Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 You did good, Penny and how great to have such a special friend to help see you through.. Be sure to take something if you get achey and drink lots of fluids. Stay warm.. Many prayers are with you.. Hugs, Sheena Hi,I did my first shot tonight. So far, so good. It's only been a couple of hours, though. My friend, who has done the treatment two times and also has cirrhosis came over to help me with it, to give support, and pray with me that everything will go well. Afterwards, we watched a video of her jumping out of a plane when she went sky diving a few years ago. That was so cool! My brother and I always wanted to do that, but we never did. I think my doctors would frown on that now after having a transplant.. .lol.We also took a lot of photos of the two of us afterwards. We just kind of made a little fun party out of it. She will be helping me next week and the week after too. My husband didn't even want to be in the same room. He hates needles.I hope it all goes well with minimal side effects.Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2008 Report Share Posted December 2, 2008 AWWW way to go Penny!!! Im glad you had a friend there to help you through the first shot. Did you take your tylenol 30 min before you did your shot? If not, you might want to think about taking some now and again in 4 more hours to stay on top of the side effects.. Its sometimes better to prepare for fever, chills etc before you get them so that you dont have to wait in misery for the meds to take effect.. now dont forget to drink your water too! Check in with us in the morning and I will personally pray that you will have an easy nite! hugs jax Subject: One Down 47 To GoTo: Hepatitis_C_Central Date: Tuesday, December 2, 2008, 7:58 PM Hi,I did my first shot tonight. So far, so good. It's only been a couple of hours, though. My friend, who has done the treatment two times and also has cirrhosis came over to help me with it, to give support, and pray with me that everything will go well. Afterwards, we watched a video of her jumping out of a plane when she went sky diving a few years ago. That was so cool! My brother and I always wanted to do that, but we never did. I think my doctors would frown on that now after having a transplant.. .lol.We also took a lot of photos of the two of us afterwards. We just kind of made a little fun party out of it. She will be helping me next week and the week after too. My husband didn't even want to be in the same room. He hates needles.I hope it all goes well with minimal side effects.Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Congratulations on starting treatment ! Your hubby will get over it eventually lol One Down 47 To Go Hi,I did my first shot tonight. So far, so good. It's only been a couple of hours, though. My friend, who has done the treatment two times and also has cirrhosis came over to help me with it, to give support, and pray with me that everything will go well. Afterwards, we watched a video of her jumping out of a plane when she went sky diving a few years ago. That was so cool! My brother and I always wanted to do that, but we never did. I think my doctors would frown on that now after having a transplant...lol.We also took a lot of photos of the two of us afterwards. We just kind of made a little fun party out of it. She will be helping me next week and the week after too. My husband didn't even want to be in the same room. He hates needles.I hope it all goes well with minimal side effects.Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Penny...I'm new here and am learning much but still confused. May I ask, you had a liver transplant and now must still go thru the treatment? Did you do the treatment before the transplant?...Thanks,Debbie...PS. BEST WISHES > > Hi, > > I did my first shot tonight. So far, so good. It's only been a couple > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hi, I did take Tylenol 30 minutes before doing my shot. I didn't have any fever, chills, body aches, or anything. This morning I did wake up with a bit of a headache, but it isn't any different than the headaches I get now and then anyway. It will be easy to drink enough water because I am sooooo thirsty!! Penny > > > Subject: One Down 47 To Go > To: Hepatitis_C_Central > Date: Tuesday, December 2, 2008, 7:58 PM > > > > > > > Hi, > > I did my first shot tonight. So far, so good. It's only been a couple > of hours, though. My friend, who has done the treatment two times and > also has cirrhosis came over to help me with it, to give support, and > pray with me that everything will go well. Afterwards, we watched a > video of her jumping out of a plane when she went sky diving a few > years ago. That was so cool! My brother and I always wanted to do > that, but we never