Re: New to group (((((Lori))))))

[Guest guest]

Greetings Lori:

Welcome to the group. I am so, so very sorry that

your young daughter has to go through the pain of RA,

but at least you do have a name for the monster that

is causing the pain, and having that will bring about

the right treatment for her.

I do not have any personal knowledge of Humira, but I

do use Enbrel and it has really been of great benefit

to me. I take it alone with Mtx. These new biologics

have been working wonders on some patients who had run

out of hope for any improvement, and I pray that the

Humira comes quickly and your daughter will see good

results within a few months. I know how time seems

like so much longer when you are young, and in pain,

but tell her that there is such good hope that Humira

will help her, and if not that, then there are other

medications that can be added, or new ones tried.

It must be so difficult having seen your dad suffer

from RA all those years, and now realizing that your

daughter is also at risk for all that he went through,

and there is nothing that you can do to take away her

pain. But at least you do know what RA is like, and

that is a mixed blessing in this case, as you can

understand what she is going through to a degree that

other family members that have never experienced

anything like this cannot.

I wish like anything that this did not happen to

anybody, let alone a child, but it does and take heart

that at least the medications that were not available

to your father, are available to your daughter, and so

much research and work is being done in trying to find

out just why and how RA works, that I truly hope

someday there will be a cure.

Hugs to both of you, and hang in there - best of luck

with the Humira -

Kathe in CA

--- Lori <lorimaynard@...> wrote:

> Hello all,

>

> My name is Lori and I've joined the group because my

> 12 yod has just

> been diagnosed with Rheumatoid Arthritis. She has

> been sick for some

> months now, but it took while to get a firm

> diagnosis.

>

> Currently, she is in a tremendous amount of pain,

> having trouble

> walking, sleeping, brushing her hair, etc. She is

> on 40 mg per day

> of Prednisone and also taking an NSAID. She's been

> on the Prednisone

> since 2/27 when she couldn't walk at all, and did

> better for about a

> week, but is starting to get worse each day. I'm

> waiting for Humira

> to arrive from our insurance company's specialty

> pharmacy and

> it " should " be here some time next week.

>

> I can't wait to be able to start weaning her off the

> Prednisone

> because I saw what long term usage did to my dad

> (who had RA from the

> time he was 22 to the time he died at 68).

>

> Her RF numbers are extremely high, as are SED rate

> and CCP. I am

> trying to encourage her that once she gets a couple

> of weeks of

> Humira under her belt, she will likely start feeling

> much better.

>

> Do any of you have success stories with Humira that

> you could share

> with me. I would love to have something very

> encouraging to say to

> this sweet young girl of mine who is in so much

> pain.

>

> Thank you in advance for any wisdom you can share.

>

> Lori

>

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

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