Re: Hey!

[Guest guest]

Hi Kassia,

you and your family are in my prayers! I wish I could come and stay w/ you and keep you company! You are right though, keeping a normal routine for Viola is important, as well as taking care of yourself - you need to be strong to get through this!!And yes, hygeine is so important, the boy at 's school, who, I think, had a similar procedure is still (months later) farily isolated, they have to be careful about foods (especially fungus...which apparently those w/out compromised immune systems can fight off no problem).

Just lots of hugs and prayers to you and your family!Donna

Subject: Hey!To: "exercisevideos " <exercisevideos >Date: Saturday, February 4, 2012, 8:29 AM

Hey group,

I wanted to keep you all updated. I haven't made an "announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him

since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com

[Guest guest]

Thanks so much Donna!! Yes while going through cycles, DH has to be

on a "neutropenic" diet. Basically nothing RAW b/c his body lacks neutrophils, which are bacteria/fungil eating white blood cells. There are some other stipulations like no deli meats (b/c slicers can be bacterial containing) nothing homemade like homemade peanut butter etc. And we all know kids, they get into the strangest things, so it's precautionary that we keep patients safe as possible. They give it a better survival rate, but I do not want to take anything for granted. The sooner I finish school, the better his outlook on things. He wants to know I am in a field that I love and making a well enough living that he knows if something happens, I will be okay financially. I had a bit of a breakdown yesterday. I didn't do well on a test b/c I blanked out on a formula (Statistics class). It was upsetting with all that is going on, but people

that shouldn't matter had an opinion on my "complaining". I got it off my chest and ready to bounce back. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com From: Donna M-P

To: exercisevideos Sent: Saturday, February 4, 2012 8:39 AM Subject: Re: Hey!

Hi Kassia,

you and your family are in my prayers! I wish I could come and stay w/ you and keep you company! You are right though, keeping a normal routine for Viola is important, as well as taking care of yourself - you need to be strong to get through this!!And yes, hygeine is so important, the boy at 's school, who, I think, had a similar procedure is still (months later) farily isolated, they have to be careful about foods (especially fungus...which apparently those w/out compromised immune systems can fight off no problem).

Just lots of hugs and prayers to you and your family!Donna

Subject: Hey!To: "exercisevideos " <exercisevideos >Date: Saturday, February 4, 2012, 8:29 AM

Hey group,

I wanted to keep you all updated. I haven't made an "announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him

since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com/

[Guest guest]

Thanks for giving us this update, Kassia! I can't imagine what you are going through. My family will continue to pray for healing for your husband and for strength for you through this!!! TeenaSent from my iPhone

Thanks so much Donna!! Yes while going through cycles, DH has to be

on a "neutropenic" diet. Basically nothing RAW b/c his body lacks neutrophils, which are bacteria/fungil eating white blood cells. There are some other stipulations like no deli meats (b/c slicers can be bacterial containing) nothing homemade like homemade peanut butter etc. And we all know kids, they get into the strangest things, so it's precautionary that we keep patients safe as possible. They give it a better survival rate, but I do not want to take anything for granted. The sooner I finish school, the better his outlook on things. He wants to know I am in a field that I love and making a well enough living that he knows if something happens, I will be okay financially. I had a bit of a breakdown yesterday. I didn't do well on a test b/c I blanked out on a formula (Statistics class). It was upsetting with all that is going on, but people

that shouldn't matter had an opinion on my "complaining". I got it off my chest and ready to bounce back. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com From: Donna M-P

To: exercisevideos Sent: Saturday, February 4, 2012 8:39 AM Subject: Re: Hey!

Hi Kassia,

you and your family are in my prayers! I wish I could come and stay w/ you and keep you company! You are right though, keeping a normal routine for Viola is important, as well as taking care of yourself - you need to be strong to get through this!!And yes, hygeine is so important, the boy at 's school, who, I think, had a similar procedure is still (months later) farily isolated, they have to be careful about foods (especially fungus...which apparently those w/out compromised immune systems can fight off no problem).

Just lots of hugs and prayers to you and your family!Donna

Subject: Hey!To: "exercisevideos " <exercisevideos >Date: Saturday, February 4, 2012, 8:29 AM

Hey group,

I wanted to keep you all updated. I haven't made an "announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him

since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com/

[Guest guest]

Yes, Kassia, keep us informed. Not only can we send prayers and well-wishes your

way, but it helps you vent a bit, too.

Indyrose

> >

> >

> > Subject: Hey!

