Re: intro - ATT Vicky/Nikki

[Guest guest]

The Treating Autism conference in September would be a great place to go to meet several practitioners and a boatload of parents. Lucinda is my favourite and she is doing a talk on the Saturday about intro to biomed Its at Brunel University so not so far for you www.TreatingAutism.co.uk look on events page and checkout the TA locals which are groups of parent that meet in between conferencesCaudwell Children do charitable funding for biomed, £2K per year if you meet their criteria, I think its household income under £48K but may have changed but other than that we have to pay http://www.caudwellchildren.com/ People who don;t know about things do tend to dismiss (arghh), Nikki is good on oxalates, Vicky too so added them to header and see if they can respond. TA site also has list of practitioners parents have recommended Mandi x Hi Mandi, Thanks for replying. i don't have a practitioner because i have no idea where to start or who to see. i'm in south london. there is a gaps support group starting up in september in east london which i will try to get to, but not sure what i'll get from it. i have emailed the lady and it seems she doesnt know much about oxalates, kind of dismissed it.thanks for the references for tests and the de. im looking into them. is the only way to get these tests done to pay for them ourselves?thanks Hi and welcome aboard Its all so confusing though, as there is nobody supporting us, except other yahoo forums, which are great too, but it's so hard to know whether i am doing the right thing or getting caught up in irrelevants. or worse, doing quite the wrong thing.>>Is there a reason you are not using a practitioner? Where abouts are you in the UK?i am thinking about getting an OAT done for more info. has anyone done this in the UK? i think i can do it through biolab - has anyone tried it? i dont understand why there seems to only be the one lab in the US that does it. i'm also on the LOD list and the listowner, Owens of the autism research project will then take the time to evaluate and go through the results with you for free, which i think is amazing. >> in great. Great Plains does the original OAT test, you can order it from UK, or used to able to as I did one when I started with Saalso parasites. i know he and his brother (so probably me and his dad, too?) have worms, i even scooped some into the sample for the doctors but they somehow missed testing for parasites which was the whole point - v frustrating as it took ages to get him to come round to giving a sample. they have had some homeopathic cina - but not sure if they are completely gone,. i see there was a recent thread on DE and am thinking of trying some. i wonder if anyone could point me to a reliable source. i was going to try naturalrussia otherwise.>>>Genova or Metametrix for CDS, Comprehensive Digestive Analysis with parasiteolgy is the test, GP tests won't tell you too much even if they are positive. For DE I use Diatom, here is link to human gradehttp://diatomx.co.uk/Diatom-for-Humans HTH Mandi x

[Guest guest]

Hi Mandi

Happy to share my experience of LOD with , he's a classic bumps and dumps kid [sigh]

Vicky

Re: intro - ATT Vicky/Nikki

The Treating Autism conference in September would be a great place to go to meet several practitioners and a boatload of parents. Lucinda is my favourite and she is doing a talk on the Saturday about intro to biomed Its at Brunel University so not so far for you

www.TreatingAutism.co.uk look on events page and checkout the TA locals which are groups of parent that meet in between conferences

Caudwell Children do charitable funding for biomed, £2K per year if you meet their criteria, I think its household income under £48K but may have changed but other than that we have to pay

http://www.caudwellchildren.com/

People who don;t know about things do tend to dismiss (arghh), Nikki is good on oxalates, Vicky too so added them to header and see if they can respond.

TA site also has list of practitioners parents have recommended

Mandi x

Hi Mandi,

Thanks for replying. i don't have a practitioner because i have no idea where to start or who to see. i'm in south london. there is a gaps support group starting up in september in east london which i will try to get to, but not sure what i'll get from it. i have emailed the lady and it seems she doesnt know much about oxalates, kind of dismissed it.

thanks for the references for tests and the de. im looking into them. is the only way to get these tests done to pay for them ourselves?

thanks

Hi and welcome aboard

Its all so confusing though, as there is nobody supporting us, except other yahoo forums, which are great too, but it's so hard to know whether i am doing the right thing or getting caught up in irrelevants. or worse, doing quite the wrong thing.

