Re: New and needing to vent

[Guest guest]

Hi ,

You may want to ask your doctor about " Leflunomide " I take it

with " Methotrexate " and it has been a miracle for me when I felt all

was lost when " Remicade " gave me hives.

Hang In There

>

> Hi. My name is and I am 36 and was diagnosed with RA about 8

months ago. I am also a single mother to 6 children ( well one of them

is my granddaughter that I have custody of). I also am a full time

student taking 6 classes and I have my own business cleaning houses. I

am also very very tired and in the most pain I have ever been in thus

far. I even called to make my next appointment with my doctor sooner,

which I never ever do. At the moment I take Methotrexate and folic

acid. I am not sure it is working anymore and if he increases the dose

I am afraid I will get sick again. The last time I was so sick I became

dehydrated and needed to go to the hospital (I have no time for such

things). Any ideas other than Humira ( my doctor will not use ), that

has worked for you all? Thanks for listening to someone you do not even

know. Shalom, who needs to chase a two year old back to bed : )

>

>

[Guest guest]

Welcome to the group, !

Why won't your doctor use Humira? Is he a rheumatologist?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] New and needing to vent

> Hi. My name is and I am 36 and was diagnosed with RA about 8

> months ago. I am also a single mother to 6 children ( well one of them is

> my granddaughter that I have custody of). I also am a full time student

> taking 6 classes and I have my own business cleaning houses. I am also

> very very tired and in the most pain I have ever been in thus far. I even

> called to make my next appointment with my doctor sooner, which I never

> ever do. At the moment I take Methotrexate and folic acid. I am not sure

> it is working anymore and if he increases the dose I am afraid I will get

> sick again. The last time I was so sick I became dehydrated and needed to

> go to the hospital (I have no time for such things). Any ideas other than

> Humira ( my doctor will not use ), that has worked for you all? Thanks for

> listening to someone you do not even know. Shalom, who needs to

> chase a two year old back to bed : )

[Guest guest]

Hi, thanks for the help. I will ask about this. He let me take another round of

a steroid, but will not let me have long term due to the weight gain issues.

Shalom,

-------------- Original message --------------

From: " montypfc_46224 " <shelinalawson@...>

Hi ,

You may want to ask your doctor about " Leflunomide " I take it

with " Methotrexate " and it has been a miracle for me when I felt all

was lost when " Remicade " gave me hives.

Hang In There

>

> Hi. My name is and I am 36 and was diagnosed with RA about 8

months ago. I am also a single mother to 6 children ( well one of them

is my granddaughter that I have custody of). I also am a full time

student taking 6 classes and I have my own business cleaning houses. I

am also very very tired and in the most pain I have ever been in thus

far. I even called to make my next appointment with my doctor sooner,

which I never ever do. At the moment I take Methotrexate and folic

acid. I am not sure it is working anymore and if he increases the dose

I am afraid I will get sick again. The last time I was so sick I became

dehydrated and needed to go to the hospital (I have no time for such

things). Any ideas other than Humira ( my doctor will not use ), that

has worked for you all? Thanks for listening to someone you do not even

know. Shalom, who needs to chase a two year old back to bed : )

>

>

[Guest guest]

,

It is because of the cost and the insurance always gives him a hard time

about it. The funny thing is that it is making my mother crazy, as she works for

the company that makes this drug as a reasercher and loves what they have

" found " (to her it is a miracle drug LOL). My doctor is in fact a rhemutologist

and is supposed to be one of the best at what he does.Shalom,

--------- [ ] New and needing to vent

> Hi. My name is and I am 36 and was diagnosed with RA about 8

> months ago. I am also a single mother to 6 children ( well one of them is

> my granddaughter that I have custody of). I also am a full time student

> taking 6 classes and I have my own business cleaning houses. I am also

> very very tired and in the most pain I have ever been in thus far. I even

> called to make my next appointment with my doctor sooner, which I never

> ever do. At the moment I take Methotrexate and folic acid. I am not sure

> it is working anymore and if he increases the dose I am afraid I will get

> sick again. The last time I was so sick I became dehydrated and needed to

> go to the hospital (I have no time for such things). Any ideas other than

> Humira ( my doctor will not use ), that has worked for you all? Thanks for

> listening to someone you do not even know. Shalom, who needs to

> chase a two year old back to bed : )

[Guest guest]

,

I suppose he won't consider Enbrel either for similar reasons. Maybe it's

time to seek a second opinion?

