Re: Battling illness for months now

[Guest guest]

Praying....for her to get better and wisdom for you and the doctor to figure it out.

(I'm assuming you've already been checking her thyroid.)

Shirley

[DownSyndromeInfoExchange] Battling illness for months now

Phoebe just went and laid down in her own bed saying, "Im Sick" She never does that. This is my happy go-lucky child that can dance around the room with a raging fever. She has been feeling rotten for months now and it is tearing me apart. Y'all pray for her, ok?

I am a complete mess and at a loss of what to do.

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2178 / Virus Database: 2433/5048 - Release Date: 06/05/12

[Guest guest]

Prayers for both of you!Ruby

Phoebe just went and laid down in her own bed saying, "Im Sick" She never does that. This is my happy go-lucky child that can dance around the room with a raging fever. She has been feeling rotten for months now and it is tearing me apart. Y'all pray for her, ok?I am a complete mess and at a loss of what to do.

[Guest guest]

She is hypothyroid, and takes a very low dose. Perhaps we should check her levels again.

Praying....for her to get better and wisdom for you and the doctor to figure it out.

(I'm assuming you've already been checking her thyroid.)

Shirley

[DownSyndromeInfoExchange] Battling illness for months now

Phoebe just went and laid down in her own bed saying, "Im Sick" She never does that. This is my happy go-lucky child that can dance around the room with a raging fever. She has been feeling rotten for months now and it is tearing me apart. Y'all pray for her, ok?

I am a complete mess and at a loss of what to do. :(No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2178 / Virus Database: 2433/5048 - Release Date: 06/05/12

[Guest guest]

,

 

We will be keeping Phoebe in prayer. she has CF in additon to ds, correct?

 

Praying for you and the drs to be able to figure out eactly what is going on with her. One of my very favorite photos is the one with her sitting in a field of blue bonnets

 

Caroline

 

Phoebe just went and laid down in her own bed saying, " Im Sick " She never does that. This is my happy go-lucky child that can dance around the room with a raging fever.  She has been feeling rotten for months now and it is tearing me apart. Y'all pray for her, ok?

I am a complete mess and at a loss of what to do.  

[Guest guest]

Yes. Cf and Down syndrome. It gets complicated because she also has hypothyroid. Some cf people have said she might need a "tune-up" where they get admitted for two weeks, IV antibiotics lung washouts etc. We have never had one, so I am not sure.

,

We will be keeping Phoebe in prayer. she has CF in additon to ds, correct?

Praying for you and the drs to be able to figure out eactly what is going on with her. One of my very favorite photos is the one with her sitting in a field of blue bonnets

Caroline

Phoebe just went and laid down in her own bed saying, "Im Sick" She never does that. This is my happy go-lucky child that can dance around the room with a raging fever. She has been feeling rotten for months now and it is tearing me apart. Y'all pray for her, ok?

I am a complete mess and at a loss of what to do.

[Guest guest]

Praying for your discernment.......Caroline

 

Yes.  Cf and Down syndrome.  It gets complicated because she also has hypothyroid.  

Some cf people have said she might need a " tune-up " where they get admitted for two weeks, IV antibiotics lung washouts etc.  We have never had one, so I am not sure.

 

,

 

We will be keeping Phoebe in prayer. she has CF in additon to ds, correct?

 

Praying for you and the drs to be able to figure out eactly what is going on with her. One of my very favorite photos is the one with her sitting in a field of blue bonnets

 

Caroline

 

Phoebe just went and laid down in her own bed saying, " Im Sick " She never does that. This is my happy go-lucky child that can dance around the room with a raging fever.  She has been feeling rotten for months now and it is tearing me apart. Y'all pray for her, ok?

I am a complete mess and at a loss of what to do.