did. I think my doctors would frown on that now > after having a transplant.. .lol. > > We also took a lot of photos of the two of us afterwards. We just kind > of made a little fun party out of it. She will be helping me next week > and the week after too. My husband didn't even want to be in the same > room. He hates needles. > > I hope it all goes well with minimal side effects. > > Penny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hi, I did not do the treatment before my transplant, but even if I did do it before, I would still have to do it afterwards. The Hep C is in the blood and it comes on stronger after a transplant. A liver transplant does not stop the Hep C, so it must be treated to prevent it from damaging the new liver like it did the original. Penny > > > > Hi, > > > > I did my first shot tonight. So far, so good. It's only been a > couple > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Hi, all! I went through 3 full 48 week treatments before my transplant on 9/12/08, and I'm sure I'll have to go through tx again in about a year. Very few liver recipients get away without another round. I don't look forward to it, but it sure beats the alternative! > > > > > > Hi, > > > > > > I did my first shot tonight. So far, so good. It's only been a > > couple > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Thanks Penny. I will never try the treatment but am still interested in learning. I'm trying to even imagine a biopsy if it's ever needed so to try to think of a transplant is totally beyond me. My hat is off to all you folks who are courageous enough to go thru what have done and continue to do!...Debbie > > Hi, > > I did not do the treatment before my transplant, but even if I did do > it before, I would still have to do it afterwards. The Hep C is in > the blood and it comes on stronger after a transplant. A liver > transplant does not stop the Hep C, so it must be treated to prevent > it from damaging the new liver like it did the original. > > Penny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 You went thru treatment 3 times ??? Did it just not help at all, hence the transplant?...Debbie > > > > Hi, > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 Viral load did go to 0% all 3 times, but didn't stick. I must admit, however, that I never stopped the booze until AFTER the 3rd tx. So the idiot got caught, big time! I think the alchol was what got me through, though. Can't look back, guys and gals. We've all made stupid mistakes, as have those who don't have this disease. It's a big boat with plenty of room, and we're filling it faster and faster. FDA & parmaceutical companites need to get on the fast track now! > > > > > > Hi, > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2008 Report Share Posted December 3, 2008 yeaaaaa, Penny. congrats on your 1st shot. i take my 3rd shot this friday and i think there are at least 2 others here on their 3rd or 4th shot. i had bad shivers after about 6 hours of my first shot and no side effects the second but i don't expect that to be the norm AT ALL. i only have to do the 26 week thing but at least it has begun. congrats again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 If the first shot is the worst, then the rest should be a piece of cake, I hope. I thought I was getting by easy with the treatment because I didn't have any fever, chills, or body aches Tuesday over night after the shot. I did, however, wake up with a bit of a headache yesterday morning like I mentioned before. As the day went on, it got worse. Finally, around 3:00, I was nauseous and had a big surprise...lost my cookies... all water. I was drinking a lot of water because I was so thirsty, and they stress that you should drink half your body weight in ounces when you're on treatment. I already drink at least 8 glasses a day since they stressed that after the transplant, that I must stay hydrated. I was nauseous off and on ever since. My coordinator said the first 24 hours after the shot are the worst. I ate supper, one tiny piece at a time, having to take a deep breath between each bite because each bite made me nauseous. I started getting a back ache yesterday too, but that's not a big deal. I hardly noticed it. My husband called my coordinator when I got sick, and she said I was drinking too much water, to not drink so much. I started feeling much better by bed time, and ate the rest of my supper that I couldn't finish earlier. Today, I feel really good, except I am tired. My appetite is still good, but I'm not liking my sweets as much as I did, which isn't a bad thing. My husband was let go from his job because of cut backs, so now he will be getting unemployment and money will really be tight. His job has been getting really hard on his body anyway, and he has been injured on the job a couple of times and has a Workman's Comp claim in, so I think that has something to do with why he lost his job too. He now has high cholesterol too that he needs meds for, and he won't have any insurance. I have Medicare, so I'm taken care of. I'm not too worried about it. Things will work out. Thanks everyone for all your support. Penny > > > > From: preciouspenny3 <preciouspenny3@ ...