Re: Update on rib cage pain

[Guest guest]

It must be in the air as I had an attack of rib cage crunches earlier this

month. Of course I think my body is just coming up with creative new ways to

cause me pain around the time of my cycle.

Tomorrow I get tested again for cholesterol levels and thyroid.

It certainly sounds like her medications are helping her. Sounds like she was

having a flare which sometimes takes awhile to recover from. When I had my

flare it took about a week to recover, once I got out of the hospital.

Shandi

[ ] Update on rib cage pain

My daughter saw her rheumy Monday and he sent her for a high resolution CT

scan of her chest which showed nothing which would cause the pain she has

experienced. He thinks her pain was part of an overall flare she has

experienced because of all the stormy weather these past several days here

on the east coast.

She is feeling a bit better today. But we got some great news I think. He

sent her for blood work Monday and her RF which was 405 back in February is

now 33. Her sed rate which was something like 86 in February is now 9.

This is encouraging to me. It should be, right?

Lori

[Guest guest]

Lori, this sounds extremely encouraging, I am so happy to read your news.

Hugs

June

----- Original Message -----

From: Lori Maynard

My daughter saw her rheumy Monday and he sent her for a high resolution CT

scan of her chest which showed nothing which would cause the pain she has

experienced. He thinks her pain was part of an overall flare she has

experienced because of all the stormy weather these past several days here

on the east coast.

She is feeling a bit better today. But we got some great news I think. He

sent her for blood work Monday and her RF which was 405 back in February is

now 33. Her sed rate which was something like 86 in February is now 9.

This is encouraging to me. It should be, right?

Lori

[Guest guest]

Lori, I am so happy to hear such wonderful news about your daughter. I was

praying that she would be okay. Hugs

Lori Maynard <lorimaynard@...> wrote: My daughter saw her

rheumy Monday and he sent her for a high resolution CT

scan of her chest which showed nothing which would cause the pain she has

experienced. He thinks her pain was part of an overall flare she has

experienced because of all the stormy weather these past several days here

on the east coast.

She is feeling a bit better today. But we got some great news I think. He

sent her for blood work Monday and her RF which was 405 back in February is

now 33. Her sed rate which was something like 86 in February is now 9.

This is encouraging to me. It should be, right?

Lori

[Guest guest]

Great news, Lori. Yes, you should be encouraged. I'm hoping that she

will continue to improve.

Sue

On Wednesday, June 28, 2006, at 08:11 PM, Lori Maynard wrote:

> She is feeling a bit better today. But we got some great news I

> think. He

> sent her for blood work Monday and her RF which was 405 back in

> February is

> now 33. Her sed rate which was something like 86 in February is now 9.

> This is encouraging to me. It should be, right?

[Guest guest]

Hi, new here. Are you talking severe muscle spasms around the rib cage? I get

those and they are frightening! The first time, it happened while I was in the

tub and I couldn't breathe!

I saw my rheumatologist today and he was NOT helpful!! He doesn't think this is

RA since my Sed rate is 11. He thinks this is fibro. Now my ANA is >160 but he

isn't sure about Lupus. My ortho thinks this may all be MS, but the MRI of the

brain doesn't show big enough lesions..........I don't really care what the heck

they call it, but I would like to be able to control my pain!!! For the past 19

days I've had a nerve in my arm that is giving me EXTREME pain. Ortho put me on

a prednisone pack and it didn't even touch the pain. I was still taking 2

Celebrex each day, a muscle relaxer and Tylenol 3 and none of it stopped the

pain. The easiest way to describe it is to hit your funny bone and have that

pain continually!! I could literally see the muscle jumping in my arm and can't

pick up anything with my left hand. The rheumy told me to just take a muscle

relaxer and it should help..........well it hasn't in the last 19 days!! I just

had a huge blood work up with an oncologist and a lymph node biopsy (which was

neg for lymphoma) but did show I have the anti bodies for EBV. The rheumy was

suprised by the negative biopsy but said it should be redone in about 6 months.

