Re: Fw: Abatacept/Orencia Joanne

[Guest guest]

Hi Joanne:

I wish you the best of luck with the Orencia. How

many injections per year do you get of this? I am on

Enbrel and do two injections a week. I am very

interested to see how this works for you, as there are

not any personal experiences of this here in thhis

group yet. I am a bit more leery of these new meds as

they seem to stay in the system much longer than

Enbrel, etc., but you never know when it might come

down to that if the Enbrel ever fails me. I do know of

one lady, a friend of my husband's and mine, whose

mother has had RA for many, many years, and has gone

through a lot of meds, and surgeries, and has just

started Rituxan. She has had the two injections, and

her son says she feels like a new woman! Will keep

you posted on that to, as I hear things from him.

Take care -

Kathe in CA

--- " easyspirit13@... "

<Easyspirit13@...> wrote:

> > Hi All,

> I am a long time member..just do not post much..hope

> this is helpful

>

> I just had my second infusion of Abatacept or

> Orencia as it is known and so far so good. I

> honestly do not know how well it is working as I am

> also given 20 mg of steroids prior to the abatacept

> so I do not react to the drug as I react to

> everything it seems. So it could be the prednisone

> for now making me feel well.. but time will tell.

> I have had severe RA for almost 24 yrs and believe

> me I have tried it all from antibiotic therapy

> including long term IV antibiotics as well as 18

> months of oral.....embrel, Kineret, Arava, Humira,

> just to name a few...so hopefully this will work....

> I will keep in touch and hope this info is helpful..

> Joanne in PA

>

>

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