Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 I know I haven't written much in the last few days because of my hand, but wanted you all to know that I am still here reading. I am going through soap withdrawal. It is very boring not being able to do anything, but I do appreciate the fact that I have all your letters to read to help pass the time. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 ohhhh sooo good to hear from you Kathy. I was beginning to wonder how things went for you. Don't worry about replying.... we're here and we know your here and you'll join us soon again. Take it easy and have a Happy Holiday Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Haven't made any soap in over a month, but hopefully I will get started again this week. I cleaned up my kitchen table this week, and made room in the basement for all my stuff. I have a hot plate down there, and now I am ready to work. I like the peace and quiet. My dad is doing a little better, but now is having some problems with his kidneys, so we have more tests this week. It has been a very busy month with him, and I miss playing with my soaps. So I hope to be talking to you all real soon. Kathy (Niag. Falls) "Hi Cuz" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Glad to see you popping in Kathy! I hope your dad starts improving soon!! Try to take it easy on yourself. Colleen Country Meadow Creations Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2003 Report Share Posted June 9, 2003 In a message dated 6/9/2003 10:47:00 PM Eastern Daylight Time, kilroy01@... writes: > My doc prescribed Enbrel for me and I have to say that I am one of the very > > fortunate ones. My P is totally clear, and my PA is under control. The > fatigue > is gone, I feel great about myself, the flares do come and go, but nothing > Advil can't take care of. HI , I so glad to hear that you are one of the lucky ones. It's hard to find the right combination of drugs and therapy right away. I wish I could say that Enbrel has been great for me. I am going to try it as long as my rheumy thinks. He said we can try Remicade if it doesn't kick in soon. I'm sure the weather in NY did not help. It was nonstop rain for weeks. Hopefully if the sun will stay out more then a few hours, I will feel better. Hope your luck stays for a long time. I also asked people before but has anyone felt short of breath on the Enbrel? Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Thanks for the great update. Please let us know when Connor is an official graduate!!! Angie and Jenna Just wanted to say hi Hi everyone! I wrote a few times back in November about my son Connor who was banded the end of Oct. I read these messages every single day and am amazed at the support that everyone has for each other. Connor is doing great and we've already seen improvement. The neurosurgeon said last week that we will go for one more month and then he will graduate! We are so pleased we went through with it all! Anyway, just wanted to say hi and say what a wonderful group this is and good luck to everyone!Nikki and ConnorStarBand 10/03For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 That is great news, Nikki! Please continue to post about his progress, Natasha --- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...> wrote: > Hi everyone! I wrote a few times back in November about my son Connor > who was banded the end of Oct. I read these messages every single > day and am amazed at the support that everyone has for each other. > Connor is doing great and we've already seen improvement. The > neurosurgeon said last week that we will go for one more month and > then he will graduate! We are so pleased we went through with it > all! Anyway, just wanted to say hi and say what a wonderful group > this is and good luck to everyone! > > Nikki and Connor > StarBand 10/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Hi Nikki, Thanks for the update! That is wonderful that Connor has already seen so much correction! You must be so excited that he will graduate so soon, cannot wait to see his official post. Jen- TXTrentyn- 20 mo. DocBand 06/12/03 & 09/17/03DocGrad 01/16/04 Just wanted to say hi Hi everyone! I wrote a few times back in November about my son Connor who was banded the end of Oct. I read these messages every single day and am amazed at the support that everyone has for each other. Connor is doing great and we've already seen improvement. The neurosurgeon said last week that we will go for one more month and then he will graduate! We are so pleased we went through with it all! Anyway, just wanted to say hi and say what a wonderful group this is and good luck to everyone!Nikki and ConnorStarBand 10/03For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Nikki, It's so great to hear how well Connor is doing. He'll be a grad in no time!! Let us know when he's an official grad. --- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...> wrote: > Hi everyone! I wrote a few times back in November about my son Connor > who was banded the end of Oct. I read these messages every single > day and am amazed at the support that everyone has for each other. > Connor is doing great and we've already seen improvement. The > neurosurgeon said last week that we will go for one more month and > then he will graduate! We are so pleased we went through with it > all! Anyway, just wanted to say hi and say what a wonderful group > this is and good luck to everyone! > > Nikki and Connor > StarBand 10/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Nikki, thanks for the wonderful update on Connor!! Please post when he as graduated!! We love happy endings! Dustie --- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...