Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
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