Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Les, I don't remember anyone else mentioning this device. Maybe you could call your rheumatologist and tell him about the difficulties you're having? I would also bring it in to show him the problems with it. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] bionicare > Hi everyone, > > I haven't been home for over 2 weeks so I'm way way behind on what's > happening with the group. I don't post all that often either, so i'm > not very well known. > > As a refresher, I'm a new RA patient, just been on MTX for 8 weeks now > and my doctor wants to put me on a treatment plan for my hands and > wrists that's called BioniCare. Has anyone in the group been treated > with this device? It's a complicated electronic device where you wear > 3 different gloves on your hands, an electric device that wraps around > each upper arm just under the arm pit, and then attaches to electronic > wires that are attached to a shirt that you wear preferably 10 hours a > day. Recommending wear at night. I have small hands, wrists and they > don't fit right, i have had the device for 2 weeks but have only worn > it once. It turned my fingers black and stained my cuticles, so i > called the representative and they are looking into the problem and > told me not to wear it until they contact me again. It's a difficult > item to put on without help, which is my situation most of the time. > It also is uncomfortable to sleep with because the electronic square > box that turns the unit on also fits into a pocket of the shirt that > is worn and it makes for a very uncomfortable sleep. > > I was just wondering if anyone in the group has tried this and if so, > whether they felt positively abouts their results. I'm told that it > could take several months before noticable relief is achieved. I just > wonder if it's worth the trouble. Once I have one hand fully gloved, > it's nearly impossible to function well enough to get the other hand > in the gloves. Then, assuming that you can get both hands into the > gloves, it's like wearing mittens to put on and fasten the velcro on > the shirt, and attaching the wires too. I'm ready to quit before I've > even begun. > > Looking forward to responses from the group. I hope you all have a > pleasant pain free night. > > Take care, > Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Thanks , ---I go to the doctor's office Thursday for my weekly injection of MTX, so I'll attempt to talk to her then. That's good advice. The rep is often in the office too, and we have been playing phone tag, so if she is in on THursday, I'll try to talk to her as well as the doctor. Take care, Les > > Les, > > I don't remember anyone else mentioning this device. > > Maybe you could call your rheumatologist and tell him about the difficulties > you're having? I would also bring it in to show him the problems with it. > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] bionicare > > > > Hi everyone, > > > > I haven't been home for over 2 weeks so I'm way way behind on what's > > happening with the group. I don't post all that often either, so i'm > > not very well known. > > > > As a refresher, I'm a new RA patient, just been on MTX for 8 weeks now > > and my doctor wants to put me on a treatment plan for my hands and > > wrists that's called BioniCare. Has anyone in the group been treated > > with this device? It's a complicated electronic device where you wear > > 3 different gloves on your hands, an electric device that wraps around > > each upper arm just under the arm pit, and then attaches to electronic > > wires that are attached to a shirt that you wear preferably 10 hours a > > day. Recommending wear at night. I have small hands, wrists and they > > don't fit right, i have had the device for 2 weeks but have only worn > > it once. It turned my fingers black and stained my cuticles, so i > > called the representative and they are looking into the problem and > > told me not to wear it until they contact me again. It's a difficult > > item to put on without help, which is my situation most of the time. > > It also is uncomfortable to sleep with because the electronic square > > box that turns the unit on also fits into a pocket of the shirt that > > is worn and it makes for a very uncomfortable sleep. > > > > I was just wondering if anyone in the group has tried this and if so, > > whether they felt positively abouts their results. I'm told that it > > could take several months before noticable relief is achieved. I just > > wonder if it's worth the trouble. Once I have one hand fully gloved, > > it's nearly impossible to function well enough to get the other hand > > in the gloves. Then, assuming that you can get both hands into the > > gloves, it's like wearing mittens to put on and fasten the velcro on > > the shirt, and attaching the wires too. I'm ready to quit before I've > > even begun. > > > > Looking forward to responses from the group. I hope you all have a > > pleasant pain free night. > > > > Take care, > > Les > Quote Link to comment Share on other sites More sharing options...
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