Re: fatigue Kathe

[Guest guest]

Hi Kathe,

When I read your post, I totally related to what you said. I almost felt

that you described my fatigue word for word! Yes, there are sometimes where

my body just says " time to sleep now " and I have to go collapse. But naps

or sleeping longer doesn't seem to help me. Sometimes changing the routine

or being with friends helps. Ice cream does help for a while!!

I plan on asking the doc about Provigil and see if I can try it and I'll let

you all know the outcome.

Take care,

Joanne, IL

Re: [ ] fatigue colleen

>

> Hi Colleen:

>

> Wow, can I relate to this. I am totally fatigued, I

> mean beyond tired, like all of my energy has been

> zapped out of my body and I can barely move, almost

> every day. When I do get a good day and I have

> energy, then I usually overdo, and end up back in bed

> the next day. That is what happened yesterday. I had

> done so much with the animals, feeding and filling

> waters, walking up and down 2 acres to do it, and then

> did two loads of laundry, watered my husband's trees

> (his hobby and joy), and then came in and cooked

> dinner. Yesterday I could barely move and slept until

> 1 p.m. My kids came in twice to see if I was still

> breathing lol!

>

> Nobody understands this type of fatigue but those of

> us who have it. After I got up yesterday, I was still

> so tired, and bumping into walls, took 8 tries to dial

> a phone number, forgot things, I mean complete fibro

> fog, along with shakiness in my hands and leg pain. I

> kind of stumbled through the day, taking care of as

> much as I could, and was just wiped out by 9, and back

> to bed.

> Today is a bit better, but still the fatigue is there,

> lurking in the background, ready to pounce at any

> time.

>

> I think the fatigue is just simply a part of the RA

> disease process, and the fibro I have too, and is

> always going to be there, meds or not. The meds we

> take, however, like Mtx and Enbrel (I take those) also

> cause more fatigue for me the day after my doseage.

> Humidity and cold causes more pain and thus more

> fatigue.

>

> I have heard that some people take Provigil with some

> success in fatigue relief, you might ask you doc about

> that. But the only thing that seems to help me, is to

> take a nap, and there are days when my body simply

> walks me into my bedroom and forces me to lay down and

> sleep - it's almost like I am on auto-pilot. I just

> get up and go to bed! Even then, sleep does not

> really touch the fatigue, just gives me a few more

> hours of being able to do what I need to for my home

> and family.

>

> So, that's my fatigue story and I am sure you will be

> hearing others! It's part of the dang disease, part

> of what is going on internally in our bodies because

> we have RA. I have no idea how to fight it. Maybe a

> nice bowl of ice cream lol?

>

> Take care -

>

> Kathe in CA