Re: Re: Fw: (((to Missy)))

[Guest guest]

What a hardship for a mom and such little girl. My heart goes out to you.

I am big on avoiding foods I am sensitive to, because I've noticed that after

eating certain foods, the flare-ups are unbearable. I stay away from all dairy

products, and I am so much better off.

Make a notes of what eats [anything] and if any flare-up ensues soon

after. Removing these foods will help reduce painful flare-ups. Well, it's worth

to try.

MELISSA CRIGLER <nmsanders@...> wrote:

Hi my name is Missy, and I'm 33. My daughter, is six and has systemic

JRA. She's had it since she was 2. I'm married to Neal and have another eight

year old daughter named . is having another flare right now and is

back on Prednisone. She's been on Remicade and MTX inj. for four years --and on

Prednisone off and on. She was on it for a year and a half in the beginning. She

nearly doubled her weight from 29 to 52 lbs. This time so far she's gained about

six pounds. But, now that she's six she can feel the people stare and knows that

her favorite pants won't button. I think it depresses her. She's so hungry but

doesn't want to eat too much for fear of the weight gain. I try to give her only

healthy snacks, but she's a kid and it's hard. She's again got that little

white " fur " on her face from the steroids. Thank God she's very blonde. I wish

it was me and not her. I hear all of the nice people here and how it's such a

life long battle and it scares the hell out of me

for what her future holds. She's very sweet and takes everything in stride

because she can't remember ever not having it. (cause she was 2 when dx). The

docs said she'll have this all her life since she's been flaring basically for

four straight years with a little break in between. She's sick all the time

because of being immune suppressed. But, even though it's a hard situation I

know that all we can do is our best to help each other out. I hope you " ALL "

feel better soon. This group is so nice- and I've never seen a group of

strangers being so nice and supportive to one another. I laugh when I see Stills

Support in my e-mail and notice all the RE: complaining, RE: sick and tired, RE:

hate these docs. I think it's cool people feel free to complain in this group

and know that noone judges them. Keep your heads up and know that I am always

thinking of all of you.

Hugs,

Missy

's Mom

<sburgher@...> wrote:

Hi Noreen,Its true we do care for eachother,its a kind of elite club!

Our pets do more for us than we think,as we have to look after them

and in doing this i think they keep us going.I am so glad i have my

little yorkie Candy.Its great to hear from you! Hugs

wrote:

>

> Hi,

> I'm Noreen. I mostly just lurk here, but I do read everything

everyday. I'm

> 51, from Northern Minnesota, have been married almost 28 years and

have 2

> grown children. I also have 2 collies and a fat cat.

> I've been Dx with RA for about 4 years now, and am pretty well

under control

> with MTX (except for an occasional flare).

> It's amazing to me that no matter where in the world people are

from, RA

> kind of pulls us all together.

>

> Noreen

>

> [ ] Fw: brief intro please??

>

>

> >

> > I wonder would it be too much to ask for us all to do a brief

intro about

> > ourselves??? I have only been with this group for a few months

and in

> > between moving and being offline with computer probs..I keep

losing track

> > of who's who......

> >

> > in Australia

> > 34years old, married with three boys.

> > RA (3yrs diagnosed, 8yrs symptoms), Raynards and more recently

> > Fibromyalgia.

> >

> >