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Sorry guys I haven't been on here lately. We have been having problems with our

roadrunner so we now have a new account with sbc instead. I want to welcome all

the new members and say hi and miss you to all the others. You guys are great

support. I am having a flare right now. Haven't been on my mtx for over a

month as I have been fighting bronchitis. I will try to get caught up on all

the messages as soon as possible.

Thanks

Angie

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Hi Angie,

Glad your back, sorry about your flare. I have been away for quite

awhile too. My prayers are with you, Tawny

>

> Sorry guys I haven't been on here lately. We have been having

problems with our roadrunner so we now have a new account with sbc

instead. I want to welcome all the new members and say hi and miss

you to all the others. You guys are great support. I am having a

flare right now. Haven't been on my mtx for over a month as I have

been fighting bronchitis. I will try to get caught up on all the

messages as soon as possible.

>

> Thanks

> Angie

>

>

>

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  • 11 months later...
Guest guest

Just out of curiosity...could the breastfeeding be hindering his speech

development? I only ask because I know the use of sippy cups past 2 yrs can

cause speech problems, so was wondering if it was along the same line?

debjward <debjward@...> wrote:

My son is 3 years 9 mos now. He has been in therapy since he was 30

mos. He can't say anymore words other than " mama " , " dada " , " nana " ,

and " no " but his approximations have really increased! (For example he

says " oh-ee " for his brother " " and he now knows he has a name (he

says it unintelligibly) rather than call himself " baba " or " bobby " .

He just had an MRI and the results came back within normal range. His

blood work showed he is only low normal for carnitine!?! This child

hardly eats anything and still breastfeeds. It must be the power of

breastmilk that keeps him healthy! (I stopped all supplementation for 2

months so his blood tests wouldn't be affected.)

We are going to try a different supplement to get some omegas in my son:

http://www.omega3powder.com/

He is still a resistent eater but we're hopeful he will accept this.

We bought a Go Talk Four+. Hopefully in addition to the PECS book it

will help my son communicate.

United Healthcare HMO is still paying for speech therapy! My son was

reevaluated. His receptive language is a year behind and he wasn't

tested for expressive. He still can't move his tongue from side to side

or stick it out. None of our doctors can tell us anything. It's

frutrating not to have a diagnosis. To not know what's wrong.

Sincerely,

Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

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Guest guest

Absolutely not. In fact all the literature says breastfeeding helps

develop the jaw and facial muscles. I never heard about sippy cups

and speech other than they cause dental problems.

> My son is 3 years 9 mos now. He has been in therapy since

he was 30

> mos. He can't say anymore words other than " mama " , " dada " , " nana " ,

> and " no " but his approximations have really increased! (For example

he

> says " oh-ee " for his brother " " and he now knows he has a name

(he

> says it unintelligibly) rather than call himself " baba " or " bobby " .

>

> He just had an MRI and the results came back within normal range.

His

> blood work showed he is only low normal for carnitine!?! This child

> hardly eats anything and still breastfeeds. It must be the power of

> breastmilk that keeps him healthy! (I stopped all supplementation

for 2

> months so his blood tests wouldn't be affected.)

>

> We are going to try a different supplement to get some omegas in my

son:

>

> http://www.omega3powder.com/

>

> He is still a resistent eater but we're hopeful he will accept this.

>

> We bought a Go Talk Four+. Hopefully in addition to the PECS book

it

> will help my son communicate.

>

> United Healthcare HMO is still paying for speech therapy! My son

was

> reevaluated. His receptive language is a year behind and he wasn't

> tested for expressive. He still can't move his tongue from side to

side

> or stick it out. None of our doctors can tell us anything. It's

> frutrating not to have a diagnosis. To not know what's wrong.

>

> Sincerely,

> Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

>

>

>

>

>

>

>

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Guest guest

ok. it wasn't meant to critique your choice in anyway. didn't intend to offend

you at all.

debjward <debjward@...> wrote: Absolutely not. In fact all the

literature says breastfeeding helps

develop the jaw and facial muscles. I never heard about sippy cups

and speech other than they cause dental problems.

