Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Hi Clair I read all the post but dont write as much as I should .I just wanted to tell you I was dx with RA when I was 27 and am now 58 and am still here ha ha ha Cant believe your rheumy said something as stupid as that Love Joyce from the Uk xxxxxxxxxxxxxxxxx " C. Y. " <cjmy3454@...> wrote: I certainly do not want to take your situation lightly, far from it, and I do sympathize. But in a funny sort of way, it makes me feel good to read that you have RA for 20 year and are still up and about. According to my 2nd rheumy, --the 1st one retired-- I will be dead in 9 years. Maybe I should start planning my funeral party and send her an invitation, that should make her think a little before she blurrs out statements like that. I am still p-o'd about it. June Dixon <juner24@...> wrote: Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Thanks, Joyce. I can't believe she was that stupid either. Good thing I have a healthy sense of humor. Cool, you are form the UK. Although I live in Chicago now, I am originally from Belgium. Greetings, neighbour. joyce madine <joycemadine@...> wrote: Hi Clair I read all the post but dont write as much as I should .I just wanted to tell you I was dx with RA when I was 27 and am now 58 and am still here ha ha ha Cant believe your rheumy said something as stupid as that Love Joyce from the Uk xxxxxxxxxxxxxxxxx " C. Y. " <cjmy3454@...> wrote: I certainly do not want to take your situation lightly, far from it, and I do sympathize. But in a funny sort of way, it makes me feel good to read that you have RA for 20 year and are still up and about. According to my 2nd rheumy, --the 1st one retired-- I will be dead in 9 years. Maybe I should start planning my funeral party and send her an invitation, that should make her think a little before she blurrs out statements like that. I am still p-o'd about it. June Dixon <juner24@...> wrote: Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 In a message dated 2/21/2006 11:43:58 AM Central Standard Time, joycemadine@... writes: just wanted to tell you I was dx with RA when I was 27 and am now 58 and am still here ha ha ha That's very reassuring. For the older ones who have been there before, Kudos to you. Battling RA or any other disease is tough Glad you found a way to fight it. hugs from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Yes it is good you have a sense of humor...lol.. Yes I am in the Uk I dont think there is anyone else in the group from the Uk.. How long have you lived in Chigago Love Joyce xxxxxxxxxxxxxxx " C. Y. " <cjmy3454@...> wrote: Thanks, Joyce. I can't believe she was that stupid either. Good thing I have a healthy sense of humor. Cool, you are form the UK. Although I live in Chicago now, I am originally from Belgium. Greetings, neighbour. joyce madine <joycemadine@...> wrote: Hi Clair I read all the post but dont write as much as I should .I just wanted to tell you I was dx with RA when I was 27 and am now 58 and am still here ha ha ha Cant believe your rheumy said something as stupid as that Love Joyce from the Uk xxxxxxxxxxxxxxxxx " C. Y. " <cjmy3454@...> wrote: I certainly do not want to take your situation lightly, far from it, and I do sympathize. But in a funny sort of way, it makes me feel good to read that you have RA for 20 year and are still up and about. According to my 2nd rheumy, --the 1st one retired-- I will be dead in 9 years. Maybe I should start planning my funeral party and send her an invitation, that should make her think a little before she blurrs out statements like that. I am still p-o'd about it. June Dixon <juner24@...> wrote: Hi Sharon, I bet you feel better already just getting your thoughts out to us. Everyone here can relate to what you are dealing with and you will find great support here. As far as having to learn to live with pain this is very wrong. You have to take an aggressive approach to your doctors and insist they find the right pain medication to help you. It is bad enough to live with our disease but to then ask us to live with daily pain is just plain evil. At the beginning of my journey (20+ years) I was told by my rheumy that he couldn't cure me but could keep me comfortable. Months later, I went in to see him and practically shouted at him about the statement he made and told him he broke his promise because I was more than just uncomfortable, I was in pain 24 hrs/day. It took a while but eventually he did find a combo of pain meds that did the trick. These days, doctors (well, most) have come full circle from being scared to prescribe narcotics to realizing patients have a right to whatever med it takes to provide some relief. Sorry this is so long but is a subject I feel very strongly about and I am part of a group who are fighting for easier access to much needed medications. Hugs June Quote Link to comment Share on other sites More sharing options...
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