>>Is there a reason you are not using a practitioner? Where abouts are you in the UK?

i am thinking about getting an OAT done for more info. has anyone done this in the UK? i think i can do it through biolab - has anyone tried it? i dont understand why there seems to only be the one lab in the US that does it. i'm also on the LOD list and the listowner, Owens of the autism research project will then take the time to evaluate and go through the results with you for free, which i think is amazing.

>> in great. Great Plains does the original OAT test, you can order it from UK, or used to able to as I did one when I started with Sa

also parasites. i know he and his brother (so probably me and his dad, too?) have worms, i even scooped some into the sample for the doctors but they somehow missed testing for parasites which was the whole point - v frustrating as it took ages to get him to come round to giving a sample. they have had some homeopathic cina - but not sure if they are completely gone,. i see there was a recent thread on DE and am thinking of trying some. i wonder if anyone could point me to a reliable source. i was going to try naturalrussia otherwise.

>>>Genova or Metametrix for CDS, Comprehensive Digestive Analysis with parasiteolgy is the test, GP tests won't tell you too much even if they are positive.

For DE I use Diatom, here is link to human grade

http://diatomx.co.uk/Diatom-for-Humans

HTH

Mandi x

[Guest guest]

Hi NAtalie,

Welcome to the group! What makes you think your child may have oxalate issues?

Yes, do try if you can to come to the conference in September, you will get so

much out of it, the biggest thing being imo is meeting people who are on the

same journey as you, it will make you feel less alone, many on this list will be

attending......and you can chat to the practitioners also (for free!!!)

The OAT test by Great Plains is the best one for looking at oxalates. The last

time i did one, about 2 years ago i sent it to the US myself and they emailed me

the results. I've just had a look at their website and i see they now have UK

numbers you can ring, maybe give them a call and ask about testing......costs,

etc....

http://www.greatplainslaboratory.com/home/eng/contact.asp

I would be interested to know if they do the tests in the UK now? Do mention you

have a child with autism they may give you a discount.

Good luck with everything and just shout if you need any help we are all here to

support you :+)

Nikki x

>

>

>

>

>

> Hi and welcome aboard

>

>

> In a message dated 22/07/2012 13:26:35 GMT Daylight Time,

> _natalie.blechner@..._ (mailto:natalie.blechner@...) writes:

>

> Its all so confusing though, as there is nobody supporting us, except

> other yahoo forums, which are great too, but it's so hard to know whether i

am

> doing the right thing or getting caught up in irrelevants. or worse, doing

> quite the wrong thing.

>

>

> >>Is there a reason you are not using a practitioner? Where abouts are you

> in the UK?

>

>

>

> i am thinking about getting an OAT done for more info. has anyone done

> this in the UK? i think i can do it through biolab - has anyone tried it? i

> dont understand why there seems to only be the one lab in the US that does

> it. i'm also on the LOD list and the listowner, Owens of the autism

> research project will then take the time to evaluate and go through the

> results with you for free, which i think is amazing.

>

>

>

> >> in great. Great Plains does the original OAT test, you can order

> it from UK, or used to able to as I did one when I started with Sa

>

> also parasites. i know he and his brother (so probably me and his dad,

> too?) have worms, i even scooped some into the sample for the doctors but

they

> somehow missed testing for parasites which was the whole point - v

> frustrating as it took ages to get him to come round to giving a sample. they

have

> had some homeopathic cina - but not sure if they are completely gone,. i

> see there was a recent thread on DE and am thinking of trying some. i wonder

> if anyone could point me to a reliable source. i was going to try

> naturalrussia otherwise.

>

>

> >>>Genova or Metametrix for CDS, Comprehensive Digestive Analysis with

> parasiteolgy is the test, GP tests won't tell you too much even if they are

> positive.

