Re: another new person to the group~Sandy

[Guest guest]

Hi ,

And thanks! Sorry you are so young and in pain, but you are right,

we just have to deal with it...we have no other choice. Glad to hear

about Humira and that it gets easier. =)

Sandy

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> In a message dated 3/3/2006 10:33:32 PM Central Standard Time,

> mrssdaniels2@... writes:

>

> Hi Everyone,

>

> My name is Sandy and I have just been reading up on some of the

posts

> here, and feel that I could have written many. I am (in 2 days I

will

> be) 43 and have had RA for about 8 years now. I have just recently

> changed Rhum. Drs. because my Dr. had to quit, and I love this new

Dr.

> I started out as many here have, with the initial diagnosis, which

> scared the living daylights out of me. I was sure I was going to

either

> A. Die or B. Become a cripple in a wheelchair. At first it hurt

> soooooooooo bad, but in time, the Dr. tried and found the correct

> medications for me to be 'comfortable.' I am never without pain,

but at

> times it is manageable at best. I have been on Prednisone for

about 6

> years now...that and Diclofonec, aka Voltaran (I think that is the

> spelling). My new Dr. has me off the Diclofonec, down to 5 mg. of

> Prednisone (Gosh I love that stuff!) and I have just finished my

first

> injection of Humira. (That was scary, but I did it!) I was

wondering

> if anyone else here is on Humira, and how it is helping them, if

it is.

> My own Dr. is on it as she has some pretty wicked RA herself.

>

> I also want to tell those who have been recently diagnosed,

especially

> those with small childeren who depend on them, to HANG IN THERE

and work

> closely with your Dr. to get on the right meds. It takes time, and

> patience to say the least. If you feel like your meds aren't

working,

> call the Nurse, they are (usually) very understanding and caring,

and

> they know what you are going through. I remember wanting to die,

and I

> would get soooooooo bad, then I would call the Drs office and the

nurse

> would listen to me crying, and we would work on another solution.

It is

> a trial and error disease, but it can become 'liveable' if you

stay on

> top of it.

>

> One more thing...Don't listen to the horror stories...they will

just

> intensify your fear and for nothing!

>

> Sorry this became a novel, but I soooooooooo feel the pain here.

And

> let me know about the Humira thing please.

>

>

>

> Sandy

>

>

>

>

> Welcome Sandy Sorry i havent responded till now. Happy early

birthday in

> case i miss it! HUGS! My name is , i'm 27yrs old with RA.

Young i know

> but nothing i can do about it. My two kids keep me on my toes

wether i want to

> be or not. (ages 2 and 7) Yes i am on humira, been for about 6

months now.

> The shot gets easier once you get into a routine. The medicine has

helped

> quite a bit, but i think i may need to up the doseage or change

meds since it

> isnt working as well as i'd like lately.

> These are a great group of people you just have to give them time

and

> eventually they will reply. and a search for info for

us on everthing

> disease related~THANK YOU GALS! Hope you have a pain free day. HUGS

> from PA

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