Re: Anyone have an Enbrel horror story? ('s mom)

[Guest guest]

Hi Missy:

Truely, I do understand what it is like to have to

make medical decisions for a young child. It's the

hardest thing I have ever had to do when I signed

surgical forms on our son when he was only 2 pounds,

and again, and again with other surgeries. We moms and

dads do what we must to try and treat our children,

and sometimes it's surgery, sometimes very scary

medications. I have been there, but my son's birth

defects and surgeries took care of the problems with

him, I really feel for you that this will be a

life-long disease in 's life, and that she is

soooo young, so little to have to go through all that

she has.

The Enbrel does not sting me - I let it sit out for

about 15 minutes after taking it from the frig, and

let the alcohol dry totally on my skin before

injection (otherwise it will sting), and try to inject

steadily, slowly, and push the plunger on the Enbrel

slowly too, and then remove slowly. Everything slow.

I know that I was very afraid of giving myself shots,

the pain, not knowing if I could do it, and there will

probably be no way to completely calm 's fears of

shots. If you doctor could give you some extra

needles and syringes, try just to stick yourself in

your upper thigh or stomach and see which of them is

better for you - chances are it will be the same for

. Upper arms are also used. Just a thought,

don't know if the doctor would do that, but you could

certainly ask, and maybe even then show that you

stick yourself and it does not hurt? I hurt so bad

for you, and for . This is just not the kind of

thing you think about when you think about little

children, but it is the reality for too many.

I know I have said it before, but I will say it again,

as you cannot hear it enough. You are a wonderful

mom, you are a strong woman, and I really, really

cannot stress enough just how lucky and you are

to have each other. God does not give us more than we

can handle, and God gave you knowing you were

the right mommy for her.

Take care ---

Kathe in CA

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

To Kathe

Thank you so much for making me feel better. Today was her last IV of

Remicade and tomorrow I start the Enbrel. The little kit they gave me looks a

little confusing. The " BOOK " of instructions took me all night to read. I

think I'm still a little confused. Any tips or hints? I have to get two shots

out of each vial, so I don't use the syringes it comes with and still have to

mix it myself. What is that grey thing? LOL Can you tell I'm cranky???LOL I

know it will be fine, Em is a trooper. By the way, by now I owe her a house,

corvette, a 20 lb chunk of chocolate, and a unicorn. ---- (things I've bribed

her with) LOLOLOLOL

Mail ya later,

Missy

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi Missy:

Truely, I do understand what it is like to have to

make medical decisions for a young child. It's the

hardest thing I have ever had to do when I signed

surgical forms on our son when he was only 2 pounds,

and again, and again with other surgeries. We moms and

dads do what we must to try and treat our children,

and sometimes it's surgery, sometimes very scary

medications. I have been there, but my son's birth

defects and surgeries took care of the problems with

him, I really feel for you that this will be a

life-long disease in 's life, and that she is

soooo young, so little to have to go through all that

she has.

The Enbrel does not sting me - I let it sit out for

about 15 minutes after taking it from the frig, and

let the alcohol dry totally on my skin before

injection (otherwise it will sting), and try to inject

steadily, slowly, and push the plunger on the Enbrel

slowly too, and then remove slowly. Everything slow.

I know that I was very afraid of giving myself shots,

the pain, not knowing if I could do it, and there will

probably be no way to completely calm 's fears of

shots. If you doctor could give you some extra

needles and syringes, try just to stick yourself in

your upper thigh or stomach and see which of them is

better for you - chances are it will be the same for

. Upper arms are also used. Just a thought,

don't know if the doctor would do that, but you could

certainly ask, and maybe even then show that you

stick yourself and it does not hurt? I hurt so bad

for you, and for . This is just not the kind of

thing you think about when you think about little

children, but it is the reality for too many.

I know I have said it before, but I will say it again,

as you cannot hear it enough. You are a wonderful

mom, you are a strong woman, and I really, really

cannot stress enough just how lucky and you are

to have each other. God does not give us more than we

can handle, and God gave you knowing you were

the right mommy for her.

Take care ---

Kathe in CA

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________