Do any of you all have any insights? I am sick of waking up with pain every day

and not knowing which body part is not going to work! Heck, I won't even be 40

til next month.

Sorry, I didn't mean to go on and on, just having a really rough day.

Hugs

[ ] Update on rib cage pain

My daughter saw her rheumy Monday and he sent her for a high resolution CT

scan of her chest which showed nothing which would cause the pain she has

experienced. He thinks her pain was part of an overall flare she has

experienced because of all the stormy weather these past several days here

on the east coast.

She is feeling a bit better today. But we got some great news I think. He

sent her for blood work Monday and her RF which was 405 back in February is

now 33. Her sed rate which was something like 86 in February is now 9.

This is encouraging to me. It should be, right?

Lori

[Guest guest]

I had the same problems. Had an mri of my spine and found I had bulging discs.

Pressing on nerve. I was put on percocet and within two days was in no pain.

Was told to do stretching only. In two weeks I was able to stop percocet.

Good Luck

Bickford <Bickfordla@...> wrote:

Hi, new here. Are you talking severe muscle spasms around the rib

cage? I get those and they are frightening! The first time, it happened while I

was in the tub and I couldn't breathe!

I saw my rheumatologist today and he was NOT helpful!! He doesn't think this is

RA since my Sed rate is 11. He thinks this is fibro. Now my ANA is >160 but he

isn't sure about Lupus. My ortho thinks this may all be MS, but the MRI of the

brain doesn't show big enough lesions..........I don't really care what the heck

they call it, but I would like to be able to control my pain!!! For the past 19

days I've had a nerve in my arm that is giving me EXTREME pain. Ortho put me on

a prednisone pack and it didn't even touch the pain. I was still taking 2

Celebrex each day, a muscle relaxer and Tylenol 3 and none of it stopped the

pain. The easiest way to describe it is to hit your funny bone and have that

pain continually!! I could literally see the muscle jumping in my arm and can't

pick up anything with my left hand. The rheumy told me to just take a muscle

relaxer and it should help..........well it hasn't in the last 19 days!! I just

had a huge blood work up with an oncologist

and a lymph node biopsy (which was neg for lymphoma) but did show I have the

anti bodies for EBV. The rheumy was suprised by the negative biopsy but said it

should be redone in about 6 months. Do any of you all have any insights? I am

sick of waking up with pain every day and not knowing which body part is not

going to work! Heck, I won't even be 40 til next month.

Sorry, I didn't mean to go on and on, just having a really rough day.

Hugs

[ ] Update on rib cage pain

My daughter saw her rheumy Monday and he sent her for a high resolution CT

scan of her chest which showed nothing which would cause the pain she has

experienced. He thinks her pain was part of an overall flare she has

experienced because of all the stormy weather these past several days here

on the east coast.

She is feeling a bit better today. But we got some great news I think. He

sent her for blood work Monday and her RF which was 405 back in February is

now 33. Her sed rate which was something like 86 in February is now 9.

This is encouraging to me. It should be, right?

Lori

[Guest guest]

My MRI also shows 3 herniated disks, C3,C4, C5. I broke C2 when I was 18 when I

got broadsided by a drunk driver, and they couldn't fix it or they would

paralyze me. That is where I thought all my pain was coming from, but dr

doesn't think so. It is such a difficult thing when there are no absolutes with

autoimmune.

Another day....

[Guest guest]

For it it felt like I had one of my heavier cats sitting on my chest. I could

breathe but I had to dig deeper to get a good breath. Then I just got so tired

from having to work extra hard at breathing. Every so often I would have a

shooting pain that would radiate from my breastbone.

