First World Down Syndrome Day at UN - Program

[Guest guest]

http://www.inclusive.org.br/?p=21921

The first official World Down Syndrome Day (WDSD) will be celebrated at the UN

Headquarters in NY, on March 21 2012 (3/21), with the

Conference “Building Our Futureâ€.

Inclusive education, human rights and political participation,

independent living, how to work with the media and research are some of the

topics that will be discussed.

Check the Program:

World Down Syndrome Day (WDSD) – “Building Our Futureâ€

3/21 – Conference Room 2 – UN – NY– 10 to 2:30

Program

10h to 10:30h – Opening

Welcome and Introductions Penny on OAM, Chair of Board, Down Syndrome

International (DSi)

UN Secretary General Ban-Ki Moon – Message on WDSD (to be confirmed)

Head of Brazilian and Polish Missions

Co-sponsor Organizations

1) 10:30h to 11h – UN Convention on the Rights of Persons

with Disabilities (CRPD) and Inclusion – The Importance of Global

Coordination Effort to Socialize the Convention

ngela Berman-Bieler – Senior Adviser on Children with Disabilities, UNICEF

Penny on – Promoting inclusion in schools in Indonesia

Shona on – Australia – Self-advocate – Australia on her education

experience

Beatriz Paiva – Brazil – Self-advocate – Carpe Diem Association –

Co-author of book on communication accessibility

2) 11h to 11:30h – Human Rights and Political Participation of Self-Advocates

a Bas – Director of Division for Social Policy and Development (DESA),

UN

Alejandra Villanueva Contreras– Peru – Self-advocate– Fighting for

her right to vote

Egan – US – Self-advocate – Lobbying for his rights at the US

Congress

Ester Nadal Tarrago – Spain – Self-advocate who participated on book on the

Convention

3) 11:30h to 12:30h – Changing Society Attitudes – From

Neglect and Institutionalization to Protagonist and Living in the

Community

Rose Mordi – Nigeria – President of Down Syndrome Association Nigeria

K.S. Sripathi – India – State Chief Information Commissioner, Tamil Nadu

Government, Down Syndrome Association of Tamil Nadu

Kingsley – USA – Self-advocate, co-author of book “Count Us In:

Growing Up With Down Syndromeâ€

Perl Kingsley – USA – Mother, writer activist, author of “Welcome to

Holland†– NY

Tom Forester – USA – Director of Residential Services – Association for

Children with Down Syndrome/ACDS, Long Island, NY

Brennan – USA – ACDS Group Home Resident

4) 12:30h to 1:00h – The Power of Media – A Guide to Work with the Media to

Promote Inclusion

Whitten – USA – Global Down Syndrome Foundation – How to get

media’s attention In a positive, constructive way

Almeida – Brazil – MetaSocial Institute– Brazil’s experience

with WDSD and inclusive actions in collaboration with the Media

Tatiana Heiderich – Brazil/Holland – Self-advocate on her experience as a TV

reporter

5) 1:00h to 2:00h – Care, Treatment and Research – What’s new on the DS

front

Dr. Florez –Director, Mass General Hospital Down Syndrome Clinic;

Director, NDSC; Clinical Advisory Board, NDSS

Dr. Chicoine – Medical Director, Adult Down Syndrome Center,

Lutheran General Hospital; Scientific Advisory Research Group, DSi

Dr. Dennis McGuire – Director of Psychosocial Services, Adult Down

Syndrome Center, Lutheran General Hospital; Scientific Advisory Research

Group, DSi

Dr. McCabe – Executive Director, Crnic Institute for Down

Syndrome

Margie Doyle – Down Syndrome Research and Treatment Foundation (DSRTF) –

Latest on research and how to help studies move faster

2:00h to 2:30h – Launch:

1) DSi 2012 WDSD Global Video Event

2) New WDSD Website

3) DSi UN Convention Global Outreach Programme

4) Book “Change the way you speak and I will change my way of

understandingâ€- By Carolina Yuki Fijihira, Ana Beatriz Pierre Paiva,

Beatriz Ananias Giordano, Carolina de Vecchio Maia, Carolina Reis Costa

Golebski, Claudio Aleoni Arruda, Thiago Rodrigues, from Carpe Diem

Association, Brazil

5) Book “The United Nations International Convention on the Rights of

Persons with Disabilities commented by its Protagonists†– By Down

España

http://www.inclusion-international.org/wp-content/uploads/Guia-Convencin-ing.pdf

2:30 – Closing

The event is sponsored by the Missions of Brazil and Poland to the UN and

organized by Down Syndrome International with the collaboration of the Brazilian

Federation of Associations of Down Syndrome (FBASD), Down España, Down Syndrome

Research and Treatment Foundation (DSRTF), National Down Syndrome Center

(NDSC),  National Down Syndrome Society (NDSS), Special Olympics and the UN

Secretariat for the Convention on the Rights of Persons with Disabilities.

Registration

Participants from all around the world are welcome, especially those with Down

syndrome.

There is no cost for registration. Confirmation to attend the event can be made

by the email undsconference@....

Please inform name, email, age, nationality, relation to Down

syndrome (self, parent, relative, professional, teacher, student, friend or

other-specify), document number (passport, driver’s license,

student´s ID), whether you have a disability and what kind and if you

need a disability-related accommodation or service.

Only participants with their names on the list and an ID will be allowed in the

building. Space is limited.

About Down syndrome

Down syndrome is a naturally occurring chromosomal arrangement that

has always been a part of the human condition, being universally present across

racial, gender or socio-economic lines, and affecting

approximately 1 in 800 live births, although there is considerable

variation worldwide. Down syndrome usually causes varying degrees of

intellectual and physical disability and associated medical issues.

About World Down Syndrome Day

World Down Syndrome Day (WDSD) has been established by Down Syndrome

International and celebrated since 2006 and observer in over 60

countries in the world. It is held on March 21st (21/3) to signify the

uniqueness of the triplication (trisomy) of chromosome 21 which causes

this genetic ocurrence.

The aim of the day is to raise awareness and understanding about Down syndrome,

and to promote the inherent rights of persons with Down

syndrome to enjoy full and dignified lives and be active and valuable

participants in their communities and society.

A resolution to designate 21/3 as “World Down Syndrome Dayâ€, to be

observed every year beginning in 2012, was adopted by consensus by the

United Nations General Assembly in December 2011. The resolution was

proposed and promoted by Brazil, and co-sponsored by 78 UN Member

States. From 2012 onwards, the date will be celebrated by all 192 UN

countries.

For information on Down Syndrome:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001992/

For more information on WDSD, visit DSi website.

To know about the resolution process at the UN, visit:

http://www.inclusive.org.br/?p=21550

3/21 – 10h – “Building our Future†– UN Headquarters in NY –

Conference Room 2

Confirmations: undsconference@...