Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I'm sorry but I totally disagree with that statement - so many factors come into play - age of infection, viral load, alcohol, diet, severity of other "byproduct diseases", hormones, etc. - so many factors - and as we all know, everyone responds to the virus differently. To say that hcv will eventually cause death from liver failure is completely and totally wrong. Yes, it is a serious disease and one that needs new effective treatments THAT WORK NOW! Meanwhile, there are proven alternative methods that help to protect one's liver and dietary means that have been proven to reduce and reverse liver damage. If what you say is true, folks who have had the virus for decades would all be dead or in ESLD. And that is just wrong! Chris And if not treated eventually will cause death from liver failure if one of the byproduct diseases doesn't get ya first .Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering.....stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Yes, I've known many folks who have died but most of them partied on til the end. Others fought the dragon through treatment and lost. Here are the facts: http://www.fda.gov/fdac/features/2001/401_hepc.html For some, the hepatitis C virus (HCV) is deadly, but for most of the nearly 4 million Americans infected with the virus, it is not life-threatening. "Some cases are mild, and people can go through their whole lives and never have a problem," says Leonard Seeff, M.D., a hepatologist at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)." For others who develop severe liver disease, it is a terribly serious problem." HCV is responsible for 8,000 to 10,000 deaths per year in the United States, according to the Centers for Disease Control and Prevention (CDC). The virus is spread mainly through contact with the blood of an infected person. Most people don't know they carry the virus because they have either no symptoms or vague ones--extreme tiredness is the most common. Other common symptoms are "flu-like": muscle and joint pain, nausea, poor appetite, and mild stomach pain. Only about 15 percent of those infected with HCV have a short-term infection that goes away by itself and never returns. The other 85 percent become chronically infected, meaning the virus stays in the liver, replicates, and may slowly attack the organ over a period of decades. Despite many years of chronic infection, the majority of people infected with HCV do not develop severe liver disease, and some may not need treatment, says Schwieterman, M.D., chief of the immunology and infectious diseases branch in the Food and Drug Administration's Center for Biologics Evaluation and Research (CBER). Most studies report that cirrhosis (advanced liver scarring) develops in 10 percent to 20 percent of people with chronic HCV infection over a period of 20 to 30 years. Liver cancer develops in 1 percent to 5 percent. http://hepc.org.nz/articles/hepatitis-c-faq/ Is it fatal? A hepatitis C-RNA positive diagnosis is not a death sentence. Because the disease usually develops very slowly, many more people will die with hepatitis C than die of it. Statistically speaking, rates of progressive liver disease, cirrhosis, liver cancer and some auto-immune conditions are considerably higher among hepatitis C-infected people than in the population at large. However, there is much that can be done to assist liver function and general well-being through healthy eating and healthy living. For positive people, a positive diagnosis can be a wake-up call to a better way of being. http://hcvnews.blogspot.com/2006/06/graphic-hepatitis-c-ads-raise-ethical.html Of every 100 people infected with hepatitis C: About 55 to 85 people may develop long-term infection. 70 people might develop chronic liver disease. 5 to 20 people may develop cirrhosis over a period of 20 to 30 years. 