Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 what happend yestersday> just kdding, we all have our moments, hope yr feeling better today.joyce xox Christ wrote: Hi everyone. I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. Normally I maintain. I hope you will forgive me. I will try to do better. love don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Hi Don, Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair--unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating-- it is yourself. Hugs, SuziQ > > Hi everyone. > I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. > Normally I maintain. > I hope you will forgive me. I will try to do better. > love > don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Hi , I'm glad to hear you are finding your " sunshine " today. I was raised with the belief that if all days are sunny, how long would we appreciate them? I think despair and grief along with appreciation for a blessed day is part of the journey with any disease or disability- whether ours or a loved one. Grief can be a powerful entity that we need to face an honor the frailty of who we are and build up our inner strength for the days, hours, minutes, seconds that we can grasp. , no apologies are needed when you are amongst friends. I am thankful that you felt safe enough to honor us with your honesty. Sometimes just verbalizing our grief, fears, pain and yes JOYS are soul breaking and allows personal growth in ourselves and the people we share it with. Sending hugs from soggy CA. Amber Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Don, What good is a support group if a member can't offload??? You dont' have to apologise for reaching out. I hope you felt better afterwards.... Luv anne You don't have to be handicapped to be different.Everybody's different!Kim Peek my bad attitude Hi everyone. I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. Normally I maintain. I hope you will forgive me. I will try to do better. love don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Don darlin,, this IS THE PERFECT PLACE to offload those feelings!!! What good would a support group be if you couldnt just be yourself? We ALL understand those feelings because we all have had them,, but NOW that you've let it all hang out, its time to start looking for positive things to do. I can guarantee you that once you start doing positive things for OTHERS, it WILL make YOU feel much better! One day, after you've gotten rid of this virus, you WILL LOOK BACK and see just how blessed you really were! Now, stop appologizing.. just try to find ONE THING today that you can be 'grateful' for,, start a 'gratitude journal',, I can tell you that it helped me tremendously... write 1 or 2 things every day that you can be grateful for,, somedays I remember writing that I was grateful because I was still breathing.. or that I had one good eye left that had decent and correctible vision.. Most days I could find many things to be grateful for.. and in looking back at my journal, it made me smile as I went from being so depressed about having this disease to being grateful FOR having it, that I could look and see how many new friends I had made from this virus... ok, on with the day!Jackie Subject: my bad attitudeTo: Hepatitis_C_Central Date: Sunday, November 2, 2008, 11:19 AM Hi everyone. I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. Normally I maintain. I hope you will forgive me. I will try to do better. love don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Hi Don, You da GOOD man, too! A difficult but great thing to do is: when feeling o.k., like you seem today, do something positive for yourself. Feel happy for yourself, yes, but also go out, and search that net for your support group and potential friend or buddy. Great to hear that you can have a positive day! > > Hi everyone. > I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. > Normally I maintain. > I hope you will forgive me. I will try to do better. > love > don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 No problem , this is a place to vent and let out all frustrations (as long as you don't attack anyone personally). We are here to support you through it all honey . my bad attitude Hi everyone. I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. Normally I maintain. I hope you will forgive me. I will try to do better. love don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Well put ! Re: my bad attitude Hi ,I'm glad to hear you are finding your "sunshine" today. I was raised with the belief that if all days are sunny, how long would we appreciate them? I think despair and grief along with appreciation for a blessed day is part of the journey with any disease or disability- whether ours or a loved one. Grief can be a powerful entity that we need to face an honor the frailty of who we are and build up our inner strength for the days, hours, minutes, seconds that we can grasp. , no apologies are needed when you are amongst friends. I am thankful that you felt safe enough to honor us with your honesty. Sometimes just verbalizing our grief, fears, pain and yes JOYS are soul breaking and allows personal growth in ourselves and the people we share it with. Sending hugs from soggy CA. AmberSent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Hi Suzy Your absolutely right, and I am trying. On this site you and are my heros. You for your ability to fight Hep C off into old age and wisdom, and her because she is so dang