RE: Sorry folks for the Confusion

[Guest guest]

No,

this isn’t going to simply go away. I certainly could be wrong

about being told it was ok to take the meds all at once However, I will

trust my doctor over the pharmaceutical company any day. Doctors have

experience dealing with the meds in real life.

I

STRONGLY disagree with any advice here that takes control of treatment away

from the patient and their treatment team.

m

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of redjaxjm

Sent: Monday, December 01, 2008 3:45 PM

To: Hepatitis_C_Central

Subject: Sorry folks for the Confusion

Hi everyone,

There seems to be some confusion regarding when and how to take the

Ribavirin while on Treatment.

The inserts from the companies who manufacture Ribavirin state that

it should be taken in 2 doses, 12 hours apart every day to keep the

blood levels stable and not give the virus a break in order to

replicate.

There is a person who was stating that it is ok to take the meds

anytime during the day and even could take all the meds in ONE dose.

That could be harmful and could reduce the chance of SVR. WE are

responsible to give out the most up to date accurate info, which we

are trying to do.

Our standing on this issue is that one should take their meds twice a

day 12 hours apart. THAT is what the manufacture says, what most

docs, RN's and other health care who truely know this virus state.

IF you want to do your meds in any other cycle, please talk with your

own doc and do what he says.. but understand that if you do it

differently than what the protocol calls for, you may risk your

treatment out come. We will always strive to give out ACCURATE Info

here and we will stop the posting of anyone who is trying to argue

the point with inaccurate info.

Can we move on to other issues now? Please?

This is a great group and we want to get back to supporting one

another!

hugs

jax

[Guest guest]

, I think it's just wonderful that you have such a great doctor and

treatment team. Not all do, and not all can change at will, or whim, either.

To insist that all doctors know more than those that created the drugs

seems ludicrous.

Bottom line, and seems to be common sense to me, I would trust the

manufacturer to know exactly how the drug is going to work best.

I don't think we give advice here as much as encourage folks to work

with their doctors, but also to take charge of their own health care.

Sheena

No, this isn¢t going to simply go away. I certainly could be wrong about being told it was ok to take the meds all at once However, I will trust my doctor over the pharmaceutical company any day. Doctors have experience dealing with the meds in real life.

I STRONGLY disagree with any advice here that takes control of treatment away from the patient and their treatment team.

m

From: Hepatitis_C_ Central@yahoogro ups.com [mailto:Hepatitis_ C_Central@ yahoogroups. com] On Behalf Of redjaxjmSent: Monday, December 01, 2008 3:45 PMTo: Hepatitis_C_ Central@yahoogro ups.comSubject: [Hepatitis_C_ Central] Sorry folks for the Confusion

Hi everyone,There seems to be some confusion regarding when and how to take the Ribavirin while on Treatment. The inserts from the companies who manufacture Ribavirin state that it should be taken in 2 doses, 12 hours apart every day to keep the blood levels stable and not give the virus a break in order to replicate.There is a person who was stating that it is ok to take the meds anytime during the day and even could take all the meds in ONE dose. That could be harmful and could reduce the chance of SVR. WE are responsible to give out the most up to date accurate info, which we are trying to do.Our standing on this issue is that one should take their meds twice a day 12 hours apart. THAT is what the manufacture says, what most docs, RN's and other health care who truely know this virus state. IF you want to do your meds in any other cycle, please talk with your own doc and do what he

says.. but understand that if you do it differently than what the protocol calls for, you may risk your treatment out come. We will always strive to give out ACCURATE Info here and we will stop the posting of anyone who is trying to argue the point with inaccurate info. Can we move on to other issues now? Please? This is a great group and we want to get back to supporting one another!hugsjax

[Guest guest]

i have to say when i was on the riba i was told to tk them 12 hrs apart, i was told it was very important to tk them at the same time but it was ok if i was within the hr of the schduled dose,,,,i just wanted to share what i was told and i wont comment again, Matchinsky wrote: No, this isn’t going to simply go away. I certainly could be wrong about being told it was ok to take the meds all at once

However, I will trust my doctor over the pharmaceutical company any day. Doctors have experience dealing with the meds in real life. I STRONGLY disagree with any advice here that takes control of treatment away from the patient and their treatment team. m From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of redjaxjmSent: Monday, December 01, 2008 3:45 PMTo: Hepatitis_C_Central Subject: Sorry folks for the Confusion Hi everyone,There seems to be some confusion regarding when and how to take the Ribavirin while on Treatment. The inserts from the companies who manufacture Ribavirin state that it should be taken in 2 doses, 12 hours apart every day to keep the blood levels stable and not give the virus a break in order to replicate.There is a person who was stating that it is ok to take the meds anytime during the day and even could take all the meds in ONE dose. That could be harmful and could reduce the

chance of SVR. WE are responsible to give out the most up to date accurate info, which we are trying to do.Our standing on this issue is that one should take their meds twice a day 12 hours apart. THAT is what the manufacture says, what most docs, RN's and other health care who truely know this virus state. IF you want to do your meds in any other cycle, please talk with your own doc and do what he says.. but understand that if you do it differently than what the protocol calls for, you may risk your treatment out come. We will always strive to give out ACCURATE Info here and we will stop the posting of anyone who is trying to argue the point with inaccurate info. Can we move on to other issues now? Please? This is a great group and we want to get back to supporting one another!hugsjax

[Guest guest]

Joyce, its perfectly fine to post what your doc said and you've not created any issues by doing so. Thank you for telling us your story hon!

hugs

jax

No, this isn¢t going to simply go away. I certainly could be wrong about being told it was ok to take the meds all at once However, I will trust my doctor over the pharmaceutical company any day. Doctors have experience dealing with the meds in real life.

I STRONGLY disagree with any advice here that takes control of treatment away from the patient and their treatment team.

m

From: Hepatitis_C_ Central@yahoogro ups.com [mailto:Hepatitis_ C_Central@ yahoogroups. com] On Behalf Of redjaxjmSent: Monday, December 01, 2008 3:45 PMTo: Hepatitis_C_ Central@yahoogro ups.comSubject: [Hepatitis_C_ Central] Sorry folks for the Confusion

Hi everyone,There seems to be some confusion regarding when and how to take the Ribavirin while on Treatment. The inserts from the companies who manufacture Ribavirin state that it should be taken in 2 doses, 12 hours apart every day to keep the blood levels stable and not give the virus a break in order to replicate.There is a person who was stating that it is ok to take the meds anytime during the day and even could take all the meds in ONE dose. That could be harmful and could reduce the chance of SVR. WE are responsible to give out the most up to date accurate info, which we are trying to do.Our standing on this issue is that one should take their meds twice a day 12 hours apart. THAT is what the manufacture says, what most docs, RN's and other health care who truely know this virus state. IF you want to do your meds in any other cycle, please talk with your own doc and do what he

says.. but understand that if you do it differently than what the protocol calls for, you may risk your treatment out come. We will always strive to give out ACCURATE Info here and we will stop the posting of anyone who is trying to argue the point with inaccurate info. Can we move on to other issues now? Please? This is a great group and we want to get back to supporting one another!hugsjax