Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 Colleen, Sorry to jump in on your post - where do you live? Kerri from NY 's mom (DOCgrad) --- In Plagiocephaly , " Colleen " <snuffy292002@y...> wrote: > Hi Rhonda, > > I know you live near CT,can you reccommend a MD who is band friendly > and uses Doc band. > > Thanks in Advance, > Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 Absolutely wonderful news, Colleen! Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Hi Colleen: How scary! I truly do know what you are talking about - we do get really used to just not feeling good, and sometimes when I am having aches and pains like the flu, I say oh it's just a flare, well, maybe one day it won't be and I will miss the start of a flu and get worse. Believe me, it has occurred to me that this might happen. And I have asthma too, so bronchitis is always a possibility, but since my lungs are pretty much wheezy during the spring months anyway from allergies, I kind of overlook that too. We really do need to pay more attention to what our bodies are really trying to tell us, and not blame it all on the RA, fibro, OA, lupus, etc. I have had bronchitis, and have been helped by Mucinex - it can really get those lungs opened up, and create a good productive cough getting the phlem and gunk out. Ask your doctor about it - it's OTC - and really works great. I hope that you are feeling soon, and getting over your illnesses. I guess the lesson here is that, although we have RA, etc., that we are still human beings that can come down with other illnesses too, and simple things like a cold can blow up on us because of our weakened immune systems, so we really do have to stay on top of every sign of being sick, even if it does just seem like a flare or just RA. Thanks for your story - it has reminded me to take a closer look at my asthma and any othere illness that might come my way, and not just palm it off on the usual. Take care - get better soon - prayers coming your way - Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Hi Colleen, This is Steph in VA (although currently in Queens, NY for XMAS). I have had RA for 8 years & been on Remicade for 7 years. While early literature indicated that your body could develop antibodies after periods of stopping drugs, I think it is now evaluated on a case by case basis. I have a friend with RA that took Remicade for her RA and had to stop for several months due to wrist surgery. She did go back on Remicade eventually. It didn't as well as it did prior to stopping it but she said it was certainly better than not taking it. I asked my rheumy about this -- specifically if I, by the grace of God, go into remission when I'm pregnant I can stop the Remicade and I was concerned about restarting it again in that case. My rheumy said that if I felt well enough it would be up to me to take that risk, Honestly, I am completely into the idea of stopping my meds for any amount of time as long as I would be comfortable. Hey, I'd even pay money to go a month w/o meds but who among us wouldn't if we could still feel well (I'd even settle for feeling okay!!!) So, it isn't really an answer to your question but I hope it helps. Happy Holidays. Take care everyone!! Steph in VA (temporarily NYC) I do have a question about the biological immune suppressants which I believe are Remicade and Humira. I have been on Humira for almost 4 years and because of a new program that Enbrel had, I switched to Enbrel to see if it wouldn't do more to help my joint pain and fatigue. I also have an auto immune colitis so I am on another computer group for that. It has come up on that site that if a person goes off of Remicade or Humira that they can develop antibodies so that if they go back on either of those immune suppressants, they are ineffective because the antibodiies block them. I am concerned about this as I am currently on Enbrel as a trial and I think there is a good chance I will want to return to Humira. Does anyone know or have heard anything like this about this? The person who brought this up felt the longest a person could go without Remicade or Humira was 14 weeks, after that they would be ineffective. Merry Christmas to All, Colleen ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The 2007 Charlottesville Arthritis Walk was a success! We raised just over $30,000 for research & programs for people with arthritis! " Never underestimate the power of a small, dedicated group of people to change the world -- indeed, it's the only thing that ever has. " (Margaret Mead) --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Yvette, For yeast detox we used homeopathic drops. No sugar. I do everything under a supervision of MD and most effectively the homeopathic DAN! doc. Charile is mildly apraxic/dyspraxic; however, riddled with aluminum. Hope this helps, Colleen [ ] Colleen Hi Colleen, Would you please tell me what you used for treatment of yeast that worked so well for your ds? Thanks so much. Yvette [ ] Group Meeting