Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 FRIDAY, APRIL 20, 2012 Thinking Out Loud! My posts have been less frequent not because I lack things to post about but instead because I have ramped up Sam's home program and we have all been a little sick lately. Sam picked up a respiratory infection during his visit to Pulmonary at Children's Hospital and decided to share it with most of the family. I am trying to get in to see all of Sam's doctors before we leave for our trip to California in June. His pulmonary appointment went fine. Sam's lungs are great when he is healthy but they take a really bad turn when he becomes ill. As his doctor listened to him breath she said it is amazing how good he sounds when he's healthy but it is equally amazing how quickly his lungs can take a dive when he gets sick. We discussed how Sam did with his last hospitalization for double pneumonia. I explained how we once again saw Sam do really well with the respiratory treatments up until the point that he turns a corner and then the treatment begins to irritate his condition more than it helps. Whenever Sam has been hospitalized we have found that a slow steady course of treatment is our best approach because if the treatment gets too aggressive or goes on for too long he begins to turn a very scary corner where his heart rate increases and his respiratory decreases almost as if his body is saying " Stop, I can't handle anymore. " His doctor again acknowledged that our best line of defense with Sam is to limit his exposure and try to keep him healthy.…. To read the rest of this post go to www.suemayer-specialneedsmom.blogspot.com Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Sam”www.suemayer-specialneedsmom.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 You are an awesome mommy and you have faith and that just flat out inspires me. Thanks!!LynneLeo's mom (5 years) FRIDAY, JUNE 8, 2012 Prayers Are Being AnsweredI wish I could tell you that I am as strong as I sometimes appear in my posts. Last night as Sam and I prayed on our knees pleading for healing of Sam's hip I felt my weakest and most vulnerable but I had only to look at the amazing little boy kneeling next to me to regain my strength and refocus my attitude. As I helped Sam up off his knees and tucked him into bed he turned to me and said "Mom, I be okay. I love you." I kissed him before he could see the tears gathering in my eyes and I told him "Sweet dreams little man, I love you too!"….. To read the rest of this post, please go to: www.suemayer-specialneedsmom.blogspot.com Sue MayerMom to Sam (11) who is genuine, unique and perfectly “Sam”www.suemayer-specialneedsmom.blogspot.com Quote Link to comment Share on other sites More sharing options...
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