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Hi Val,

EMG stands for electromyograph. It's usually performed by a neurologist. I

was sent for the test because all my blood tests were normal, but I had all

the old Lyme symptoms plus I developed horrible stabbing pains in my legs and

arms. I didn't know this at the time, but Peripheral Neuropathy is very

common with late stage Lyme.

There's two parts to the test. I'm glad I asked him a lot of questions

yesterday so I can answer yours today!

The first part uses electrodes. They " zap " you with different levels of an

electrical pulse and measure the time it takes to reach sensors that are

placed on different parts of your body. This is how they tested me -- the

sensors were placed on my hand and fingers and the electrode sends a current

from my upper arm, elbow and other parts of my hand. They did the same type

of thing to my leg. The longer it takes to reach the sensor, or if it doesn't

reach the sensor at all, tells them there's nerve damage. This part of the

test doesn't hurt, but it does feel really strange. The doctor told me its

the same type of shock a dog gets from a collar with one of those electrical

fences.

The second part uses a needle. The needle is placed at several points in the

body, for me it was two spots around my ankle, my shin, thigh, lower back,

shoulder, upper arm, below my thumb, and on the fatty part of my hand below my

pinky (I think there were a few more, but those are the ones I remember).

First they listen to the nerves, if there's a buzzing or rattling type of

noise, this means something's wrong. Next they test how the nerves conduct

the messages sent by the brain. I had to move my hand/foot, or cause pressure

by pressing against his hand to test this. This shows as waves on the

machine. There's certain patterns that are normal, and anything out of the

range or unusual tells them there's a problem.

Although the test is a bit painful, it was worth it to have concrete evidence

that there was something wrong, Peripheral Neuropathy. And now since it has

improved, it proves that the abx are working! I was actually excited when the

original tests showed damage because all my blood tests were normal. And I

don't think I would have gotten the abx if this hadn't happened.

I hope this explanation makes sense, and answered your question.

Take care,

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Great explanation , I have had about 4 of these tests in my life, and

never quite understood what they were doing. Thanks for sharing!

Marta

>Hi Val,

>EMG stands for electromyograph. It's usually performed by a neurologist.

I

>was sent for the test because all my blood tests were normal, but I had all

>the old Lyme symptoms plus I developed horrible stabbing pains in my legs

and

>arms. I didn't know this at the time, but Peripheral Neuropathy is very

>common with late stage Lyme.

>

>

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Hi , Thank you so much for your info. I am so glad to hear that the tests

showed improvement. I don't really understand that peripherial neuropathy (sp)

but always thought nerve damage could not be reversed. I am glad to know that

it can. By the way, are you taking supplements like Bovine Myelin sheath or

inistitol for the nerve damage. I heard they were good.

Hope you and your family have a great Thanksgiving!

-Val

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Hi , How was your thanksgiving. Mine was actually pertty Good. thank

God!! I got info on those two supplements from a booklet by Dr. Hoffman. He

is an alternative medicine Doctor who treats a lot of Lyme patients. he also

treats them with antibiotics. He has a center in NY city callde The Hoffman

Center. I have heard some good things about his protocols so I am trying a

bunch of supplements listed in the booket. You can get this booklet in any

vitamin store. Here is what he writes about Inistitol and Bovine Myelin Sheath

Inistitol.... is a constituent of the myelin sheath that surrounds the nerves,

and may assist in the repair of neurological damage. Reccomended dosage for

nerve repair 500 to 1000 mg 2 to 3 times daily

Extract of Bovine Myelin..... has been shown to attenutae the autoimmune in

multiple sclerosis on the principal of the antigen feeding. It may also be

useful in treating some severe neurological symptoms of lyme disease, which

can closely resemble multiple sclerosis. Reccomended dosage 500 to 1,000 mg 2

to 3 times daily

I take a whole bunch more from the booklet like magnesium, Q10, Vit B, C, E,

zinc, Garlic, alfalfa,Beta carotine and some others. I don't really know how

great they are but since taking them I do feel improvement. Could be some kind

of placebo effect though. LOL The booklet however, is very interesting. Try

and get a copy.

Feel better-Val

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  • 5 months later...
Guest guest

Hi ,

I will never have another EMG again. it causes lots of pain for several days

in your nerves. I didn't know what it was and had one. Told Dr. J. never

agian, find another test.