>

> For DE I use Diatom, here is link to human grade

> _http://diatomx.co.uk/Diatom-for-Humans_

> (http://diatomx.co.uk/Diatom-for-Humans)

>

> HTH

>

> Mandi x

>

[Guest guest]

hi Nikki,i'm not sure what the initial signs were now, but they kept coming up in answer to various questions i had on the gaps board. he's had sandy poos, nightly bedwetting and then the last thing was he had cloudy wee and once i gently asked him, i discovered it also hurt him to wee. this has stopped now though. im not sur how else he is dumping, but i just read something on the lod list that i actually recognised in myself - aching fingers and joints, so there are probably lots of other signs i am missing.

so far we have reduced our high ox intake, tho i am not really vigilant, we still have tomatoes regularly, so there are things to work on. i havent introduced any supps yet either as i'm finding it so hard to work out what i shd be doing. i think i am going to go for the mag citrate to start. 

i have emailed gpl and awaiting a reply. i also emailed biolab and they still send it to gpl, but it looked to be cheaper at £160, but i have to get a clinical reference to them from a gp or similar to who they can send the results to.

i will also look into the conference. it does feel a bit strange to me still as we do not yet have an official diagnosis.thanks for your thoughtsnatalie

 

Hi NAtalie,

Welcome to the group! What makes you think your child may have oxalate issues?

Yes, do try if you can to come to the conference in September, you will get so much out of it, the biggest thing being imo is meeting people who are on the same journey as you, it will make you feel less alone, many on this list will be attending......and you can chat to the practitioners also (for free!!!)

The OAT test by Great Plains is the best one for looking at oxalates. The last time i did one, about 2 years ago i sent it to the US myself and they emailed me the results. I've just had a look at their website and i see they now have UK numbers you can ring, maybe give them a call and ask about testing......costs, etc....

http://www.greatplainslaboratory.com/home/eng/contact.asp

I would be interested to know if they do the tests in the UK now? Do mention you have a child with autism they may give you a discount.

Good luck with everything and just shout if you need any help we are all here to support you :+)

Nikki x

>

>

>

>

>

> Hi and welcome aboard

>

>

> In a message dated 22/07/2012 13:26:35 GMT Daylight Time,

> _natalie.blechner@..._ (mailto:natalie.blechner@...) writes:

>

> Its all so confusing though, as there is nobody supporting us, except

> other yahoo forums, which are great too, but it's so hard to know whether i am

> doing the right thing or getting caught up in irrelevants. or worse, doing

> quite the wrong thing.

>

>

> >>Is there a reason you are not using a practitioner? Where abouts are you

> in the UK?

>

>

>

> i am thinking about getting an OAT done for more info. has anyone done

> this in the UK? i think i can do it through biolab - has anyone tried it? i

> dont understand why there seems to only be the one lab in the US that does

> it. i'm also on the LOD list and the listowner, Owens of the autism

> research project will then take the time to evaluate and go through the

> results with you for free, which i think is amazing.

>

>

>

> >> in great. Great Plains does the original OAT test, you can order

> it from UK, or used to able to as I did one when I started with Sa

>

> also parasites. i know he and his brother (so probably me and his dad,

> too?) have worms, i even scooped some into the sample for the doctors but they

> somehow missed testing for parasites which was the whole point - v

> frustrating as it took ages to get him to come round to giving a sample. they have

> had some homeopathic cina - but not sure if they are completely gone,. i

> see there was a recent thread on DE and am thinking of trying some. i wonder

> if anyone could point me to a reliable source. i was going to try

> naturalrussia otherwise.

>

>

> >>>Genova or Metametrix for CDS, Comprehensive Digestive Analysis with

> parasiteolgy is the test, GP tests won't tell you too much even if they are

> positive.

