Re: Re: Fw: Abatacept/Orencia

[Guest guest]

Welcome, Khaki!

We have a couple of other members who are trying Orencia also, but I haven't

heard from them very recently.

Good luck tomorrow. Please let us know how you are doing.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Fw: Abatacept/Orencia

> Hello Joanne,

> I am a new member but I have had RA for 28 years.

> I am starting my first treatment of Orencia tomorrow,

> June 5. I am so glad to see that someone else has

> taken it and I hope it does well for you.

> I am anxious to see how well it works for me.

> Khaki

[Guest guest]

I took Orencia for one infusion and did not continue. There was a were

breast swelling that developed that did not go away. All my labs came back

ok, however I did just spend 2 days in the hospital for chest wall

inflammation. Maybe it is coincidental but that along with my insurance not

covering it like they said they would, I am not on Orencia any longer.

However, from my queries I haven't found too many people who have had

reactions with it. It seems to be safer than some of the others but the

success seems to be about the same as the others too.

Shandi

Abatacept/Orencia

>> X-Mailer: Webmail Version 4.0

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>> Hi All,

>> I am a long time member..just do not post much..hope this is

> helpful

>>

>> I just had my second infusion of Abatacept or Orencia as it is

> known and so far so good. I honestly do not know how well it is

> working as I am also given 20 mg of steroids prior to the abatacept

> so I do not react to the drug as I react to everything it seems. So

> it could be the prednisone for now making me feel well.. but time

> will tell.

>> I have had severe RA for almost 24 yrs and believe me I have tried

> it all from antibiotic therapy including long term IV antibiotics as

> well as 18 months of oral.....embrel, Kineret, Arava, Humira, just

> to name a few...so hopefully this will work....

>> I will keep in touch and hope this info is helpful..

>> Joanne in PA

>>

>>

>>

>>

[Guest guest]

Best of luck to you Khaki. I hope it helps.

a

On Jun 4, 2006, at 8:20 AM, khaki242 wrote:

> Hello Joanne,

> I am a new member but I have had RA for 28 years.

> I am starting my first treatment of Orencia tomorrow,

> June 5. I am so glad to see that someone else has

> taken it and I hope it does well for you.

> I am anxious to see how well it works for me.

> Khaki