1 to 5 people might die from the consequences of liver cancer or cirrhosis. SOURCES: World Health Organization and the Centers for Disease Control and Prevention Chris Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Don, Well, you could go to the Home page and through old posts. That would give you some idea. I've watched several complete treatment in the 2+ years I've been here. A few have already relapsed, some are holding steady, and for those I truly shout with joy.Geneotype 2's seems to have better results.. Myself, I treated for 10 weeks ( went to non detectable by week 5) and then had to stop due to my husband's illness and stroke. I could not care for us both on treatment. As I am Geneotype 1, 10 weeks just didn't get it.. The dragon came back with a vengeance, though has quieted down again now.. The government will care when it becomes more of an epidemic, and that day does seem to be fast approaching.. Sheena Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Ive been to the home page awhile back. There seems to be 14,736,200+ back posts. That should keep me outa trouble for a day or two. lol I did watch a prog on FSTV [free speach TV] a bit ago. It was sad. Seems to me 5 million+ 'IS' an epidemic [100 million worldwide] What if the bird flu breaks out. I wonder if there would be anything done to fight it. Makes me wonder. love don in kansas Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 We do talk a whole lot at times.. I wonder myself at times if anyone really cares besides "us".. I think they consider 5 million a drop in the bucket considering that more than 25 million people have died of AIDS since 1981. Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 wow scarey stuff Subject: Re: CANT HELP BUT WONDERTo: Hepatitis_C_Central Date: Saturday, October 25, 2008, 9:47 PM Here's a good site: http://www.epidemic .org/ And I was like you too Don, I worried for years about HIV and had myself tested many times. Hep C was a shocker and I thought that I wouldn't see my 50th birthday - I was 49 when I was dx'd. That was 6 years ago and I'm still doing okay thankfully. With my wild past, I consider myself lucky that the "only" thing that I have is hep c. You'll be fine - once you get all of your blood work done, you'll have more of an idea of where you stand - but again, most folks die with hep c and not because of it. Take care, Chris In a message dated 10/25/2008 8:45:47 P.M. Central Daylight Time, ludichrist2000@ yahoo.com writes: And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 There are aprox 4million worldwide with hep c ( opposed to 1 mil hiv) and hcv is the #1 cause of liver transplant worldwide . And if not treated eventually will cause death from liver failure if one of the byproduct diseases doesn't get ya first . 75% of US Viet Nam Veterans are infected and most of those have passed away already . The numbers are staggering to say the least and I think that is why we don't dwell on them . In the last 5 yrs I know of at least 29 that have died from hep c or hep c related problems . Most of the government medical research money has been taken up with the HIV/ AIDS research , but hep c does get some positive from hiv / aids research data . Most of the meds we use now were once used to treat HIV . Hepatitis C is called the silent killer for a reason , most that have it don't know until it's to late . CANT HELP BUT WONDER Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering.....stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Hi Don, I haven't posted in a while, but this really got to me. You are expressing exactly what I felt 3 1/2 years ago when I was diagnosed with HepC. I lost over 20 friends, including my brother, to AIDS in the late 80's early 90's. I was so sure that I was HIV positive that I never got tested. I decided to get a Physical when I was 47. I was HIV negative , but HVC positive. Like you I felt this is impossible, how could I have dodged the HIV bullit but have gotten HepC. I did treatment, and am still undetectable a year and a half later. As far as govenment action, It is not easy. Look what we had to do to get the government to do something about AIDS: http://en.wikipedia.org/wiki/Actup Hi, Janet, Jackie, Elizebeth and Sheena. LEE > > Im sorry but this has been bugging me. > Has anyone kept track of who, and how many folks with Hep C have come here? > > Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] > How many have fought off Hep C successfully with and w/o TX here. > And how many here are in the various stages of the dragon, again here? > And how many has the dragon taken, here? > > And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. > Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. > > I asked the same questions about AIDs years ago. > That was the fire I was concerned about playing with. > I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. > Anyway, was just sitting here wondering.....stuff. > Not much else to do. > love > don in kansas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I guess that my original post got lost in the ether. I haven't posted in a while , but this really got to me. You have expressed exactly