Fwd: [DSALF] Critical Shortage of Lifesaving Medications for Patients With Leukemia

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---------- Forwarded message ----------From: dsgofkcDate: Tuesday, February 14, 2012Subject: [DSALF] Critical Shortage of Lifesaving Medications for Patients With LeukemiaTo: DSALF

 Several DSG members whose children are diagnosed with Leukemia brought the following story to our attention.http://abcnews.go.com/Health/CancerPreventionAndTreatment/critical-shortage-childrens-leukemia-drug/story?id=15557922

Children's Mercy Hospital is now rationing these medications,  telling families they will run out likely within a week and children will have to stop their treatment protocol midstream. This is very disheartening as you can imagine and it's likely your members will face similar circumstances.

DSG just signed off on a letter to our legislators asking them to co-sponsor the Preserving Access to Life-Saving Medications Act (S. 296 / H.R. 2245) If you are concerned by this situation, your organization can send a letter (Thanks to Leukemia and Lymphoma Society!) to your legislators by clicking the link:

http://www.capitolconnect.com/lls-widget/actionalerts.aspxThanks in advance for helping make some noise on this issue!Amy

Executive DirectorDown Syndrome Guild of Greater Kansas Citywww.kcdsg.orgamy@...