> > To: " exercisevideos " <exercisevideos >

> > Date: Saturday, February 4, 2012, 8:29 AM

> >

> >

> > Hey group,

> >

> > I wanted to keep you all updated. I haven't made an " announcement " , but

doctors are going to rush the stem cell procedure. It is a little out of left

field, scary, rushed, and at first I though there was a problem! They say this

isn't the case, the chemo is doing its job, however, b/c of a defect call

Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it

when they determined the type of Leukemia he had), they feel the chemo alone is

not enough. In their words if they don't do the transplant sooner (usually the

time frame is WITHIN 6-8 months of diagnosis), not only will it not " take " , but

if the cancer comes back it will be a death sentence, it will be nearly

impossible to control/treat. We are looking 3-4 weeks, he will begin the

difficult chemo they do before transplant. After transplant there will be 1

month hospital stay, he will have to stay near UVA for at least another 2-3

months. His mom is going to stay with him since this has landed in the middle of

the semester and Viola doesn't finish her school year until June. Even if

weren't for my school, I do have to keep Viola's world as routine as possible. I

am not handling the thought of being alone for that long, very well. My mother

in law has been a good person in this, she respects my wishes and listens to me

so I am glad Dh decided to ask her to do this. The rest of the family does not

bother to google, read links I send, they won't listen to me, and they even have

the nerve to tell me what I should do about my business. I do not want people

like that taking care of my husband. If you cannot bother to learn what this

entails, the care WE as the family have to give (and the whys), and let alone I

notice some of them are not very hygienic (a BIG problem with a patient that has

no immunity!!), you shouldn't be involved in the difficult care giving process.

> >

> > I was becoming consistent with posting when this paired with school projects

came up. I have some new goals to run 1-2 times a week at the college track. I

was writing to somebody on how I remember Viola's diagnosis and when I started

running. It was good for me, and while I didn't have the schedule then that I do

now, I am going to make every attempt to run. It is a very effective stress

reliever, plus it's nature's greatest exercise. The only equipment needed is a

good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some

water! Well I would wear some clothes too LOL.

> >

> >

> > KASSIA

> > wife,mother,student,kettlebelle

> > http://ldysolana.blogspot.com/

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Hugs Kassia. This is such a huge thing to go through, so I commend you on continuing with school during all of this. Statistics is a tough enough class even when the rest of your life is calm. You are very strong. I hope the treatments work beautifully.

Thanks so much Donna!! Yes while going through cycles, DH has to be

on a " neutropenic " diet. Basically nothing RAW b/c his body lacks neutrophils, which are bacteria/fungil eating white blood cells. There are some other stipulations like no deli meats (b/c slicers can be bacterial containing) nothing homemade like homemade peanut butter etc. And we all know kids, they get into the strangest things, so it's precautionary that we keep patients safe as possible.

They give it a better survival rate, but I do not want to take anything for granted. The sooner I finish school, the better his outlook on things. He wants to know I am in a field that I love and making a well enough living that he knows if something happens, I will be okay financially.

I had a bit of a breakdown yesterday. I didn't do well on a test b/c I blanked out on a formula (Statistics class). It was upsetting with all that is going on, but people

that shouldn't matter had an opinion on my " complaining " . I got it off my chest and ready to bounce back.  KASSIAwife,mother,student,kettlebelle

http://ldysolana.blogspot.com

From: Donna M-P

To: exercisevideos

Sent: Saturday, February 4, 2012 8:39 AM Subject: Re: Hey!

Hi Kassia,

 

you and your family are in my prayers!  I wish I could come and stay w/ you and keep you company!  You are right though, keeping a normal routine for Viola is important, as well as taking care of yourself - you need to be strong to get through this!!

And yes, hygeine is so important, the boy at 's school, who, I think, had a similar procedure is still (months later) farily isolated, they have to be careful about foods (especially fungus...which apparently those w/out compromised immune systems can fight off no problem).

Just lots of hugs and prayers to you and your family!Donna

Subject: Hey!To: " exercisevideos " <exercisevideos >

Date: Saturday, February 4, 2012, 8:29 AM

 

Hey group,

I wanted to keep you all updated. I haven't made an " announcement " , but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not " take " , but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him

since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

 

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com/

[Guest guest]

Thank you all! I believe in positive energy so prayers, thoughts, or whatever people do, it's all working!!

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com

[Guest guest]



I couldn't say it any better, our prayers are with you all!

Hey!To: "exercisevideos " <exercisevideos >Date: Saturday, February 4, 2012, 8:29 AM

Hey group,

I wanted to keep you all updated. I haven't made an "announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com/

[Guest guest]

Hey Kassia,

Blanking out on a formula in statistics can pretty much happen to any of us under the best of circumstances, your plate is overflowing right now - so don't feel bad about it. In the end, Im sure you'll get through it!Donna

Subject: Hey!To: "exercisevideos " <exercisevideos >Date: Saturday, February 4, 2012, 8:29 AM

Hey group,

I wanted to keep you all updated. I haven't made an "announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him

since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com/

[Guest guest]

Kassia,

What a very scary thing you and your family are going through. My heart and prayers are with you during this difficult time. You sound like such a very strong woman.

Exercise will help you emotionally as well as physically. It sounds like you already know this though. )

Hang in there. Best wishes for you and you family.

~

Hey group,

I wanted to keep you all updated. I haven't made an "announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him since this has landed in the middle of the semester and Viola doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process.

I was becoming consistent with posting when this paired with school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL.

KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com