Hey!

[Guest guest]

Hey group, I wanted to keep you all updated. I haven't made an

"announcement", but doctors are going to rush the stem cell procedure. It is a little out of left field, scary, rushed, and at first I though there was a problem! They say this isn't the case, the chemo is doing its job, however, b/c of a defect call Philadelphia Chromosome (seen in 34% of adults with ALL and we knew about it when they determined the type of Leukemia he had), they feel the chemo alone is not enough. In their words if they don't do the transplant sooner (usually the time frame is WITHIN 6-8 months of diagnosis), not only will it not "take", but if the cancer comes back it will be a death sentence, it will be nearly impossible to control/treat. We are looking 3-4 weeks, he will begin the difficult chemo they do before transplant. After transplant there will be 1 month hospital stay, he will have to stay near UVA for at least another 2-3 months. His mom is going to stay with him since this has landed in the middle of the semester and Viola

doesn't finish her school year until June. Even if weren't for my school, I do have to keep Viola's world as routine as possible. I am not handling the thought of being alone for that long, very well. My mother in law has been a good person in this, she respects my wishes and listens to me so I am glad Dh decided to ask her to do this. The rest of the family does not bother to google, read links I send, they won't listen to me, and they even have the nerve to tell me what I should do about my business. I do not want people like that taking care of my husband. If you cannot bother to learn what this entails, the care WE as the family have to give (and the whys), and let alone I notice some of them are not very hygienic (a BIG problem with a patient that has no immunity!!), you shouldn't be involved in the difficult care giving process. I was becoming consistent with posting when this paired with

school projects came up. I have some new goals to run 1-2 times a week at the college track. I was writing to somebody on how I remember Viola's diagnosis and when I started running. It was good for me, and while I didn't have the schedule then that I do now, I am going to make every attempt to run. It is a very effective stress reliever, plus it's nature's greatest exercise. The only equipment needed is a good pair of shoes, a good bra (if you are heavy breasted like me LOL), and some water! Well I would wear some clothes too LOL. KASSIAwife,mother,student,kettlebellehttp://ldysolana.blogspot.com