Re: getting people to understand Angie

[Guest guest]

Hi Angie:

It's very hard to get people to really understand what

we go through. I have told my family that it is like

having the flu, just achy and feeling like yuck, and

then throw in stiffness and pain in all your joints,

like you might get if you worked out very hard and

were not used to it. Also, overwhelming, mind numbing

fatigue, beyond bone tired, beyond taking a nap and

feeling rested, never feeling really rested like you

haven't slept for a week.

My family has seen this for 8 years and they get it,

but for people who do not see what you go through on a

daily and personal basis, it can be hard to get them

to understand. Sometimes they get it, sometimes they

don't. It's extra hard if they cannot see any

difference in you from the outside, you still look the

same, and it's hard to get past that sometimes.

Have you let them know that you need other help? If

you don't tell them, they won't know. Sometimes that

is all it takes. Just remember, we understand, and

are here for you.

Kathe in CA

..

--- Angie <angie-long@...> wrote:

> Any one have any secrets on getting people to

> understand exactly what

> RA is and how it makes me feel.. THat I need

> support in other ways

> then just being taken to the doctors. Any help

> would be greatly

> appreciated as I really want and need these people

> to understand.

>

>

> Thanks

> Angie

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