Re: Vitamin D Lowers Inflammation 2/28/04

[Guest guest]

>anyone have any experience with this?

>

>http://www.mercola.com/2004/feb/28/vitamin_d.htm

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

my dr. advised me to take 2000-4000 units per day--based on a blood

test. We lack sun in the northwest. ew

[Guest guest]

Hi Ester;

Vitamin D can go both ways and be equally bad.I had my 1,25/25 tested

and I was 3 times too high.No wonder AP did not work for years.After

reading www.sarcinfo.com I figured I had better do something about it

At that time I was still on Methotrexate and it worked fairly well but I

knew I had to get off of it before it killed me.Over several years I

tried to get off but each time I did I would re-petrify.After stopping

all dietary D and avoiding the sun as much as possible I got off in less

than 6 months,AP kicked in and I was in remission after an other 6

months.Finding out that I had a gluten intolorance & leaky gut and

taking care of that also helped. Lynne G. / SD

Esther Warkov wrote:

> >anyone have any experience with this?

> >

> >http://www.mercola.com/2004/feb/28/vitamin_d.htm

> <http://www.mercola.com/2004/feb/28/vitamin_d.htm>

> >

> >To unsubscribe, email: rheumatic-unsubscribeegroups

> <mailto:rheumatic-unsubscribe%40>

>

> my dr. advised me to take 2000-4000 units per day--based on a blood

> test. We lack sun in the northwest. ew

>

>

[Guest guest]

>

> anyone have any experience with this?

>

> http://www.mercola.com/2004/feb/28/vitamin_d.htm

>

That is a very interesting set of articles. I had my vitamin D checked

when I switched Rheumies in August. It was 1.8ng/ml which is

considered ctically low. I have been in 50,000units of Vitamin D once

a week for the past 8 weeks and will be retested at 12 weeks. I didn't

realize it was related to RA and inflamation in particular. I thought

it was just a random thing that came up. Very interesting.

Does anyone else have a defiency?

in St. Louis

[Guest guest]

Yes, my vitamin D level was low when I was first worked up and dx'd

with RA. The rheumatologist said that it was particularly important

becasue without adequate vitamin D levels, your body can't absorb

calcium properly, and when you're on prednisone, you need to replace

the calcium that the pred leaches from your bones. I was on D mega-

doses for 8 weeks, then checked, as you are doing now.

When she checked me again a few months later, my level was too low

again. Now I'm on it for 12 weeks, after which we'll check again.

If it drops again, she said I may have a problem with vitamin D

uptake that will have to be investigated, though she didn't go into

details. I didn't ask too much more... I figured why borrow

trouble, I have enough now as it is!<g> Hopefully it will stay up

this time, and that will be the end of it. I do take a multivitamin

daily, and the calcium supplement I take also contains vitamin D and

magnesium to cover all the bases.

> >

> > anyone have any experience with this?

> >

> > http://www.mercola.com/2004/feb/28/vitamin_d.htm

> >

>

> That is a very interesting set of articles. I had my vitamin D

checked

> when I switched Rheumies in August. It was 1.8ng/ml which is

> considered ctically low. I have been in 50,000units of Vitamin D

once

> a week for the past 8 weeks and will be retested at 12 weeks. I

didn't

> realize it was related to RA and inflamation in particular. I

thought

> it was just a random thing that came up. Very interesting.

>

> Does anyone else have a defiency?

>

> in St. Louis

>

[Guest guest]

I haven't been tested, but after my last bone scan, my rheumy switched me

from regular Fosamax to Fosamax with Vit. D. I take prednisone, and even

with the Fosamax, I'm showing bone loss. I also take a calcium supplement,

and magnesium.

On 10/26/06, Bev Hannon <bahannon@...> wrote:

>

> anyone have any experience with this?

>

> http://www.mercola.com/2004/feb/28/vitamin_d.htm

>

>

--

South Pasadena, CA

See my galleries! - http://www.pbase.com/arenared986

[Guest guest]

Hi,

Because my parathyroids don't work, I take rx Vit D called Rocaltrol in

varied doses. When my insurance changes to BCBS in Jan, I will have to

switch to ergocalciferol. Is anyone on that? My bone density test this

year showed I have osteopenia, which is bone loss. I do take calcium

500mg 5x day and magnesium 400mg 3x day.

Debbie L

[Guest guest]

Hi Kathy!

If I haven't told you this, WELCOME!!! Sorry to hear you also have

lifetime Hypoparathyroidism. Mine was from my thyroid gland removal

last year. Don't know if mine is permanent though. Do you belong to

the HPTH group? I used to but quit last year. It's a good one though.

Since I only have fibro I can't tell you much about RA. Sorry though

that yours is getting worse. This is a good group so many people can

help answer your questions.

hugs,

Debbie L

>

> Hi, Debbie.

> My name is Kathy. Can't remember if I ever introduced myself to

the group. I have progressing RA that doesn't seem to be getting

better, Hypo-Parathyroidism, Diabetes type I (JD), and all the good

stuff that happens to diabetics (still have full function of both

kidneys, [YAY!]). At the time I have been taking Methotrexate and

on Remicade infusions for my RA. I'm on Calcitriol (Rocaltrol) for

my parathyroidism for life. I also have Osteopenia and Osteo-

arthritis. Good luck on the new med. Anyone on Remicade?

> [ ] Re: Vitamin D Lowers Inflammation 2/28/04

>

>

[Guest guest]

Hi Kathy,

You're welcome. You probably still busy enough with your 3 groups

like I do. Sorry to hear you had problems with your p-thyroid glands

and the seizures, too. This past Dec, I went into tetany with a very

low calcium level. Scared me. Hope you don't go through that.

Good luck to you, too.

Debbie L

>

> Thank you Debbie! No, don't belong to HPTH group. Just learned

about this group, the paradigmpumpers group, and type I diabetes

group just recently. At least, now, I don't feel alone any more,

having all these medical problems. I'm sorry to hear about your

parathyroid glands also, and fibro. Back in 1980, when I started to

go into seizures, drs thought the reason was from low blood sugars,

and didn't find out about the Hypo-parathyroidism until 1992.

Didn't stop having seizures until Jan. 2000. My level stayed so low

didn't think it would ever come up. Good luck Debbie.

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