what I felt 3 1/2 years ago when I was diagnosed with HepC. I have lost over 20 friends and my brother to HIV, and was so convinced that I had HIV that I didn't get tested until then. Turned out that I was HIV negative, but HVC positive. I did treatment and am still undetectable after a year and a half. It does seem that we are undesirables by much of society. Look at what ActUp had to do to get any attention. Lee http://en.wikipedia.org/wiki/ACT_UP > > Im sorry but this has been bugging me. > Has anyone kept track of who, and how many folks with Hep C have come here? > > Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] > How many have fought off Hep C successfully with and w/o TX here. > And how many here are in the various stages of the dragon, again here? > And how many has the dragon taken, here? > > And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. > Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. > > I asked the same questions about AIDs years ago. > That was the fire I was concerned about playing with. > I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. > Anyway, was just sitting here wondering.....stuff. > Not much else to do. > love > don in kansas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 EXCELLENT!Jackie Subject: re: CANT HELP BUT WONDERTo: Hepatitis_C_Central Date: Saturday, October 25, 2008, 10:01 PM Yes, I've known many folks who have died but most of them partied on til the end. Others fought the dragon through treatment and lost. Here are the facts: http://www.fda. gov/fdac/ features/ 2001/401_ hepc.html For some, the hepatitis C virus (HCV) is deadly, but for most of the nearly 4 million Americans infected with the virus, it is not life-threatening. "Some cases are mild, and people can go through their whole lives and never have a problem," says Leonard Seeff, M.D., a hepatologist at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)." For others who develop severe liver disease, it is a terribly serious problem." HCV is responsible for 8,000 to 10,000 deaths per year in the United States, according to the Centers for Disease Control and Prevention (CDC). The virus is spread mainly through contact with the blood of an infected person. Most people don't know they carry the virus because they have either no symptoms or vague ones--extreme tiredness is the most common. Other common symptoms are "flu-like": muscle and joint pain, nausea, poor appetite, and mild stomach pain. Only about 15 percent of those infected with HCV have a short-term infection that goes away by itself and never returns. The other 85 percent become chronically infected, meaning the virus stays in the liver, replicates, and may slowly attack the organ over a period of decades. Despite many years of chronic infection, the majority of people infected with HCV do not develop severe liver disease, and some may not need treatment, says Schwieterman, M.D., chief of the immunology and infectious diseases branch in the Food and Drug Administration' s Center for Biologics Evaluation and Research (CBER). Most studies report that cirrhosis (advanced liver scarring) develops in 10 percent to 20 percent of people with chronic HCV infection over a period of 20 to 30 years. Liver cancer develops in 1 percent to 5 percent. http://hepc. org.nz/articles/ hepatitis- c-faq/ Is it fatal? A hepatitis C-RNA positive diagnosis is not a death sentence. Because the disease usually develops very slowly, many more people will die with hepatitis C than die of it. Statistically speaking, rates of progressive liver disease, cirrhosis, liver cancer and some auto-immune conditions are considerably higher among hepatitis C-infected people than in the population at large. However, there is much that can be done to assist liver function and general well-being through healthy eating and healthy living. For positive people, a positive diagnosis can be a wake-up call to a better way of being. http://hcvnews. blogspot. com/2006/ 06/graphic- hepatitis- c-ads-raise- ethical.html Of every 100 people infected with hepatitis C: About 55 to 85 people may develop long-term infection. 70 people might develop chronic liver disease. 5 to 20 people may develop cirrhosis over a period of 20 to 30 years. 