> My son is 3 years 9 mos now. He has been in therapy since

he was 30

> mos. He can't say anymore words other than " mama " , " dada " , " nana " ,

> and " no " but his approximations have really increased! (For example

he

> says " oh-ee " for his brother " " and he now knows he has a name

(he

> says it unintelligibly) rather than call himself " baba " or " bobby " .

>

> He just had an MRI and the results came back within normal range.

His

> blood work showed he is only low normal for carnitine!?! This child

> hardly eats anything and still breastfeeds. It must be the power of

> breastmilk that keeps him healthy! (I stopped all supplementation

for 2

> months so his blood tests wouldn't be affected.)

>

> We are going to try a different supplement to get some omegas in my

son:

>

> http://www.omega3powder.com/

>

> He is still a resistent eater but we're hopeful he will accept this.

>

> We bought a Go Talk Four+. Hopefully in addition to the PECS book

it

> will help my son communicate.

>

> United Healthcare HMO is still paying for speech therapy! My son

was

> reevaluated. His receptive language is a year behind and he wasn't

> tested for expressive. He still can't move his tongue from side to

side

> or stick it out. None of our doctors can tell us anything. It's

> frutrating not to have a diagnosis. To not know what's wrong.

>

> Sincerely,

> Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

>

>

>

>

>

>

>

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Guest guest

My daughter has improved to average for her age with her speech. And

up until last month she was still nursing 5 - 10 times a day. We did

use a straw for other drinks though. But my thoughts would be that it

would help nutritionally, and it didn't hurt my daughters speech

development.

Crystal

> My son is 3 years 9 mos now. He has been in therapy since

he was 30

> mos. He can't say anymore words other than " mama " , " dada " , " nana " ,

> and " no " but his approximations have really increased! (For example he

> says " oh-ee " for his brother " " and he now knows he has a name (he

> says it unintelligibly) rather than call himself " baba " or " bobby " .

>

> He just had an MRI and the results came back within normal range. His

> blood work showed he is only low normal for carnitine!?! This child

> hardly eats anything and still breastfeeds. It must be the power of

> breastmilk that keeps him healthy! (I stopped all supplementation for 2

> months so his blood tests wouldn't be affected.)

>

> We are going to try a different supplement to get some omegas in my son:

>

> http://www.omega3powder.com/

>

> He is still a resistent eater but we're hopeful he will accept this.

>

> We bought a Go Talk Four+. Hopefully in addition to the PECS book it

> will help my son communicate.

>

> United Healthcare HMO is still paying for speech therapy! My son was

> reevaluated. His receptive language is a year behind and he wasn't

> tested for expressive. He still can't move his tongue from side to side

> or stick it out. None of our doctors can tell us anything. It's

> frutrating not to have a diagnosis. To not know what's wrong.

>

> Sincerely,

> Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

>

>

>

>

>

>

>

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Guest guest

Breastfeeding will absolutely NOT cause problems with speech. The muscles

used to suck while breastfeeding actually strengthen the mouth and palate,

making it better for speech. I'm a trained breastfeeding counselor, so I just

thought I'd throw that out there. My oldest ds was breastfed until 4 1/2

years and does have apraxia and asbergers, but it was not the breastfeeding.

He

actually was physically unable to suck from both a bottle and a sippy cup.

My dd is almost 3 and still breastfeeds frequently and started speaking at 6

months. No kidding! Sippy cups are bad for speech but I can't remember why

but extended breastfeeding is fine.

Fran

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

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I was told too not to give my daughter a sippy cup after 2 because sippy cups

make the tongue go into a suckle position. We were told to drop the pacifier

for the same reason, tongue placement. We stopped both immediately and are only

using straws for drinking. Ask your speech therapist to confirm.

[ ] Re: Long time no post

Absolutely not. In fact all the literature says breastfeeding helps

develop the jaw and facial muscles. I never heard about sippy cups

and speech other than they cause dental problems.

> My son is 3 years 9 mos now. He has been in therapy since

he was 30

> mos. He can't say anymore words other than " mama " , " dada " , " nana " ,

> and " no " but his approximations have really increased! (For example

he

> says " oh-ee " for his brother " " and he now knows he has a name

(he

> says it unintelligibly) rather than call himself " baba " or " bobby " .

