Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Dear All Hope that you are the best that you can be. I take Sulphasalazine, Plaquenil, Methotrexate, Folic Acid and am about to commence Arava - because, after nearly 12 months - I'm still not " there " yet! To keep me going I have to take Prednisolone. This may range from 10 to 50mg. I am just trying 7.5 at present, in my latest attempt to do without it. Although it does give me a quality of life - it is a double-edged sword. It has unwelcome side-effects, but by far the worst one for me is the mood swings & negative personality changes. I seem to have this constant litany going on in my head - a very nasty one too! I am constantly battling it " Be quiet - you're just the Prednisolone talking " . I think of Alice in Wonderland when she leaves the Queens Court " Pooh! You're nothing but a pack of cards! " . I wonder if I ever get off of it - what will be left of me? For Pain relief - I routinely take slow-acting Paracetamol and on bad days Slow-acting Tramadol. This disease is a real Lottery. Every morning, after the wheel of fortune has been spun - you get to find which joints will be selected today. It's a day-to-day proposition. I manage by just taking it one day at a time. I am better at saying no. I have learnt that it's OK to put me first sometimes. In many ways I have learned a lot about myself and I've grown as a person. This is a huge improvement - that is, trying to find positives in what has been a dark year. Good luck to you all. Deb in Aust. Quote Link to comment Share on other sites More sharing options...
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