1 to 5 people might die from the consequences of liver cancer or cirrhosis. SOURCES: World Health Organization and the Centers for Disease Control and Prevention Chris Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 yes Don, it 'can' be scarey stuff but as said, most of us will die WITH it and NOT from it... however, if you happen to fall in that 20% who get cirrhosis or the 1-5% of those with cirrhosis who get liver cancer, statistics dont really help.. Its very scary at first, but once you gather up all your info and see just 'where ' you are in regards to damage and how fast its moving, you can make a plan... we've all been terrified when first diagnosed and first figuring this all out,, hang in there,, the terror DOES reduce a lot once you have all the facts about how YOUR LIVER is doing,, it will help a lot!Jackie From: smalk50aol (DOT) com <smalk50aol (DOT) com>Subject: Re: [Hepatitis_C_ Central] CANT HELP BUT WONDERTo: Hepatitis_C_ Central@yahoogro ups.comDate: Saturday, October 25, 2008, 9:47 PM Here's a good site: http://www.epidemic .org/ And I was like you too Don, I worried for years about HIV and had myself tested many times. Hep C was a shocker and I thought that I wouldn't see my 50th birthday - I was 49 when I was dx'd. That was 6 years ago and I'm still doing okay thankfully. With my wild past, I consider myself lucky that the "only" thing that I have is hep c. You'll be fine - once you get all of your blood work done, you'll have more of an idea of where you stand - but again, most folks die with hep c and not because of it. Take care, Chris In a message dated 10/25/2008 8:45:47 P.M. Central Daylight Time, ludichrist2000@ yahoo.com writes: And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 but Sheena,, many of those who died being HIV+ in the last year died FROM HCV and not HIV... co-infection is a big deal and now with more drugs available to treat HIV, its the HCV thats getting them... WE NEED to get the funding that HIV gets to help with OUR virus,, HIV gets about 90% of the funding,, and its sad because more ppl die of heart disease than HIV and heart disease doesnt even get a third of the funding that HIV STILL GETS,, but much of the $$ for HIV now go to other things , like to persons caring for those with AIDS and to teach classes on how to have sex and not spread it... grrrrrr, dont get me started,, lolJackie Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 HI Don Well THIS IS ONLY MY OPINION and so I hope that NO ONE takes offense.. For every one person who has HIV there are FOUR of us who have HCV.. It is called the silent killer because it lays dormant for years sometimes before it raises it ugly head.. with HIV, most of the time, ppl without tx do start to have health issues within 1-2 years. HIV advocates raised such a ruckus that they get 90% of the funding for research for medical cures.. HIV now has more than 90 meds I think while we have two.. More than 100,000 people die each year of heart disease and more from diabetes etc, but they get very little funding because no one is willing to be as radical as the HIV advocates were.. WE tried several years ago to get some things going for HCV but the HIV advocates began threatening us and they scared a lot of people... so most of us just simple backed down.. There are many people who are co-infected with both HIV and HCV and last year, in Calif , the stats I saw showed that most of them died from HCV adn NOT HIV. They have made major strides in research and developement of treatment meds and some of them have actually helped us too. But the funding mostly continues to go to HIV . The last stats I saw showed that for every person infected with HIV, they get over $3,000.00, for those of us with HCV, its about $8.00 or some ridiculously small amount. same with heart disease, diabetes, lung disease.. but the squeeky wheel gets the grease and the HIV advocates have proven that. IF anyone is truely interested in seeing HOW much goes to each illness, I highly suggest becoming a member ( its free) of the Fair Foundation. I believe, just off the top of my head that they url to their website is www.Fairfoundation.org If you want to speak with Dr. Darling about this, he is the person who started the FAIR Foundation and is working diligently to get the funding dollars more equitably allocated to more than just HIV. Its a sore spot with me because to speak out about this injustice typically brings the wrath of the HIV advocates down upon your head.. so be careful out there... they've threatened several people and its gotten ugly at times. I can't help but wonder too why this continues to stay this way!Jackie Subject: CANT HELP BUT WONDERTo: Hepatitis_C_Central Date: Saturday, October 25, 2008, 5:55 PM Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008  I said if one of the side