>

> He just had an MRI and the results came back within normal range.

His

> blood work showed he is only low normal for carnitine!?! This child

> hardly eats anything and still breastfeeds. It must be the power of

> breastmilk that keeps him healthy! (I stopped all supplementation

for 2

> months so his blood tests wouldn't be affected.)

>

> We are going to try a different supplement to get some omegas in my

son:

>

> http://www.omega3po wder.com/

>

> He is still a resistent eater but we're hopeful he will accept this.

>

> We bought a Go Talk Four+. Hopefully in addition to the PECS book

it

> will help my son communicate.

>

> United Healthcare HMO is still paying for speech therapy! My son

was

> reevaluated. His receptive language is a year behind and he wasn't

> tested for expressive. He still can't move his tongue from side to

side

> or stick it out. None of our doctors can tell us anything. It's

> frutrating not to have a diagnosis. To not know what's wrong.

>

> Sincerely,

> Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

>

>

>

>

>

>

>

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Guest guest

I'm not offended in the least; you were sharing information which is

why I come here! I want to wean my son eventually but I worry. He

eats very little. Today he ate 4 marshmallows from his Lucky Charms

cereal. For lunch he had 1/4 cup of macaroni and and cheese and some

sips of lemonade. For a snack he ate the cream filling from 2

Newman's Own Oreo type cookies. He ate a breaded hambuger patty for

dinner. He drank water too. This is a lot for him in one day! My

husband thinks he will start eating once he is weaned but our

pediatrician and neurologist think he will not start eating. My son

is one of those children who doesn't seem to know when to eat.

My son never babbled at 1 and never had words at 2 and now after 15

mos of therapy has started having 4-5 word approximation

conversations. His siblings all used sippy cups and had no language

problems. My youngest is unique in his challenges.

> > My son is 3 years 9 mos now. He has been in therapy since

> he was 30

> > mos. He can't say anymore words other

than " mama " , " dada " , " nana " ,

> > and " no " but his approximations have really increased! (For

example

> he

> > says " oh-ee " for his brother " " and he now knows he has a

name

> (he

> > says it unintelligibly) rather than call himself " baba "

or " bobby " .

> >

> > He just had an MRI and the results came back within normal range.

> His

> > blood work showed he is only low normal for carnitine!?! This

child

> > hardly eats anything and still breastfeeds. It must be the power

of

> > breastmilk that keeps him healthy! (I stopped all supplementation

> for 2

> > months so his blood tests wouldn't be affected.)

> >

> > We are going to try a different supplement to get some omegas in

my

> son:

> >

> > http://www.omega3powder.com/

> >

> > He is still a resistent eater but we're hopeful he will accept

this.

> >

> > We bought a Go Talk Four+. Hopefully in addition to the PECS book

> it

> > will help my son communicate.

> >

> > United Healthcare HMO is still paying for speech therapy! My son

> was

> > reevaluated. His receptive language is a year behind and he

wasn't

> > tested for expressive. He still can't move his tongue from side

to

> side

> > or stick it out. None of our doctors can tell us anything. It's

> > frutrating not to have a diagnosis. To not know what's wrong.

> >

> > Sincerely,

> > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> >

> >

> >

> >

> >

> >

> >

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Guest guest

Extended nursing did help strengthen my son's facial/jaw muscles. His

SLP could not get over how strong his jaw muscles were at 2.6 years

of age. Here's a link to a site that has a list of at least 12

hyperlinks to research articles regarding breast feeding and speech

http://www.kellymom.com/bf/normal/speech-development.html

As for sippy cup use and speech there is some controversy. Here's an

article regarding sippy cups related to speech that might be helpful -

http://www.ocfamily.com/archives/ocfamily_2002/ocfamily090102/early_ye

ars_090102.html

Debra, I just want to say that you are obviously a very dedicated

mom. You are giving your son a very precious gift by being so

committed to his care. Take heart in that and keep going. I want

you to know that I occasionally watch films of my son who is now 5.11

years old when he was 2 or 3 or 4 and I can't believe how far he has

come. At age 3 I painfully remember MANY nights wondering if he

would ever have more than a handful of words. Now, sometimes at the

dinner table we have to ask him to talk LESS and eat MORE! Every

time I do it I shake my head and remember those hours of worry I put

myself through. Of course we tell him that we LOVE talking to him

but he needs to take bites between the words! :) I think the day

that I started breathing again was the day that I accepted that no

matter how many words my beautiful child had he would still be OKAY.

