Re: Anyone have a HUMIRA Horror Story?

[Guest guest]

I have been taking it for about a year with no real problems, Only thing is

right now I am breaking thru with sysptoms, and had to go back on predisone.

in WI

NELLIESTAR@... wrote: Pris, who takes ir weekly

[Guest guest]

In a message dated 5/22/06 5:09:48 PM, bizzare48@... writes:

> I have been taking it for about a year with no real problems, Only thing is

> right now I am breaking thru with sysptoms, and had to go back on predisone.

> in WI

>

>

How much prednisone?

I am on 10 mg, Humira weekly. Aziothipromine, too.

Pris

[Guest guest]

It wasn't a horror story BUT I did break out with a very uncomfortable

red itcy rash on my upper body after the 2nd injection. I was

instructed not to take anymore. It has been 2 weeks since the

injection and you can still see the bumps under my skin on my arms and

still itches alot.

Marlis

- In , NELLIESTAR@... wrote:

>

> Pris, who takes ir weekly

>

>

>

[Guest guest]

Right now, Humeri weekly, and 12.5 of predisone daily, and Lexapro, and ultrcet

for pain. But i know things will be changing when i see doc first week of June.

We talked about MTX last visit. She is concerned because humeri no longer seems

strong enough, and i have interstercial fibrosis of the lungs (RA in lungs).

in WI

NELLIESTAR@... wrote:

In a message dated 5/22/06 5:09:48 PM, bizzare48@... writes:

> I have been taking it for about a year with no real problems, Only thing is

> right now I am breaking thru with sysptoms, and had to go back on predisone.

> in WI

>

>

How much prednisone?

I am on 10 mg, Humira weekly. Aziothipromine, too.

Pris

[Guest guest]

I am curently on Humira. When I took the first injection the needle was so

dull I had a huge bruise on my stomach. It burned like acid going in to the

skin. But the next day I had lots of energy!! and that lasted for 4 days!!

I was happy then it wore off and the pain and fatigue hit like a brick wall.

I only take Humira every two weeks and my doc refuses to increase it to

weekly due to risk for infection.

After the second shot I ended up with serious lung problems. I had cytokine

storm or severe post viral lung syndrome. I thought it was going to kill

me. I was soo sick. My rheummy was no help. He basicly told me take my meds

if I felt the need after he has instructed me to stop all meds if I got sick.

So two weeks of oral steriods, inhaled steriods and asthma meds, plus some

oral meds I was only way to recovery. It took two months to feel better.

The whole time I was off meds.

Then I took the next Humira shot!!! OMG it was horrible. It burned for two

days!!!!! I had a HUGE bruise and red hard lump the size of a baseball on

my stomach!! Then I had 4 days of horrible fatigue and pain..worst than on

no meds...along with 4 days of terrible nausea, dizziness, and headache. I

was on a school trip with my kids...thank god we were on the bus home when it

hit!!!

I tried to tell my doc and he would not listen. So I have not taken another

shot since then. WE have a new rheummy coming to town in July and I will

wait to see what he says. My old one has turned out to be yet another quack!

In a message dated 5/22/2006 8:00:05 P.M. Central Daylight Time,

writes:

From: " NELLIESTAR@... " NELLIESTAR@...

Date: Mon May 22, 2006 4:58pm(PDT)

Subject: Anyone have a HUMIRA Horror Story?

Pris, who takes ir weekly

[Guest guest]

I hope you like the new rheumy coming to town

have you spoke to the local hospital and see if there is another

rheumy in the area?????

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