Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 I certainly do not want to take your situation lightly, far from it, and I do sympathize. But in a funny sort of way, it makes me feel good to read that you have RA for 20 year and are still up and about. According to my 2nd rheumy, --the 1st one retired-- I will be dead in 9 years. Maybe I should start planning my funeral party and send her an invitation, that should make her think a little before she blurrs out statements like that. I am still p-o'd about it. June Dixon <juner24@...> wrote: Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 , I am glad I made you feel good and I know what you mean about it being funny. Also remember that when I was first diagnosed and for many years after, there were no biologics available, very little in pain management but at age 74 I have always kept active as possible in between surgeries and up until this year taught medical students at least twice a week. Keep the faith. Hugs June ----- Original Message ----- From: C. Y. I certainly do not want to take your situation lightly, far from it, and I do sympathize. But in a funny sort of way, it makes me feel good to read that you have RA for 20 year and are still up and about. According to my 2nd rheumy, --the 1st one retired-- I will be dead in 9 years. Maybe I should start planning my funeral party and send her an invitation, that should make her think a little before she blurrs out statements like that. I am still p-o'd about it. June Dixon <juner24@...> wrote: Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 That is also my plan, June. I am going to live life to its fullest as long as I possibly can. My sense humor does helps... so do my miles and miles of guts! Hugs to you too. June Dixon <juner24@...> wrote: , I am glad I made you feel good and I know what you mean about it being funny. Also remember that when I was first diagnosed and for many years after, there were no biologics available, very little in pain management but at age 74 I have always kept active as possible in between surgeries and up until this year taught medical students at least twice a week. Keep the faith. Hugs June ----- Original Message ----- From: C. Y. I certainly do not want to take your situation lightly, far from it, and I do sympathize. But in a funny sort of way, it makes me feel good to read that you have RA for 20 year and are still up and about. According to my 2nd rheumy, --the 1st one retired-- I will be dead in 9 years. Maybe I should start planning my funeral party and send her an invitation, that should make her think a little before she blurrs out statements like that. I am still p-o'd about it. June Dixon <juner24@...> wrote: Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
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