> > > Subject: [Hepatitis_C_ Central] One Down 47 To Go > > To: Hepatitis_C_ Central@yahoogro ups.com > > Date: Tuesday, December 2, 2008, 7:58 PM > > > > > > > > > > > > > > Hi, > > > > I did my first shot tonight. So far, so good. It's only been a > couple > > of hours, though. My friend, who has done the treatment two times > and > > also has cirrhosis came over to help me with it, to give support, > and > > pray with me that everything will go well. Afterwards, we watched a > > video of her jumping out of a plane when she went sky diving a few > > years ago. That was so cool! My brother and I always wanted to do > > that, but we never did. I think my doctors would frown on that now > > after having a transplant.. .lol. > > > > We also took a lot of photos of the two of us afterwards. We just > kind > > of made a little fun party out of it. She will be helping me next > week > > and the week after too. My husband didn't even want to be in the > same > > room. He hates needles. > > > > I hope it all goes well with minimal side effects. > > > > Penny > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I know all about having no appetite. I only ate one meal a day for years when I had no appetite. After my transplant, that changed, and it was so good to eat again, especially after the last few months before the transplant when I was so sick and lost my cookies several times a day and couldn't hardly eat at all. My husband's insurance will last through the end of the year, but then it's done. The doctor wants him to take a medication that says it may increase his liver enzymes for his cholesterol, and I don't like that. Even though he is pretty healthy, I don't think he should take something that can do that. There has to be other medications that don't do that. Thanks again for all your support. Penny > > > > > > From: preciouspenny3 <preciouspenny3@ ...> > > > Subject: [Hepatitis_C_ Central] One Down 47 To Go > > > To: Hepatitis_C_ Central@yahoogro ups.com > > > Date: Tuesday, December 2, 2008, 7:58 PM > > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > I did my first shot tonight. So far, so good. It's only been a > > couple > > > of hours, though. My friend, who has done the treatment two times > > and > > > also has cirrhosis came over to help me with it, to give support, > > and > > > pray with me that everything will go well. Afterwards, we watched > a > > > video of her jumping out of a plane when she went sky diving a > few > > > years ago. That was so cool! My brother and I always wanted to do > > > that, but we never did. I think my doctors would frown on that > now > > > after having a transplant.. .lol. > > > > > > We also took a lot of photos of the two of us afterwards. We just > > kind > > > of made a little fun party out of it. She will be helping me next > > week > > > and the week after too. My husband didn't even want to be in the > > same > > > room. He hates needles. > > > > > > I hope it all goes well with minimal side effects. > > > > > > Penny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Thanks. Yes, email me privately about the things you mentioned here. I would sure appreciate it. He started eating oatmeal every morning for breakfast, and he did lower his triglycerides to the normal range, but his LDL was still high. Penny > > > > > > > > From: preciouspenny3 <preciouspenny3@ ...> > > > > Subject: [Hepatitis_C_ Central] One Down 47 To Go > > > > To: Hepatitis_C_ Central@yahoogro ups.com > > > > Date: Tuesday, December 2, 2008, 7:58 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > > > I did my first shot tonight. So far, so good. It's only been a > > > couple > > > > of hours, though. My friend, who has done the treatment two > times > > > and > > > > also has cirrhosis came over to help me with it, to give > support, > > > and > > > > pray with me that everything will go well. Afterwards, we > watched > > a > > > > video of her jumping out of a plane when she went sky diving a > > few > > > > years ago. That was so cool! My brother and I always wanted to > do > > > > that, but we never did. I think my doctors would frown on that > > now > > > > after having a transplant.. .lol. > > > > > > > > We also took a lot of photos of the two of us afterwards. We > just > > > kind > > > > of made a little fun party out of it. She will be helping me > next > > > week > > > > and the week after too. My husband didn't even want to be in > the > > > same > > > > room. He hates needles. > > > > > > > > I hope it all goes well with minimal side effects. > > > > > > > > Penny > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Hi , I just started my 14 th week of treatment on Tuesday. I am still working full time also. I will admit I have days were it is so hard to get out of bed in the morning because my whole body hurts. I usually have most of the pain in my hips and legs. Some days it is very difficult to walk, now I was getting my shots in my legs and some one suggested to stay away from the legs and do my stomach. I tried it and it doesn't seem to make to much difference for me. I have had people look at me amazed that I am still working. I look at it this way what is the difference if I lay in bed in pain or go to work and be in pain. As soon as I get home from work I rest for awhile because I am so tired. I am also afraid of loosing my job for taking to much time off. My doctor prescribed the procrit for me also but I can't get it, my insurance is giving me such a hard time, they don't cover it. I have been told that I would feel a lot more energy if I was able to get the procrit shots. They say the procrit shots can cause the same flu like symtoms ( aches and pains) as the interferon shots. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Hi Janet, Thanks for the suggestions. I don't think I'm going to lose any weight with this treatment either. I actually feel more hungry than I did before! That is except for Wednesday, when I couldn't really eat much. Before my transplant when I was so horribly sick and couldn't eat, the only thing I could get down was Carnation Instant Breakfast, so I think I'll try that on the days I don't feel like eating. I have to test my blood sugar twice a day now too since the treatment can cause blood sugar to rise. It has been between 80 and 100 so far. Penny > > > > > > From: preciouspenny3 <preciouspenny3@ ...> > > > Subject: [Hepatitis_C_ Central] One Down 47 To Go > > > To: Hepatitis_C_ Central@yahoogro ups.com > > > Date: Tuesday, December 2, 2008, 7:58 PM > > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > I did my first shot tonight. So far, so good. It's only been a > > couple > > > of hours, though. My friend, who has done the treatment two times > > and > > > also has cirrhosis came over to help me with it, to give support, > > and > > > pray with me that everything will go well. Afterwards, we watched > a > > > video of her jumping out of a plane when she went sky diving a > few > > > years ago. That was so cool! My brother and I always wanted to do > > > that, but we never did. I think my doctors would frown on that > now > > > after having a transplant.. .lol. > > > > > > We also took a lot of photos of the two of us afterwards. We just > > kind > > > of made a little fun party out of it. She will be helping me next > > week > > > and the week after too. My husband didn't even want to be in the > > same > > > room. He hates needles. > > > > > > I hope it all goes well with minimal side effects. > > > > > > Penny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 Hi , I am genotype 1. The doctor told me that the treatment is working. I am very lucky by week 4 it was undetechtable and still is. As far as I know i still have to do the full 48 weeks, I told the doctor I will do what ever it takes. I count the weeks down, it sounds better than how may weeks I have been doing the treatment. I believe the reason I responded so fast is that it was caught in the early stages. I used to be a blood doner for the red cross up till 2 years ago, last November I had major surgery done and exactly three months later I was hospitalized for a week with a major infection due to complications from the surgery, then three months later I was diagnosed with Hep C. My family is there for support but they don't understand. They keep asking if I am undetechtable then why must I do the full 48 weeks treatment? I tried to explain it to them that if I stop treatment to early it will come back and with vengence. I took my mother to a local support group with me so she could understand a little more because she was all over me about getting off the sleeping pills how I am addicted to them. I told her I needed them, well she finally heard it from other people. My boyfriend has been the biggest support. I met him after I was diagnosed. I wasn't sure how he would handle it, but he told me he is with me for the long haul. I don't mean to go on about me, but it feels so nice to talk to other people that can actually relate to the daily tasks we face with pain, headaches and not being able to sleep at night and what ever else goes along with it. Tracey Quote Link to comment Share on other sites More sharing options...
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