Connie

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Guest guest

Hi Connie,

I don't recall pain afterward, but then again, I don't recall too much

anymore.....LOL! I am just glad I got the last one from the neurologist

himself, it was quick, not painless, but it helped me get approved for SSDI

when he found all the nerve damage.

Hugs,

Marta

>From: Cslyme@...

>

>Hi ,

>I will never have another EMG again. it causes lots of pain for several

days

>in your nerves. I didn't know what it was and had one. Told Dr. J. never

>agian, find another test.

>Connie

>

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  • 2 years later...

Arial,

I have easy EMG's and I have had hard EMG's. One inexperienced jerk

really hurt me a few years back. Pain so severe I wet myself on the table.

My latest was given by the neurologist, he did my lower and upper

extremities, when he tried to do my throat I really panicked and almost

jumped off the table. I am not a big baby, I really suffered extreme pain

from those two particular EMG's, the others I have had since the 1980's for

radial tunnel syndrome (elbow) were mild, since I have acquired LD, I have

experienced painful EMG's. Maybe it is not so much the test, as to the

experience of the technician, be it neurologist or nurse and nothing to do

with LD at all?

No picnic for me.

Marta

----- Original Message -----

From: <ArialS@...>

>At most, maybe a brief, mild

> discomfort when he intensified the levels, but nothing too unpleasant.

There

> was no afteraffect in any way. All in all, a very easy test to endure.

>

> Arial

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The wires were moved to the different locations where I was having

pain or problems. He asked me to move various ways, but all very simple. I

don't recall experiencing any pain with it. At most, maybe a brief, mild

discomfort when he intensified the levels, but nothing too unpleasant. There

was no afteraffect in any way. All in all, a very easy test to endure.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The test you had was just the one with the probes. I have had that one, too

and it just made me feel like I had the creepy crawlers. The more intense EMG is

where they stick needles into your muscles....and it is very painful, especially

when they have you flex your muscle. I have had 5 of these tests done around my

spine, arm and shoulderblade. The right up I saw someone post was very accurate.

I was hurting pretty good the rest of the day and sore for a day or two more. I

don't want to scare anyone because it is a very useful test and one that has to

be done several times over a period of time when you have nerve damage, but the

reality is that it is painful. I hope this helps.

Your Lyme Friend,

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  • 7 months later...
Guest guest

,

I have have about 3 EMG's because I have/had Carpal Tunnel Syndrome. I

am not going to say it is a pleasant test but I had no problems with it,

and that could be because needles do not scare me.

The needles they use are a little and I do mean a little thicker than

an acupuncture needle. The Neurologist puts them in (just under the

first layer of skin. I didn't even bleed) at certain nerve points and

wiggles them around and watches a monitor for the results. The monitor

looks like bad reception on a tv. The only place that hurt for me was

the meaty part between the index finger and the thumb. The Dr. said it

was common.

I had both wrists released and have no problem with my right hand (my

dominant hand), but have had 3 and soon the 4th surgery on my left hand

because I develop scar tissue really quickly and every 10 years or so

they go in and clean me out. This time the Orthopedic Dr. is going into

my index finger and further investigate because it has gotten stiff

again and I cannot bend it again. This stiffness in the index finger

was one of the first symptoms of my PA, or should I say I think it was

one of my first symptoms.

I had a very good neurologist do the test and he answered all my

questions as the test progressed, and a nurse was in with me, comforting

me and keeping me calm.

Good Luck,

Angera

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Guest guest

In a message dated 4/10/2002 1:28:24 PM Eastern Daylight Time,

lesliesa@... writes:

> Dr. didn't believe me when I told her about the connection between MS and

> Enbrel.

- does your doctor live on another planet??? Any rheumy who even

cares A LITTLE BIT about keeping current would have heard of this.

Again, RUN, don't walk away from this idiot

My 2 cents,

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  • 1 year later...
Guest guest

Sorry you're in so much pain! And sorry just telling my personal experience with

the EMG. It's hard to say what tests when I don't recall what your symptoms are

(have you posted before? If so my apologies, bad memory). EMG would not show if

your disc is ruptured, buldging, etc, you'd need an MRI to show that. Sorry I

really don't know what else to add not knowing where your pain is or what you've

already had done. I do wish you luck and hope all works out tho!!