smart about the science. I truely admire you both. Its been a real chore each day for me to get up and do something, and not just sit and mope. Somedays I am successful, others......well being alone its easy to just give up, go to sleep, and hope tomarrow is better. I have tried to find a friend near me whom I can hang with, or just talk to. I do do other stuff too like be part of my mental health support group 4 days a week, and lurk here reading what you all are talking about. I have little understanding, not wearing you alls shoes. Most times I just feel lost. I have tried to find a local support group I could join, but there doesnt seem to be any. Surely Im not the only one with hep C in this area, altho I feel like I am. On my good days I ride my bicycle and explore. [Not many of those.] I am trying to keep my chin up. love don in kansas Subject: Re: my bad attitudeTo: Hepatitis_C_Central Date: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Ty Don , I think the only reason I am smart about this is because of being a paramedic and being a premed student lol . What part of Kansas are you in I think I remember a website that tells all about live support groups in each state and I can try to find it for you or a close city . Re: my bad attitudeTo: Hepatitis_C_Central Date: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Hi I have searched hi and lo for a local support group around salina kansas where I live. The methodist church had one 3 years ago but only had 3 members, and then none, so they closed. The lady who started it has long since moved away. I have found other support groups but they are far away [no car] in other citys or national/international, like Hep C Centeral, and Janis7, on the internet. Im alone facing this hep C crap, and have no idea who to talk to, which doctor to see, anything. Alls I know at this point is that I have it, I am RNA 1B, and my viral load is 86009, and something 4.9. [hcd/hcv?]. The doctor who gave me these numbers was a Dr Zackery, at mercy hospital, manhatten, whom I have tried to e-mail. no luck there. I dont have long distance on my phone so I cant call. I do have my bad days but as yet am not suffering bad from hep C, but still, I think I should be under a doctors care who knows about Hep C. The doctors here are good but not in that class. I moved here thinking I would have support and a good doctor. I was wrong, and cannot move again for a long while, and where do I move to anyways. I have SSI, food stamps, and a kansas medical card. Alls I have to pay for is my headmeds, 3.00 per script co-pay. The rest of my medical is free as far as I know. I feel like Im in limbo land, all alone. Money is tight. Today Im going to shut off my TV. Thank God I still have phone and the internet land line, and radio/CD player. I admit, I am in dispair. My ex walked, no family support, no friends to just hang with. I spend my days worrying. I do try to do stuff but nothing is satisfying. Thank God for the headmeds. I dont want to kill myself anylonger. Can I come live with you? lol Just kidding. Im trying to keep my chin up, and thanking God that my symptoms arent so bad. But Im afraid they may get that way unless I wake up from this dream state and take care of business. Any and all advice, help, whatever is welcome from anyone. One plus is that I dont do street drugs, alcohol, caffeen products, and havent outside of pot for 30+ years, and I am trying to stuff myself with food. No fried crap, little red meat, no Macs junk food, little salt, but sugar I fall into, no candy, cakes, pies, etc. I do have a bad attitude about this Hep C stuff. It just doesnt seem fair. But Im willing to face it, and beat it, if I can. I dont want to be disabled, or die. Not from this. Let me choke to death on a joint. Ok, you can call the wah-bulance anytime. lol love don in kansas From: ancientkron <ancientkron@ yahoo.com>Subject: [Hepatitis_C_ Central] Re: my bad attitudeTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Dang it is hard to find support groups in Kansas , I am sorry I found this one , I don't know if it's to far for you or not but here is some info KANSAS (KANSAS CITY): A meeting is held the second Wednesday of each month at KU Medical Center, Prarie Room, which is nearby Delp cafeteria. Parking is available in the parking garage across the street from the main hospital entrance on Cambridge, 2 blocks west of State Line Road at 39th street. Ask at the info desk for directions to the Delp cafeteria. Phone (913)677-6561 This is the only live support group for Kansas , I even called the Kansas capter of the American Liver Foundation and they have the same one . Keep your chin up sweety , life won't always be bad for you . Sometimes we just have to weather out the storms (so to speak) before sunnier times . xoxo [Hepatitis_C_ Central] Re: my bad attitudeTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Don, from my point of view your posts are very sobering. I hardly ever think about the profundity of the effects that this disease can bring. The only time I was really ill was when I was on treatment and alone. Now that I am offf treament I am feeling bretty good and need to remember that I NEED to take care of myself through diet etc. my heart really goes out for you and wish that you were near so that I could keep an eyeball on you. Please, please, please try to find a group near you as was suggested by Rick. We are all here for you! Steph Subject: my bad attitudeTo: Hepatitis_C_Central