effect disease's doesn't kill you first . Those disease's are iron overload , porphyria, cryoglobinemia , kidney disease , heart problems from excess iron etc . If someone takes extremely good care of themselves then they have a great chance of dying from old age but not many people take that good care of themselves (on average , not those that are here in this forum) . Re: CANT HELP BUT WONDER I'm sorry but I totally disagree with that statement - so many factors come into play - age of infection, viral load, alcohol, diet, severity of other "byproduct diseases", hormones, etc. - so many factors - and as we all know, everyone responds to the virus differently. To say that hcv will eventually cause death from liver failure is completely and totally wrong. Yes, it is a serious disease and one that needs new effective treatments THAT WORK NOW! Meanwhile, there are proven alternative methods that help to protect one's liver and dietary means that have been proven to reduce and reverse liver damage. If what you say is true, folks who have had the virus for decades would all be dead or in ESLD. And that is just wrong! Chris In a message dated 10/25/2008 10:53:35 P.M. Central Daylight Time, elizabethnv1earthlink (DOT) net writes: And if not treated eventually will cause death from liver failure if one of the byproduct diseases doesn't get ya first . Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Dramatic Rise Found In Hepatitis C-related Deaths In The United States ScienceDaily (Mar. 25, 2008) — Hepatitis C-related deaths in the United States increased by 123 percent from 1995 through 2004, the most recent year for which data are available. Mortality rates peaked in 2002, then declined slightly overall, while continuing to rise among people 55 to 64 years old. Hepatitis C virus (HCV) is the most common blood-borne infection in the United States, affecting about 1.3 percent of the population. Up to one-in-five sufferers develop liver cirrhosis, and up to one-in-20 develop liver cancer. HCV is the top reason for liver transplantation, and the 16th leading cause of premature death in the country. Recent evidence has suggested that disease burden and mortality from chronic HCV infection may increase in the coming years, as the number of persons with longstanding infections continues to rise. To update estimates of trends and demographics of hepatitis C-related mortality in the U.S., a team of researchers led by Wise of UCLA and including researchers from the CDC and the Los Angeles County Department of Public Health analyzed mortality rates derived from U.S. Census and multiple-cause-of-death data from 1995-2004. They included 56,409 HCV related deaths, including those for which the disease was the underlying cause; those for which chronic liver disease was the underlying cause and hepatitis C was a contributing cause; and those for which HIV was the underlying cause and chronic liver disease and hepatitis C were contributing causes. During the study period, HCV-related mortality rates increased from 1.09 deaths per 100,000 persons in 1995 to 2.57 per 100,000 in 2002, before declining slightly to 2.44 per 100,000 in 2004. Average annual increases were smaller during 2000-2004 than 1995-1999. The most dramatic age-specific increases were observed among 45 to 54 year olds who had an increase of 376 percent, and 55 to 64 year olds who had an increase of 188 percent. For the latter group, rates rose for the entire duration of the study. “The highest mortality rates were observed among males, persons aged 45-54 and 55-64 years, Hispanics, non-Hispanic blacks and non-Hispanic Native American/Alaska Natives,” the authors report. They suggest that demographic differences are related to prevalence among the various populations. The observed increases likely reflect both true increases in mortality and the growing use of serologic tests for HCV, the authors say. “As such, true increases in hepatitis C-related mortality during 1995-1999 were likely more gradual than the observed trends, and differences in mortality patterns between the time periods are difficult to interpret.” While the study was limited by possible inaccuracies in death certificate data, the authors believe that this more likely lead to an underestimate of the true number of hepatitis C-related deaths. “In summary, substantial increases in overall hepatitis-C-related mortality rates have occurred since 1995,” the authors conclude. “The relatively young age of persons dying from hepatitis C-related liver disease has