I just did the PET scan for initial stage diagnosis of lymphomaIve some ????

[Guest guest]

Has anyone else gone through this? What do I even ask? Im allergic to

latex and also have mcs & other things. My liver/spleen are enlarged

and I did the liver biopsy the other week. I should get all results

this week. Im 39, I know this is all related to the misdiagnosed

celiac, I didnt get diagnosis til 3 years ago. All 6 kids have it

also. Ive also Hashis untreated and a few other autoimmune

diseases.Celiac is the only autoimmune disease that is l00% treatable

with diet, a gluten free one for life. I know Ive done what Im

supposed to and Im ok with all of this, I just want to be prepared to

know what to even ask the oncologist. And he thought he was done with

me after the bone marrow biopsy! I was tested for masto and he said it

was neg.but the tryptase level was below normal and no 24 hr.urine

test was done to check the histimine levels. If anyone has any

suggestions, please send them to me. I would greatly appreciate it.

Thank you all very much. Lynne