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I wonder if one of those " wedge " shaped chair seat cushions might

give you some comfort. You can get them like in the Lillian Vernon

and Harriet on line catalogs. They have a little cut-out in

the back of the cushion so your tailbone is not pressing down on a

hard chair seat. Some of them have fleecy stuff on the outside. You

can find them at other places but way more expensive.

--- In , " bty63057 " <emma.collins@...>

wrote:

>

> Hi,

>

> I was told by someone in another forum that the people in

groups

> really helped them. So I thought I'd ask for help. I'm currently

in

> the process of being diagnosed with what is thought to be sero

> negative rheumatoid arthritis. I've just started my second year of

Uni

> (well it's my first all over again, but hey!!) and I find it so

hard

> to sit in my two hour lectures without being in stupid amounts of

pain

> in my lower back and legs. Is there anything anyone knows that I

could

> sit on or do to help the pain? Also, I'm exahausted all the time,

is

> that normal?

> Please help

> Emma

>

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Hello,

My butt really hurts when I sit on a hard bench at the rodeo. So we

took small pillows and sat on them. Didn't help much. So I found a

special cushion at Bed Bath & Beyond that is wedge shape and has an

area cut out where our " tailbones " are. Right now I use it on my hard

dining room chair and it really helps. I paid about $15 for mine. My

mom needs one so I wil send her one for Christmas.

Debbie L

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I'm afraid my butt is going to hurt next week. I went to Pain Management

today and

the Dr plans to inject something into my spine from the tailbone area. When

he said

tailbone, I asked, you mean there? Then he asked me " if I'd been married

before? "

I said yes. Then he said, it's not as bad as marriage. " I asked him how

about labor?

" It's not as bad as that either. " I really am nor looking forward to this.

He said he

gave his Mother two of these shots. They may have to hold me down on that

bed.

Joyce from Texas

[ ] New to all this

Hello,

My butt really hurts when I sit on a hard bench at the rodeo. So we

took small pillows and sat on them. Didn't help much. So I found a

special cushion at Bed Bath & Beyond that is wedge shape and has an

area cut out where our " tailbones " are. Right now I use it on my hard

dining room chair and it really helps. I paid about $15 for mine. My

mom needs one so I wil send her one for Christmas.

Debbie L

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Is it an epidural that you are getting? (And how would a male doctor know

about the pain of labor???) If it is an epidural, it would be painful to

watch but you don't feel much because they numb the area. It took me 2

times before it helped, but it did help, so good luck and it's not so bad if

it is what I'm thinking of. The only reason they might have to hold you is

because there can be no movement due to the closeness to the spine.

Joanne, IL

[ ] New to all this

>

>

> Hello,

>

> My butt really hurts when I sit on a hard bench at the rodeo. So we

> took small pillows and sat on them. Didn't help much. So I found a

> special cushion at Bed Bath & Beyond that is wedge shape and has an

> area cut out where our " tailbones " are. Right now I use it on my hard

> dining room chair and it really helps. I paid about $15 for mine. My

> mom needs one so I wil send her one for Christmas.

>

> Debbie L

>

>

>

>

>

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The Dr. didn't say what kind of shot I'd get............Joyce

Re: [ ] New to all this

> I'm afraid my butt is going to hurt next week. I went to Pain Management

> today and

> the Dr plans to inject something into my spine from the tailbone area.

> When

> he said

> tailbone, I asked, you mean there? Then he asked me " if I'd been married

> before? "

> I said yes. Then he said, it's not as bad as marriage. " I asked him how

> about labor?

> " It's not as bad as that either. " I really am nor looking forward to

> this.

> He said he

> gave his Mother two of these shots. They may have to hold me down on that

> bed.

>

> Joyce from Texas

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I agree with you Sierra. I wish I had. Just knowing he is going to give

me a shot in the tailbone was scary enough.

Joyce from Texas

[ ] Re: New to all this

--- In , " J. L. McCrary " <j.mccrary@...>

wrote:

>

> The Dr. didn't say what kind of shot I'd get............Joyce

In my opinion, you should always ask!

Sierra

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Hello Debbie,

I have two wedge shaped pillows I've had at least a couple of years.

They are really very good. Mine was good until they became flat.

I think I have worn them to a frazzle. I don't know how to fluff them

up again so I guess I'll have to buy some more. Mine cost around

$15 too.

Joyce from Texas

[ ] New to all this

Hello,

My butt really hurts when I sit on a hard bench at the rodeo. So we

took small pillows and sat on them. Didn't help much. So I found a

special cushion at Bed Bath & Beyond that is wedge shape and has an

area cut out where our " tailbones " are. Right now I use it on my hard

dining room chair and it really helps. I paid about $15 for mine. My

mom needs one so I wil send her one for Christmas.

Debbie L

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Hi, I'v tried sitting on those pillows, mind you, it wasnt for very

long, but I didn't find them comfortable at all. Maybe it was just

the one I tried.

--- In , " J. L. McCrary " <j.mccrary@...>

wrote:

>

> Hello Debbie,

>

> I have two wedge shaped pillows I've had at least a couple of

years.

> They are really very good. Mine was good until they became flat.

> I think I have worn them to a frazzle. I don't know how to fluff

them

> up again so I guess I'll have to buy some more. Mine cost around

> $15 too.