Take care and take joy in the bond you are forming with him.

All the best,

McCann

> > My son is 3 years 9 mos now. He has been in therapy

since

> he was 30

> > mos. He can't say anymore words other

than " mama " , " dada " , " nana " ,

> > and " no " but his approximations have really increased! (For

example

> he

> > says " oh-ee " for his brother " " and he now knows he has a

name

> (he

> > says it unintelligibly) rather than call himself " baba "

or " bobby " .

> >

> > He just had an MRI and the results came back within normal range.

> His

> > blood work showed he is only low normal for carnitine!?! This

child

> > hardly eats anything and still breastfeeds. It must be the power

of

> > breastmilk that keeps him healthy! (I stopped all supplementation

> for 2

> > months so his blood tests wouldn't be affected.)

> >

> > We are going to try a different supplement to get some omegas in

my

> son:

> >

> > http://www.omega3powder.com/

> >

> > He is still a resistent eater but we're hopeful he will accept

this.

> >

> > We bought a Go Talk Four+. Hopefully in addition to the PECS book

> it

> > will help my son communicate.

> >

> > United Healthcare HMO is still paying for speech therapy! My son

> was

> > reevaluated. His receptive language is a year behind and he

wasn't

> > tested for expressive. He still can't move his tongue from side

to

> side

> > or stick it out. None of our doctors can tell us anything. It's

> > frutrating not to have a diagnosis. To not know what's wrong.

> >

> > Sincerely,

> > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> >

> >

> >

> >

> >

> >

> >

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Guest guest

I just wanted to make sure I didn't hit a touchy subject (which to

any b/fing mom's..you do what's best for your child...that's why your

the mom). I'm sorry to hear about the eating problems. My sister

went thru similar issues. Teeny tiny pieces of things helped in her

situation.

good luck to you-

-- In , " debjward " <debjward@...>

wrote:

>

> I'm not offended in the least; you were sharing information which

is

> why I come here! I want to wean my son eventually but I worry. He

> eats very little. Today he ate 4 marshmallows from his Lucky Charms

> cereal. For lunch he had 1/4 cup of macaroni and and cheese and

some

> sips of lemonade. For a snack he ate the cream filling from 2

> Newman's Own Oreo type cookies. He ate a breaded hambuger patty for

> dinner. He drank water too. This is a lot for him in one day! My

> husband thinks he will start eating once he is weaned but our

> pediatrician and neurologist think he will not start eating. My son

> is one of those children who doesn't seem to know when to eat.

>

> My son never babbled at 1 and never had words at 2 and now after 15

> mos of therapy has started having 4-5 word approximation

> conversations. His siblings all used sippy cups and had no language

> problems. My youngest is unique in his challenges.

>

>

> > > My son is 3 years 9 mos now. He has been in therapy since

> > he was 30

> > > mos. He can't say anymore words other

> than " mama " , " dada " , " nana " ,

> > > and " no " but his approximations have really increased! (For

> example

> > he

> > > says " oh-ee " for his brother " " and he now knows he has a

> name

> > (he

> > > says it unintelligibly) rather than call himself " baba "

> or " bobby " .

> > >

> > > He just had an MRI and the results came back within normal

range.

> > His

> > > blood work showed he is only low normal for carnitine!?! This

> child

> > > hardly eats anything and still breastfeeds. It must be the

power

> of

> > > breastmilk that keeps him healthy! (I stopped all

supplementation

> > for 2

> > > months so his blood tests wouldn't be affected.)

> > >

> > > We are going to try a different supplement to get some omegas

in

> my

> > son:

> > >

> > > http://www.omega3powder.com/

> > >

> > > He is still a resistent eater but we're hopeful he will accept

> this.

> > >

> > > We bought a Go Talk Four+. Hopefully in addition to the PECS

book

> > it

> > > will help my son communicate.

