Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Good to hear you are hanging in.. I recall some folks did really well with the Procrit and it made them feel ever so much better. Sadly, generally all conventional meds have sides, just some affect us more than others.. I hope that if you must have it, it does you good.. Continue to think positive, that helps! Sheena I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Hi , I can relate. I liken the feeling to having the flu and a hangover. I am at week 12 and it has gotten better. I have good/bad moments instead of days. I have five children and work part-time. There are some days where I do spend a lot of time in and out of bed. I have noticed if I have a super busy day with work and the kids' I pay the next day. I try to listen to my body and rest when it tells me. If I don,t - I do pay. I'm glad the sides of tx seem mild for you. I often wonder if the stage of liver disease has something to do with the sides. I only have very mild fibrosis with some " fatty pocket. " . The dr that did my biopsy said my liver looked fantastic considering the length I have been dx'd and high viral load. Hugs, Amber - update: I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Sent via BlackBerry by AT & T Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 You GO, lady, 5 kids and into week 12, you are doing such a super job! Glad you slow down when need be, that can only help! Hi , I can relate. I liken the feeling to having the flu and a hangover. I am at week 12 and it has gotten better. I have good/bad moments instead of days. I have five children and work part-time. There are some days where I do spend a lot of time in and out of bed. I have noticed if I have a super busy day with work and the kids' I pay the next day. I try to listen to my body and rest when it tells me. If I don,t - I do pay. I'm glad the sides of tx seem mild for you. I often wonder if the stage of liver disease has something to do with the sides. I only have very mild fibrosis with some "fatty pocket.". The dr that did my biopsy said my liver looked fantastic considering the length I have been dx'd and high viral load. Hugs, Amber - update: I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Sent via BlackBerry by AT & T ------------------------------------ It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Amber, Thank you for the response. I appreciate your support. Wow 5 kids. I always wanted alot of kids. God bless. I agree bad moments not bad days. I had fatty pockets to. Someone said it might have to do with viral load. I dont really know I am just so thankful. Is the virus undetected and is this your first time on treatment? Subject: Re: update:To: "Hepatitis _C_Central" <Hepatitis_C_Central >Date: Sunday, November 23, 2008, 11:56 AMHi , I can relate. I liken the feeling to having the flu and a hangover. I am at week 12 and it has gotten better. I have good/bad moments instead of days. I have five children and work part-time. There are some days where I do spend a lot of time in and out of bed. I have noticed if I have a super busy day with work and the kids' I pay the next day. I try to listen to my body and rest when it tells me. If I don,t - I do pay. I'm glad the sides of tx seem mild for you. I often wonder if the stage of liver disease has something to do with the sides. I only have very mild fibrosis with some "fatty pocket.". The dr that did my biopsy said my liver looked fantastic considering the length I have been dx'd and high viral load. Hugs, Amber - update: I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Sent via BlackBerry by AT & T ------------------------------------ It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 we found out I had the virus, because I was getting more and more fatigued. Got to the point that I couldn't work. Just didn't have the enegry. I did treatment twice and each time it improved my health. Although I did reach undetectable the last time I did treatment I reverted back to the virus before the 6 month period. But it did improve my health and now I am healthy enough to return to work. I work 40 hours a week, clean my house with all gusto that I can. LOL So if I have a chance to treat again, I will. What doesn't kill me makes me stronger. LOL Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Sunday, November 23, 2008 9:46:43 AMSubject: update: I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 , IM glad you're tolerating treatment so well,, it gives us hope that more ppl will be able to make it through the treatment phase,,you're right, it does affect everyone so differently,, well hang in there , keep doing exactly what you are and keep us posted! hugs jax Subject: update:To: Hepatitis_C_Central Date: Sunday, November 23, 2008, 7:46 AM I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Im glad that you have energy. If there is one thing I have learned through this processis how helpless we are without our health. Subject: Re: update:To: Hepatitis_C_Central Date: Sunday, November 23, 2008, 4:55 PM we found out I had the virus, because I was getting more and more fatigued. Got to the point that I couldn't work. Just didn't have the enegry. I did treatment twice and each time it improved my health. Although I did reach undetectable the last time I did treatment I reverted back to the virus before the 6 month period. But it did improve my health and now I am healthy enough to return to work. I work 40 hours a week, clean my house with all gusto that I can. LOL So if I have a chance to treat again, I will. What doesn't kill me makes me stronger. LOL Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber From: Elder <lsl42003yahoo (DOT) com>To: Hepatitis_C_ Central@yahoogro ups.comSent: Sunday, November 23, 2008 9:46:43 AMSubject: [Hepatitis_C_ Central] update: I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! I would love to hear from you Rita and on how its going? Love walking the path with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 It really took me by surprise. I just seem to get more and more enegry as time went along. It was a I am grateful moment in my life. Love Janet > > > Subject: Re: update: > To: Hepatitis_C_Central > Date: Sunday, November 23, 2008, 4:55 PM > > > > > > > > > > we found out I had the virus, because I was getting more and more fatigued. Got to the point that I couldn't work. Just didn't have the enegry. I did treatment twice and each time it improved my health. Although I did reach undetectable the last time I did treatment I reverted back to the virus before the 6 month period. > But it did improve my health and now I am healthy enough to return to work. I work 40 hours a week, clean my house with all gusto that I can. LOL > So if I have a chance to treat again, I will. What doesn't kill me makes me stronger. LOL > Love > Janet > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > Frederick Faber > > > > > > > > > From: Elder <lsl42003yahoo (DOT) com> > To: Hepatitis_C_ Central@yahoogro ups.com > Sent: Sunday, November 23, 2008 9:46:43 AM > Subject: [Hepatitis_C_ Central] update: > > > > > > > > > I took my second shot Friday night. I stayed in bed most of yesterday. I was better then last week but very tired. I woke up at midnight with every bone in my body hurting, Took 2 Advil and went back to sleep. Today I feel fine (so far). I need to stay away from the bed its just to easy to climb in. I have even more of my ankles back today so that is really exciting, It is really amazing how this virus affects everyone so differently. There is no pattern that I see. Some feel light symptoms and some cant work. I pray that I continue to feel the way I do on the medicine. Last week I refused the procrit. I didn't like what I read about it. They gave me a 2 week reprieve. I just didn't want those side affects because I was feeling so good. I will end up having to have it but I am gong to stall as long as I can. > > All week I was like the energizer bunny. If I only have to be uncomfortable one day a week I can live with it.I just really need to drink that water and eat good. Stay away from cookies and processed foods. It does make a difference. 46 left and counting! > > I would love to hear from you Rita and on how its going? Love walking the path with you. > > > Quote Link to comment Share on other sites More sharing options...
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