Connie

EMG

> Hi connie & courtney thanks for your encouragement re-emg really

> looking forward to it now, NOT! are there any other test that don`t

> involve pain? Need to prove my condition is real, my gp thinks I

> exagerate my symptoms and has told dissablity I am basically normal

> cut benifits from high level to non, I don`t believe it after all

> the shit I`ve been through.

>

>

>

>

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Guest guest

Hi Connie & courtney.

Mines a very long story but I will try to make it short as poss. Early teens

restless legs, wierd dreams started when very tired would fall asleep in seconds

have very loud noises in head and not be able to wake or move but could here and

call (sort of) to be woken. 20 splitting headaches and numbness to left half of

face, told to see dentist by gp, dentist said see gp, no diagnossis. 30 still

having bad dreams. when tired splitting headaches legs giving way when running.

diagnossis cartlidge in knee op found nothing wrong took a bit out in case.

Complaining frequently to gp about tingling in head and unbearable irritation to

side of neck head and shoulder on any intake of alcohol even minute amounts,

diagnossis: alcohol intolerance, stopped drinking alcohol, symptoms persisted

getting worse spreading to chest and down arm legs give way when I laugh ha!,

had heart palputations, irregular breathing and sudden weakness since mid

twenties, neck grinding like crunching grissle when turning. gp diagnosis wear

and tear old age (35) dissbelieved symptoms I think, got worse symptoms nearly

every day sent to see gastro for ultra scan (nothing) symptoms unbearable sent

to see neurologist feet on desk rocking back and forth said to wife attention

seeking, diagnosis no neuro probs attention seeking, insisted on seeing ear nose

throat specialist because of facial thing, he said not his field see a neuro, I

said I have, he said see another, I did rec MRI had scan 6 weeks later Sept 96

told had high level tumour in the middle of spinal cord crushing nerves C1-C3

pronosis terminal innoperable uncurable, neurosurgeon said best he could do was

possibly cut window in spine and trim off tumour as it grew out 1 in 3 chance of

death for biopsy alone, advice go home see how long I could live, devastated. It

was like one of my bad dreams but no wake up. Asked for second opinion told not

worth it. Asked for help via net, went to Germany told operable highly

dangerous, told via net Proff Boumphrey (ret) cleveland Ohio, operable go

to queens square london. Many phone calls later had op to remove 1 in 10 chance

of death by surgery (better than certain death) and more pleasant. Surgery by

incision to side of neck instead of midline, this cutting neck muscles and some

nerves, woke in severe pain intensive care 5 days, told I had 2 days to live

without surgery, walking in two weeks with help spacticity left side numb left

side, tranferred to st barts for radiotherapy clean up grade 2 tumour.

Contracted MRSA 3 months in hospital improving constantly for 5 months then

stinging in neck and slow deteriation, neuro said nothing wrong, heard of good

doc in HK went dianosis adhesion of spinal cord and leaking menningese causing

pockets of fluid in neck (symptoms also indicate damage above forman magnum

indicating radio therapy damage but nothing showing) operation needed to repair,

London refused, went to The Radcliffe Oxford, stabalized for 4 months then

repair failed and slow deteriation increased pain, fatigue, loosing use of left

arm leg constant headaches, bad memory, hurt all over shoulders hips head neck

side butt dizziness a lot of time numbness tingling left side, loss of

hearing(high pitch only) ie birds tweeting, watch alarm etc no strenght left

side numb feet and hand body temperature control a bit out. Was told probrably

had two mini strokes had two bad dreams since a bit more severe wife had trouble

waking me although I could still hear, feel very ill sometimes lots of pain

nausia, fatigue and go grey in complection and breathing goes funny, Another

neuro in London said most common cause of death with high level damage

forgetting to breath when asleep hence bad dreams last senses to go hearing, but

besides that all Ok lol

Changed gps who promised to help all he could but hasn`t done much had a few MRI

over past 4 years (different neuro`s see different things) gp now thinks I`m a

pretender I don`t know why, thinks i am ok so they are stopping my dissability

allowance, he has never even examined me! spent all our savings staying alive

hostpitals, MRI`s, hotels etc. Never mind better poor and alive than rich and

dead. Motto never give up: don`t trust one specialiast if your not happy look

elsewhere: Worrying makes you worse not better, although I`m glad I was worried

about dying, you can`t take your money with you(theres no pockets in shrouds

sorry it`s a long story but I`ve ommited 90%.