>

> Joyce from Texas

>

>

> [ ] New to all this

>

>

> Hello,

>

> My butt really hurts when I sit on a hard bench at the rodeo. So

we

> took small pillows and sat on them. Didn't help much. So I found a

> special cushion at Bed Bath & Beyond that is wedge shape and has

an

> area cut out where our " tailbones " are. Right now I use it on my

hard

> dining room chair and it really helps. I paid about $15 for mine.

My

> mom needs one so I wil send her one for Christmas.

>

> Debbie L

>

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  • 2 months later...

You'll get a variety of responses from strangers. Some will think that it's to keep your baby from bashing his head into things, some will think he had surgery, and others will just out and out ask you why he has it on. Really, the reaction from others is a lot better than I anticipated that it would be. There are days that I just don't want to deal with it, but all in all, I try to look at it as an opportunity to educate people on plagio. My best advice would be to go out immediately and buy stickers...etc to decorate the band. That makes it look so much less medical. Also, I found for myself, that the sooner I went out with him wearing his band, the easier on me it was. I went out with him the day he got his band, while I still had a bit of the excitement of helping him out. That way, I didn't have time to dread what others would think. (I tend to get myself all worked up if given the opportunity.) Also,

there is a website with really cute clothes for baby and mom (cafepress.com) with catchy phrases for those days you don't want to answer any questions. They can just read your shirt and move on!! :-) HTH. Candace, AZ mommy to Tiernan, 8 mos tort, plagio Hanger helmet 12/05/06 and Ethan, 3 yrscolleen_errington <colleen_errington@...> wrote: Hi. My 3 1/2 month old son was just prescribed a STARband for right

side plagiocephaly. He will receive the band on 2/6. I know it is the right thing to do and that it will likely help him very much. I'm a bit concerned about how to explain what is going on to others and how to respond to stares and comments from people. Any tips from parents about the early days with the band? I try not to worry too much about what others think or say, but I must be honest and say I'm am bit worried about this. __________________________________________________

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I was braced for the worst. I guess I expected EVERYONE to say

something or stare. It's been quite the opposite. We've been banding

for a little over a month, and aside from children, I've only had

two adults comment on it. One asked me if it was a head injury...I

just explained to her that it was like braces for the teeth...this

was to straighten out her head. The other person was rude and asked

what I had done to my baby. I told her that I didn't think the

alligator could really get hold of her that fast! LOL...I probably

shouldn't have done that, but it made me feel better and she shut up.

Honestly, this whole process has been so much easier than I thought,

and I am thrilled with the results we are getting. I guess that's

the upside of being a pessimist. Sometimes you get a pleasant

surprise!

Best wishes for a speedy and successful treatment!

mother to , 9 mos.

In STARband for 5 weeks

> Hi. My 3 1/2 month old son was just prescribed a

STARband for right

> side plagiocephaly. He will receive the band on 2/6. I know it is

> the right thing to do and that it will likely help him very much.

> I'm a bit concerned about how to explain what is going on to

others

> and how to respond to stares and comments from people. Any tips

from

> parents about the early days with the band? I try not to worry too

> much about what others think or say, but I must be honest and say

I'm

> am bit worried about this.

>

>

>

>

>

> __________________________________________________

>

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Love the alligator one! I am gonna have to remember that one!wjwallace17 <wwallace@...> wrote: I was braced for the worst. I guess I expected EVERYONE to say something or stare. It's been quite the opposite. We've been banding for a little over a month, and aside from children, I've only had two adults comment on it. One asked me if it was a head injury...I just explained to her that it was like braces for the teeth...this was to straighten out her head. The other person was rude and asked

what I had done to my baby. I told her that I didn't think the alligator could really get hold of her that fast! LOL...I probably shouldn't have done that, but it made me feel better and she shut up.Honestly, this whole process has been so much easier than I thought, and I am thrilled with the results we are getting. I guess that's the upside of being a pessimist. Sometimes you get a pleasant surprise!Best wishes for a speedy and successful treatment! mother to , 9 mos.In STARband for 5 weeks> Hi. My 3 1/2 month old son was just prescribed a STARband for right > side plagiocephaly. He will receive the band on 2/6. I know it is > the right thing to do and that it will likely help him very much. > I'm a bit concerned about how to explain what is going on to others > and how to respond to stares and comments from people. Any tips from > parents about the early days with the band? I try not to worry too > much about what others think or say, but I must be honest and say I'm > am bit worried about this.> > > > > > __________________________________________________>

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  • 2 weeks later...

Hi ,

My son didn't have a CAT scan, so I can't help with that. I also

don't know of any band companies in Hawaii (there must be someone?),

but I do know of a woman from Hawaii who used to fly to our ortho at

Cranial Therapies in LA (near Burbank).

http://www.cranialtherapies.com/

If you can't find anyone in Hawaii, I highly recommend them. The

location is only about 10-15 minutes from the Burbank airport. We

fly from SF and they're great about giving us any appointment time

that fits with our schedule. My son started his DOCband at 12

months and since he's older we only have to go in every 3 weeks for

adjustments. Good luck!

Sheila, mom to , 16 months, STARband 3/6-8/6, DOCband 9/6-?

> >

> > Aloha,

> >

> > I live in Hawaii and my son who is 9 months old has

plagiocephaly.

> However, our doctor

> > wants us to get a cat scan to be sure it's not cranial

synostosis.

> I'm wondering about the

> > process of getting a CAT scan and how difficult it was for

anyone in

> this group. I'm also

> > wondering how I would go about getting a corrective helmet,

> especially living in Hawaii. I'm

> > not sure they make them here. Any help out there?

> >

> > -

> >

>

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