made hepatitis C-related disease a leading infectious cause of years of potential life lost as well as an important cause of premature mortality overall.” They point out the ongoing need for measures to prevent progression of liver disease among those infected with HCV, and the need for ongoing analysis of mortality trends. Journal reference: “Changing Trends in Hepatitis C-Related Mortality in the United States, 1995-2004.” Wise, , Bialek, ; Finelli, Lyn;Bell, Beth; Sorvillo, . Hepatology; April 2008; 10.1002/hep.22165; Published online March 2008. CANT HELP BUT WONDER Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering.....stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 I think that it depends on what study you read, lol. According to the CDC, it sure doesn't look like it's increasing! Chris http://www.cdc.gov/hepatitis/Statistics.htm Incidence of hepatitis C, United States Year Estimated Acute Cases Estimated Total New Infections 1982 29,500 180,000 1983 30,800 188,000 1984 36,000 219,000 1985 42,700 261,000 1986 43,000 262,000 1987 35,400 216,000 1988 39,400 240,000 1989 47,800 291,000 1990 29,400 179,000 1991 18,400 112,000 1992 12,000 73,000 1993 9,400 57,000 1994 8,900 54,000 1995 5,900 36,000 1996 5,900 36,000 1997 6,300 38,000 1998 6,800 41,000 1999 6,400 39,000 2000 6,300 38,000 2001 3,900 24,000 2002 4,800 29,000 2003 4,500 28,000 2004 4,200 26,000 2005 3,400 21,000 2006 3,200 19,000 Average annual increases were smaller during 2000-2004 than 1995-1999.Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 I think that answers Don's questions and will hopefully wake others up, as well..Thanks .. Subject: Re: CANT HELP BUT WONDERTo: Hepatitis_C_Central Date: Sunday, October 26, 2008, 1:46 AM Dramatic Rise Found In Hepatitis C-related Deaths In The United States ScienceDaily (Mar. 25, 2008) — Hepatitis C-related deaths in the United States increased by 123 percent from 1995 through 2004, the most recent year for which data are available. Mortality rates peaked in 2002, then declined slightly overall, while continuing to rise among people 55 to 64 years old. Hepatitis C virus (HCV) is the most common blood-borne infection in the United States, affecting about 1.3 percent of the population. Up to one-in-five sufferers develop liver cirrhosis, and up to one-in-20 develop liver cancer. HCV is the top reason for liver transplantation, and the 16th leading cause of premature death in the country. Recent evidence has suggested that disease burden and mortality from chronic HCV infection may increase in the coming years, as the number of persons with longstanding infections continues to rise. To update estimates of trends and demographics of hepatitis C-related mortality in the U.S., a team of researchers led by Wise of UCLA and including researchers from the CDC and the Los Angeles County Department of Public Health analyzed mortality rates derived from U.S. Census and multiple-cause- of-death data from 1995-2004. They included 56,409 HCV related deaths, including those for which the disease was the underlying cause; those for which chronic liver disease was the underlying cause and hepatitis C was a contributing cause; and those for which HIV was the underlying cause and chronic liver disease and hepatitis C were contributing causes. During the study period, HCV-related mortality rates increased from 1.09 deaths per 100,000 persons in 1995 to 2.57 per 100,000 in 2002, before declining slightly to 2.44 per 100,000 in 2004. Average annual increases were smaller during 2000-2004 than 1995-1999. The most dramatic age-specific increases were observed among 45 to 54 year olds who had an increase of 376 percent, and 55 to 64 year olds who had an increase of 188 percent. For the latter group, rates rose for the entire duration of the study. “The highest mortality rates were observed among males, persons aged 45-54 and 55-64 years, Hispanics, non-Hispanic blacks and non-Hispanic Native American/Alaska Natives,” the authors report. They suggest that demographic differences are related to prevalence among the various populations. The observed increases likely reflect both true increases in mortality and the growing use of serologic tests for HCV, the authors say. “As such, true increases in hepatitis C-related mortality during 1995-1999 were likely more gradual than the observed trends, and differences in mortality patterns between the time periods are difficult to interpret.” While the study was limited by possible inaccuracies in death certificate data, the