Just what I need now another doc who doesnt believe me, been on pain and muscle

relaxant meds for 6 years. Have bad months and some OK days But coping OK so

far. It`s taken me two hours to write this one handed lucky it`s the short

version. pete

C F <emeraldeyz68@...> wrote:

Sorry you're in so much pain! And sorry just telling my personal experience with

the EMG. It's hard to say what tests when I don't recall what your symptoms are

(have you posted before? If so my apologies, bad memory). EMG would not show if

your disc is ruptured, buldging, etc, you'd need an MRI to show that. Sorry I

really don't know what else to add not knowing where your pain is or what you've

already had done. I do wish you luck and hope all works out tho!!

Connie

EMG

> Hi connie & courtney thanks for your encouragement re-emg really

> looking forward to it now, NOT! are there any other test that don`t

> involve pain? Need to prove my condition is real, my gp thinks I

> exagerate my symptoms and has told dissablity I am basically normal

> cut benifits from high level to non, I don`t believe it after all

> the shit I`ve been through.

>

>

>

>

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  • 2 weeks later...
Guest guest

Hi Connie/joe,

Saw my neurosurgeon last friday, asked if any test would explain pain and

tiredness and losing use of left side but he said no asked about EMG but he said

due to cut nerves in previous surgery and crushed nerves due to tumor not much

use, at least I don`t need to see who`s right about wether it hurts or not. He

said it`s time for a MRI of brain and Xrays of neck in flexion. Waiting for

appointment. Also said it was ridiculous having my dissability allowance

stopped, been rejected twice now have to appeal.

best wishes pete (uk)

C F <emeraldeyz68@...> wrote:

Sorry you're in so much pain! And sorry just telling my personal experience with

the EMG. It's hard to say what tests when I don't recall what your symptoms are

(have you posted before? If so my apologies, bad memory). EMG would not show if

your disc is ruptured, buldging, etc, you'd need an MRI to show that. Sorry I

really don't know what else to add not knowing where your pain is or what you've

already had done. I do wish you luck and hope all works out tho!!

Connie

EMG

> Hi connie & courtney thanks for your encouragement re-emg really

> looking forward to it now, NOT! are there any other test that don`t

> involve pain? Need to prove my condition is real, my gp thinks I

> exagerate my symptoms and has told dissablity I am basically normal

> cut benifits from high level to non, I don`t believe it after all

> the shit I`ve been through.

>

>

>

>

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  • 7 months later...

In a message dated 2/5/2004 2:14:47 PM Central Standard Time,

sweetdreamsk9@... writes:

> Her question made me think...is she asking that because she found

> something...or asking because she hasn't?

> Follow-up with my doc is on the 12th...then I will learn the results.

>

> Viv in GA

>

I'm grateful for the neuro's in Texas that I have been to --- different ones

for both upper and lower and both gave results after test ..... the upper,

done today he gave rsults after each zap...

Dee in TX

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  • 1 year later...

was this the test the nutty doctor had me do where they stuck needles in my legs to see if I had nerve damage? It really wasn't as painful as it sounds (and I am a big chicken when it comes to needles). My test was normal. the next step was supposed to be one where they inject dye into the spine and do something, but the doc was concerned that since most of my spine is fused, they would have to do it at the base of my neck. I had absolutely no confidence in him, so I never bothered to call back and schedule the appointment

Music Unlimited - Access over 1 million songs. Try it free.

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Ha. Yep, that's the nutty test I was referring to. Thank you for the

reassurance. I appreciate it. I'll hopefully be able to avoid any dye-

in-the-spine nonsense. Did you find a doc you trusted more? It's funny

but when I finally found a place that really " got it " - Spine Austin -

The doctors there were a bit taken a back (no pun intended :) that I

hadn't done more with other doctors. They didn't get that for more

than 15 years all I got was reassurance that the hardware was intact

(duh) and a prescription for ibuprofen. Oh, and they also liked to

throw in back injury exercise pamphlets for people with WAY more

mobility than we have!!