> > >

> > > United Healthcare HMO is still paying for speech therapy! My

son

> > was

> > > reevaluated. His receptive language is a year behind and he

> wasn't

> > > tested for expressive. He still can't move his tongue from side

> to

> > side

> > > or stick it out. None of our doctors can tell us anything. It's

> > > frutrating not to have a diagnosis. To not know what's wrong.

> > >

> > > Sincerely,

> > > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

Hello,

I think I may be missing some messages in this link but wanted to jump in. I

have 3 children all dx with apraxia. Currently I am looking for a speech path

for my little one although not having much luck. We are no longer in the area

where we had excellent prompt and there is no one in my area trained and very

few in area that I have found with experience with apraxia. Those with

experience are all full. Anyways that I not why I am jumping in. All 3 of my

children have been breastfed. My older for 13 months (had trouble sucking and

weaned himself). My second for just over 4 years (all my children have SID and

extreme over foods so I loved that he breastfed so he was getting what he

needed). My third is 14 months and breastfeeding. Breastfeeding is excellent

for jaw development and breastfed babies usually speak earlier. As I am sure

you know all the health benefits for breastfeeding both for your child and

yourself. There is no coorelation between breastfeeding

and lack of communication to my knowledge. My youngest is very low tone (along

with my other two) but also in her mouth so she is constantly drooling. She

also cannot sip from a cup or straw because she hasn't figured out to coordinate

the two to sip and swallow (all motorplanning).

Sincerely,

8 apraxia, SID, DCD, Hypotonia (resolved)

6 apraxia, SID, DCD, Hypotonia, (resolved) feeding

14 month apraxia, SID, Hypotonia, feeding

-----

> >

> > Just out of curiosity... could the breastfeeding be hindering his

> speech development? I only ask because I know the use of sippy cups

> past 2 yrs can cause speech problems, so was wondering if it was

> along the same line?

> >

> >

> >

> > debjward <debjward@> wrote:

> > My son is 3 years 9 mos now. He has been in therapy since

> he was 30

> > mos. He can't say anymore words other

than " mama " , " dada " , " nana " ,

> > and " no " but his approximations have really increased! (For

example

> he

> > says " oh-ee " for his brother " " and he now knows he has a

name

> (he

> > says it unintelligibly) rather than call himself " baba "

or " bobby " .

> >

> > He just had an MRI and the results came back within normal range.

> His

> > blood work showed he is only low normal for carnitine!?! This

child

> > hardly eats anything and still breastfeeds. It must be the power

of

> > breastmilk that keeps him healthy! (I stopped all supplementation

> for 2

> > months so his blood tests wouldn't be affected.)

> >

> > We are going to try a different supplement to get some omegas in

my

> son:

> >

> > http://www.omega3po wder.com/

> >

> > He is still a resistent eater but we're hopeful he will accept

this.

> >

> > We bought a Go Talk Four+. Hopefully in addition to the PECS book

> it

> > will help my son communicate.

> >

> > United Healthcare HMO is still paying for speech therapy! My son

> was

> > reevaluated. His receptive language is a year behind and he

wasn't

> > tested for expressive. He still can't move his tongue from side

to

> side

> > or stick it out. None of our doctors can tell us anything. It's

> > frutrating not to have a diagnosis. To not know what's wrong.

> >

> > Sincerely,

> > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> >

> >

> >

> >

> >

> >

> >

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Guest guest

Hi :

Thanks for sharing your info. I had a quick question. I noticed at

the bottom of your post for your 8 and 6 year olds that you noted

resolved. Does that mean that they do not have the apraxia, low tone

and other issues any longer? If so, it truly is good to hear. I

have an 18 mo old with low tone (diagnosed) and probably apraxia (not

yet diagnosed). It would just be nice to hear that these issues can

be resolved.

Kind regards,

Ann

> > > My son is 3 years 9 mos now. He has been in therapy since

> > he was 30

> > > mos. He can't say anymore words other

> than " mama " , " dada " , " nana " ,

> > > and " no " but his approximations have really increased! (For

> example

> > he

> > > says " oh-ee " for his brother " " and he now knows he has a

> name

> > (he

> > > says it unintelligibly) rather than call himself " baba "

> or " bobby " .