authors believe that this more likely lead to an underestimate of the true number of hepatitis C-related deaths. “In summary, substantial increases in overall hepatitis-C- related mortality rates have occurred since 1995,” the authors conclude. “The relatively young age of persons dying from hepatitis C-related liver disease has made hepatitis C-related disease a leading infectious cause of years of potential life lost as well as an important cause of premature mortality overall.” They point out the ongoing need for measures to prevent progression of liver disease among those infected with HCV, and the need for ongoing analysis of mortality trends. Journal reference: “Changing Trends in Hepatitis C-Related Mortality in the United States, 1995-2004.” Wise, , Bialek, ; Finelli, Lyn;Bell, Beth; Sorvillo, . Hepatology; April 2008; 10.1002/hep. 22165; Published online March 2008. [Hepatitis_C_ Central] CANT HELP BUT WONDER Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 No doubt, but everyone knows what going on with Aids alone, it's common knowledge, still reported often, but many are still in the dark about Hep C. I can't believe how many.. That was the point I was trying to make.. Until that changes, we all wait..and no one really seems to care.. Sheena Im sorry but this has been bugging me. Has anyone kept track of who, and how many folks with Hep C have come here? Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.] How many have fought off Hep C successfully with and w/o TX here. And how many here are in the various stages of the dragon, again here? And how many has the dragon taken, here? And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables. Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs. I asked the same questions about AIDs years ago. That was the fire I was concerned about playing with. I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me. Anyway, was just sitting here wondering... ..stuff. Not much else to do. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Wahoo, Lee, a year and a half already!, That much IS good news! Sheena Subject: Re: CANT HELP BUT WONDERTo: Hepatitis_C_Central Date: Saturday, October 25, 2008, 9:38 PM I guess that my original post got lost in the ether.I haven't posted in a while , but this really got to me.You have expressed exactly what I felt 3 1/2 years ago when I was diagnosed with HepC.I have lost over 20 friends and my brother to HIV, and was so convinced that I had HIV that I didn't get tested until then.Turned out that I was HIV negative, but HVC positive.I did treatment and am still undetectable after a year and a half.It does seem that we are undesirables by much of society.Look at what ActUp had to do to get any attention.Leehttp://en.wikipedia .org/wiki/ ACT_UP>> Im sorry but this has been bugging me.> Has anyone kept track of who, and how many folks with Hep C have come here?> > Here comes the morbid part, sorry, but I am really courious, and would like to get a picture of this Hep C thing. [While I can still grasp such things.]> How many have fought off Hep C successfully with and w/o TX here.> And how many here are in the various stages of the dragon, again here?> And how many has the dragon taken, here?> > And doesnt the govt care? Or is it a case of getting rid of undesireables, and former undesireables.> Seems to me this should be headline news....CNN, FOX, etc. Mr Lou Dobbs.> > I asked the same questions about AIDs years ago.> That was the fire I was concerned about playing with.> I wasnt even aware of Hep C until a couple of years ago, and never dreamed it would reach out and grab me.> Anyway, was just sitting here wondering... ..stuff.> Not much else to do.> love> don in kansas> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 I agree - I don't trust most doctors, gov. agencies, etc. And when you google "deaths from hepatitis c" you will find thousands of conflicting statistics, facts and figures, etc. There is still much work to be done in raising awareness of our disease. Chris Call me a skeptic, or whatever you choose, but I trust neither most doctors, or any government agencies..so I don't believe it, not for a California minute..jmho...we all have them.. SheenaPlay online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Has there been a group yet that has set a (inter) National Hep C Day? We have FASDay - on Sept 9, to raise awareness for Fetal Alcohol Spectrum Disorder. Sept 9 was chosen so we can remind our world 9 months no alcohol. We also have NOFAS that puts Hill Day together