>

> For DE I use Diatom, here is link to human grade

> _http://diatomx.co.uk/Diatom-for-Humans_

> (http://diatomx.co.uk/Diatom-for-Humans)

>

> HTH

>

> Mandi x

>

[Guest guest]

mandi,thanks for this info. am looking into it.natalie

 

The Treating Autism conference in September would be a great place to go to meet several practitioners and a boatload of parents. Lucinda is my favourite and she is doing a talk on the Saturday about intro to biomed Its at Brunel University so not so far for you

 

www.TreatingAutism.co.uk look on events page and checkout the TA locals which are groups of parent that meet in between conferences

Caudwell Children do charitable funding for biomed, £2K per year if you meet their criteria, I think its household income under £48K but may have changed but other than that we have to pay

 

http://www.caudwellchildren.com/

 

People who don;t know about things do tend to dismiss (arghh), Nikki is good on oxalates, Vicky too so added them to header and see if they can respond.

 

TA site also has list of practitioners parents have recommended

 

Mandi x

 

 

 

 

 

Hi Mandi,

Thanks for replying. i don't have a practitioner because i have no idea where to start or who to see.  i'm in south london. there is a gaps support group starting up in september in east london which i will try to get to, but not sure what i'll get from it. i have emailed the lady and it seems she doesnt know much about oxalates, kind of dismissed it.

thanks for the references for tests and the de. im looking into them. is the only way to get these tests done to pay for them ourselves?

thanks 

 

Hi and welcome aboard

 

Its all so confusing though, as there is nobody supporting us, except other yahoo forums, which are great too, but it's so hard to know whether i am doing the right thing or getting caught up in irrelevants. or worse, doing quite the wrong thing.

>>Is there a reason you are not using a practitioner? Where abouts are you in the UK?

i am thinking about getting an OAT done for more info. has anyone done this in the UK? i think i can do it through biolab - has anyone tried it? i dont understand why there seems to only be the one lab in the US that does it. i'm also on the LOD list and the listowner, Owens of the autism research project will then take the time to evaluate and go through the results with you for free, which i think is amazing.

 

>> in great. Great Plains does the original OAT test, you can order it from UK, or used to able to as I did one when I started with Sa

also parasites. i know he and his brother (so probably me and his dad, too?) have worms, i even scooped some into the sample for the doctors but they somehow missed testing for parasites which was the whole point - v frustrating as it took ages to get him to come round to giving a sample. they have had some homeopathic cina - but not sure if they are completely gone,. i see there was a recent thread on DE and am thinking of trying some. i wonder if anyone could point me to a reliable source. i was going to try naturalrussia otherwise.

>>>Genova or Metametrix for CDS, Comprehensive Digestive Analysis with parasiteolgy is the test, GP tests won't tell you too much even if they are positive.

 

For DE I use Diatom, here is link to human grade

http://diatomx.co.uk/Diatom-for-Humans

 

HTH

 

Mandi x

[Guest guest]

Hi ,

That does sound like oxalate issues from what you are describing. My ds had

gritty stools, cloudy wee, pain when weeing and lots of gut pain. These have all

now gone by treating him appropriately.

It must be difficult for you being stuck in limboland, not knowing whether you

child has or has not got autism. But what you do know is that your child does

have health issues that you can address, i would focus on these at the moment,

get him as healthy as you can.

Nikki x

>

> > **

> >

> >

> >

> > Hi NAtalie,

> >

> > Welcome to the group! What makes you think your child may have oxalate

> > issues?

> >

> > Yes, do try if you can to come to the conference in September, you will

> > get so much out of it, the biggest thing being imo is meeting people who

> > are on the same journey as you, it will make you feel less alone, many on

> > this list will be attending......and you can chat to the practitioners also

> > (for free!!!)

> >

> > The OAT test by Great Plains is the best one for looking at oxalates. The

> > last time i did one, about 2 years ago i sent it to the US myself and they

> > emailed me the results. I've just had a look at their website and i see

> > they now have UK numbers you can ring, maybe give them a call and ask about

> > testing......costs, etc....

> >

> > http://www.greatplainslaboratory.com/home/eng/contact.asp

> >

> > I would be interested to know if they do the tests in the UK now? Do

> > mention you have a child with autism they may give you a discount.

> >

> > Good luck with everything and just shout if you need any help we are all

> > here to support you :+)

> >

> > Nikki x