Re: [ ] New and needing to vent

> ,

> It is because of the cost and the insurance always gives him a hard

> time about it. The funny thing is that it is making my mother crazy, as

> she works for the company that makes this drug as a reasercher and loves

> what they have " found " (to her it is a miracle drug LOL). My doctor is in

> fact a rhemutologist and is supposed to be one of the best at what he

> does.Shalom,

[Guest guest]

To me denying a patient meds that could help prevent permenent

crippling damage and deformity is mal-practice...or at least poor

judgement because he is too lazy to deal with the insurance company.

I would find a new doc. I would also report him to the medical board

as well as insurance board. I would also let him know how I feel

about him telling me that. Hmmm....I wonder if I my heart stopped in

his office would he consider it too much trouble to do CPR to save my

life until the paramedics come? Sorry be so graphic...but I hate

docs like this.

I had a rheummy that stopped my Arava..because it was not working at

the lower dosage..and I later found out that he did not want to have

to wrote all those lab slips for me tohave bloodwork every two

weeks...and he did not want to have to deal with tracking my liver

enzymes. So he just stopped the med and did not even try a higher

dose. This was the ONLY med I was on that had NO side effects for me.

Do you know if you insurance covers the Biologics and what is the

procedure to getting them? I would do my homework. You maybe able

to get the insurance company to call him. There is also financial

assistance programs. Humira has one that covers up to $300 a month

for six months towards the cost. There is nothing your doctor has to

do for that one except give you the Humira Share package which is

distributed to rheummy's by the drug reps...unless he does not allow

them to come to his practice. Then you call and activate the card.

Its like an insurance card. I got tons of freebie promo and samples

from my doc. All the Biologic drug companies have there own packages

of info.

Please do not allow a lazy doc to leave you suffering in pain.

Remeber you are your own advocate for care.

Toni

>

> ,

> It is because of the cost and the insurance always gives him a

hard time about it. The funny thing is that it is making my mother

crazy, as she works for the company that makes this drug as a

reasercher and loves what they have " found " (to her it is a miracle

drug LOL). My doctor is in fact a rhemutologist and is supposed to be

one of the best at what he does.Shalom,

>

> --------- [ ] New and needing to vent

>

>

> > Hi. My name is and I am 36 and was diagnosed with RA

about 8

> > months ago. I am also a single mother to 6 children ( well one of

them is

> > my granddaughter that I have custody of). I also am a full time

student

> > taking 6 classes and I have my own business cleaning houses. I am

also

> > very very tired and in the most pain I have ever been in thus

far. I even

> > called to make my next appointment with my doctor sooner, which I

never

> > ever do. At the moment I take Methotrexate and folic acid. I am

not sure

> > it is working anymore and if he increases the dose I am afraid I

will get

> > sick again. The last time I was so sick I became dehydrated and

needed to

> > go to the hospital (I have no time for such things). Any ideas

other than

> > Humira ( my doctor will not use ), that has worked for you all?

Thanks for

> > listening to someone you do not even know. Shalom, who

needs to

> > chase a two year old back to bed : )

>

>

>

[Guest guest]

Hi :

Welcome to the group - you will find the most caring

and compassionate, supportive people here, and lots of

great information from our moderators. This is place

to come where everyone really understands what you are

going through, and there is lots of personal RA

experience to share.

Wow, do you have a full plate - I got tired just

reading all that you have to do lol. What are you

majoring in? Where do you find the time for

everything???

Has your doctor considered use of Enbrel? I am on

that, as well as Mtx, and it is working very well for

me. I also take Mobic (anti-inflammatory) and

Ultracet for pain.

--- momto3and3@... wrote:

> Hi. My name is and I am 36 and was

> diagnosed with RA about 8 months ago. I am also a

> single mother to 6 children ( well one of them is my

> granddaughter that I have custody of). I also am a

> full time student taking 6 classes and I have my own

> business cleaning houses. I am also very very tired

> and in the most pain I have ever been in thus far. I

> even called to make my next appointment with my

> doctor sooner, which I never ever do. At the moment

> I take Methotrexate and folic acid. I am not sure it

> is working anymore and if he increases the dose I am

> afraid I will get sick again. The last time I was so

> sick I became dehydrated and needed to go to the

> hospital (I have no time for such things). Any ideas

> other than Humira ( my doctor will not use ), that

> has worked for you all? Thanks for listening to

> someone you do not even know. Shalom, who

> needs to chase a two year old back to bed : )

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

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