in DC and we go in and educate our legislature on why more funding is needed for treatment for moms-not incarceration, education, and to support the individual with prenatal exposure. We also hit cable tv for a half hour segment, get local and state proclamations. Letters to the editor of newspaper, etc. I think I went on to long! (I can ramble) Some ? And thoughts. Amber Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 That is downright scary, which goes to show you not to believe all that you read, especially so when it's coming from a government source! I simply find this hard to swallow, especially given the increase in those seeking help on online Groups.. Sheena I think that it depends on what study you read, lol. According to the CDC, it sure doesn't look like it's increasing! Chris http://www.cdc. gov/hepatitis/ Statistics. htm Incidence of hepatitis C, United States Year Estimated Acute Cases Estimated Total New Infections 1982 29,500 180,000 1983 30,800 188,000 1984 36,000 219,000 1985 42,700 261,000 1986 43,000 262,000 1987 35,400 216,000 1988 39,400 240,000 1989 47,800 291,000 1990 29,400 179,000 1991 18,400 112,000 1992 12,000 73,000 1993 9,400 57,000 1994 8,900 54,000 1995 5,900 36,000 1996 5,900 36,000 1997 6,300 38,000 1998 6,800 41,000 1999 6,400 39,000 2000 6,300 38,000 2001 3,900 24,000 2002 4,800 29,000 2003 4,500 28,000 2004 4,200 26,000 2005 3,400 21,000 2006 3,200 19,000 In a message dated 10/26/2008 8:25:43 A.M. Central Daylight Time, mom4possums2002@ yahoo.com writes: Average annual increases were smaller during 2000-2004 than 1995-1999. Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 The statistics are for ACUTE hepatitis and NEW infections. I would think that the invent of disposible needles (for which a prescription is no longer needed) decreased the new infections. I think many coming online are from the earlier era and have been infected a number of years. As symptoms begin to show and testing is done more frequently, those from the 70's and 80's are beginning to seek help. And, we are finding that many MD's are woefully uneducated in Hep C, so we seek help online. There are, of course, still new cases, but Hopefully, the statistics are somewhat correct. Cheers, SuziQ Quinn In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman I think that it depends on what study you read, lol. According to the CDC, it sure doesn't look like it's increasing! Chris http://www.cdc. gov/hepatitis/ Statistics. htm Incidence of hepatitis C, United States Year Estimated Acute Cases Estimated Total New Infections 1982 29,500 180,000 1983 30,800 188,000 1984 36,000 219,000 1985 42,700 261,000 1986 43,000 262,000 1987 35,400 216,000 1988 39,400 240,000 1989 47,800 291,000 1990 29,400 179,000 1991 18,400 112,000 1992 12,000 73,000 1993 9,400 57,000 1994 8,900 54,000 1995 5,900 36,000 1996 5,900 36,000 1997 6,300 38,000 1998 6,800 41,000 1999 6,400 39,000 2000 6,300 38,000 2001 3,900 24,000 2002 4,800 29,000 2003 4,500 28,000 2004 4,200 26,000 2005 3,400 21,000 2006 3,200 19,000 In a message dated 10/26/2008 8:25:43 A.M. Central Daylight Time, mom4possums2002@ yahoo.com writes: Average annual increases were smaller during 2000-2004 than 1995-1999. Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Call me a skeptic, or whatever you choose, but I trust neither most doctors, or any government agencies..so I don't believe it, not for a California minute..jmho...we all have them.. Sheena I think that it depends on what study you read, lol. According to the CDC, it sure doesn't look like it's increasing! Chris http://www.cdc. gov/hepatitis/ Statistics. htm Incidence of hepatitis C, United States Year Estimated Acute Cases Estimated Total New Infections 1982 29,500 180,000 1983 30,800 188,000 1984 36,000 219,000 1985 42,700 261,000 1986 43,000 262,000 1987 35,400 216,000 1988 39,400 240,000 1989 47,800 291,000 1990 29,400 179,000 1991 18,400 112,000 1992 12,000 73,000 1993 9,400 57,000 1994 8,900 54,000 1995 5,900 36,000 1996 5,900 36,000 1997 6,300 38,000 1998 6,800 41,000 1999 6,400 39,000 2000 6,300 38,000 2001 3,900 24,000 2002 4,800 29,000 2003 4,500 28,000 2004 4,200 26,000 2005 3,400 21,000 2006 3,200 19,000 In a message dated 10/26/2008 8:25:43 A.M. Central Daylight Time, mom4possums2002@ yahoo.com writes: Average annual increases were smaller during 2000-2004 than 1995-1999. Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! Quote Link to comment Share on other sites More sharing options...
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