Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Hi : Sorry that your rheumy was not more helpful to you. Yes, there are other things you can take besides Celebrex, as I said before, there are other NSAIDs and he should have offered you one of those, IMO. To tell you that Celebrex is not good for you, and then telling you at another point to go back on it, is really weird to me. At the least, he should have offered Prednisone - I know it's not a drug we all love, but it sure helps with pain and inflammation - until your appointment. It's good that he did take the x-rays, as that is one way to come to a dx, but my x-rays have not shown any RA-type erosions, so my dx cannot be made by that only. Aggressive treatment of RA is the only way to go, and I am sorry your rheumy is not more responsive to you. Is there another rheumy for a second opinion? I just don't understand how he can leave you in so much pain without trying something to help you. I also truly understand and sympathize with your feeling there is no way to tell where the RA and Fibro end or begin - somedays my body and joints are all involved and it's the pits. Hang in there - Kathe in CA --- oneoften71 <oneoften71@...> wrote: > Hi , > Phoned my Rheumy this morning and couldn't get past > the secretary she said she would pass the message on > (that pain was unberable since lowering Celebrex) > and he would ring inbetween patients. Late this > afternoon she rain back and said that he said had I > tried Panadine (paracetamol and codine over the > counter stuff), and that if that was not enough, to > return to the original dose of Celebrex!!!! > I asked if there was something that could be used > instead of the Celebrex and she said no. > I am now at my wits end and really upset one minute > he lectures me to the side effects of the dosage of > Celebrex and that it needs to be lowered hopefully > stopped and the next he says return to the dose.. > The worst of it for me is I can't tell where the > Fibro starts and the RA ends or visvera. > I hate my life!!!! > Thanks for listening > in oz > Re: [ ] Thankyou for your > intro's--long > > > : > > As long as your doctor is telling you that there > is > nothing to replace the Celebrex and there is > nothing > that he can give for pain, he won't do you any > good. > You need a new doctor, who will get you the proper > treatments. Actually, your rheumy should be the > one > prescribing you NSAIDs and pain medication, as > well as > a DMARD (disease modifying drug). There are meds > to > replace Celebrex - I replaced it with Mobic which > is > also a NSAID. It does not work as well as > Celebrex, > but I feel it is safer for me. There is no reason > that you should continue to suffer in pain for the > next three months when you see your rheumy again. > Call his office, bug his office, whatever it > takes, > get in sooner, or have him prescribe you some meds > to > help you in the meantime. > > Best of luck - Kathe in CA > > --- oneoften71 <oneoften71@...> wrote: > > > Hi everyone, > > Firstly Thankyou so much for those of you who > gave > > me an intro, we all have so much in common and > yet > > each of us have our only daily struggles that > are > > only our own. > > > > Now if I may can I ask some advice?? Two weeks > ago I > > saw my new Rheumy for the first time and after > one > > visit.... all I can say is he seems ok. But I > have > > one big problem, I was taking celebrex 200mg > three > > times a day and have been for the past three > years. > > He does not want me to continue on this and > asked > > that I drop it back to one a day in the morning, > > which I have done. He also requested xrays of my > > hands and feet and will see me again in three > > months. > > Well I went in to see my new GP today as the > effects > > of dropping the celebrex has been huge, I am > aching > > all over, with extreme pain in my hands (left > one > > has now swollen) feet, neck and across my > shoulders. > > GP says there is nothing he can do about > increased > > pain other than to continue taking paracetamol ( > > which isn't touching it) . I asked about > anything to > > replace celebrex...answer there is nothing!! > Asked > > about a stronger pain med again....there's > nothing > > he can give. > > I am I feel quiet a strong person, but this > level of > > pain is really getting to me and I am so angry, > > upset that there is nothing further to offer. > When > > we moved here six weeks ago I had a hard time > just > > getting a GP to take us as a family on so I > don't > > like my chances of finding another GP. > > I also am really worried as my disabilty pension > is > > up for review in May and I don't think this GP > is > > going to help me one little bit with that also, > he > > hasn't said that I just get the feeling...... > > My big question is is there really nothing he > can > > do???? > > scared, angry and in pain > > in Oz > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > Kathe > > " To ride a horse is to borrow freedom. " > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Thanks Tess, Today is another day and I feel much better knowing I am not alone....I'm just so frustrated. Take care MIchelle in oz [ ] in OZ Hi ...that is an issue for many of us...trying to discern where one illness starts and the other leaves off, such as RA and Fibromyalgia. Some things remain the same...rest as much as possible, take good care of yourself nutritionally and with whatever vitamins/minerals you need, plenty of water, gentle movements, and rest, rest, rest. Please know there is understanding here. Not fun, not all all, kiddo. Be sweet to you. Gentle hugs & understanding... Tess Quote Link to comment Share on other sites More sharing options...
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