> > >

> > > He just had an MRI and the results came back within normal

range.

> > His

> > > blood work showed he is only low normal for carnitine!?! This

> child

> > > hardly eats anything and still breastfeeds. It must be the

power

> of

> > > breastmilk that keeps him healthy! (I stopped all

supplementation

> > for 2

> > > months so his blood tests wouldn't be affected.)

> > >

> > > We are going to try a different supplement to get some omegas

in

> my

> > son:

> > >

> > > http://www.omega3po wder.com/

> > >

> > > He is still a resistent eater but we're hopeful he will accept

> this.

> > >

> > > We bought a Go Talk Four+. Hopefully in addition to the PECS

book

> > it

> > > will help my son communicate.

> > >

> > > United Healthcare HMO is still paying for speech therapy! My

son

> > was

> > > reevaluated. His receptive language is a year behind and he

> wasn't

> > > tested for expressive. He still can't move his tongue from side

> to

> > side

> > > or stick it out. None of our doctors can tell us anything. It's

> > > frutrating not to have a diagnosis. To not know what's wrong.

> > >

> > > Sincerely,

> > > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

please stop sending me these emails i only trash them so your wasting your time

stop

kayce_the_nut <kayce_the_nut@...> wrote: I just wanted to make

sure I didn't hit a touchy subject (which to

any b/fing mom's..you do what's best for your child...that's why your

the mom). I'm sorry to hear about the eating problems. My sister

went thru similar issues. Teeny tiny pieces of things helped in her

situation.

good luck to you-

-- In , " debjward " <debjward@...>

wrote:

>

> I'm not offended in the least; you were sharing information which

is

> why I come here! I want to wean my son eventually but I worry. He

> eats very little. Today he ate 4 marshmallows from his Lucky Charms

> cereal. For lunch he had 1/4 cup of macaroni and and cheese and

some

> sips of lemonade. For a snack he ate the cream filling from 2

> Newman's Own Oreo type cookies. He ate a breaded hambuger patty for

> dinner. He drank water too. This is a lot for him in one day! My

> husband thinks he will start eating once he is weaned but our

> pediatrician and neurologist think he will not start eating. My son

> is one of those children who doesn't seem to know when to eat.

>

> My son never babbled at 1 and never had words at 2 and now after 15

> mos of therapy has started having 4-5 word approximation

> conversations. His siblings all used sippy cups and had no language

> problems. My youngest is unique in his challenges.

>

>

> > > My son is 3 years 9 mos now. He has been in therapy since

> > he was 30

> > > mos. He can't say anymore words other

> than " mama " , " dada " , " nana " ,

> > > and " no " but his approximations have really increased! (For

> example

> > he

> > > says " oh-ee " for his brother " " and he now knows he has a

> name

> > (he

> > > says it unintelligibly) rather than call himself " baba "

> or " bobby " .

> > >

> > > He just had an MRI and the results came back within normal

range.

> > His

> > > blood work showed he is only low normal for carnitine!?! This

> child

> > > hardly eats anything and still breastfeeds. It must be the

power

> of

> > > breastmilk that keeps him healthy! (I stopped all

supplementation

> > for 2

> > > months so his blood tests wouldn't be affected.)

> > >

> > > We are going to try a different supplement to get some omegas

in

> my

> > son:

> > >

> > > http://www.omega3powder.com/

> > >

> > > He is still a resistent eater but we're hopeful he will accept

> this.

> > >

> > > We bought a Go Talk Four+. Hopefully in addition to the PECS

book

> > it

> > > will help my son communicate.

> > >

> > > United Healthcare HMO is still paying for speech therapy! My

son

> > was

> > > reevaluated. His receptive language is a year behind and he

> wasn't

> > > tested for expressive. He still can't move his tongue from side

> to

> > side

> > > or stick it out. None of our doctors can tell us anything. It's

> > > frutrating not to have a diagnosis. To not know what's wrong.