Results/DAN Info. > > > > > > > > > > > > Went to the group meeting in my town tonight. My town is 1/4 > square > > > mile, Mayberry, everyone knows everyone elses beeswax so we > signed > > > confidentiality agreements but are allowed to do what I am doing > > now > > > so long as we say, " Someone in my group. " > > > > > > The group is made up of parents of the following types of kids > but > > > not all have just speech issues and one, the only one exposed to > > > fluoride in large doses, is diagnosed with dyspraxia. > > > > > > 1) PDD Nos, sensory issues pretty severe. > > > 2) Nonverbal, PDD Nos, older sibling possible Aspergers. Going to > > > Neubrander, slightly leary about him. > > > 3) Me, with one kid with shiners and, off GFCF diet she is > whiney, > > > has focus issues, food strikes and less unprovoked speech. The > > other > > > kid is undiagnosed but had signs of apraxia and ASD. Low tone, > > > initial trouble producing speech, poor receptive, fine and gross > > > motor issues. Those things improved and some resolved on GFCF > diet > > > and removal of bad water. Articulation issues pend. > > > > > > The mom of the sensory kid went GFCF in Sept and has seen major > > > changes. She went to a DAN (A PhD not MD), Dr. King who operates > in > > > conjunction with an MD, Dr. Podell, in Springfield, NJ. The mom > is > > > healing the kid on diet but wanted to know where the kids gut was > > at, > > > if she was getting the right vitamins and minerals, using the > right > > > probiotic, etc. She was not interested in chelation. She also > > wanted > > > alternative remedies to things that have plagued her kid in the > > past, > > > like ear stuff. > > > > > > She did poop and pee tests via Drs Data and vitamin measurements > > via > > > Bioreference. She also did an IGE test. What she discovered was > > that > > > milk and wheat are an issue and some other things as well, mostly > > she > > > realized but a few, like soy and rice, must leave the diet. The > > > metals testing showed the worst of her stuff was actually, at > this > > > point " high normal. " The two big things that need addressing were > > > aluminum and nickel. Neither are a surprise. We live in a town > > where > > > aluminum frame windows are made and then there are the vaccines. > > > Several industries have operated in this town so nickel is also > not > > a > > > surprise. > > > > > > The interesting thing was the poop test and what it told her > about > > > what the kid was and was not getting from the current probiotic > and > > > how to address it as well as a panel showing bacterial > > > susceptibilities and natural agents that could be used to address > > > these. > > > > > > Despite giving calmag every day the kid is low in calcium. > > > > > > So for $500 for the first visit, $350 paid by insurance, and > > another > > > $1500 for poop, pee, minerals, vitamin and bacterial > susceptibility > > > tests and IGG food sensitivity testing and maybe some more for a > > > second visit this woman has a blueprint to treat her child. A new > > > probiotic was ordered, she is starting CLO, flax seed and some > > other > > > stuff tailored to her child. > > > > > > So here I sit, one month shy of my son's EI age out date. There > are > > > no preschools to take him because I waited. The town preschool > that > > I > > > waived because I thought they would not abide by diet, is > actually > > > asking the parents I was sitting with to present the GFCF diet to > > the > > > school parents as it has helped NT siblings with behavioral stuff > > and > > > parents. I can get him in there in 2 months. After what I have > seen > > > in that meeting, where AP kids go GFCF and there problems leave > > > whereas my kid has aticulation stuff makes me wonder if what is > > left > > > in my guy is fluoride and lead. I need the testing. I see that > now. > > > None of these tests seem to address fluoride which concerns me. I > > > will test the baby water though. At least I'll have a gauge of > what > > > went in. I need to know the minerals, the vitamins, the flora > info. > > > and the remedies. This is the testing we should be able to get > when > > > we go to a mainstream dr. with a child with delays. I am scared. > I > > am > > > mad. This should not have taken this long. > > > > > > Hubby is on board. We are behind the 8 ball now and it is time to > > > catch up. Janice was right. You have to do it all: > > > > > > The therapy > > > The diet/vitamin and mineral regimen > > > and > > > the DAN testing > > > > > > You have to know what is in front of you and how to fix it. My > DAN > > > knows the tests. Beyond that I don't know if he can give me a > > > blueprint like this woman got or if hers is even correct. What I > do > > > know is I need the tests and I trust my own instincts to find > > someone > > > knowledgable and trustworthy to help me find a map from there. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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