Re: Fwd: [DSALF] Child with Intellectual Disabilities Denied Lifesaving Transplant

[Guest guest]

Don't know how I missed this, Kathy. I posted it last night. It's such a sickening and unbelievable situation.Shari

 

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Date: Fri, Jan 13, 2012 at 7:46 PMSubject: [DSALF] Child with Intellectual Disabilities Denied Lifesaving TransplantTo: DSALF

 

Several DS groups posted this heartbreaking blog post  today on their facebook walls. A young girl is being denied a kidney transplant at CHOP by a doctor who says her quality of life is " too poor due to her diagnosis of Mental Retardation. "  Amelia's parents are rightfully outraged and need support to address this injustice.

While this is NOT a child with Down syndrome, the situation could affect any of our members at any time and we would seek help to bring attention to the situation. This is a global disability discrimination issue so our voices are important. If you read the post and are concerned by it, consider the following actions:

Sign the Change.org petition here .Visit the CHOP facebook page  and post comments.

Please share the blog post and links on your social media sites to garner more interest, awareness and support.Amy Executive DirectorDown Syndrome Guild of Greater Kansas City