Off Humira for another two weeks!

[Guest guest]

Well, I finally called the rheummy about my killer cold that started a

week ago. He said no humira for another two weeks until we are sure

this is gone. I have mixed feelings about this...at least I did get 4

days of relief after the initial acid in the skin from the shot! So

now I even miss the total 8 decent days I would have had.

I am going to talk to him about going to weekly shots since It only

seems to work for 4 days and cause the drug is so far free to

me...thanks to Humira Share Program...Maybe I can tough out the acid

in the skin with each injection until it runs out and get him to

change me to something less caustic!! ICK

I was talking to a lady at the docs office while I was waiting for my

parents to finish with there appnt. She also has RA and she wants to

try HUmira...but she can not get it cause she is on medicaide and no

rheummy in this area takes medicaid and she refuses to travel to see

one. So she only takes tylenol, Ultracet and Celebrex forher RA. She

so far has had both knees replaced and is doing very poorly. I feel

bad for her. I told her maybe she needs to bite the bullet and

travel..she claims she can no longer drive and none of her adult kids

drive. she can not afford hotels, bus and such.

Sad situation..

Toni

[Guest guest]

In a message dated 3/14/2006 12:40:09 AM Central Standard Time,

aclavern33@... writes:

Well, I finally called the rheummy about my killer cold that started a

week ago. He said no humira for another two weeks until we are sure

this is gone. I have mixed feelings about this...at least I did get 4

days of relief after the initial acid in the skin from the shot! So

now I even miss the total 8 decent days I would have had.

I am going to talk to him about going to weekly shots since It only

seems to work for 4 days and cause the drug is so far free to

me...thanks to Humira Share Program...Maybe I can tough out the acid

in the skin with each injection until it runs out and get him to

change me to something less caustic!! ICK

I was talking to a lady at the docs office while I was waiting for my

parents to finish with there appnt. She also has RA and she wants to

try HUmira...but she can not get it cause she is on medicaide and no

rheummy in this area takes medicaid and she refuses to travel to see

one. So she only takes tylenol, Ultracet and Celebrex forher RA. She

so far has had both knees replaced and is doing very poorly. I feel

bad for her. I told her maybe she needs to bite the bullet and

travel..she claims she can no longer drive and none of her adult kids

drive. she can not afford hotels, bus and such.

Sad situation..

Toni

HI Toni,

Sorry to hear you are off the Humira for another 2 weeks. Bummer. Have you

tried using an ice pack on the site before injecting? I know it helps big

time... As for the lady who cant get humira, have her look into a referral from

her primary doc. I dont know how medidcaid works where you are, but here in

PA if you have a referral they have to take you. Being curious one day i

called member services and asked what rheumamtologist is in the area... none in

a

40 mile radius without a referral. Nice. Sorry didnt mean to make this a

novel... lol hugs

from PA

[Guest guest]

In a message dated 3/14/2006 4:20:56 PM Central Standard Time,

aclavern33@... writes:

The Humira is working...though it is not lasting. I am reall

thinking I need to go to once a week. Of course I may have a better

response if I was also taking my plaquinil like I am suppose to.

However I would prefer to be only on ONE med and not a walking drug

store. PLus I can not get the necessary eye exams with the

plaquinil.

I made a rheummy appnt this week for April. I can only afford one

appnt a month...so I have to decide who do I really NEED to see.

Toni

Yikes Toni sorry you are feeling so crappy still. The ice pack thing works i

swear lol but you have to leave it on there for a good while... i do it till

i cant stand the cold but whatever works right! lol I have trouble also

taking meds on time also...Doc never mentioned plaquinil to mea t all so i dont

know how that works. Hope you feel better soon sweetie! hugs

from PA

[Guest guest]

Hi ,

I talked to her about that...but apparently even with referrels most

of the doctors will NOT take medicaid. Those on medicaid alone here

have a really horrible time!!! Now if you have medicaid and

commercial insurance the docs will take that. But medicaid and

medicare combo seems to be just as bad. The doc state poor to almost

NO reimbursement is the reason why they refuse to see patients. They

claim...which is what my rheummy told me...that when they see a

medicaid or medicare patient they are basicly doing charity work and

giving patient services for free.

There actually is a large medical center that will see this lady but

she refuses to make arrangements to get there. She does not drive

and the medical center is 30 miles away. I am in rural Texas so

there is not public transportation. The medical center use to run a

shuttle bus from the various satellite clinics to the main hospital

and clinics but they stopped because people were not using is and the

cost of fuel.

I will have to try the ice idea once I am cleared to start back on

Humira. I am still coughing, stuffy and hourse...I really need to

make an appnt with my PCP to see if I have pneumonia. I feel stuff

gurgling around in the left lower part of chest. Its hard to tell if

its the tubing to my port or something else.

Normally you can not feel the tubing moving around...but lately with

all the coughing I have been doing...my chest is pretty sore!! Where

the tubing goes through the muscle wall is sore as is the port site

itself.

The Humira is working...though it is not lasting. I am reall

thinking I need to go to once a week. Of course I may have a better

response if I was also taking my plaquinil like I am suppose to.

However I would prefer to be only on ONE med and not a walking drug

store. PLus I can not get the necessary eye exams with the

plaquinil.

I made a rheummy appnt this week for April. I can only afford one

appnt a month...so I have to decide who do I really NEED to see.

Toni

>

>

>

>

> In a message dated 3/14/2006 12:40:09 AM Central Standard Time,

> aclavern33@... writes:

>

> Well, I finally called the rheummy about my killer cold that

started a

> week ago. He said no humira for another two weeks until we are

sure

> this is gone. I have mixed feelings about this...at least I did

get 4

> days of relief after the initial acid in the skin from the shot!

So

> now I even miss the total 8 decent days I would have had.

>

> I am going to talk to him about going to weekly shots since It

only

> seems to work for 4 days and cause the drug is so far free to

> me...thanks to Humira Share Program...Maybe I can tough out the

acid

> in the skin with each injection until it runs out and get him to

> change me to something less caustic!! ICK

>

> I was talking to a lady at the docs office while I was waiting for

my

> parents to finish with there appnt. She also has RA and she wants

to

> try HUmira...but she can not get it cause she is on medicaide and

no

> rheummy in this area takes medicaid and she refuses to travel to

see

> one. So she only takes tylenol, Ultracet and Celebrex forher RA.

She

> so far has had both knees replaced and is doing very poorly. I

feel

> bad for her. I told her maybe she needs to bite the bullet and

> travel..she claims she can no longer drive and none of her adult

kids

> drive. she can not afford hotels, bus and such.

>

> Sad situation..

>

> Toni

>

>

>

> HI Toni,

> Sorry to hear you are off the Humira for another 2 weeks. Bummer.

Have you

> tried using an ice pack on the site before injecting? I know it

helps big

> time... As for the lady who cant get humira, have her look into a

referral from

> her primary doc. I dont know how medidcaid works where you are,

but here in

> PA if you have a referral they have to take you. Being curious one

day i

> called member services and asked what rheumamtologist is in the

area... none in a

> 40 mile radius without a referral. Nice. Sorry didnt mean to make

this a

> novel... lol hugs

> from PA

>

>

>

>

>