Re: Migrating Joint Pain Pennie

[Guest guest]

Hi Pennie:

I'll bet where you live is quite beautiful. I am in a

more rural area too, but we do have a couple of

rheumys nearby at least. But I do love not being in a

city!

No, you are not crazy! Migrating pain is very common

in RA - I never know which of my joints will be

flaring, but most common are my feet/ankles, knees,

and elbows, after that anything goes. I don't get

very much redness either, but sure get the pain!

That prednisone will definately take away the pain but

when decrease the dose, it does creep back in. I hope

that you are able to get a definate diagnosis, and

start treatment right away. You are not alone in the

search for answers, sometimes these autoimmune

diseases get all mixed up and it's hard to tell what's

what.

My good times are the middle of the day usually. The

mornings I hobble around quite a bit, and then by 4 pm

I am wiped out and ready to lay down. I am not a

night person lol. You will find your own energy

rhythm as time goes on - don't try to fight it or you

will just get more pain and fatigue lol.

Best of luck to you - let us know how your next

appointment goes -

Kathe in CA

--- Pennie Kellett <penniepincher66@...>

wrote:

> Hi Kathe,

> I have a similar situation going on. Mine started

> in the middle of July. My GP diagnoised RA, and put

> me on high doese of Prednisone, which helped

> immediately. Then he suggested that I see a Rheumy.

> I live in North Qld, in Australia, about 1100 km

> from the nearest specialists, so it's a pain in the

> bum to see one, but I have been to one Rheumy who

> said that I had a virus, even though it had been 11

> weeks at that stage, he told me to gradually

> decrease the prednisone that I am on, and then to

> get more blood tests. My original tests showed

> slightly elevated RH factor and increased Sed rate.

> I am nearly off the prednisone now and the pain is

> increasing proportionally. I am going to see

> another Rheumy in about 2 weeks, and would like to

> get some type of diagnosis. But my pain is very

> similar, moving all the time, and it is definetly

> worse in the evening, I almost always have pain in

> my left knee. So there you go, I have no idea what

> either your husband or myself

> have, but it is comforting to know that I am not

> crazy and that other people have the same syptoms.

> Also I don't have any redness of the joints, and

> very little swelling, although I do have a hardening

> happening on my knee cap.

> Pennie

>> >

> >

>

> __________________________________________________

>

[Guest guest]

Thank you Kathe,

yes it is very beautiful where I live. I guess you've heard of the Great

Barrier Reef, well I live on the coast with the reef not far off. Maybe you

have heard of the Whitsunday Islands, (very famous in Australia), I live very

close to them as well. It's nice to hear from other people with similar

syptoms, although I am still clinging on to the hope that I have something else.

Fingers crossed, but I will be sure to let you know how I go at my next

appointment.

Pennie

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi Pennie:

I'll bet where you live is quite beautiful. I am in a

more rural area too, but we do have a couple of

rheumys nearby at least. But I do love not being in a

city!

No, you are not crazy! Migrating pain is very common

in RA - I never know which of my joints will be

flaring, but most common are my feet/ankles, knees,

and elbows, after that anything goes. I don't get

very much redness either, but sure get the pain!

That prednisone will definately take away the pain but

when decrease the dose, it does creep back in. I hope

that you are able to get a definate diagnosis, and

start treatment right away. You are not alone in the

search for answers, sometimes these autoimmune

diseases get all mixed up and it's hard to tell what's

what.

My good times are the middle of the day usually. The

mornings I hobble around quite a bit, and then by 4 pm

I am wiped out and ready to lay down. I am not a

night person lol. You will find your own energy

rhythm as time goes on - don't try to fight it or you

will just get more pain and fatigue lol.

Best of luck to you - let us know how your next

appointment goes -

Kathe in CA

--- Pennie Kellett <penniepincher66@...>

wrote:

> Hi Kathe,

> I have a similar situation going on. Mine started

> in the middle of July. My GP diagnoised RA, and put

> me on high doese of Prednisone, which helped

> immediately. Then he suggested that I see a Rheumy.

> I live in North Qld, in Australia, about 1100 km

> from the nearest specialists, so it's a pain in the

> bum to see one, but I have been to one Rheumy who

> said that I had a virus, even though it had been 11

> weeks at that stage, he told me to gradually

> decrease the prednisone that I am on, and then to

> get more blood tests. My original tests showed

> slightly elevated RH factor and increased Sed rate.

> I am nearly off the prednisone now and the pain is

> increasing proportionally. I am going to see

> another Rheumy in about 2 weeks, and would like to

> get some type of diagnosis. But my pain is very

> similar, moving all the time, and it is definetly

> worse in the evening, I almost always have pain in

> my left knee. So there you go, I have no idea what

> either your husband or myself

> have, but it is comforting to know that I am not

> crazy and that other people have the same syptoms.

> Also I don't have any redness of the joints, and

> very little swelling, although I do have a hardening

> happening on my knee cap.

> Pennie

>> >

> >

>

> __________________________________________________

>