Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRY ITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATA IT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN TRIAGE OR SURGERY FOR A GUNSHOT WOUND I WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATE THE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE. WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED ALONE'' AMONGST YOUR LOVED ONES. AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT! FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION, WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 MILLION UNITS LET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE MYSELF FAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT UNDER THE CIRCUMSTANCES VL WAS O TAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL. ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. HIS OPINION I HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURES MY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTION DO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME TO BLEED OUT. I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE?? PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE STORY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Geeze try 5 times lol Re: THE REST OF THE STORY i think most of us here are here because we have already made that decision. it is plain and simple a fight for life and a fight to kill the disease that want's to kill us and for that reason we are willing to suffer through tx and sometimes do it 2 or 3 or more times. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 elizibeth, you are one of the bravest people i have ever met. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Not brave just determined not to let this get me like it got my brother .... besides I still have one child to get to the age of 18 , the other 4 are all adults now lol Re: THE REST OF THE STORY elizibeth, you are one of the bravest people i have ever met. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I AM A VIET NAM VET TOMMY WAS MY BROTHER AND HE ALSO DIED ALONE,CONFUSED,SCARED AND I WAS HOLDING ONE HAND AND MOM WAS HOLDING THE OTHER AS LONG AS YOU HAVE THE HEART TO RETREAT KICK, SCREAM AND DEMAND. IT WILL WORK. WORSE CASE IS OVERNITE IN JAIL AND EVEN THAT WILL GET THEIR ATTENTION aLSO GETTING PHYSICALLY REMOVED FROM A HOSPITAL OR A VA FACILITY BY RENT A COPS CAN BE INTRESTING----OR SO I HAVE HEARD > > Sounds like your a Viet Nam Vet ? My brother died alone , scared and strapped to a hospital bed when he was 28 on Christmas day not long after coming home from Viet Nam . The number of Viet Nam vets with hepatitis c is nearly 750,000 , and the VA for many yrs wouldn't take care of you boys it took many many people fighting for your rights and to pinpoint where the government went wrong . The oversea's vaccines were the culpret . But I can understand you wanting to fight no matter what . I have been diagnosed for 24yrs now , and have done tx once and tried 4 times after that to treat with no luck ....but I will keep trying and trying . So if it were me , yes I would fight and fight to keep treatment . And I still do each time I see my doc I ask lol . Watching first hand what liver failure can do and what it looks like ....I know for damn sure I don't want to go that way either . > THE REST OF THE STORY > > > PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRY > > ITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING > RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATA > > IT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN > TRIAGE OR SURGERY FOR A GUNSHOT WOUND > > I WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. > I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE > GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATE > > THE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER > ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN > ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE. > WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A > HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, > AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE > COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED > ALONE'' AMONGST YOUR LOVED ONES. > > AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME > TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND > I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A > WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I > FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT! > > FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL > AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION, > WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO > ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 > MILLION UNITS > > LET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND > TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND > SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I > REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE > THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE > MYSELF > > FAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE > LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE > AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT > UNDER THE CIRCUMSTANCES VL WAS O > > TAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. > MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME > TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL. > > ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. > HIS OPINION > I HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS > POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURES > MY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING > THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTION > > DO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE > TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE > NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME > TO BLEED OUT. > > I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE?? > > PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE > STORY > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I have never been forcefully removed from a hospital lol But sounds like fun lol . You sounded like so many of the other vets I have worked with over the last 15yrs that I knew immediately that you had been there . I have spent a night or two in jail though , unpaid tickets lol I am off to bed now . Good night ...... THE REST OF THE STORY> > > PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRY> > ITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING > RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATA> > IT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN > TRIAGE OR SURGERY FOR A GUNSHOT WOUND> > I WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. > I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE > GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATE> > THE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER > ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN > ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE.> WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A > HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, > AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE > COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED > ALONE'' AMONGST YOUR LOVED ONES.> > AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME > TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND > I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A > WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I > FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT!> > FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL > AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION,> WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO > ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 > MILLION UNITS> > LET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND > TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND > SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I > REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE > THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE > MYSELF> > FAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE > LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE > AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT > UNDER THE CIRCUMSTANCES VL WAS O> > TAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. > MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME > TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL.> > ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. > HIS OPINION> I HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS > POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURES> MY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING > THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTION> > DO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE > TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE > NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME > TO BLEED OUT.> > I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE??> > PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE > STORY> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Thank you for sharing your story Glenn, I am sure that all of us, will be waiting with bated breath, to hear the rest of the story as it progresses. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 2:28 AM PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRYITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATAIT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN TRIAGE OR SURGERY FOR A GUNSHOT WOUNDI WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATETHE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE.WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED ALONE'' AMONGST YOUR LOVED ONES.AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT!FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION,WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 MILLION UNITSLET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE MYSELFFAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT UNDER THE CIRCUMSTANCES VL WAS OTAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL.ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. HIS OPINIONI HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURESMY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTIONDO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME TO BLEED OUT.I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE??PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE STORY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Agreed Bob. I am going to re-treat for the 3rd time. And I will do it till I beat this dragon. No matter what happens I am going to beat this one way or another. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: Re: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 3:16 AM i think most of us here are here because we have already made that decision. it is plain and simple a fight for life and a fight to kill the disease that want's to kill us and for that reason we are willing to suffer through tx and sometimes do it 2 or 3 or more times. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 She is isn't she. She is my inspriration to keep going. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: Re: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 3:29 AM elizibeth, you are one of the bravest people i have ever met. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Just might have to try that with my doctor. LOL Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: Re: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 3:59 AM I AM A VIET NAM VETTOMMY WAS MY BROTHER AND HE ALSO DIED ALONE,CONFUSED, SCARED AND I WAS HOLDING ONE HAND AND MOM WAS HOLDING THE OTHERAS LONG AS YOU HAVE THE HEART TO RETREAT KICK, SCREAM AND DEMAND. IT WILL WORK. WORSE CASE IS OVERNITE IN JAIL AND EVEN THAT WILL GET THEIR ATTENTIONaLSO GETTING PHYSICALLY REMOVED FROM A HOSPITAL OR A VA FACILITY BY RENT A COPS CAN BE INTRESTING-- --OR SO I HAVE HEARD>> Sounds like your a Viet Nam Vet ? My brother died alone , scared and strapped to a hospital bed when he was 28 on Christmas day not long after coming home from Viet Nam . The number of Viet Nam vets with hepatitis c is nearly 750,000 , and the VA for many yrs wouldn't take care of you boys it took many many people fighting for your rights and to pinpoint where the government went wrong . The oversea's vaccines were the culpret . But I can understand you wanting to fight no matter what . I have been diagnosed for 24yrs now , and have done tx once and tried 4 times after that to treat with no luck ....but I will keep trying and trying . So if it were me , yes I would fight and fight to keep treatment . And I still do each time I see my doc I ask lol . Watching first hand what liver failure can do and what it looks like ....I know for damn sure I don't want to go that way either .