The unfortunate reality is that for surgeons, none of this

became " sexy " until the flatback/revisision became a real issue for us

Harrington folks. Now they're interested...funny...

>

>

> was this the test the nutty doctor had me do where they stuck

needles in my legs to see if I had nerve damage? It really wasn't as

painful as it sounds (and I am a big chicken when it comes to

needles). My test was normal.

>

> the next step was supposed to be one where they inject dye into

the spine and do something, but the doc was concerned that since most

of my spine is fused, they would have to do it at the base of my

neck. I had absolutely no confidence in him, so I never bothered to

call back and schedule the appointment

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs. Try it free.

>

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when I had seen this particular doctor, I had HMO insurance and he was

the only orthopedic doctor the clinic/insurance company contracted

with. There was a sports medicine guy in the clinic, and he wasn't

sure if I could have an MRI with all that hardware, so he referred me

to the orthopedic doctor who suggested taking the rods out, do an MRI,

then put the rods back in!! See why I called him nutty?? Other

doctors have told me that one of the rods is probably causing some of

my pain, but they all agree that it is much too risky to try to remove

them.

I had seen the crazy dude about 8 - 10 years ago when I first started

having pain that I couldn't tolerate. That was also about the time

that I started teaching and quickly found out that I couldn't stand at

a chalkboard. Now I have a stool and an overhead projector, so I can

function.

It seemed like every doctor who saw my x-rays would just shake their

heads and say, " no wonder you are in pain. " The ones that made me the

angriest were the ones who would say, " well, you are getting older,

you know "

After my husband got a job with good insurance, I switched and saw a

local scoliosis specialist who told me pretty much the same thing.

Other doctors have told me that he has a reputation for being quick to

do surgery, so I must be inoperable.

After finding out about flatback (and the previous incarnation of this

group), one of the members told me about Dr Barton Sachs at the Texas

Back Institute in Plano. I was very impressed with him. He was able

to look at my xrays and know what he was looking at, and he explained

eveverything very well. He wanted me to have a lot of tests done

before coming back -- an MRI, a bone scan, bone density test, and SI

joint injections. It took me awhile to find a local person to do the

SI joint injections (the guy my PCP sent me to was another nutcase),

and by then, my husband had changed jobs and I had to go back to the

insurance offered at my job. It doesn't cover anything out of state.

Plus, I hadn't realized I also needed the bone scan. So, I haven't

called back for another appointment. Plus, the injections have been

working fairly well.

I have been reluctant to see another expert, because I am not ready

for revision surgery. My pain management guy thinks I might be able

to get by with having the " holes the nerves pass through " enlarged.

He says they are awfully small for the big nerve bundles.

I have a third rod across my pelvis, and that is the one that has

caused most doctors to scratch their heads and wonder why and how it

is attached. Dr Sachs said that it actually goes through the bone and

squeezes the SI joints together. My pain management doctor says that

part of my pain is at the end of that rod. He jiggles the nerves

around and causes pain to find the right place to inject the

combination of steroids, anesthetic, and vitamins in my SI joints,

facets, and various other spots in my lumbar spine. I am sure glad he

gives me some drugs before he does all that!

The scoliosis guy also wanted me to see a rheumatologist, but the pain

guy thought it was unnecessary.

>

> Ha. Yep, that's the nutty test I was referring to. Thank you for the

> reassurance. I appreciate it. I'll hopefully be able to avoid any

dye-

> in-the-spine nonsense. Did you find a doc you trusted more? It's

funny

> but when I finally found a place that really " got it " - Spine

Austin -

>

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I hear you loud and clear! The only GOOD thing is they haven't tried

to actually do surgery and fix something when they have no idea what

is wrong! Eventually I might try that doctor at the Texas Back

Clinic; it is near where my son lives. I have seen several x-rays of

people with the third rod and even knew of a girl in Tulsa who had

one. Sad to say she came right out of her surgery leaning forward

quite a bit!

My husband is back working again and I have insurance but it will NOT

cover pre-existing conditions until April. So I have plenty of time

to hear my PPO doc tell me I only need a very small dose of Celebrex

and no more than 3 Tylenol a day to stop the pain! LOL

Kathy

> >

> > Ha. Yep, that's the nutty test I was referring to. Thank you for

the

> > reassurance. I appreciate it. I'll hopefully be able to avoid any

> dye-

> > in-the-spine nonsense. Did you find a doc you trusted more? It's

> funny

> > but when I finally found a place that really " got it " - Spine

> Austin -

> >

>

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  • 10 months later...

