Re: venting!!! Kathy

[Guest guest]

thanks kathe!! i have 4 months to get myself into shape before my favorite

band comes thru town again. you know i want to be right between those tour

buses again!!! it seems i did things backswards. i've never tried planquil. is

it sulpha based?? maybe that's why. when they first mentioned mtx i was

afraid to try it due to the side effects. then it was one that gave me a good

run

almost 4 years!!! i can't believe how fast i am returning to the old ways.

the fevers come and go almost every day again. i spent over 1 1/2 hrs in my

primary care office again. i told him i was going to bring in my tv since i

spend so much time there!!! why do they make me come in to agree with

everything that i say? why couldn't he just call in the 7th medication for

this yeast

infection he got me on with all the steroids. i told him that the good news

is i'm not coughing anymore. so he calls in more meds to me and refers me to

the gyne, tells me he thinks my pain and trouble with my periods is the

fibroid tumor they found. duh!!! i told him about my problems with mtx and tell

him i am so tired after work. i just don't want to do any housework anymore. i

folded 1 load of laundry and my arms hurt. but does he offer any suggestions

for the next 3 weeks. nope. i am going to call my rheumi's office again

tomorrow and tell them i am increasing my prednisone to 10 mgs unitl i come in.

i

just don't want to anymore

kathy in il

kathy in il

[Guest guest]

Kathy:

Sorry you are having such a tough time. Yes, it's

probably best not to do Mtx again, obviously you had

an allergic type reaction to it. I read other posts

that said you had tried Enbrel before and it was not

good for you? And Arava seems to have also caused

trouble, you'll probably want to avoid that as well.

Have you tried Plaquenil? I know there must be

something out there that can help you, and I hope that

your doctor keeps trying. Are you still running a

fever?

You sure have been through a lot, my friend, and I

pray that your luck begins to turn around to the

better, and soon. Take care of your self and hang in

there -

Kathe in CA

--- kringlemom@... wrote:

> well my rheumi's office just called back and said i

> can not go back on the

> methotrexate, they feel with the incidents i had

> with my tongue and chest it

> would be too great a risk. so she tells me they are

> sending me information

> and a prescription for arava. i said great, i've

> already taken that back in 97

> or 98. i was so dizzy i had to hang on to the walls

> at work to get around. she

> told me to review the information. but ultimately

> it is my decision. my appt

> is in 3 weeks. i am so tired and sore, just don't

> want to do it

> anymore.(housework, motivation 0) i sat here and

> ran a fever last weekend. i haven't felt

> this way in awhile. add on my 4 front teeth are

> loose and so sore. my car is

> leaking trans fluid again in 2 spots and was told

> that the fluid is cheaper

> than the fix. i am still trying to recover from the

> car catching on fire,

> christmas, sinus infection, ear infection,

> bronchitis, pneumonia, steroid boost,

> yeast infections x 6 meds and still a problem

> !!!!!!! i always hear, don't

> worry next year will be better. it really hasn't

> been so far!!!

>

> kathy in il

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

In a message dated 3/2/2006 5:10:10 PM Central Standard Time,

kringlemom@... writes:

i am going to call my rheumi's office again

tomorrow and tell them i am increasing my prednisone to 10 mgs unitl i come

in. i

just don't want to anymore

I so know how you feel. i've had to increase to 10mg daily for the past 2

monts. Hated to do it but when you cant move without crying and have a 7 yr

old and a 2 yr old to take care of, there was no other option. :/ The good

thing is i have an appointment with my Rheumy on monday. Lord is she gonna get

an earfull! Maybe after i let it all out she will actually help me instead of

writing a script and sending meon my way for another 4 months... ok i'm done

venting sorry hugs.

from PA

[Guest guest]

i see my rheumi 3/22, not too awful long. but i almost feel that way right

now! boy my back is a hurtin

kathy in il

[Guest guest]

Kathy:

Sorry you are still hurting so much and so fatigued. I

know how much you love those concerts - I sure hope

that you are able to go and enjoy yourself.

I know how much Prednisone helps, don't blame you for

increasing your dose. Sorry you are feeling so much

like you did many years ago, like deja vu disease, but

sometimes it's like that. When do you see your rheumay

again? Have your tried any of the biologics? I don't

know what if Plaquenil is sulfur based or anything, it

was just the RA med with the least amount of side

effects that the doctor offered me when I was first

dx, also offered Mtx and Arava, which both scared me

because of the liver damage. And then I ended up on

both anyway, but for only about 6 months on the Arava

-it helped but gave me lots of stomach issues - and

now have been on Mtx for 4 years with good result, and

for the last 4 months on Enbrel too and doing well.

Actually I think it is more Fibro pain now than

anything else.

Anyway, hope you do get to that concert, and get to

doing better soon. Hang in there, kiddo -

Kathe in CA

" The outside of a horse is good for the inside of a

person "

--- kringlemom@... wrote:

> thanks kathe!! i have 4 months to get myself into

> shape before my favorite

> band comes thru town again. you know i want to be

> right between those tour

> buses again!!! it seems i did things backswards.

> i've never tried planquil. is

> it sulpha based?? maybe that's why. when they first

> mentioned mtx i was

> afraid to try it due to the side effects. then it

> was one that gave me a good run

> almost 4 years!!! i can't believe how fast i am

> returning to the old ways.

> the fevers come and go almost every day again. i

> spent over 1 1/2 hrs in my

> primary care office again. i told him i was going to

> bring in my tv since i

> spend so much time there!!! why do they make me

> come in to agree with

> everything that i say? why couldn't he just call in

> the 7th medication for this yeast

> infection he got me on with all the steroids. i told

> him that the good news

> is i'm not coughing anymore. so he calls in more

> meds to me and refers me to

> the gyne, tells me he thinks my pain and trouble

> with my periods is the

> fibroid tumor they found. duh!!! i told him about my

> problems with mtx and tell

> him i am so tired after work. i just don't want to

> do any housework anymore. i

> folded 1 load of laundry and my arms hurt. but does

> he offer any suggestions

> for the next 3 weeks. nope. i am going to call my

> rheumi's office again

> tomorrow and tell them i am increasing my

> prednisone to 10 mgs unitl i come in. i

> just don't want to anymore

>

> kathy in il

>

> kathy in il

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

I hope the picture came through

A little rest might help.

kringlemom@... wrote:

i see my rheumi 3/22, not too awful long. but i almost feel that way right

now! boy my back is a hurtin

kathy in il

[Guest guest]

Very comforting to know I am not alone. Maybe this will inspire the young ones

to know that although we were dynodes long before all the new meds, we are still

here <VBG>

Hugs

June

Re: [ ] venting!!! Kathy

I hope the picture came through

A little rest might help.

kringlemom@... wrote:

i see my rheumi 3/22, not too awful long. but i almost feel that way right

now! boy my back is a hurtin

kathy in il