A lot of MS patients get that feeling, around their ribcage like they are being

hugged tightly. So you didn't have a large glowing spot....a lot of MS patients

don't have those. Many small lesions can mean something if they are in the

right place. You are certainly young enough that you shouldn't have lesions

showing up unless there is something going on or you are a chronic migraine

sufferer. There is a strong link between MS and EBV. From visiting MS boards

in support of my DH the pain they experience sounds very different than what I

experience as a RA patient. From your description it sounds like nerve pain is

what you may be experiencing. I am going to assume that your doctors know what

they are doing but if you have multiple lesions I would always have MS is the

back of my mind. My DH has a very mild case (and I hope it stays that way) of

MS as he as only had episodes of optic neuritis and case of numbness in his face

before I met him. Knock on wood it has been over 2 years since his last optic

neuritis episode.

Hopefully someone else can help you with the lymph node biopsy. The only things

I can think of is looking for cancer, enlargement that may suggest infection or

sarcoidosis which you don't show symptoms of.

Good luck

Shandi

Re: [ ] Update on rib cage pain

Hi, new here. Are you talking severe muscle spasms around the rib cage? I get

those and they are frightening! The first time, it happened while I was in the

tub and I couldn't breathe!

I saw my rheumatologist today and he was NOT helpful!! He doesn't think this

is RA since my Sed rate is 11. He thinks this is fibro. Now my ANA is >160 but

he isn't sure about Lupus. My ortho thinks this may all be MS, but the MRI of

the brain doesn't show big enough lesions..........I don't really care what the

heck they call it, but I would like to be able to control my pain!!! For the

past 19 days I've had a nerve in my arm that is giving me EXTREME pain. Ortho

put me on a prednisone pack and it didn't even touch the pain. I was still

taking 2 Celebrex each day, a muscle relaxer and Tylenol 3 and none of it

stopped the pain. The easiest way to describe it is to hit your funny bone and

have that pain continually!! I could literally see the muscle jumping in my arm

and can't pick up anything with my left hand. The rheumy told me to just take a

muscle relaxer and it should help..........well it hasn't in the last 19 days!!

I just had a huge blood work up with an oncologist and a lymph node biopsy

(which was neg for lymphoma) but did show I have the anti bodies for EBV. The

rheumy was suprised by the negative biopsy but said it should be redone in about

6 months. Do any of you all have any insights? I am sick of waking up with pain

every day and not knowing which body part is not going to work! Heck, I won't

even be 40 til next month.

Sorry, I didn't mean to go on and on, just having a really rough day.

Hugs

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[Guest guest]

I should have read all the posts before posting Did they do the T2 weighted

MRI study on your spine or just the brain? Did that show lesions on your spine?

That is a lot of herniated disks in your cervical spine. My Dh has a bulging

disk in his lumbar and it gives him trouble.

Shandi

Re: [ ] Update on rib cage pain

My MRI also shows 3 herniated disks, C3,C4, C5. I broke C2 when I was 18 when

I got broadsided by a drunk driver, and they couldn't fix it or they would

paralyze me. That is where I thought all my pain was coming from, but dr doesn't

think so. It is such a difficult thing when there are no absolutes with

autoimmune.

Another day....

[Guest guest]

Shandi

I had MRI of brain, cervical spine, and left shoulder. Then just recently I had

CT's of neck, chest, abdomen and groin. The hernia at C3 is the most

pronounced, but they don't want to do anything about it unless the other two

start getting larger. I'm not sure I want them messing around in my cervical

spine either......I kinda like being able to walk! lol Even if I have to do it

in pain.

I'm still thinking that alot of this nerve pain may be from the compressions in

the spine.........I'd rather think it was that, rather than MS.

Hugs

[Guest guest]

Shandi

Yes, I do think this is much more MS rather than RA. I guess I had hoped it to

be fibro, lupus, or RA rather than MS, but most of what I have is very classic

to MS. I don't have much problem with my legs, yet, it seems to stay in my

upper body and only occasionally do I have problems in my knees or ankles. I do

still have problems when I first get up with my ankles not wanting to flex. I

have to sleep with my feet pointed down off the end of the bed or they really

hurt the next day.

I hope someday to have some complete answers.......maybe I'll go back to the

neuro and see what he says.

Hugs