matter how much a teacher does or doesn't want to cooperate (I'm thinking about only one teacher we ever had that was in the does not want to cooperate category but legally, he had to). Overall though, our schools have been awesome, including the middle school, with helping him and wanting him to succeed (which he's doing, hooray)! OT/'s Test Hi everyone! The doctor called this morning and said the MRI came back normal. She talked about the fact that does have the disease (neurofibromatosis) and will have to seen once a year. She said she could help us with the school since this disease does have 50% rate of kids having learning disabilities. She told me to get with 's pediatrician and see about the meds for the ADD. We are very relieved. Thanks for all the support. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 DH and I made a conscience effort not to get an IEP, since the non-school world would not do such a thing, but instead, we did some strict home-life structures. We also monitored his meds very closely and kept up on the " latest. " We kept tabs on his diet and *exercise,* which actually had a profound impact on his performance. Luckily, he went to a very small high school and anyone who tried out for a sport/activity made the team -- he lettered in 6 sports, plus band, theater, made Eagle Scout, and won the regional Speech competition. We didn't need to push him, either -- he did that eagerly! (He's very athletic, but he's not very good at " sports, " per se. He sat the bench at games a lot.) At 20 now, he's thanked us for doing that for him, and training him how to manage it himself. His first year of college was rough, and he almost lost his scholarship, but he straightened out sophomore year. All but one teacher was helpful along the way, even without an IEP. Indyrose > > > > Subject: Re: OT/'s Test > To: " exercisevideos " <exercisevideos > > Date: Tuesday, January 24, 2012, 11:35 AM > > > > > > You might have to get an IEP, which basically is a contract to ensure any help at school needs in relation to her diagnosis, she will get. It might not be AS detailed as what Viola has, but it does cover you based on the nature of diagnosis. Depending on what her strengths/weaknesses are and the district your in, is what they provide. Even if she needs say like 10 extra minutes during an exam, it is possible they will do that if it is directly caused by the disease. Not saying you HAVE to go this route, but something to discuss if she has any problems in school. It would covered on the Disabilities Act for Free Appropriate Education. I don't know much about the cause/effect problems related to this, but I know a lot of kids get help and it makes a difference. You might have to google some info, but usually the school should be pretty helpful with that in the future. > > > > KASSIA > wife,mother,student,kettlebelle > http://ldysolana.blogspot.com > > > > > > > > > > ---------------------------------------------------------------------- > > To: Cathe_Friedrich_Fans ; exercisevideos ; fitandthatsit > Sent: Tuesday, January 24, 2012 10:35 AM > Subject: OT/'s Test > > > > > > > Hi everyone! > The doctor called this morning and said the MRI came back normal. She talked about the fact that does have the disease (neurofibromatosis) and will have to seen once a year. She said she could help us with the school since this disease does have 50% rate of kids having learning disabilities. She told me to get with 's pediatrician and see about the meds for the ADD. > > We are very relieved. Thanks for all the support. > > ~ > Quote Link to comment Share on other sites More sharing options...
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