DID ANYONE HAVE TO HAVE THIS DONE.. I AM HAVING THIS DONE ON THE 19TH

TO CHECK THE FUNCTIONING OF MY LEGS CAUSE THEY ARE ALWAYS HURTING VERY

BAD ..ALSO THE LEFT SIDE AND SOMETIMES THE RIGHT SIDES OF MY FEET UP

TO MY ANKLES GO MUMB.. IM NOW DEVELOPING RASHES WELL I WAS JUST

CURIOUS.. I HOPE THAT THIS LETTER FIND EVERYONE DOING WELL.. IM ALSO

GOING TO BE STARTED ON NEW MEDS SOON.. I HOPE IT GOES WELL ALTHOUGH I

DO NOT KNOW THE EXACT ONES JUST YET... I HAD AN ECD DONE ON MONDAY ..

BUT THEY FOUND NOTHING.. BUT IT IS STILL BURNING OH WELL TT Y GUYS

LATER .... KIWI

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  • 1 year later...
Guest guest

Oh boy, I was never offered one and asked for one so just maybe

someone could diagnose me--but now, I'm not sure if I need this or

want this. I do want to be diagnosed. Why is it that so many doctors

can't even do that anymore?? I am the one that tells them what I

think is wrong and they seem darn clueless!

> >

> > From: Terry <tjking71730>

> > Subject: EMGs?

> > spinedisorderssuppo rtgroup@gro ups.com

> > Date: Friday, June 27, 2008, 9:43 AM

> >

> > Barbra mentioed EMGs. What are those please?

> > Terry

> >

> >

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Guest guest

There are better ways of diagnosing. Now, If I can ask...what kind of doctor are

you seeing?

Ortho, Neuro, Primary care...? It makes a difference, then I can hopefully point

you in the right direction.

 

Shayna

 It is better to be hated for who you are than liked for who you aren't.

From: barbarac102 <barbarac102@...>

Subject: Re: EMG

spinal problems

Date: Friday, June 27, 2008, 5:51 PM

Oh boy, I was never offered one and asked for one so just maybe

someone could diagnose me--but now, I'm not sure if I need this or

want this. I do want to be diagnosed. Why is it that so many doctors

can't even do that anymore?? I am the one that tells them what I

think is wrong and they seem darn clueless!

> >

> > From: Terry <tjking71730>

> > Subject: EMGs?

> > spinedisorderssuppo rtgroup@gro ups.com

> > Date: Friday, June 27, 2008, 9:43 AM

> >

> > Barbra mentioed EMGs. What are those please?

> > Terry

> >

> >

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Guest guest

Hi Shayna, Thank's for offering any type of help. I have not been

told much period. As my initial post stated. I pulled my back and

immediately had the pain transfer to both legs afterwards, but was

also doing other leg exercises at the time. The pain affects the

muscles, as they feel sore to the touch when really hurting and I

feel pain in my lower back, knees, left hip and groin and ankles. At

first the pain included tingling--which sounded like a nerve problem.

That has stopped. But after 3 years, I still have pain. My last

lumbar mri was in 12/06 and that showed all levels of bulging disks,

moderate bi-formal(sp) stenosis, ddd, oseto--bottom line, I've seen

neuros and osteos and they say they don't see anything outstanding.

The only person to have said they understood the pain was a chiro,

due to multi level bulging disks. I can't afford him anymore and he

helped somewhat temporarily. My pcp just shrugs his shoulders. I

seriously do not know what to do. I have a hard time accepting being

told that there is no explanation for leg pain that never goes away

but varies in degrees of pain. I've had terrible experiences with

doctors in that no one had an answer. Thanks for any advise.

> > >

> > > From: Terry <tjking71730>

> > > Subject: EMGs?

> > > spinedisorderssuppo rtgroup@gro ups.com

> > > Date: Friday, June 27, 2008, 9:43 AM

> > >

> > > Barbra mentioed EMGs. What are those please?

> > > Terry

> > >

> > >

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