> [Hepatitis_C_ Central] THE REST OF THE STORY> > > PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRY> > ITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING > RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATA> > IT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN > TRIAGE OR SURGERY FOR A GUNSHOT WOUND> > I WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. > I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE > GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATE> > THE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER > ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN > ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE.> WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A > HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, > AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE > COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED > ALONE'' AMONGST YOUR LOVED ONES.> > AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME > TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND > I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A > WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I > FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT!> > FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL > AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION,> WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO > ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 > MILLION UNITS> > LET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND > TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND > SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I > REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE > THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE > MYSELF> > FAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE > LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE > AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT > UNDER THE CIRCUMSTANCES VL WAS O> > TAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. > MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME > TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL.> > ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. > HIS OPINION> I HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS > POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURES> MY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING > THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTION> > DO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE > TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE > NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME > TO BLEED OUT.> > I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE??> > PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE > STORY> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Oh my, Liz a jail house babe. This I got to see. Love Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber Subject: Re: Re: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 4:06 AM I have never been forcefully removed from a hospital lol But sounds like fun lol . You sounded like so many of the other vets I have worked with over the last 15yrs that I knew immediately that you had been there . I have spent a night or two in jail though , unpaid tickets lol I am off to bed now . Good night ...... [Hepatitis_C_ Central] THE REST OF THE STORY> > > PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRY> > ITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING > RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATA> > IT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN > TRIAGE OR SURGERY FOR A GUNSHOT WOUND> > I WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. > I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE > GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATE> > THE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER > ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN > ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE.> WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A > HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, > AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE > COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED > ALONE'' AMONGST YOUR LOVED ONES.> > AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME > TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND > I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A > WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I > FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT!> > FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL > AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION,> WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO > ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 > MILLION UNITS> > LET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND > TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND > SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I > REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE > THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE > MYSELF> > FAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE > LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE > AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT > UNDER THE CIRCUMSTANCES VL WAS O> > TAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. > MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME > TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL.> > ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. > HIS OPINION> I HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS > POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURES> MY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING > THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTION> > DO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE > TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE > NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME > TO BLEED OUT.> > I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE??> > PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE > STORY> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Oh yeah I was a neglegent girl in my youth lol [Hepatitis_C_ Central] THE REST OF THE STORY> > > PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRY> > ITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING > RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATA> > IT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN > TRIAGE OR SURGERY FOR A GUNSHOT WOUND> > I WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. > I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE > GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATE> > THE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER > ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN > ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE.> WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A > HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, > AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE > COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED > ALONE'' AMONGST YOUR LOVED ONES.> > AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME > TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND > I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A > WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I > FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT!> > FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL > AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION,> WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO > ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 > MILLION UNITS> > LET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND > TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND > SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I > REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE > THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE > MYSELF> > FAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE > LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE > AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT > UNDER THE CIRCUMSTANCES VL WAS O> > TAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. > MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME > TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL.> > ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. > HIS OPINION> I HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS > POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURES> MY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING > THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTION> > DO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE > TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE > NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME > TO BLEED OUT.> > I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE??> > PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE > STORY> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Bob, I totally agree with you on that! Subject: Re: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 1:29 AM elizibeth, you are one of the bravest people i have ever met. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 God Bless you Glenn,, you're so courageous and IM so glad you here at our forum! hugs jax Subject: THE REST OF THE STORYTo: Hepatitis_C_Central Date: Friday, December 19, 2008, 12:28 AM PLEASE RANT ABOUT THE EPIDEMIC OF HEP C IN THIS COUNTRYITS A DISEASE MOST PREVALENT AMONG VETERANS, ALTHOUGH IT'S BECOMING RAMPANT ACROSS ALL CLASS LINES AND SOCIAL STRATAIT IS NOT A 'DIRTY DISEASE' ITS HARD TO TELL BUT I GOT IT EITHER IN TRIAGE OR SURGERY FOR A GUNSHOT WOUNDI WAS INFECTED FOR CLOSE TO 30 YEARS BEFORE THE VA FOUND I WAS SICK. I HAD DOZENS OF BLOOD TESTS IN THOSE YEARS AND IT WAS NEVER ID'D. THE GENERAL MEDICAL COMMUNITY DOESN'T TEST FOR IT UNTIL IT'S TOO LATETHE TREATMENT IS WORSE THAN THE DISEASE, BUT YOU GET TO FEEL BETTER ASAP AFTER THE TREATMENT STOPS AND WITH THE TREATMENT YOU HAVE AN ACCEPTABLE CHANCE AT A NORMAL REMAINDER /QUALITY OF LIFE.WITH OUT THE TREATMENT WE LIVE HALFWAY TO POTENTIAL AND THEN DIE A HEART BREAKING, CONFUSED DEATH, STRAPPED TO A BED OR A WHEELCHAIR, AND SEEING, BUT NOT UNDERSTANDING WHO ALL THE HEARTBROKEN FOLK ARE COMING IN AND OUT OF YOUR ROOM AND THEN YOU DIE, LOST, CONFUSED ALONE'' AMONGST YOUR LOVED ONES.AT LEAST TOMMY REMEMBERED ME UNTIL THE LAST MOMENTS AND HE BEGGED ME TO TAKE HIM HOME, BECAUSE HE KNEW I WOULD CUT HIS SHACKLES AWAY AND I COULD/WOULD TAKE HIM HOME, CONSEQUENCES BE DAMNED. I WAS, AM A WARRIOR. I LOST HIM (PHYSICALLY) SHORTLY THERE AFTER, BUT SOMETIMES I FIND MYSELF TURNING TO ASK HIS OPINION ON THIS OR THAT!FAST FORWARD 10 OR 12 YEARS, CIRCA 2003, WENT TO VETERANS HOSPITAL AND NEXT DAY WAS TOLD I HAVE AN ACTIVE GENO1 HEPATITIS C INFECTION,WAS DECIDED I WAS INFECTED DURING TRIAGE OR SURGERY FOR GUNSHOT TO ABDOMEN, PROBABLY 30SOME YEARS AGO. CARRYING VL OF ROUGHLY 3 3/4 MILLION UNITSLET THE CIRCUS BEGIN LIVER DOCTOR EXPLAINING THE DISEASE AND TREATMENT, SHRINK EXPLAINING THE SIDES AND PERSONALITY CHANGES AND SERIOUS CHANCE OF SUICIDE AMONG VETERANS TAKING THE TX ( IF I REMEMBER CORRECTLY IT IS IN THE 30% RANGE) NOT AN ISSUE, AS I BELIEVE THERE ARE A LOT OF PEOPLE THAT NEED TO LEAVE THIS TERRA FIRMA BEFORE MYSELFFAST FORWARD ANOTHER 6 MONTHS, WAS ON MY WAY HOME FROM THE LEAVENWORTH, PHONE RINGS, LIVER DOCTOR SAYS STOP ALL TREATMENT, HAVE AN UNTREATABLE BLOOD ISSUE, SO SORRY BUT SHE WON'T CONTINUE TREATMENT UNDER THE CIRCUMSTANCES VL WAS OTAKES TWO DAYS TO FORM A PLAN, WHICH IS I AM NOT QUITTING. LADY KATE. MY SHRINK. AND THE LIVER DOCTOR, ARE NOT HAPPY, BUT AGREE TO SEND ME TO AN ONCOLOGIST AT ANOTHER VA HOSPITAL.ABOUT TWO HOURS OF CONVERSATIONS LATER THE DECISION IS MADE. HIS OPINIONI HAVE MADE MYSELF VERY KNOWLEGEABLE ABOUT THE DISEASE AND ITS POSSIBILITIES FOR TREATMENT , BOTH SUCCESS AND FAILURESMY UNIQUE ISSUE IS THE INABILITY OF MY BLOOD TO CLOT WHILE INJECTING THE CHEMO, WHICH BRINGS OUT THE MOST SIMPLE QUESTIONDO I WANT TO DIE IN A HOSPITAL BED, LOST, CONFUSED, ALONE AND UNABLE TO CONTROL MY OWN DESTINY; OR KEEP SOME MODICUM OF CONTROL DURING THE NEXT 48 WEEKS AND ONLY DIE IF SOME CATASTROPHIC SITUATION CAUSES ME TO BLEED OUT.I THINK YOU KNOW MY CHOICE, WHAT WOULD YOURS BE??PLEASE RESPOND AND I WILL TELL YOU THE PAUL HARVEY, THE REST OF THE STORY Quote Link to comment Share on other sites More sharing options...
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