Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 S wrote: > > From: " S " <vagor68@...> > > Hello Everyone, > > I was talking with a gentleman yeaterday who has Polymyalgia Rheumatica > (PMR) and was interested in learning more about the AP. > I am faxing him the relavent informantion (since he does not have internet > access). > I checked the Medical history's section of the Rheumatic web page and did > not see anyone who listed this type of RA. > My question to the group is; Does anyone have PMR and if so, has the AP been > helpfull? > > Thanks for your help, > (Reiters Syndrome 5yrs, AP 3 years) This was posted a while back. Polymyalgia Rheumatica/Dr. Chiu? Date: Thu, 14 Jan 1999 14:54:33 -0600 From: Snooks <snooks@...> To: support@... Several times just this week I've been asked about polymyalgia rheumatica so thought it about time we defined it to the group. According to The Merck Manual - Polymyalgia rheumatica is a condition causing severe pain and stiffness in the muscles of the neck, shoulders and hips. It occurs in people over the age of 50 and is twice as common in women as in men. Although painful, polymyalgia rheumatica does not cause weakness or muscle damage. Sometimes polymyalgia rheumatica occurs with temporal (giant cell) arthritis. The stiffness is worse in the morning and after periods of inactivity. A fever, vague discomfort, weight loss, and depression may accompany the muscle symptoms. All these symptoms may develop suddenly or gradually. Diagnosis is made on the basis of the physical examination and test results. Biopsies of muscle tissue will show no evidence of muscle damage, and electromyograms will show no abnormalities. Blood tests may detect anemia. The SED rate is usually very high. Conventional treatment is low dose prednisone which usually results in dramatic improvement. As symptoms subside, the dose is gradually reduced tothe lowest effective dose. Most people are able to stop taking prednisone after 2 to 4 years, athough some need low doses for an even longer period of time. Aspirin and NSAIDS may provide less complete relief. Question: Will the AP work for polymyalgia rheumatica? Answer: I've never known anyone who used the AP for this problem, but since the SED rate is usually very high, that indicates to me an infection of some kind must be involved, and it certainly would be worthwhile to try the antibiotic protocol. Ethel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 1999 Report Share Posted August 13, 1999 In article <19990813200532.77859.qmail@...>, S <vagor68@...> writes >I was talking with a gentleman yeaterday who has Polymyalgia Rheumatica >(PMR) and was interested in learning more about the AP. I am not convinced that it helps in PMR though I have a couple of patients taking it in conjunction with prednisone. ------- Regards, Dr Graham Chiu Prospective Internet Observational Study in Arthritis Home Page http://www.compkarori.com/arthritis/ Contribute at http://www.compkarori.com/arthritis/contrib.htm Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Dear Lara, It would be worth your aunt trying the antibiotic approach. I seem to remember that Dr. Chiu had a polymyalgia rheumatica patient doing well on the antibiotics. Let us know how we can help you with details, Chris. >From: DanDamen@... > >My aunt has been diagnosed with polymyalgia rheumatica, and is on prednisone. > I was wondering if anyout out there knew of other treatments for it - would >AP be an option, or is the disease etiology too different? I would >appreciate any comments. >Thanks, Lara > >------------------------------------------------------------------------ >PERFORM CPR ON YOUR APR! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >1/2121/0/_/532797/_/954120910/ >------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Sbcona@... wrote: > Does anyone have any info on this form of arthritis called polymyalgia > rheumatica? My father is in so much pain and all he has been given is > prednisone. thanks, c > According to The Merck Manual - Polymyalgia rheumatica is a condition causing severe pain and stiffness in the muscles of the neck, shoulders and hips. It occurs in people over the age of 50 and is twice as common in women as in men. Although painful, polymyalgia rheumatica does not cause weakness or muscle damage. Sometimes polymyalgia rheumatica occurs with temporal (giant cell) arthritis. The stiffness is worse in the morning and after periods of inactivity. A fever, vague discomfort, weight loss, and depression may accompany the muscle symptoms. All these symptoms may develop suddenly or gradually. Diagnosis is made on the basis of the physical examination and test results. Biopsies of muscle tissue will show no evidence of muscle damage, and electromyograms will show no abnormalities. Blood tests may detect anemia. The SED rate is usually very high. Conventional treatment is low dose prednisone which usually results in dramatic improvement. As symptoms subside, the dose is gradually reduced to the lowest effective dose. Most people are able to stop taking prednisone after 2 to 4 years, athough some need low doses for an even longer period of time. Aspirin and NSAIDS may provide less complete relief. Question: Will the AP work for polymyalgia rheumatica? Answer: I've never known anyone who used the AP for this problem, but since the SED rate is usually very high, this might indicate an infection of some kind is involved, and it certainly would be worthwhile to try the antibiotic protocol. Ethel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Not to my knowledge. That doesn't mean that there aren't folks out there taking it for this Dx, just I don't know of any. Maybe you could go to one of the LDN sites and ask there. Skip Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Hi all Firstly, thanks, Skip, for your reply to my recent message on polymyalgia. My father's commenced taking LDN for polymyalgia rheumatica. He's just been on it for 1 month now, after being on steroids beforehand. His symptoms are extreme pain and stiffness, particularly in the mornings. These symptoms have worsened since coming off steroids, and he is so stiff some days that he can barely move - at all! His doctor is Dr Phil Boyle, based in Galway, Ireland and this is the first patient he has treated with dad's condition. He was really grateful to find a doctor nearby who would actually prescribe LDN. Phil has previously treated patients with Rheumatoid Arthritis who have seen an improvement in their condition when taking LDN within 2 weeks. My father is very slow to improve, probably due to his previous steroid use. He is taking nutritional supplements as recommended by Dr Bob Lawrence and has also started using serrapeptase (as recommended by in previous message - thanks!) and DL Phenylalanine (thanks for that tip, Cathal!) in the last few days. Does anyone know if it's OK to take both of these together? Just wondering also if anyone else has found improvement very slow (maybe after steroid use) and how long it took before real benefits became obvious? Orla > > Not to my knowledge. That doesn't mean that there aren't folks out there > taking it for this Dx, just I don't know of any. Maybe you could go to one of the > LDN sites and ask there. > Skip > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Is there anyone in this group that has polymyalgia rheumatica. My mom probably has it and has been referred to my rheumy. I would just like to know treatment, and any other information that might be helpful. Meredith in Canada " who is feeling pretty good these days " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I have a friend who has it, and her rheumy prescribes prednisone for it. Sue On Monday, October 30, 2006, at 09:48 AM, Meredith Pinkerton wrote: > Is there anyone in this group that has polymyalgia rheumatica. My mom > probably has it and has been referred to my rheumy. I would just like > to know treatment, and any other information that might be helpful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 My dad had that and I believe it would have responded very well to ldn. A lot is weakness in the shoulders and hips which I experienced with fibromyalgia, and ldn was amazing for me. Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Hi , In the absence of nothing substantive I did a search and found a few results but no real follow up. See low dose naltrexone/msearch?query=polymyalgia\ +rheumatica & submit=Search & charset=ISO-8859-1 Maybe try contacting the person whose father had just started it and see how it went. indigoinmotion wrote: > Hi. I have an uncle who has polymyalgia rheumatica. Has anyone > tried LDN therapy for this condition? Thanks bunches. : ) > Quote Link to comment Share on other sites More sharing options...
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