> > >

> > > Sincerely,

> > > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

Do not worry about weaning to early...I have a 17month old with hypotonia too

andone of her specialists told me it wasn't beneficial for her anymore....she

will no longer be seeing my daughter....As for the eating, she will not feed

herself either and we still need to do that for her, but once we get past the

first spoonful, she does fairly well....I try to get her to finger feed but she

has no interest....As for the breast feeding, I generally pump and mix it with

Pediasure to make sure she is getting enough of her vitamins daily that she may

not be getting from her foods...her nutritionist felt that this would help her

maintain her weight so as to not create another problem for her....she was

diagnosed as failure to thrive from about 6mo on even though she had no problem

nursing and was gaining. The GI doctor labelled her before we knew it and now

it is all over her records and that is the first thing everyone wants to

classify her of which is frustrating...Back to the

breastfeeding, let your heart guide you and let your child decide when to

quite...nature ultimately will know what is best....

Debbie

---------------------------------

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  • 2 weeks later...
Guest guest

Have your child assessed for feeding issues. My son has gone to Eating

therapy for about a year now. This is something that needs intervention.

We now only have occasional choking episodes instead of routine episodes.

I exclusively breast fed him for 14 mo as well; he wouldn't take the bottle.

_____

From:

[mailto: ] On Behalf Of kayce_the_nut

Sent: Wednesday, March 21, 2007 1:42 PM

Subject: [ ] Re: Long time no post

I just wanted to make sure I didn't hit a touchy subject (which to

any b/fing mom's..you do what's best for your child...that's why your

the mom). I'm sorry to hear about the eating problems. My sister

went thru similar issues. Teeny tiny pieces of things helped in her

situation.

good luck to you-

-- In <mailto: %40>

, " debjward " <debjward@...>

wrote:

>

> I'm not offended in the least; you were sharing information which

is

> why I come here! I want to wean my son eventually but I worry. He

> eats very little. Today he ate 4 marshmallows from his Lucky Charms

> cereal. For lunch he had 1/4 cup of macaroni and and cheese and

some

> sips of lemonade. For a snack he ate the cream filling from 2

> Newman's Own Oreo type cookies. He ate a breaded hambuger patty for

> dinner. He drank water too. This is a lot for him in one day! My

> husband thinks he will start eating once he is weaned but our

> pediatrician and neurologist think he will not start eating. My son

> is one of those children who doesn't seem to know when to eat.

>

> My son never babbled at 1 and never had words at 2 and now after 15

> mos of therapy has started having 4-5 word approximation

> conversations. His siblings all used sippy cups and had no language

> problems. My youngest is unique in his challenges.

>

>

> > > My son is 3 years 9 mos now. He has been in therapy since

> > he was 30

> > > mos. He can't say anymore words other

> than " mama " , " dada " , " nana " ,

> > > and " no " but his approximations have really increased! (For

> example

> > he

> > > says " oh-ee " for his brother " " and he now knows he has a

> name

> > (he

> > > says it unintelligibly) rather than call himself " baba "

> or " bobby " .

> > >

> > > He just had an MRI and the results came back within normal

range.

> > His

> > > blood work showed he is only low normal for carnitine!?! This

> child

> > > hardly eats anything and still breastfeeds. It must be the

power

> of

> > > breastmilk that keeps him healthy! (I stopped all

supplementation

> > for 2

> > > months so his blood tests wouldn't be affected.)

> > >

> > > We are going to try a different supplement to get some omegas

in

> my

> > son:

> > >

> > > http://www.omega3po <http://www.omega3powder.com/> wder.com/

> > >

> > > He is still a resistent eater but we're hopeful he will accept

> this.

> > >

> > > We bought a Go Talk Four+. Hopefully in addition to the PECS

book

> > it

> > > will help my son communicate.

> > >

> > > United Healthcare HMO is still paying for speech therapy! My

son

> > was

> > > reevaluated. His receptive language is a year behind and he

> wasn't

> > > tested for expressive. He still can't move his tongue from side

> to

> > side

> > > or stick it out. None of our doctors can tell us anything. It's

> > > frutrating not to have a diagnosis. To not know what's wrong.

> > >

> > > Sincerely,

> > > Debra, homeschooling mom of 4 ages 10 (AS), 9, 7, and 45 mos

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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