> wrote: > Hi everyone! I wrote a few times back in November about my son Connor > who was banded the end of Oct. I read these messages every single > day and am amazed at the support that everyone has for each other. > Connor is doing great and we've already seen improvement. The > neurosurgeon said last week that we will go for one more month and > then he will graduate! We are so pleased we went through with it > all! Anyway, just wanted to say hi and say what a wonderful group > this is and good luck to everyone! > > Nikki and Connor > StarBand 10/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Hi Nikki, Thanks for posting with an update. I'm happy to hear that Connor is doing so well! Let us know when he's an official grad! , mom to Hannah, DOCgrad Cape Cod, Ma --- In Plagiocephaly , " dnajtc99 " <dnajtc99@y...> wrote: > Hi everyone! I wrote a few times back in November about my son Connor > who was banded the end of Oct. I read these messages every single > day and am amazed at the support that everyone has for each other. > Connor is doing great and we've already seen improvement. The > neurosurgeon said last week that we will go for one more month and > then he will graduate! We are so pleased we went through with it > all! Anyway, just wanted to say hi and say what a wonderful group > this is and good luck to everyone! > > Nikki and Connor > StarBand 10/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2006 Report Share Posted September 9, 2006 ((((((Jan))))), Sorry Jan you are having so much pain right now. Hopefully, the doctor's suggestions help with the low back pain. I was on the same earlier this year but was switched to darvocet. It could be that doc just wants you to not take them both at the same time. Sending gentle hugs and healing energy! peace and healing, Ebony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 --- In , " Ebony " <stillbreathing29@...> wrote: Thanks for the hug Ebony, I know the DR. know what he is doing I think lol. my pain is bad today It is raining and cold all I can do is take it one day at a time . take care, Janet IN IL > > ((((((Jan))))), > > Sorry Jan you are having so much pain right now. Hopefully, the > doctor's suggestions help with the low back pain. I was on the same > earlier this year but was switched to darvocet. It could be that doc > just wants you to not take them both at the same time. > > Sending gentle hugs and healing energy! > > peace and healing, > Ebony > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Sorry I haven't been around much. I spent the last two weeks visiting my grandchildren - my grandson, 3 months old, was baptised on Sunday. I thoroughly enjoyed the visit, my babies are the light of my life. But, of course, I overdid it, and now will need some time to rest up! To give you an idea, I didn't take a single photo for over a week, and never did get a photo of my three darlings together. I used every ounce of energy I had for them. I try to keep up when I travel, but two days into my visit my laptop died. It appears that I need to do a complete re-installation of windows, my windows registry has somehow been corrupted. So I have a big project to do before hubby and I leave for our vacation next week. I am soooo far behind that I will probably never catch up on all the emails I missed! I have been thinking of all of you, hope my dear RA friends are having good days. Gentle hugs to all of you! -- South Pasadena, CA See my galleries! - http://www.pbase.com/arenared986 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 , Welcome! You can learn a lot from this group. I joined a few months ago, because my husband had an ICD implanted on July 6. He is 57. He was diagnosed with cardiomyopathy in March. At last check, in June, his EF was 10-15. We can't seem to get a solid number from the cardiologist. They think that a virus attacked his heart, and there could be a genetic factor, because cardiomyopathy is very prevalent in his family. We have been blessed so far, because even though his heart function is very low, he is feeling better than he has felt in a very long time. I can sleep better, knowing that he has his ICD. He is working and we try to walk at least two miles several times a week. He could walk farther, it's me that had trouble breathing. He was terrified of the ICD and surgery, but has adapted to his "pal" very well and is starting to not notice it very much. After the pain medication in the hospital wore off, he was in a considerable amount of pain, for a few days. They did give him enough anesthia so that he doesn't remember the surgery. If your dad is afraid of the surgery, he might want to tell them that he doesn't want to be awake during the surgery, if possible. I know that my husband's EP said that they do about 50-50 total sedation or twilight sleep. As Mark had just gone through a heart cath and was aware of everything, he opted to be put out. He has not been shocked, yet and we don't know how much he is being paced yet, because he doesn't go back until November. In his case, the ICD didn't help him to feel any better, because he was feeling very good after he went on his medications. We just both are more at ease. I know that many people feel much better after having the implant. Bonnie <hope4littlehearts@...> wrote: Hi everyone, I just wanted to introduce myself. The reason I joinedthis group is because my dad was told by doctors that he needs to getan ICD implanted, but he is afraid to have it done. He has no choicereally...his heart is functioning at 25%. He has had several heartattacks and 1 open heart surgery, so his heart has become very weak.I'm trying to learn more about ICD's.....at first I thought it wasjust a pacemaker but now I realize it's a little different. My 4 yearold daughter has a pacemaker, but her heart problems are totallydifferent from my dad's problems. His biggest fear is the part aboutbeing shocked. Well, I'm glad to have found this group and I hope tolearn more about ICD's. Take care.~ oneSearch: Finally, mobile search that gives answers, not web links. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.