Date: Sunday, November 2, 2008, 11:19 AM Hi everyone. I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear. Normally I maintain. I hope you will forgive me. I will try to do better. love don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Thank you . I found that one too but I have no car, and its 2+ hours away, one way from me. You would think someone else in kansas had coodies besides me. Ive spent the afternoon trying to access the doctor who did my tests for RNA and viral load. He is a gastroenterologist. Does that sound right? Couldnt find an e-mail for him or Mercy hospital where he works. Cant call. No long distance phone. I would like to contact him. I dont know what for. My minds blank of questions to ask. I dont know how I would get in to see him anyway. He's about 50 miles away, and again, no car. I can see me bicycling down the freeway to go see him. Couldnt do that when I was young. Then theres the cops. Maybe I can make it thru the winter and next year figure out how to move closer to KC. Better yet, denver. Pots legal there Ive heard. I dont know. I dont know. I just dont know. This hep C crap just might kill me as I have no access to any medical care. Dont want to think that way but it has crossed my mind. Maybe this is God's plan for me. My heart has gone out to those in other countrys, children and such, who are alone, and injured or sick. Ive thought about joining a study thing too. Be a guinea pig. lol oink oink Well thank you for trying. Keep well. love don in kansas From: ancientkron <ancientkron@ yahoo.com>Subject: [Hepatitis_C_ Central] Re: my bad attitudeTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 I went for 8 yrs with no insurance and the few times I was bad enough to see a doc it was a cash thing and with the lab payments lol But I have been where you are trust me . The town is a small one and it looks like an area where if you told someone you had hep c they would shun you . Have patience hep c doesn't kill over night it takes 30+yrs and if you have questions for your doctor write them down that way when you do forget them you have a list made up already . Your gonna want to be treated by a general practioner for the time being and he can monitor your labs etc . [Hepatitis_C_ Central] Re: my bad attitudeTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Hi Don, Thanks for the kind words---but I just lived to this age because I haven't died yet.. I didn't know I had Hep C for many years, so I didn't worry about it. I have known I had something wrong with my liver since 1966. Have you gotten your biopsy yet? I don't remember seeing your results for it. That will tell you more---imagination can be a wonderful tool or a real bummer--depending on what is happening in life. has posted to you since I started this and she has some great advice. Look at posting on Dr Berkson to see what you can do NOW to help yourself-- You can send me your phone off or on post and I will call you now and then--- It is always nice to hear a voice. Cheers and hugs, SuziQ Quinn In the swamp in secluded recesses, a shy and hidden bird is warbling a song. Walt Whitman From: ancientkron <ancientkron@ yahoo.com>Subject: [Hepatitis_C_ Central] Re: my bad attitudeTo: Hepatitis_C_ Central@yahoogro ups.comDate: Sunday, November 2, 2008, 2:04 PM Hi Don,Your attitude will not hurt me--but it will hurt you. Find something positive to do--Feed a stray kitten--Say hello to a stranger--Make a list of things you DO have--Put out bread crumbs for the birds--Be glad you have SSI--My friend, who I often fed, waited 3 yrs and then found out he has terminal lung cancer that could have been treated if they had given him his SSI faster so he could get medical treatment. He is alone and in his 40's. Don't friggin maintain--get active in living. Maybe you will be like me and live with the disease--until you are 74 and still have it and still can do things. Be grateful you don't have something that will put you in a wheelchair-- unable to care for yourself. Your life is what YOU make it---with or without Hep C. I do not have to forgive you because it is not me that you are mis-treating- -it is yourself. Hugs, SuziQ >> Hi everyone.> I want to appologize for my bad attitude yesterday. Seems I was having a bad day, and I came here an spit out a bunch of negativity of which I doubt any of you needed to hear.> Normally I maintain.> I hope you will forgive me. I will try to do better.> love> don> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 Pot won’t help your physical, or your emotional health. Since you’re not currently smoking, some of your confusion and irritability may be due to withdrawal. Yes, there is a withdrawal syndrome for marijuana (I have a Master’s degree in Addiction Psychology and 20 years in recovery). Psychoactive substances will all hurt your compromised liver. None are safe, not even weed. It may be safer than alcohol, but is not safe. There are consequences to anything we consume. Since you can’t find a face-to-face Hep C support group, you might want to consider a 12 Step meeting, like AA or NA or even Marijuana Anonymous. J Matchinsky From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Christ Sent: Monday, November 03, 2008 4:42 PM To: Hepatitis_C_Central Subject: Re: Re: my bad attitude Better yet, denver. Pots legal there Ive heard. I dont know. I dont know. I just dont know. Quote Link to comment Share on other sites More sharing options...
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